vitamin D question

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GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 8/25/2010 6:20 AM (GMT -7)   
A very good friend has MS and is being checked for fibro now.  Her vit D level is a 2.  Her doc recomended calcium, magnesium and vit D from a compounding pharmacy.  She says her legs have been hurting a lot worse since she started taking this.  I can't remember if this is common or just something that popped up with her.  Anyone have any ideas?  Thanks in advance
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 

SillyMe2
Regular Member


Date Joined May 2010
Total Posts : 110
   Posted 8/25/2010 6:56 AM (GMT -7)   
Why from a compounding pharmacy? What are they using for a filler? What else is she on if anything? Lots to look at really. Vit D isn't really known to cause leg pain and if it is I haven't landed on it. It actually helped with the foot pain I was having. Level 2 at this time of year is beyond severe! Didn't even think they could register anything below 5?
DX: Fibro, PA (Psoriatic Arthritis), Psoriasis, Rosacea.
Formerly Savella, Now Lisinopril, Vit D, Prilosec, Ambien, LDN, Tart Cherry, DL-Phen

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/25/2010 7:00 AM (GMT -7)   
2? Yow! That's low.

How long has she been taking the supps now?

Although I can't imagine how pure calcium, magnesium and D would be causing more pain - since our bodies have to have them - I do wonder sometimes about the other ingredients that are used in making up the prescription. For instance, some people can't tolerate the titanium dioxide used in the ingredients, or something else. That's sort of rare - but worth mentioning.

This link goes to a pretty cool radio show about vitamin D from last year on The People's Pharmacy if you're interested.
http://www.peoplespharmacy.com/2009/02/07/672-vitamin-d/

Hope your friend starts feeling better soon. That level of two would have to make a person feel utterly TERRIBLE!
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 8/25/2010 7:06 AM (GMT -7)   
Thank You for the suggestion about the fillers!!
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/25/2010 7:38 AM (GMT -7)   
Hi Denise, has she talked to her doctor about the leg pain. My husband has MS and takes vitamin D. He has never had any pain from it. I hope she gets some answers soon.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/25/2010 10:37 AM (GMT -7)   
When I started taking more calcium, my leg-cramping stopped.  I know that's not the same as MS but calcium, magnesium and vitamin D shouldn't cause her problems.  I take all of this myself but it isn't compounded.  I think the girls are on to something when mentioning the fillers.
 
Sherrine

mysoulsings
Regular Member


Date Joined Aug 2010
Total Posts : 33
   Posted 8/25/2010 2:04 PM (GMT -7)   
Yikes! Level 2...

My Vitamin D was at Level 9 the first time it was checked. And people thought that was low! I did not have any problems with the Vitamin D prescription. I was on Vitamin D 50,000 IU softgels. I have never been on a Vitamin D compund. SillyMe brought up a very good point! She mentioned what the compounding pharmacy is using for a filler.
Wishing You A Pain Free Tomorrow :)

Dx: Fibro, Hashimoto Thyroiditis, Adrenal Fatigue, Migraines, GERD, IBS, Myofacial Pain, Degenerative Disc Disease, Osteoarthritis, Spinal Stenosis, Sciatica

Meds: Neurontin, Cyclobenzaprine, Xanax, Tramadol, Celebrex, Voltaren, Synthroid, Cytomel, Kapidex (as needed meds... Imitrex, Phenegran, Vicodin)

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 8/25/2010 3:40 PM (GMT -7)   
Could it be that the pharmacy was used to make insurance pay?  It's just a thought.  I remember when  I was pregnant, my doctor wrote a script so insurance would have to pay rather than paying for over the counter. 
 
I have never had any problems with high doses of vit d.  I hope your friend is feeling better real soon!!! 

javamommy77
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 8/25/2010 6:09 PM (GMT -7)   
ok i've heard the term a few times. What is a compound pharmacy?I've never heard of that before

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/25/2010 7:13 PM (GMT -7)   
There are certain pharmacies that make certain medications.  Most pharmacies get their drugs from pharmaceutical companies.  For example, I had an open wound for several months and it wouldn't heal no matter what I tried.  My doctor wrote a script for Dakin's solution.  I had never heard of this.  I took it to our compounding pharmacy and they made it for me.  I did ask CVS if they had Dakin's solution.  They said they could order it for me but they aren't a pharmacy that can make it themselves.  By the way, that solution healed that open wound!  I was so surprised. 
 
Today, I noticed on a neighboorhood Walgreen's marquee that they now compound medications!
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

javamommy77
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 8/25/2010 7:41 PM (GMT -7)   
thanks Sherrine. So how do I find out if the phamarcy is compound or not?

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 9/1/2010 6:00 AM (GMT -7)   
I gave her some plain vit D that she takes at dinner and at bed still taking the original in the am.  It is not the D.  She still hurts after the am pill so I am going to give her plain magnesium to go woth the D and see if that might be what does it.  I am doing this because I don't want her to quit the D, she really needs it.  I am also going to tell her about the malic acid/mag.  Thanks for your suggestions

luvskermit
Regular Member


Date Joined Jan 2010
Total Posts : 166
   Posted 9/1/2010 7:31 AM (GMT -7)   
I, too, was on the 50,000 IU softgels. My rheumatologist used it to bring my levels back to accceptable quickly. Didn't cause any pain. I had to go through two cycles before my levels were normal, and I started at an 11. I was told that at my level I could never bring my blood to normal using regular supplements, which is why I was given the prescription.

I will say that one of my symptoms is that my legs and arms ache. The vitamin D actually helped with that a bit, but didn't cure it.

Your friend should definitely check in with her doctor. Good luck!!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/1/2010 10:12 AM (GMT -7)   
Java, call the pharmacy and ask if they are a compounding pharmacy.
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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