Ups and downs this week

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sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 9/3/2010 12:21 PM (GMT -7)   
Well, lets go for the good news first. Charles is still eligible for his Social Security Disability and his money was deposited this morning. I also met my new primary doc yesterday and he is not going to change my meds. He seems very nice and I dont have to go back for 6 months. He will keep things the way my other dr. did it. Thank you so much for all of your prayers. God has been so good to us these last couple months and you have all had a hand in it with your praying for us.
Im changing colors here I love the color I had but boy its hard to see. lol Ok so now for the rest of the story. The chemos is starting to work on killing the cells because because my hair is leaving me at a rapid rate. All I have to do is run my fingers through it and I will get quite abit of hair. I pray it is working as well on the cancer cells. My oldest son said mom I was hoping that would be one side effect that you wouldnt get but to me if it didnt work on my regular cells then it probably wouldnt be working on the bad cells. I refuse to cry over something that is going to come back in time.
My daughter and I stopped by the oncology unit to pick out a wig. They let you use them for free there. I liked this one right away but my daughter convinced me that I should try on three or four other ones first. They all looked really bad and even my daughter agreed so I said Im going to try this one on and guess what even my daughter had to admit that it was perfect. lol  I guess mom still knows best lol
It is going to be a busy weekend for me, I have both my sisters and two of my nephews coming from Nebraska, and my two sons that are in Minot are coming home for the weekend. My brother is also coming here on Sunday so I dont know how much posting I will be able to do till after Monday. Just want you to know that you will all be in my thoughts and Prayers. Sorry this is so long.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 9/3/2010 1:25 PM (GMT -7)   
Shirley, today is a rough day and your post brought tears to my eyes.....Thank you for reminding me that God is good.

((hugs)) please know that you are in my prayers and thank you for being you.
'Brokenness means we are ready for change. Lord, come take my pieces and make me what you want.' Mark Brown

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/3/2010 2:16 PM (GMT -7)   
Shirley, I wish you were my neighbor...I'd walk right over and give you a big hug!
You have a wonderful attitude and I love that about you. I'm glad you found the
perfect wig. When you first saw it, it was meant to be!

You must be excited to visit with your sisters this weekend. I hope all of you have
a wonderful time together.

Shirley you remain in my thoughts and prayers my friend!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/3/2010 2:34 PM (GMT -7)   
Shirley, I'm really happy that your new doctor isn't changing a thing!  I know that was on  your mind.  Also, I'm thrilled, as I'm sure you are, the your husband's disability is continuing.  That is one less thing for you to worry about.  Actually, don't worry.  It doesn't help at all.  You want to save all that great energy to attack the bad cells in  your body! 
 
I was on a lot of medication at one time and, when I would take a shower, my hands looked like the Werewolf's because of all the hair I was losing.  I had had surgery, too, so all that stress on the body affects everything.  I realize that chemo generally means hair loss but, as you said, it will grow back.  It might come in thicker than before!  So, this is just a temporary situation. 
 
I'm glad you found a wig that you like, too.  You know what?  I used to have hair down to my waist...like Cher.  I decided to have it cut short and get a perm.  Well, the beautician forgot about me and left the solution on way too long and my hair was a real embarrassment!  It was like bed springs all over my head!  My baby wouldn't even come to me!  She just cried.  My hubby laughed and he ended up with my teaching assignment book over his head!  turn    Anyway, I went out a bought a wig and wore it for over a year until my hair grew out and settled down!  It's actually not bad at all!  I didn't have to fuss in the morning when getting reading for work.  I'd just plop that on and I was beautifully coiffed! 
 
I love your attitude!  I sure makes the best of a bad situation.  Of course,  you are in my prayers.
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 9/3/2010 3:25 PM (GMT -7)   
Have a great weekend, Shirley. You do have a beautiful attitude! :D

Debbie
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 9/3/2010 4:47 PM (GMT -7)   
I am glad you fiund a wig that you like!! When I was on interferon my hair fell out but mostly in the front half. It didn't matter to me tho as I was so sick that I didn't leave the house much. The rest of my hair got thin too but nowhere as bad.

That is great about hubby's s.s. One less thing to worry about anlong with the new doc not changing meds.
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 

hisfaithful1
Regular Member


Date Joined May 2010
Total Posts : 167
   Posted 9/3/2010 8:37 PM (GMT -7)   
 
 
 
Shirley,  Ditto to what everyone else said. 
 
 It's good to hear you found a wig you like. Small things like that can help so much.
 
I will keep up the prayers, that God will heal you with His own hand or thru the medical treatments.  He will see you through!
Your cheerful positive attitude can't be hurting either.
 
Sounds like a nice weekend coming up for you. Make sure you find time to rest too.
 
Hugs & prayers
 
Debbie S
 
 
 
 

louise47
Regular Member


Date Joined Feb 2010
Total Posts : 138
   Posted 9/4/2010 2:24 AM (GMT -7)   
(((((HUGS)))))) God Bless you
Cymbalta,tramadol,tylonol 4, nexium,verapamil,325 mils of asprin,multi vit,duloxetine hcl,vit D,vit b-6, and simvastatin

High blood pressure,high cholesterol, Carpel tunnel synd,acid reflux,insomnia,fibromialgia, High ANA possibliy Lupus ( no diagnoses) Vitamin D defficient, arthritis in most of my joints.

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 9/4/2010 4:56 AM (GMT -7)   

Bless you, my friend...you are such an inspiration to us all.  Have a wonderful week-end.

huggies

Donna


just_grace
Regular Member


Date Joined Jul 2010
Total Posts : 62
   Posted 9/4/2010 8:30 AM (GMT -7)   
I will keep you in my thoughts.  I'm glad that things are going fairly smoothly for you at this time.  I agree, you have a great attitude about this and it will make your time dealing with it all a bit easier.  Take care
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