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sunflmom
New Member


Date Joined Aug 2010
Total Posts : 5
   Posted 8/23/2010 1:25 PM (GMT -7)   
 
I went to see the doctor at the office where I will be having my sleep study done.  I was a little disappointed that when I mentioned I was newly diagnosed with fibro, she said to me "hmm I don't like that diagnosis"  and then "do YOU think you have fibromyalgia?"
Overall I really liked her, she listened to me, and was very kind and compassionate.  I just kind of got the impression that she isn't a "believer".  You know what I mean, one of the holdouts who don't see fibro as a "real" condition.
I just hope once all the tests are back I can finally get some kind of treatment plan going.  My pain is manageable right now.  I had a bad flare in July.  I'm pretty achy and sore, but I'm OK.  It's the absolute exhaustion I can't get past.
Carolyn
dx (so far): Fibromyalgia, GERD, IBS

Snue
Regular Member


Date Joined Feb 2005
Total Posts : 194
   Posted 8/23/2010 1:32 PM (GMT -7)   
Hi Carolyn,
I can relate about the doctor's attitudes.  My GP who sent me to the Rhemotologist, when I told him the Rhe. dx me with fms, he said "oh they dx everyone with that".  No other explination of the symptoms I was complaining to him about for a couple of years. I switched doctors!
I also had a sleep study and now use an oral appliance for upper airway restrictive syndrome (like sleep apnea).  It helps to a degree (I can drive to and from work without falling asleep driving, and I can pretty much make it through the day at work and work the whole time - which is better than how I was).  But once I am home the fibro exhaustioin kicks in and I am shot for the evening.
I just want to go to one doctor to treat my whole person.  Right now I go to a Rhem. for pain and gabepentin rx, the sleep doctor for sleep apnea, my gyn for some pain problems, and my regular GP for other stuff.  But I really want one doctor to come up with a whole treatment plan to deal with it all together.
I try a new doctor in Sept.  We'll see how it goes.
Susan

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/23/2010 2:36 PM (GMT -7)   
Hi sun, when I told my doctor that did my sleep study that I had fibro he looked kind of doubtful about it. After the sleep study he gave me my second diagnosis of fibromyalgia. Must have been something in the sleep study that convinced him. LOL Hope it all goes well for you.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

SillyMe2
Regular Member


Date Joined May 2010
Total Posts : 110
   Posted 8/23/2010 5:52 PM (GMT -7)   
Ok. never had one of these done.. but. do you guys actually fall asleep? I mean.. if I knew someone was watching me.. I couldn't sleep!!
DX: Fibro, PA (Psoriatic Arthritis), Psoriasis, Rosacea.
Formerly Savella, Now Lisinopril, Vit D, Prilosec, Ambien, LDN, Tart Cherry, DL-Phen

Snue
Regular Member


Date Joined Feb 2005
Total Posts : 194
   Posted 8/24/2010 6:18 AM (GMT -7)   
Re: sleep study, now I have had three. So my last one I was very prepared. No caffeine all day, no naps all day, I brought a reading light and a book (that helps me get to sleep more than tv does), I brought ear plugs also which helped. It is VERY hard to go to sleep, but they can get info even if you don't sleep the whole time. I also tried doing a lot of meditating to try and relax and sleep.
Good luck!

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 8/24/2010 6:55 AM (GMT -7)   
I would love to have a sleep study done, but I'm concerned about the number of times I wake up and need to pee. Do they have to remove all sorts of bells and whistles from you first? What a pain that would be.
DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily

RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 8/24/2010 10:02 AM (GMT -7)   
I've had two sleep studies and I was surprised that I could fall asleep, but I did. I'm so sleepy most of the time, I can fall asleep anywhere. They sort of half disconnect the cords when you have to go to the bathroom. They disconnect it from the wall, but not from your body. It is absolutely a great test to have, they discovered I didn't get any deep sleep during the night. There's not much they can do about that yet. But they discovered my sleep apnea and now I use a CPAP. It took a long time to get used to that, but it makes a big difference in how well I sleep. I figured the techs at the sleep lab have probably seen about everything and I didn't worry about my quirks. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea
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