Does this sound like it might be fibromyalgia?

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New Member

Date Joined Jul 2010
Total Posts : 3
   Posted 9/4/2010 3:00 PM (GMT -6)   
One day I felt tired, I wound up staying in bed for the next 2 1/2 months!   smhair   I became so weak I couldn't hold my head up. My head was really hurting. My lower back felt like a firework show of shooting pain, continous spasms and horrible buning pain which soon occured from my neck down, except the front of my torso. Every day was a nightmare of pain! Also achiness, sometimes decreased sensation, sometimes feel pain from touch, joints hurt, and numbness for hours. My body and head can bobble like an infants, my knees buckle and I have very little stamina. My calves and knees can feel so tight and contracted. My feet and legs are swollen. My motor skills were bad and I still do not walk right. My thinking skills have declined. I've had a ANA, Cat scan and back X-ray. My  neuro says the Gabapentin I'm taking is all that can be done. I take pain meds. all day. I want to know what's going on with me and if I'll ever have a normal life again. Have you had such horrid experiences with Dr.s? Do you have any ideas about what's going on with me? Does this sound like it might be fibromyalgia?
Hi there, I gave your thread a subject.  Hugs, Karen

Veteran Member

Date Joined Feb 2009
Total Posts : 686
   Posted 9/4/2010 3:48 PM (GMT -6)   
I'm sorry to hear you have suffered so much. What you have could be fibromyalgia - or it could be a host of other things. What have you been tested for so far? Have you been to see a rheumetologist? Please keep searching until you have answers. What diagnosis has your doctor given you up to this point? It may be time to get a new one.
DX fibromyalgia 2007, OCD, depression, anxiety, sleep apnea, hysterectomy.
meds - fluoxetine (prozac), abilify, trazodone, lorazepam, nabumetone, hydrocodone, c-pap machine.
A friend loves at all times. Proverbs 17:17

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40393
   Posted 9/4/2010 3:50 PM (GMT -6)   
Hi Perle,

I hope that you don't mind but I gave your thread a subject. You will get more responses that way. Though don't be surprised if you don't get a lot as this is a holiday weekend and not a lot of people are on the computer.

If you get a chance, check out the thread called "Fibro101". It is the first thread on the forum. There is a section called "what else could it be?". I think that it will help you a lot. It has all the symptoms of fibromyalgia. You can read them and see what you think. You don't have to have all of the symptoms, but you would be surprised what a lot of them are. Things that you will say, now I know...

I hope that this helps some. I hope that you are feeling better.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Forum Moderator

Date Joined Apr 2005
Total Posts : 17057
   Posted 9/4/2010 4:28 PM (GMT -6)   
Hi, Perle, and welcome!  You've gotten some good advice already.  Be sure to read Fibro 101...the first thread on the forum.  There are links to good info about fibromyalgia there and you can sort of tell, yourself.  You do need to rule out other illnesses that have many of the same symptoms as fibro.  You want to make sure you are being treated for the right illness.  Also, I see you posted this is a couple of other forums.  Remember, we are not doctors here.  We are guessing just like you are.  You do need to be checked out properly and given a diagnosis.  That is really important.
You might want to try a rheumatologist if you are not happy with your neuro.  But, make sure whatever doctor you see does treat fibro patients.  There are still doctors out there that don't think this is a real illness!
One of your biggest problems is staying in bed...especially if you have fibro.  You need to keep moving.  If you sit or lay too much, you will be stiff as a board and have more pain and fatigue.  Also, if you truly have spent most of your time in bed, that alone will make you weak.  You need to keep moving.
There are some gentle stretching exercises in Fibro 101 that really do help.  Then you need to find a gentle exercise you can do daily.  I walk and swim as my exercise.  I head out the door with my dog just as the sun is rising.  I don't feel like doing that but I know I will have less pain and be more energized when I get back home.  We walk at least a half an hour. 
I use a couple of supplements that help with pain and fatigue....malic acid/magnesium supplements and vitamin D3 supplements.  There are links about these in Fibro 101 and how they work in your body.
I also get gentle massages.  I found my massage therapist through the American Massage Therapy Association.  They have a lot of education and have to continue to take classes each year in order to be affiliated with this organization.  They study how to massage a customer with fibro.  My massage therapist is wonderful and she helps me a lot.  Here is a link to see if you can find a good massage therapist in  your area...if you are interested.
Moist heat helps with the pain, too.  Hot showers feel wonderful and some have Bed Buddies.  You can find these at Walgreen's and other places or you can make your own by taking a tube sock, filling it 2/3's full of raw long grain rice, and tying a knot at the end.  Pop it in the microwave and it gives off moist heat!
I'm so glad you found us and joined in.  Don't hesitate to ask questions because we are here to help you.  Let us know what you find out from your doctors.  I hope to hear more from  you soon.
Forum Moderator/Fibromyalgia
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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