What would yyou do?

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javamommy77
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Date Joined Aug 2010
Total Posts : 77
   Posted 8/28/2010 6:26 PM (GMT -7)   
So since my last dr's apt two weeks ago when I started the Savella my pain and fatigue has been so intense I cant get out of bed. Seriously i'm in so much pain I cant concentrate on anything.Well I called my dr yesterday because I hadnt slept all week even though I'm tired aand I havent been able to eat anything in over a week. They told me come right in
 
So I go in thinking they'll do something for me.I see my dr tell her what's going on and how bad I am she takes my blood pressure and she's like you're severly dehydrated are you even drinking anything. i told her I was as much as I could. I've lost 5 more pounds as well. So then she starts talking about wanting me to go to a cancer and blood dr because of my weight loss. umm ok
 
I did tell her withthe savella my jaw isnt hurting as much but that was it. so she goes onto say well what has worked for your pain before(since the tramadol isnt working at only 50mg) i told her vicodin and percocet has worked. i dont mind taking them as long as you're still looking for whats wrong with me. She spends about 10 minutes typing things into her computer turns around and says well let's try lexapro because it will make you feel like you've just exercised and you'll have energy shocked ummm ok?
 
I thought she'd have me head over to the hospital to get rehydrated but she didn't this is all she did! I went into the ER this morning they basically told me if I would've come by ambulance I'd be seen right away but I wasn't an emergency(my bp was 98/66 today) and that I'd have a long wait.She then told me i should go see a specialist in Vegas. I told her we only have state insurance and we live in AZ (vegas is the closest big city to us we're on the border)this is all the triage nurse.
 
I'm just so mad!I dont want to come in ny ambulance just to be seen but it looks like thats what it's coming down too. I've been drinking liquids all day(but I was before too)You could tell the triage nurse didnt believe me. I thought ER was supposed to go by importance? the other people in there didnt look any more hurt then me oh i dont know i'm just so frustrated.
 
I have my nuero dr apt on the 13th and i'm just so hoping he has some good news that he can find SOMETHING!no other dr's right now are taking any new patients. I'm at a lost.

getting by
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Total Posts : 40567
   Posted 8/28/2010 6:48 PM (GMT -7)   
Don't you think that the lexapro will help you? It is an antidepressant isn't it? She didn't give you anything for pain. Does she believe that you have pain?

You have about two weeks before your appointment with the nuero. Do you have a diagnosis? Is that what you are waiting for? I forget so easily, please overlook the fibrofog.

I sure do hope that you feel better soon. Try to relax. Being tense only makes it worse. Do you have pain in your shoulders and neck? I have most of mine there. I use a bed buddy to help me when it gets bad. It sure helps. Do you have one? You can get them at walgreens. They are called bed buddys. You heat them in a microwave and wrap around your neck. This is getting to the time of year that you start needing them. The nights are starting to get colder. But the heat relaxes your muscles and you feel so much better. I hold a lot of tension in my neck and shoulders. If I can relax those muscles, I can usually relax the rest of them.

I hope that you feel better soon.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

vestabula
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Date Joined Nov 2008
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   Posted 8/28/2010 7:18 PM (GMT -7)   

Please read the post by Moonmatrix that is half way down the first page...does it sound familiar to what you are experiencing?  I would not start adding more drugs to the mix until your issues are under control...just my opinion.  Savella causes weight loss in many people and other symptoms you are describing.  Lexapro is just another SSRI and should not be taken simply for fatigue...it is a powerful antidepressant with its own set of side effects.

Donna


GSDgirl
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Date Joined Mar 2010
Total Posts : 1286
   Posted 8/28/2010 7:25 PM (GMT -7)   
I honestly have no idea what I would do but I hope you get some answers soon!
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 

TheChickenPrincess
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Date Joined Jun 2010
Total Posts : 554
   Posted 8/28/2010 7:47 PM (GMT -7)   
Java - ditto what Vestabula / Donna just said! Please go read Moonmatrix's topic about Savella. Here it is: www.healingwell.com/community/default.aspx?f=24&m=1886335

I had NO IDEA when you posted about being so terribly bad off this week that you had just started the Savella. Ack. Not trying to be an alarmist, but I guess that's how I'm sounding, please take a look at her topic - look at the side effects of Savella on drugs.com - and then see another doctor asap.

Being dehydrated is serious. They should have put an iv drip on you right in the doc's office treatment room. They can do that. Idiot doctor! Until you can get to a doctor, have your hubby get you some gatorade (the one withOUT artificial sweeteners) - the one that is named G, but NOT G2. Drink some. My docs were adamant that I drink a LOT of it and a lot of water even after I had two separate episodes of getting IV drips last month. I'm still drinking some each day. It replaces elecrolytes - and all the water in the world won't help if your electrolytes are screwed up. If you can't get any gatorade, then eat ripe bananas - they have loads of potassium - which you may be low on if you're dehydrated - not sure since I was having different problems which is why I lost potassium (ibs), but I think it can't hurt for you to have some at this point.

((( Java ))) Let us know ?

Post Edited (TheChickenPrincess) : 8/28/2010 9:30:03 PM (GMT-6)


CajunGrl
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Date Joined Mar 2009
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   Posted 8/28/2010 11:05 PM (GMT -7)   
Geez! What in the world is wrong with these doctors and nurses NOT listening to their patients? Your BP was pretty low. I wonder why they didn't take you right in to the hospital? I can tell you that I was on Lexapro for two years and it did not give me any energy. I was more fatigued than ever, although, it did help me calm down and also helped my panic attacks. Everyone is different though. You may react different than I did.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds: Cymbalta, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement


Co-Moderator Lyme Disease Forum

javamommy77
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 8/28/2010 11:08 PM (GMT -7)   
I JUST read moonmatrix's post and had to not start crying it was hard. Yes I still dont have a dignosis that's what I'm waiting for and the only reason the lexapro was subscribed was to give me energy. and nope nothing for the pain. i just dont feel right about layering so many psych meds. even if it's only 2 i dont feel safe. I read up on lexapro for fibro and most the people on their said it did nothing for their pain and made some of them even MORE tired.

I think i'm going to make my own bed buddy or find one at walgreens.

I have my next appt with this dumb dr on the 9th but i seriously tink i'm going to call her monday and tell her nothing is better go in there and tell her if she's not going to take this pain seriously i'm finding another dr. it's all because the first dr in that clinic put depressed in my file. i'm sure of that.

i knew they could do the iv in office so why didnt she?


wondering if i should go into a walk in where no one knows me and see what the dr does for me? if the nuero apt is just as quacky then i'll try and find a new dr but they're so few and far between here. thanks ladies for letting me vent and yeah that other post scared the you know what out of me!

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 8/28/2010 11:13 PM (GMT -7)   
javamommy,

Have you tried gabepentin yet? It's been out for a while and it looks like some people are getting relief from their fibro pain. If Cymbalta does not work for me, I think I am going to try it.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds: Cymbalta, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement


Co-Moderator Lyme Disease Forum

javamommy77
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 8/28/2010 11:22 PM (GMT -7)   
Cajun I read up on it two nights ago and just didn't like what I read. of course can't remember now what it was but something set me off on it. Hoping the cymbalta works for you i know for me it just sent me to bed to sleep.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40567
   Posted 8/29/2010 5:38 AM (GMT -7)   
I think that they should treat the depression and the pain. Yes some antidepressants can help with pain because of the seratonin, but if you are still ecperiencing pain even after an antidepressant, you should have pain medications. And it takes four to six weeks before the antidepressant can work for you. Be patient, but be firm. If she isn't gonig to help you, move on to somebody else. It is hard getting a new doctor. I just did. Still not positive if he is going to follow my pain medications. he is already trying to take my ambien and soma away. Bummer. But I am going to stand firm to him. I hope. I am not good at that.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

SillyMe2
Regular Member


Date Joined May 2010
Total Posts : 110
   Posted 8/29/2010 5:50 AM (GMT -7)   
Is it nerve pain or muscle pain? or both. I started this with nerve pain going down my neck and into my left shoulder and arm and into my left breast. First thing he gave me was a steroid and antibiotic. The next week he wrote out Etodolac, Vicodin, Skelaxin. Spent 5 months on that with little relief and he put me on Savella which DID that a month and a half to relieve the pain and in that time was able to stop most doses of the above to eventually get to where I didn't need any of them. It did give me some side effects at first and I was able to work past them. Savella can cause depression on it's own though and found once I stopped 7 months later that it felt like a cloud was lifted. My breathing isn't as shallow either. You could be hurting worse because your going through a flare? But yeah... you need a dif doc and maybe going to the clinic where no one knows you is a good thing to do. I assume since he is sending you to a Neuro that most of your pain is nerves.

The only thing that helped me at all was the Vicodin AND Muscle Relaxant because the nerve pain caused the muscles to tighten up something fierce. Only took the Vics at bedtime but took the muscle relaxant twice a day.. Bedtime and mid morning.

Sending you to the Oncologist is for needed blood work to rule out Cancers and Leukemia's. Make SURE you get copies of those results! Hell.. make sure you get copies of all blood work and x-rays as well as any MRI's. Keep them safe in a notebook.
Now Lexapro hmmm.. I am one that couldn't take that. so hope it works well for you. It didn't do anything "symptom" wise but be careful for added depression. You have to do that anyway though. Tart Cherry Juice if you can find it will help with some of the pain if any of it is Arthritis related and may help you sleep.
DX: Fibro, PA (Psoriatic Arthritis), Psoriasis, Rosacea.
Formerly Savella, Now Lisinopril, Vit D, Prilosec, Ambien, LDN, Tart Cherry, DL-Phen

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/29/2010 6:54 AM (GMT -7)   
Wow Java I am so sorry you have to deal with such incompetency. Man my dr. would have never let me out of that office he would have sent me directly to the hospital and done some serious testing. Plus getting fluids back into me. I dont understand how some of these dr.s got their medical degrees. I will be praying for you that you feel better soon and find a good dr.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

javamommy77
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 8/29/2010 9:25 AM (GMT -7)   
thank you everyone. I will be getting copies of ALL my tests. Smoeone asked what my pain is and it's BOTH nerve and muscle. Like right now the top of my hands hurt like heck. I didnt sleep at all last night and just woke up from a two hour nap. I refuse to take the Lexapro this is gettin gridiculous.

This morning I'm going to try my best to maintain positivity and stay out of bed for at least 4 hours. I guess I'm just going to have to challenge myself everyday. I know that's what most of you do. I WILL be picking up the supplements once my check clears. I just feel like I'm taking everything into my own hands ...

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/29/2010 9:58 AM (GMT -7)   
I have heard absolute nightmare stories about Lexapro and if I were you, I'd be looking for a really good doctor...a doctor that will listen to you and a doctor that believes in fibro.  I personally find it quite frightening how easily these doctors pass out medication.  I posted yesterday about serotonin syndrome and will bump it up for you.  If you take a mixture of meds, you really need to be monitered closely because these can cause a lot of problems. 
 
I actually think many of the symptoms that are being felt on this forum are from medications people are taking.  I'm not a doctor, though.  Just my opinion.  Maybe I'll work on a thread today that will have links to the most used medications on this forum so everyone who is having a big problem can check and see if it's their medication that could possibly cause this.  There is no way any doctor, no matter how good he/she is, can remember all the information about all the drugs they prescribe.  Your pharmacist knows a lot about the medications because that is their speciality.  But everyone should know about the medications they are taking so they can sit down with their doctor, if you are having symptoms that could be related to the medications, and carry on an intelligent discussion. 
 
So many times things are prescribed and no medications are ever dropped!  You end up with a laundry list of medications.  Mt Lady (Miriam) just wrote about this and is going through a lot of withdrawl getting off all the stuff the doctor had her on.  So, everyone, please be careful out there.  Medications can do a lot of good but they also can do a lot of harm.  You and your doctors need to work together for the very best outcome for you.
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 8/29/2010 11:01:23 AM (GMT-6)


javamommy77
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 8/29/2010 10:03 AM (GMT -7)   
The one thing I dont like is this dr hands out so many samples. Which if they're doing that no way can a pharmicist tell you what is bad together ya know? yeah i'm so scared of the serotonin syndrome. like i said i'm waiting for my check to clear and then i'll be going to get the supplments suggested on here and start those to see if they'll help.

I WISH I could find a good dr. Every dr I go to though it seems like they're a dud. Even the dr's at the hospitals!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/29/2010 10:33 AM (GMT -7)   
Pharmacy companies give those to the doctors.  They want their new medications to be used.  Doctors like the idea of giving samples to see if they work but they don't always know much about the medication.
 
I always check things out.  I've had problems with blindly taking what doctors gave me.  One time I ended up addicted to an upper.  I was told it was a pill to lose weight!  Another time, I was told to take a medicaiton I was allergic to (and the doctor knew I was allergic to it, too) to kill Lyme ,IF I had it, when the pain from fibro was starting.  There were no tests for Lyme at that time.  I had so many problems with the medication that I ended up in the hospital for five weeks and lost my colon over it!  So this is why I warn people the way I do.  I want to save people some possible problems. 
 
I'm not against medication.  There are some wonderful things out there that help for various illnesses.  But I also believe that we have to be very careful and check things out.  Doctors DO make mistakes but it's the patient that pays the price. 
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 8/29/2010 11:40:29 AM (GMT-6)


vestabula
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Date Joined Nov 2008
Total Posts : 2855
   Posted 8/29/2010 1:53 PM (GMT -7)   

Amen, Sherrine!  I was given Lexapro blister pack samples with no directions from the doctor, nor was there any drug info leaflet in the box...oh...'Store at room temperature".   That's a big help.  No where did it mention anything about weaning, or not stopping abruptly...and that can be the problem with 'free samples'.  Having never taken any RX drugs for fibro before I thought the doctor would know best.  When I complained about withdrawal symptoms, he told me he had never heard of them before and to reinstate, as these drugs are a 'lifetime committment' and fibro is a 'lifetime disease.'  NOOOO...the drug made me an emotionless drone and ruined my vision and I gained 22 pounds...why would I stay on it??  Plus it did nothing for my pain.  Wanna know what pain is?  Going off it without weaning properly...I have been in a horrific nine month flare.  I will never ever put another drug in my body without doing my own research.

Donna


javamommy77
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 8/29/2010 4:36 PM (GMT -7)   
yea i took the lexapro from her then came home ad did my own research and that's when i thought no way no how am I putting this in my body on top of the Savella I just didn't feel safe doing it and am glad I've gone with my instinct.

Tpday seems to be a bit better. I'm actually out of bed for the first time in weeks. I had to push myself but I am. I did take a nap and my arm hurts as well as the back of my hands but not nearly as much as they have been.

Acheybody
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Date Joined Nov 2008
Total Posts : 5929
   Posted 8/29/2010 5:08 PM (GMT -7)   
I'm glad you're not going to just blindly accept what this doctor says, Java. 
 
Many years ago, I was at my ear doctor's office, getting my ears cleaned out or tested or whatever, and I casually mentioned that I get bad headaches (this was before I found out they were migraines.)  He said, "Oh! That's cluster headaches....here, let me write you a prescription for ___________."  I DID have an idea what cluster headaches were, because a family friend got them, and I'd heard them described.  NOTHING like migraines, nor like my symptoms!  Lucky I happened to know this, so I didn't fill the script.  But another example of - what was he thinking????
 
Another time I was seeing my then-regular doctor for a really bad migraine (before I'd found something that helped.)  He offered to give me some kind of shot, but when I asked to read the side effects, I could tell he was put out.  I decided to forego the shot, and he said, not in a nice way, "It's your headache, honey."  Doctors can be such buttheads.
 
Power to the patients!!!
 
Debbie

Alcie
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Date Joined Oct 2009
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   Posted 8/29/2010 5:51 PM (GMT -7)   
I took 1/4 of a Lexapro tablet and had electric shock-like feeling running down my legs, also strong muscle twitches. Both are known side-effects of this drug.

One of my pain docs was talking about having me try Savella, but after reading so many negatives, I am not willing to try it.
Alcie
 
 

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 8/29/2010 6:10 PM (GMT -7)   
I was on Klonopin at a 2mg dose many years ago for panic attacks. I started feeling better with an anti-depressant that was given to me and wanted to stop taking the Klonopin since I was feeling better. My doctor at the time told me to just stop it. I asked about withdrawal effects and he said that klonopin wouldn't cause that. Well, I listened to my doctor and could not get out of bed for five days. I had the creepy crawly feeling and everything. It was horrible! I had to get back on the Klonopin and slowly wean myself off. I would break a piece off every few weeks until I was down to a tiny little piece. I don't understand why these doctors don't know more about these things.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds: Cymbalta, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement


Co-Moderator Lyme Disease Forum

TheChickenPrincess
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Date Joined Jun 2010
Total Posts : 554
   Posted 8/29/2010 6:26 PM (GMT -7)   
Geez and I thought I was the only one who has had trouble like all of this with docs prescribing crap. They hand out meds to me like candy from a pez dispenser. I usually do not want them - and tell them so - but boy oh boy are they eager to get me on them. I've thrown out so many prescription papers and sample kits over the years. Some of those sample drugs ended up in recall a short time after they assured me it was the wonder drug of the century. "Oh, yeah, doc? Then you take it for a few years and if you're still able to function without drooling, I'll think about it."

My favorite one was the one who fought with me, telling me that although a certain drug is in a class I'm allergic to, that I'll still be safe taking it. When I went to the pharmacy, the pharmacist called my doc on the phone because he was terrified of filling that prescriptioin for me, knowing it is a related drug. Doc said, "tell her to take it!" I took about 1/4 of a dose and reacted very badly. Jack*** doctor. All he could say was, "Oh, gee, I'm sorry! I didn't think you would be." Add to this that he totally misdiagnosed hives as an infection .. and I think his license should be pulled.
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

TheChickenPrincess
Veteran Member


Date Joined Jun 2010
Total Posts : 554
   Posted 8/29/2010 6:28 PM (GMT -7)   
Going off topic a little - but have any of you ever met with a doctor and felt like they were self prescribing? Seriously. I had a woman nurse practitioner and a woman doctor - two separate times - and both acted higher than a freakin' kite and unable to focus. Scary.
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

javamommy77
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 8/29/2010 7:07 PM (GMT -7)   
oh chicken i've had that happen to me too with the scripts and what i'm allergic too!!! it is scary. I'm a little stressed as well because even though we turned in our state insurance paperwork BEFORE the beginning of August and had our interview we still hadnt heard anything and that and our foodstamps are up on the 31st of this month. Well i called and guess what? They were trying to tell me i had both till the end of september they finally looked at my papers and said oh no you're right

so instead of seeing we've done everything we're supposed to and just oking us they made us redo all of our paperwork for THEIR mistake. This all last week when i was in the mid of that really bad flare!!! So i'm scared to death i'm gonna loose my insurance for a couple oif weeks meaning no apt for the nuero....no meds...no anything. UGGGGGG

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/30/2010 11:38 AM (GMT -7)   
Java, I was happy to read that you were feeling a little better yesterday.  How about today?  You just might be in a bad flare.  This time of year is the worst for me and I can have so much pain.  But I do know it does get better.  I'll have better times and I'll have horrible times but I can make it through the horrible time...taking one day at a time...because I know it will pass.  You will find what helps take the edge off the pain without giving you terrible side affects.  I know I have!
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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