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suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/29/2010 11:32 AM (GMT -7)   
Hi, I'm Suzi, and I'm a fibromyalgia sufferer! Sounds like an AA meeting. Anyway, I'm new here; this is my first post. I didn't know that FM could cause foot pain, but I sure know it now. It cost me my job last week (retail sales at Cracker Barrel). I've been seeing a podiatrist for about 2 months now, and I've had two sets of orthotics made. The first ones hurt so bad I couldn't wear them. The second ones are actually the first ones with a lot of cushioning on them. They feel better, but far, far from adequate. I thought I had plantar fasciitis, but after many tests, the answer was I don't. I slept in braces at night, did exercises... etc, all to no avail. It's neuropathy. I start therapy tomorrow; I'm really hoping it will help. I take Lyrica, Cymbalta, Tramadol and OTCs, which help with the other body pain, but don't seem to be helping with the foot pain. I heard about a med specifically for neuropathy called Neurontin. Has anyone used this med? Does it work? Even with insurance, all these meds are taxing our resources.

If you are experiencing sleep problems, see if you can get your doctor to order a sleep study. Mine did, and it turned out that I was getting NO REM sleep, which is the restorative phase of the cycle. (People used to think that REM - Rapid Eye Movement - meant they were dreaming. Made sense, but it was wrong.) So they put me on CPAP (Controlled Passive Air Pressure) and I've been using it for about a year now. It REALLY helps! Much more than sleeping pills, which tend to keep you OUT of that phase you need so much.

Thanks for listening. I don't have anyone around to share with. My husband and grown children are supportive, but I rarely mention it to others.

Suzi

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40578
   Posted 8/29/2010 12:48 PM (GMT -7)   
Hi Suzi,

I am not positive, but I think that neurontin and lyrica are the same, if not very similar. It has been said that lyrica is a glorified form of neurontin. So I don't know if it would help you to take it or not. I could be very wrong and it might help. I would talk to the doc about it.

I hope that you find something that works for you. I get foot pain in the mornings before I get moving around. It really hurts the bottoms of my feet to stand on them.

Keep posting and let us know how you are doing.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/29/2010 1:27 PM (GMT -7)   
Thanks, Karen! And thank you for the welcome message. It's nice to have others on your side, huh?

:)

Suzi

suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/29/2010 1:37 PM (GMT -7)   
I looked it up. Neurontin and Lyrica are both Pregabalin. So you are right! Thanks for the insight.

Suzi

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40578
   Posted 8/29/2010 1:57 PM (GMT -7)   
Sorry about that. I take norco (strong vicodin) for fibro pain and celebrex for joint pain. Between the two of them, I am set. Well, not set, not pain free, but as good as I have been able to get it so far.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/29/2010 2:46 PM (GMT -7)   
Hmmm... maybe it's time to try a different combination. Do your feet hurt, too?

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/29/2010 2:57 PM (GMT -7)   
Hi suzi and welcome to our fibro family, You have already been talking to one of our wonderful moderators and there are still several others. Im sure they will greet you later on. Im sorry about your foot pain, I have had pains on the bottom of my feet where I could barely walk to but then that got better. Now though for me wearing shoes is like putting a vice grip on my foot and squeezing. Can only tolerate regular shoes for a very short time. Sorry you had to lose your job because of it. I hope you get some relief soon.
As well as our wonderful mods we just have a bunch of wonderful and supportive people who are always willing to answer questions if we can, and we understand when you are having a bad day because we all have them too. Please dont hesitate to post.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/29/2010 7:01 PM (GMT -7)   
Awwww, Shirley... thank you so much for the sympathy (perhaps I should say empathy!) and the gentle hugs. I felt them.

Suzi

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 8/30/2010 6:18 AM (GMT -7)   
Hi Suzi!! Welcome to the family.
 
Yes, I experience a lot of foot pain. My feet in general, and...I seem to get this extreme pain in my big toe as well. Seems like I just started getting thise about 6-7 months ago. My feet and my fingers seem to bother me more and more, so yes I feel it is yet another symptom of Fibro.

confused Okie
Regular Member


Date Joined Apr 2009
Total Posts : 164
   Posted 8/30/2010 7:01 AM (GMT -7)   
I have plantar fasciitis and achilles tendonitis and sometimes my whole feet feel like they are broken in many places. My big toe on the left also swells, turns red and makes it almost impossible to walk. What I have found is alot of my foot pain is caused from my back. When I get steroid injections in the SI joints or L5 S1 so much pain goes away with it (still have PF pain, but the broken feelings ease up so much). The nerves for your feet go through these areas and when they are inflamed the whole foot pain returns. Not sure if this helps much for you. I also have orthotics, good shoes and night splints. Nothing works as well as the steroid injections, though. I also take neurontin at night.
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 8/30/2010 12:50 PM (GMT -7)   
That is interesting...I never thought my foot pain could be caused by my back pain.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 8/30/2010 2:44 PM (GMT -7)   
HI, Suzi, and welcome!  Most fibromites don't get into the REM sleep.  That is when the body starts to heal itself so that is part of our problem.  I'm glad the Cpap is helping you.
 
Have you been checked for diabetes?  It sure wouldn't hurt to check it out.  A lot of people have diabetes and don't realize it. 
 
Be sure to check out Fibro 101...the first thread on the forum.  There are links to good info about fibromyalgia and you will learn a lot!  Don't hesitate to ask questions because we are here to help you.  I'm so glad you found us and joined our family.  I hope to hear more from  you soon.
 
Sherrine 
 
 
 
 
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/30/2010 6:49 PM (GMT -7)   
Hope Girl,

I find it interesting that foot pain can be caused by FM!

Sherrine,

Yes, I have been checked for diabetes, and thank the Lord I don't have it!

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/30/2010 7:58 PM (GMT -7)   
I've been having bottom foot pain also.  I think the worst thing right now for me to take is the PT on my bare feet. Yes I said, "bare feet." I really don't know what is going on with the Physical Therapists at this new place. Has anyone else had PT on their feet?
 
Hara - tell me how to get through it with no shoes or socks on?

suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/31/2010 3:53 AM (GMT -7)   
Yes, I've just had my first session. They're using something called V-Care, which is like a strong TENS unit. The attached leads to the top of my feet. Unfortunately, I can't feel it in my feet, which they say is because of neuropathy. I don't know if it would work on the bottom of my feet, although I'm certainly going to ask.

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 8/31/2010 7:30 AM (GMT -7)   
Please see my post this morning about me being a clutz.
My feet are really bothering me so much this morning, that I am wearing sneakers at work for added support.
They ache, and my big toe on my right foot feels like its broke, I know it isn't...but it really hurts.

just_grace
Regular Member


Date Joined Jul 2010
Total Posts : 62
   Posted 8/31/2010 8:14 AM (GMT -7)   
Hi Suzi.
 
I have bone spurs on my toes, I had them removed only to have them come back within 5 months and with a vengance.   They brought along a friend called Neuroma.  I work as a server and am on my feet up to 10 hours a day, somedays with nooooo time to sit.  The podiatrist told me basically I have 2 choices.... cortizone shots (which lasted 4 weeks) and surgery to remove the bone spurs (been there it was worthless, to have them return so quickly) and the neuroma.  He won't do the surgery unless I committ to taking at least 4 to 6 weeks off to heal.  Ummmm my bills won't wait.
 
What helps me ease the pain enough to make it through the day is Voltaren Gel.  I lather my feet in it each day before work, once during work and again when I get home.  It has helped more than the cortizone shots helped me.  You might talk to your doc and see if it would help you any.

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 8/31/2010 9:01 AM (GMT -7)   
Voltaren Gel...is that a prescription medication?

suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/31/2010 10:24 AM (GMT -7)   
I have used Voltaren Gel, the same way you do, but find that BioFreeze works better. It's kind of expensive, but my husband found it online a lot cheaper, and we bought about a liter of it for about $34.00. If you want the website, I'd be happy to ask Jeff where it is. Right now, I'm going to go put some on both feet, my right knee, my neck and my back.

I was working as a retail sales person at Cracker Barrel (so much fun!). My doctor said legally he cannot tell me whether or not to work there, but he can tell me I should be off my feet as much as possible. So now I'm pursuing my writing and graphic arts opportunities from home.

What about others here. Are you on your feet for long periods at a time?

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 8/31/2010 1:44 PM (GMT -7)   
hopegirl said...
Voltaren Gel...is that a prescription medication?
 
I have Voltaren Gel also. Maybe I'll try and put a little more on. That might help me.
Hara

Luvzminis
Veteran Member


Date Joined Apr 2008
Total Posts : 2567
   Posted 8/31/2010 2:21 PM (GMT -7)   
I, too, often have foot pain and pressure on the bottom of my feet.  I've been taking Flexeril and Neurontin, but they make me SO sleepy.  Lately I've been taking Calm Tabs at night (I take 2) which I buy at Puritan's Pride.  Don't laugh, but I'm also trying the "bar of soap cure" where you put a bar of Ivory or other soap under the fitted sheet of your bed.  Supposedly something in the soap leaches into the body through the feet--sodium--something?  Just started this, though.  I also eat bananas for potassium and drink Gatorade for electrolytes.
 
It helps me to wear 2 layers of socks, and also some comfortable soft insoles from Wal-Mart.  I also try to walk barefoot on tip toe every morning to stretch the foot.  My feet are VERY fussy--in the winter I get a lot of numb spots and occasional ones in warmer weather.  They sometimes spasm and cramp, and I can't stay on my feet for long, especially in one position.  Lightweight running shoes help.  Famous Footwear has some good deals--usually buy 1 and get the next pair for half price.
Best of luck!!

suziwollman
Regular Member


Date Joined Oct 2008
Total Posts : 24
   Posted 8/31/2010 8:47 PM (GMT -7)   
Gosh, thanks, Luvzminis! Everyone has been so generous with their insights and experiences, and I do so appreciate it. But it's quarter to eleven, and I'm really sleepy (I got up abour 4:45 this morning). So I'll say good night! Sweet dreams, all!

Suzi

just_grace
Regular Member


Date Joined Jul 2010
Total Posts : 62
   Posted 8/31/2010 9:48 PM (GMT -7)   
hopegirl said...
Voltaren Gel...is that a prescription medication?
Yes, Voltaren Gel is a prescription medication.  My Rheumy originally rx'd it for my back but it wasn't much help there.... which she said she didn't think it would because of all the body tissue, etc it would have to work through to get to the problem.  But it helps quite a bit on my feet!!

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 9/1/2010 12:13 AM (GMT -7)   
I just today put a little more Voltaren Gel on my feet and it helped alot better. Thanks for the tip.
 
HARA yeah

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 9/1/2010 12:16 AM (GMT -7)   
suziwollman said...
Yes, I've just had my first session. They're using something called V-Care, which is like a strong TENS unit. The attached leads to the top of my feet. Unfortunately, I can't feel it in my feet, which they say is because of neuropathy. I don't know if it would work on the bottom of my feet, although I'm certainly going to ask.
 
I went to the Neuro and had my feet shocked. I will tell you now, I will never never do it again unless I'm unconciouse or dead. It was NOT fun.
HARA
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