Anyone out there been diagnosed with Wegeners Disease?

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The Watcher
New Member

Date Joined Aug 2010
Total Posts : 16
   Posted 9/8/2010 12:49 PM (GMT -6)   
Would love to chat with others about this ...all the forums on this subject are not helpful
44 year old female , I have survived three strokes, 2 bouts of cervical cancer, I have fibromyalgia , Degenerative disc disease, arthritis in my hip, neck and both shoulders and my new condition is hypersensitivity pneumonitis, interstitial lung disease, pulmonary fibrosis and wegeners granulamatosis currently taking IMURAN , sulindac, skelaxin

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 9/8/2010 1:34 PM (GMT -6)   
Hi Watcher, I'm sorry you have not been able to find someone to chat with about
Wegeners. There were a couple of people with that diagnosis on the Lupus forum
and someone who used to post also on the fibro forum.

I know that it is an autoimmune disease that affects the vascular system and lungs.
I have MCTD (lupus, Scleroderma & RA). I hope the Imuran is helping...I was on
that for awhile before I was switched over to MTX. I notice you have fibro also.
This is a wonderful forum for caring support. We all help eachother get through
tough times. There are many people on this forum with multiple dx's. We are very
supportive and willing to help.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

The Watcher
New Member

Date Joined Aug 2010
Total Posts : 16
   Posted 9/8/2010 4:08 PM (GMT -6)   
Thank you for your support
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