JUST CAME HOME FROM HOSPITAL

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Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 9/7/2010 5:15 AM (GMT -7)   
Hello and I hope you all are well, my dear Healing Well family.
 
Last Thursday, I was admitted to the ER for rapid heart rate at 161. (Atril fib with RVR for those of the medical field).  They gave me some IV cardizem and it converted to a normal rhythm after a while.  They then started a heparin drip and admitted me to ICU.  My cardiac enzymes were slightly elevated throughout the hospital stay, but the cardiologist said that he felt it wasnt a heart attack, but that if I continued chemo or radiation, that I would have a heart attack.  He also told me I didnt need radiation because I was at a stage I for my cancer.  He further told me his sister just died at age 52 from breast cancer.  I told him that my cancer was endometrial and not breast cancer, and that the oncologist told me this was a particularly aggressive cancer.  He continued to tell me that I didnt need radiation.  I got so upset by his unprofessionalism I threw him out of my room. I mean who is he to tell me I don't need radiation? He also told me I needed a cardiac cath because I could have a heart blockage.
 
So now I need to contact my oncologist and discuss this.  I also need a second opinion of both the cardiologist and the oncologist.  I have an appt this Fri with the oncologist to discuss my options.  Not soon enough for my taste, but what can I do?
 
I want to thank you for all your concern and prayers.  They keep me whole and it keeps me going.  You all give me strength.  I love you all for that.
 
Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 9/7/2010 5:24 AM (GMT -7)   

So sorry that you had to go through this, Linda.  My thoughts and prayers are with you.  When my father had an aggressive and rare form of sinus cancer and he had to wait three months for his first chemo treatment.  I don't get it these long waits for treatment and doctor consultations.  Hope you get your protocal straightened out and are soon on the road to recovery.

huggies

Donna


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40567
   Posted 9/7/2010 5:55 AM (GMT -7)   
Hi Linda,

I am so sorry that you had to go through all of this. I hope that your heart rate is stable now. Please do keep us posted on how things are going. And know that we are all praying for you. You are one special lady and we don't want to see you suffer in any way.

Many gentle hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies

myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 9/7/2010 6:13 AM (GMT -7)   
Oh Linda - thanks for updating us on what is happening for you. This doctor you had sounds like a real drip. Glad you threw him out.
I'm so glad you are feeling better now, but please get lots consults on your situation. I'm sure things will get straightened out shortly.
Take care.
DX fibromyalgia 2007, OCD, depression, anxiety, sleep apnea, hysterectomy.
meds - fluoxetine (prozac), abilify, trazodone, lorazepam, nabumetone, hydrocodone, c-pap machine.
A friend loves at all times. Proverbs 17:17

AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 9/7/2010 6:42 AM (GMT -7)   
I'm sorry you are going through this. I would definitely get a second opinion, especially from my oncologist. In my experience (with family members), Oncologists are used to having to watch for heart related problems, but Cardiologists aren't necessarily used to dealing with cancer. I hope you get everything worked out so you can continue on your path to getting well.

(((Hugs))) - Austen

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 9/7/2010 7:05 AM (GMT -7)   
Im so sorry Linda that you have to deal with this now too. Hopefully your oncologist can get all this straightened out. You are always in my prayers.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 9/7/2010 7:57 AM (GMT -7)   
Linda, I am so sorry you are having to deal with this along with everything else.  I will be praying for you that your Oncologist will get all this worked out for you.  I'm so glad you are keeping us posted. 
"When life knocks you on your knees, you're in the perfect position to pray."

just_grace
Regular Member


Date Joined Jul 2010
Total Posts : 62
   Posted 9/7/2010 8:25 AM (GMT -7)   
I'm glad to hear you are home from the hospital and hope you continue to do alright.  I would have been upset with this doc too and don't blame you for throwing him out.  Bet he was surprised however.  Hopefully you will be able to talk with your other docs and get your second opinons soon.
 
My thoughts are with you.
 
Grace
Dx'd with fibro, oa, and carpal tunnel.
Rx's: Lyrica 150mg 2x day, Savella 100mg 2x day, Nortriptylene 100mg at bedtime, vitD3, fish oil

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 9/7/2010 8:34 AM (GMT -7)   
Linda,

What a lot you've had to go through! I am keeping you in my prayers. With all this, how are you feeling?

Debbie
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/7/2010 8:46 AM (GMT -7)   
Linda, I'm so sorry you have this added stress. Hoping everthing will work out.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

RedDiane
Veteran Member


Date Joined Jun 2007
Total Posts : 906
   Posted 9/7/2010 9:53 AM (GMT -7)   
Prayers and Hugs going out to you, Linda.
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/7/2010 10:08 AM (GMT -7)   
This is horrible!  You are sick then you get two differing opinions.  That is so difficult to deal with.  I had something like that happen to me for something major and I was so confused and didn't know who to believe.  But, you will, once you talk to your oncologist.  It's hard enough to go through all of this but then have your confidence shaken is terrible.  I know you will make the right decisions for  you.  You are in my prayers.
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 9/8/2010 6:39 AM (GMT -7)   
Well I went to see my primary yesterday and he said that I need to continue with the chemo and the radiation or the cancer may come back and I may die. Meanwhile he gave me a referral to a cardiologist whom I hear from the nurses in ICU, is wonderful. So, I am excited by that. My oncology appt with my doctor is this Friday morning. Hopefully he will review the hospital records and determine what is what.

Meanwhile, my daughter is making me an appointment for a second oncologist opinion in Tampa at Moffit cancer center.

I sure hope this all gets resolved. I am tired of the conflict of opinions to tell you the truth. But I trust my primary. I just need to see if the oncologist concurs or not.

Blessings to you all, my dear friends.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 9/8/2010 7:14 AM (GMT -7)   
(((Hugs))), Linda. I'm keeping you in my prayers.

Austen

Sheila1366
Regular Member


Date Joined Aug 2005
Total Posts : 384
   Posted 9/8/2010 7:26 AM (GMT -7)   
Sorry that cardiologist said that to you about his sister, you didn't need to hear that. Sometimes Dr.'s can say things that hurt. I think looking for a different cardiologist is a good idea. I'm glad your daughter is helping you.

I hope everything eases up for you, you don't need extra stress.
Fibromyalgia,arthritis,raynauds syndrome,gastroparesis,IBS,depression,severe costochondritis, generalized anxiety disorder
 
God and Family is my life.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 9/8/2010 2:29 PM (GMT -7)   
Linda, Moffitt Cancer Center is down by me and it has a fabulous reputation.  I'm glad you are getting checked out there.  If you were to continue the protocol you are on now, they do know about your reaction and would be ready for it.  Perhaps the doctors at Moffitt will have other ideas that would take care of the cancer and not bother your heart.  
 
You are such a strong woman and you will win this fight.  I'm keeping you in my prayers.
 
Sherrine 
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 9/8/2010 4:41 PM (GMT -7)   
Thank you for all the support.  It means so much to me to know you all are out there.  I am plugging along with my drs. appts and trying to get cohesive information.  I humbly ask you to please continue to pray for me. 
 
God bless you all.
 
Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 9/8/2010 6:12 PM (GMT -7)   
Keeping you in my prayers Lindaloo and you find a good doctor.
____________________________________________________________

Don't think about what you used to be able to do............Think about what you DID do today !
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