Could it be Fibro?

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whatiswrongwithme
New Member


Date Joined Aug 2010
Total Posts : 4
   Posted 8/31/2010 12:50 PM (GMT -7)   
Hey guys.. I've been lurking for a while and didn't want to post at first because I don't know what it is I have and I didn't want to take up unnecessary forum space.. but I've seen what a supportive community you seem to be and I thought I'd take the plunge and ask for help.

about 2 months ago I began having random stabbing pains all over my body. Everywhere - hands, arms, legs, torso, head, feet, everywhere. Sometimes it feels like it's my bone - others, the muscle, or even the very surface of the skin. Shortly after I began to have abdominal pain, I felt sick to my stomach so I stopped eating and lost about 14lbs (eventually started eating again), have numbness in my hands, dizziness every time I stand up, fatigue, I feel weak all the time, I have muscle spasms and sometimes have sore muscles (the kind you get after a good workout) despite not doing any physical activity at all.

All this time the stabbing pains have never stopped, and I've had more and more abdominal pain.. sudden sharp pains that come and go, sometimes more in the pelvic region, others around my stomach or lower, where the intestines would be.

Initially bloodwork came back normal, I had ultrasounds (abdominal and transvaginal) and both came back normal. Chest X rays normal. That was over a month ago. I recently had a CT scan (head, chest and pelvis) come back normal. I'm waiting on a more in depth blood test, and I'm going to have an EEG and a brain MRI just to rule out anythign neurological (I've seen neurologists though and they seem to think there's nothing wrong in there)

I know I have some of the Fibro symptoms though not all. For example, I'm not stiff in the morning. I'm not very stiff ever, really. I just have these random stabbing pains... I've seen several doctors, family and specialists,a nd none of them seem to have any idea. I'm considering seeing a rheumatologist soon.

This whole thing has me quite upset, for reasons I won't bore you with now, but my anxiety about wanting to know what's wrong seems to be quite evident and I feel like I?m being treated like a crazy person...asking me if I have depression, if I'm seeing a shrink, if I've had any traumatizing experiences.. (I haven't!)


All I know is my body hurts and everyones pretending it's all in my head... and of course this causes anxiety and upset, because I feel like I am not heard. And this in turn makes them think I am crazy... *sigh* You get the point..

So yeah.. I don't think that this TYPE of pain (stabbing) is typical of Fibro... but I am at my wits end here. Don't know where else to look... wondered if anybody had any ideas.. ?

Thank you much in advance. SOrry for the long post. :-)

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/31/2010 1:27 PM (GMT -7)   
Hi wwwm! I'm so sorry for you pain and frustration. It isn't unusual to see a few
doctors before getting a diagnosis. The main symptoms pain and fatigue, fit the bill
of so many other conditions, it takes awhile to sort it all out.

You already have a good start, getting blood work to rule out connective tissue
diseases is a good first step. I was diagnosed by a rheumy....my third one.

Some people describe their pain as stabbing. I do get stabbing pain, but I would
describe my pain as allover achiness and when I'm flaring my pain is bone crushing
pain. Most fibro pain is widespread, it is felt on both sides of the body above and
below the waist.

Checkout fibro 101 on the top of the page. sherrine has compiled a wonderful
resource for us fibromites. There is a link...What else could it be? and lots of other
great info.

I'm glad you have joined the family. Keep us posted, we are here to support one
another, there is a wonderful group here that care!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 8/31/2010 1:48 PM (GMT -7)   
Hi wonder and welcome to our fibro family, whether it is fibro or not you still have chronic pain and that makes you like us. We all understand what it is like to hurt most of the time. Im glad you are having all these tests done to rule out other things. Hopefully they will get it figured out soon, My pain now is mostly aching pain or stiffness, but I think I have pretty much run the gambit on every kind of pain there is with this fibro at one time or another. Like Robin said make sure to check out fibro 101 that Sherrine put together for us. Dont be afraid to ask questions and post often.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

whatiswrongwithme
New Member


Date Joined Aug 2010
Total Posts : 4
   Posted 8/31/2010 1:56 PM (GMT -7)   
Thank you so much Robin and Shirley .. I can't tell you how much it means to hear what you just said.. that you understand me! I know 2 months is nothing compared to others, I know some have gone years without being diagnosed.. but god it feels like forever already. I couldn't have medical attention where I was living with my boyfriend at the time I began to have pain, so I had to travel back to my home country to be able to see doctors. My boyfriend had to stay due to work so I haven't seen him now in nearly two months. This is so crazy and it is wrecking our lives! And then docs wonder why I seem upset..

I have already read the Fibro 101 page and continue to read it.. all the info is very useful and interesting. Sherrine seems very friendly and knowledgeable on the subject.
I'm fairly new to FM.. I didn't even know it existed until recently, to be honest. :(

I'm really sorry about both your pain too! I hear that normal painkillers don't work for FM. Is there anything that you can take that helps you cope a little better?

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 8/31/2010 2:16 PM (GMT -7)   
Wonder, when it comes to pain meds, this forum is all over the board as what to
take. We all tolerate meds so differantly and differant docs have their own views
on what should be prescribed. There are many of us that have other health issues
going on and everything has to be taken into consideration.

For fibro I have been taking a SNRI...Savella and use a muscle relaxer...Flexeril
(cyclobenzaprine) for flares. I also take Excedrin.

Heat and exercise help quite a bit. I'm also into relaxation therapry..deep breathing
and meditation. Pacing myself throughout the day helps too.

Hoping you will find something for pain relief, Sending gentle hugs :)

Hugs, Robin
 
PS....I did forget to mention that many of us have had vitamin D deficiencies and that
causes achiness. Bloodwork can determine if you are deficient. I take 2000 IU daily
and Vitamin B-12 (5000mcgs) daily and that helps with energy.
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

Post Edited (crazykitty) : 8/31/2010 3:53:10 PM (GMT-6)


KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 8/31/2010 2:29 PM (GMT -7)   
Hi, ok I may not be much help since I am undiagnosed but I can tell you last winter is when everything changed, in the beginning I did have the shoot pains and I still get those, toes, arms, legs and hands. I also get them in my ribs now, great feeling not.

Now I do get muscle stiffness not every day, a couple times a week, muscle tightness in areas kinda like a Knot (daily), spasms through body(daily). Tingling. Fatigue & lightheadness couple times a week

Let me tell not knowning does cause stress/depression and yes that will play Physically into our bodies too, in the beginning of this I would have anxiety attacks.....which caused numbness and some other things. I dont' have a problem with that anymore I am on medication and I come to realize I have to be calm so I know my actual symptoms when it comes time to tell the doctor.

I have heard, age, depression etc....everything under the sun except for the actual problem.

Like others have said heat, hot baths and staying active are great plus I only take over the pain meds for what is going on plus supplements.

Eventually I may ask for something for my muscles. sorry I wasn't much help.
'Brokenness means we are ready for change. Lord, come take my pieces and make me what you want.' Mark Brown

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 8/31/2010 3:33 PM (GMT -7)   
Well,
Of course I can't diagnose you, but you sound like a textbook case to me! Welcome to the forum and may you find something out soon!

Debbie
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

whatiswrongwithme
New Member


Date Joined Aug 2010
Total Posts : 4
   Posted 8/31/2010 5:08 PM (GMT -7)   
Thank you Debbie!

Thanks Robin.. speaking of pain meds, this isnt FM related (at least I don't think so) but I have also had a really weird pain in my butt (no pun intended..lol) for a while. Went to a proctologist who examined and said I have a very inflamed puborectal muscle and gave me a muscle relaxant for it (diclofenac). I just took my first dose and I'm not sure if it's going to make me drowsy or loopy or anything... I'm hoping for neither..

Hey Kellie.. you are a lot of help. Right now talking to anybody that has similar symptoms and udnerstands I'm not crazy or making it all up, helps. Are you going to continue to see a doctor to try and get a diagnosis?

Elemental Fire
New Member


Date Joined Aug 2010
Total Posts : 9
   Posted 9/17/2010 1:12 AM (GMT -7)   
Hi there.

I'm currently in the same boat as you. Wondering if they are going to drop me off at crazy town port or not, supposedly nothing wrong with me. I got the test results for 5 different blood test and all are normal (big surprise) Doc wants to give me Mobic and Physical Therapy like I pulled a muscle or something. Anyway, I have stabbing and shooting pains in my body too. Mine are mostly in my breasts and chest and seem to happen mostly when the "other" pains are bad too. I've started a cycle of flares it seems and have been trying to find a pattern and its seems there isn't one. Your not crazy we've all been going through the same feelings and stuff.

Anyway my point is you are in the right place and even though I've yet to get a diagnosis as well, I consider this like a home. Everyone here is knowlegable, kind and has taken a lot of the stress and depression out of this whole thing for me and I hope for you as well. Good Luck!
Jen wink

Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 9/17/2010 6:26 AM (GMT -7)   
I went through the same series of tests before being diagnosed with fibro. A reheum. diagnosed me right away. But you have to check out a few things to be sure you don't miss something else that could be wrong.

Let us know how things turn out. You are in my thoughts.
Fibromyalgia,arthritis,raynauds syndrome,gastroparesis,IBS,depression,severe costochondritis, generalized anxiety disorder
 
God and Family is my life.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 9/17/2010 8:57 AM (GMT -7)   
Hi, Whatswrongwithme, and welcome!  Boy, I missed this thread completely!  Well, I'm a day late and a dollar short here!
 
I do think they are ruling out the other illnesses that are so similar to fibro.  These other illnesses can be treated and you can improve and even get better.  That's why they want to be sure what is going on and order a bazillion tests.  It's a real pain...I know...but it's necessary.  I'd really be skeptical if I went to a doctor and they diagnosed me with fibro without running a lot of tests.  That would really make me wonder if they knew what they were doing.  I'm still checked periodically for hyphthyroidism because of my symptoms.  Fibro really is a puzzlement!
 
I'm glad you are reading Fibro 101.  We need to arm ourselves with all the info about this illness that we can.  We do have to be our own medical advocates, too.  Doctors do make mistakes.  They are human.  Plus, no one knows our body better than we do.  Knowledge is power so get all the knowledge you can. 
 
I'm so glad you decided to join our family!  I lurked, too, in the beginning!  wink    But we have wonderful members that love to help one another here so I think you will really like it.
 
Don't hesitate to ask questions.  We are here to help you.  I hope to hear more from  you soon.
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 9/17/2010 9:08 AM (GMT -7)   
Wiwwm, when I was a young mother and trying to find out why my body hurt so bad, I couldn't sleep, and couldn't think, I had many exciting adventures:

One doctor, upon meeting me, asked if I had a sexual disfunction (huh?)
Another suggested my husband take me out for Mexican food to "clear my sinuses so I could think straight" (I'm not kidding!)
A third said that probably many of my friends had the same symptoms I did, but didn't think there was anything wrong with them (so I was nuts...get off the pity pot!)
Several said I must be out of shape (even though I'd always exercised) and prescribed physical therapy, which only made things worse.
All my tests came back normal,normal, normal, although my pain had me in tears most nights. (Was I dying?)

Finally, I found an intelligent, curious doctor who believed me and told me about Fibromyalgia. He looked through my big fat file and did the trigger point test. I don't know what I would have done without him the past 20 years. He happens to be an allergist/internal medicine doc, but I think most people are diagnosed by rheumies. Don't give up! There's got to be a good one somewhere around who will take you seriously. Your pain is real. Hope you get some help soon.

Debbie
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed
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