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tulips
Regular Member


Date Joined Nov 2007
Total Posts : 105
   Posted 9/12/2010 8:33 PM (GMT -7)   
Has any one tried this medicine for fibromayalgia.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 9/12/2010 10:12 PM (GMT -7)   
Hi Tulips...

This medication has a lot of promise. Stanford University Pain center is the one doing the research on it. Although it doesn't have approval from the FDA to use it for Fibro, some doctors are prescribing LDN off label use in patients with fibromyalgia. I've held back asking my doc about it but I think I'm about ready to talk to him about it. I wanted to give this some time to make sure the side effects continued to be extremely low first.

I hope someone who has tried this will check in and share about this. Glad you asked the question, Tulip!

Chutz

Here are some sites for those interested.

snapl.stanford.edu/research/ldn.html

www.youtube.com/watch?v=jtc2JARVpPw
Moderator on the Fibromyalgia and Chronic Pain forums

“If you want to live a happy life, tie it to a goal, not to people or things.” Albert Einstein

tulips
Regular Member


Date Joined Nov 2007
Total Posts : 105
   Posted 9/13/2010 5:32 AM (GMT -7)   
Ya I want to know if any one had inpprovement with muscle cramps and nerve pain. Cause that's what my problem Is. Continous nerve activity like in Isaac syndrome.
I hear it's bieng given in to ms patients with good results but I haven't researched what sysmtpons is ms being prescribed for

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40572
   Posted 9/13/2010 6:12 AM (GMT -7)   
Chutz,

Thank you so much for the links, I found them very helpful.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies
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