I just want to cry

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kathydownunder
Regular Member


Date Joined May 2009
Total Posts : 447
   Posted 9/9/2010 3:55 AM (GMT -7)   
It is getting me down.
The pain is getting on top of me, I am going to bed early every day just to take my meds to put me to sleep because the pain is getting on top of me. It is not just the pain it is the numbness as well, my hands keep going mumb my fingers on my right hand.
I know it is just the fibro, but it is driving me nuts.
My SIL went and brought us KFC for tea because I was just not up to cooking a meal, he only had a short break for work as he had to go back to work. He is working really long hours at present.
Now my GP has rung well his office rang to tell me to change my appointment because he is going away. I can't see a different GP at his office because the @@@****** fool who works there tells me if I take all these vits and minerals I will be cured he even tells you the brand to take. You may think fair enough, except he tells that to people who are very ill and CAN NOT go off there meds it would kill them. I could really tell you what everyone I know who has seen him say to explain what they think of himbut, the words are not something I will write down. Fool.
So it is all getting on top of me tonight.
 
Kathy

saintsfan
Regular Member


Date Joined Aug 2010
Total Posts : 171
   Posted 9/9/2010 4:04 AM (GMT -7)   
Kathy, sending you a gentle hug. I understand your pain level-I'm in the same boat. HOpe you find relief soon.
Dx: Fibro, HTN, Depression, IBS, Lupus like symptoms

"The Lord is close to the broken hearted and He saves those whose spirits have been crushed" Psalm 34:18

sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 9/9/2010 5:22 AM (GMT -7)   
Sorry you are having such a rough time of it right now. You are in my prayers.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

EML
Regular Member


Date Joined Jul 2010
Total Posts : 202
   Posted 9/9/2010 5:27 AM (GMT -7)   
Sending you prayers Kathy and sending you soft hugs as well.

Praying things get better and you start to feel a bit better soon.
____________________________________________________________

Don't think about what you used to be able to do............Think about what you DID do today !

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 9/9/2010 5:51 AM (GMT -7)   
awwww Kathy...I'm sending you a long distance hug {{{{{ Kathy }}}}} - I can feel your stress in your message. Are you on medication for breakthrough pain? I wonder if that's something that might help you. I'm sorry, I can't remember if you're working or not - if you are, are you able to reduce your work time, so you have more time at home to rest?

It's hard when it's just one thing after another...I feel like I can't catch a break anywhere when I feel like this. I generally have lain down again for further sleep when it happens (and inevitably, as soon as I'm super comfortable, I either have to pee, or I have a massive hot flash and get soaked from head to toes with perspiration.

Could you try coming up with a technique that would help you when you're feeling so anxious? Anything from crafting to riding horses, and beyond is possible, so don't be shy about sharing your interests with us.

Hugs,
Pam
DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily

sunnybrook1969
New Member


Date Joined Sep 2010
Total Posts : 19
   Posted 9/9/2010 7:14 AM (GMT -7)   
Kathy,
I am sorry to hear that the pain is on top of you. Hey I like the way you described that. I will have to remember that one. My name is Sue. I deal with the same thing there is a few GP at my office and they don't believe in F/M . What ever this is real. As real as ever. I am sorry bout the pain and sorry that you have to go through it. I have a quote, I thought when I was laying down yesterday, not sleeping just laying there, cause sleep in my book don't happen, even with the medicine to help me sleep. When you feel defeated, fight harder. Not that this helps us. But all we can do is fight, and it is a long struggle fight. I am just real tired today, and I really have not slept this week much. I am lucky if I get 2 to 3 hours a night. I am waiting for the day when I can't get up and I am in the bed all day. I know that this day is coming and then once I am in bed as much as I need the sleep. The next step is the pain. I have to walk with a cane. I have a brace for my right hand, and I got a sling for my arm. Feels better if I just don't move it. I love being able to be on here and talk to others who are going through the same as me.
my email is
Sue
 
Sue, please don't put your email up on the forum.  Anyone can get it and cause you a world of problems.  I did send you an email about this.  Thanks!
 
Sherrine

Post Edited By Moderator (Sherrine) : 9/9/2010 11:16:50 AM (GMT-6)


Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 9/9/2010 7:18 AM (GMT -7)   
Kathy,
 
Wish I could give you a hug in person. I understand how you are feeling right about now. It's all consuming.
I hope the griping pain leaves you very soon and you get get some rest and peace of mind. I also hope you are
able to get a regiment or schedule so you can go back to living a life as close as possible to your old one prior to
Fibro.
 
Hugs
 
Monica

just_grace
Regular Member


Date Joined Jul 2010
Total Posts : 62
   Posted 9/9/2010 8:08 AM (GMT -7)   
Kathy, I'm so sorry you're in so much pain right now.  Try not to let it upset you too much, remember it will pass, but stressing with it will make your pain worse.   I understand not wanting to see another doc.  I can't stand my docs pa.  I've seen her once and hope I don't ever have to see her again.  I felt like she dismissed everything and it was a wasted appt.  Try soaking in a nice warm bath, light some candles and put on some relaxing music.  What helps me the absolute most when I'm in pain is simply cuddling up next to my husband, which is rarely possible due to our totally different work schedules.  So I try to find other ways to make due.  I know it's tough.  Hang in there.
 
My thoughts are with you
Grace
Dx'd with fibro, oa, and carpal tunnel.
Rx's: Lyrica 150mg 2x day, Savella 100mg 2x day, Nortriptylene 100mg at bedtime, vitD3, fish oil

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 9/9/2010 10:19 AM (GMT -7)   
Kathy, I'm sorry you are having all these problems.  But, I'm glad you aren't going to that other doctor.  Stick with the one that has given you the help.  It's worth the wait.  Hope you are feeling better today.
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

kathydownunder
Regular Member


Date Joined May 2009
Total Posts : 447
   Posted 9/9/2010 4:28 PM (GMT -7)   
Thank you all
This morning after a really bad night I got up early and did my walk, I even walked further than normal. Yes I hurt and to top it all off today is when I do my volenteer work it is not hard just sitting around all day.
My daughter is working with me today. It gets me out of the house so I can sit back do nothing and not feel guilty doing it.Last night I took a nice long hot bubble bath, relaxed remember I needed to take time out for me.
Yesterday was stressful I went to see my Father I will not write DD as he has always been about him and what he thinks.
Then of to see my mother [once a month visit] as always it was about her and my youngest sister who is all about herself as well.
What a great family no stress for me today.
I no not work as my body would not allow me to 2 doctors put me on the pension about 14 years ago.

Kathy

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5929
   Posted 9/10/2010 4:08 PM (GMT -7)   
Kathy,
 
I understand how hard it is to deal with an "I-me-mine" family.  The only extended family I have left is one brother and sister-in-law, who used to be my best friend.  In 10 years of living 10 blocks away, they've never once come to visit me.  So guess what - now that our parents are gone, I don't bother, either.  It's sad, but a lot less stressful than always being the one to give, give, give and getting nothing back.  It's painful to give up all the expectations of what family is.
 
Feel better!
 
Debbie
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