Restless Leg Syndrome

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Regular Member

Date Joined Jan 2010
Total Posts : 166
   Posted 9/2/2010 1:14 PM (GMT -6)   
Does anyone here suffer from Restless Leg Syndrome? I have noticed it a few times over the last year or so, usually when really stressed.  Lately, it's happening more and more often.  Moreso when I do not get my nightly walk in.
I had a lot of difficulty falling asleep due to it last night, and today my pain is double my norm (which is normally maybe a 2, so I don't feel I get to complain too much. lol).  My joints in my hands are all red and swollen and the motrin isn't much help. Usually only two joints give me issues.
Today it is interfering with work.  Any suggestions? Is it the walk that helps? I plan on getting one in tonight, so I'll be testing that out myself. lol.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40406
   Posted 9/2/2010 2:14 PM (GMT -6)   
I really do think that walking helps a lot with fibromyalgia. Not only are you getting aerobic workout, you are getting oxygen to your brain, helps with the fog. lol... And it relaxes you so that helps with pain too. Make sure to keep up the good work. Keep moving. I am going to start walking in the mornings once this weather cools off. It is cooler today, but muggy so that doesn't help. I hope to walk tonight. Nice breeze coming in the window right now.

Hugs, Karen
Forgot the main reason for the post.  Restless leg syndrome.  I use to have it and yes I think walking helped with that also.  I would get so bad that I had to get out of bed and walk to calm it down.  I tried mirapex, but it made me worse.  Which was no fun.  I hope that you find what is right for you.  I would try the walking first though.
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Post Edited (getting by) : 9/2/2010 1:17:21 PM (GMT-6)

Veteran Member

Date Joined Jun 2007
Total Posts : 906
   Posted 9/2/2010 2:27 PM (GMT -6)   
I have RLS and I take meds for it. But if it still comes back, I've found that a heating pad on my legs at night helps to calm it down. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea

Veteran Member

Date Joined Apr 2008
Total Posts : 2540
   Posted 9/2/2010 4:50 PM (GMT -6)   
There is something called "Restless Leg lotion (or cream?)," I believe for around $10-$12. per jar.  I've seen it several places.  You can likely find it doing a Google search.  Not sure if it helps, but may be worth a try.  Good luck!

Veteran Member

Date Joined Nov 2008
Total Posts : 2854
   Posted 9/2/2010 5:13 PM (GMT -6)   
I was dx'd with RLS many years ago.  My legs crawl/tingle and I have to move them around the bed to get rid of the sensation.  I have given up walking around all night.  I get it in the daytime also, especially when I sit too long.   There is a 'natural' product called Restful Legs, but it has Valerin Root in it so I never took as it's a sedating herb people use for sleep and I didn't know if it should be mixed with the other drugs I was taking.  I might try to find the lotion you mentioned.

Regular Member

Date Joined Jan 2010
Total Posts : 166
   Posted 9/4/2010 10:53 AM (GMT -6)   
Went to the state fair yesterday and son talked me into trying one of those "foot massage" seats for a quarter. OMG. about sent me into orbit!! It was an amped up feeling of the restlessness and I will NEVER use one again. Made my stomach lurch! Good news is that I was so tired and sore from walking the fair that my legs slept all night long!! :)
Thanks for your help. I'm afraid to try drugs, in general, but I will start with the heating pad... I get cranky when I don't sleep.

Regular Member

Date Joined Apr 2010
Total Posts : 372
   Posted 9/6/2010 3:34 AM (GMT -6)   
I have been diagnosed with it but do not take meds for it. I tried one of the medications a several years ago, but it made me so groggy that about all I could do was sleep for a couple of days after I started taking it. I don't need anything to make me drowsier than what I normally am, so I quit taking it. I have been on Trazodone for about a year, and that seems to have helped with the overall quality of my sleep. Also, as several people have mentioned, exercise really seems to help. I can really notice a difference later in the evening if I do not exercise. I start getting the creepy feeling in my legs, and can't hold them still.

tired of goin
Regular Member

Date Joined Mar 2006
Total Posts : 117
   Posted 9/7/2010 2:20 PM (GMT -6)   
Have you ever had bloodwork done that showed low iron levels?  I am anemic, and I know when my iron levels are low, my restless legs get bad.  However, if I take my iron pills on a daily basis, (slow fe), then my restless legs are gone!  It took me about a week to get it to go away once I started the iron pills regularly again.
Not saying that is your issue, but always good to have other options and ideas.
diagnosed with UC 10/05 (currently flaring)
diagnosed with fibromyalgia 12/06
Colazal   750 mg  9 per day
Effexor XR  75 mg   1 per day
probiotics    3 capsules per day
fish oil, multivitamin, calcium, Zomig for migraines
colocort as needed

Regular Member

Date Joined May 2010
Total Posts : 52
   Posted 9/7/2010 4:28 PM (GMT -6)   
I have had RLS for several years. If I am having a bad night, I usually take a Xanax. That will normally knock me out. I was also told that I move and kick my legs a lot in my sleep. No wonder I am so tired when I get up. :(

Dx with Rheumatoid Arthritis, psoriasis-Aug 2010; carpal tunnel, osteoarthritis in lower back-May 2010;Fibromyalgia, depression, sciatica-Feb 2010; Costochondritis-comes and goes; IBS-2007; RLS-2006; Tachycardia-1999. Falling apart!
Meds-Atenolol, Prozac, Methotrexate, Folic Acid, Naproxen, Xanax (when needed). Just got off Prednisone.
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