New here, New to Fibro...

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New Member

Date Joined Sep 2010
Total Posts : 1
   Posted 9/14/2010 1:37 AM (GMT -6)   
Well I was relieved to find this website and see how many people out there I can relate to about my fibromyalgia diagnosis. I've been hurting baad the last three - four years seeing different doctors on and off I finally found a doctor to listen and take me serious. I'm twenty years old and having all this pain has just been making me go insane. My new doctor put me on gabapentin and said it could take up to 6 weeks before I start feeling some relief... Well I felt MAJOR relief after the first day of taking it but I also felt so completely out of it that I just felt as if I had no reflexes, concentration, or a working mind for that matter. This was three or four days ago and the days following I continued taking the medicine with none of the above side effects. It seemed that my tolerance built quickly and the pain started returning. as told by my doctor I took my first morning dose today. He started me off with 100mg at night for 3 days then 100mg morning and night for 3 days on to 100mg three times a day and so on. Again today after upping my dosage I felt the same way when I first took the Gabapentin a few days ago. Anyone else here have experience with this medicine? I'm wondering if this is normal and to be expected each time I increase the dose or is it too strong or just not the right drug for me? I am going to keep taking it and in the meantime I'm making an appointment to talk with my DR soon
It will just be a shame if this is not normal. For the first time since I was 17 I've felt good and "normal" and happy and just felt like my old self. The thought of losing those feelings again are hard to even think about. I am trying very hard to just stay positive about the situation. All the things I used to get joy out of I haven't been able to do for a few years now as most of my joy comes from activities such as jogging, basketball, rollerblading, and many other things that aren't even as strenuous. Anyway, hoping to find something/someone to relate with or any advice at all.
Thanks Everyone

Regular Member

Date Joined Aug 2010
Total Posts : 171
   Posted 9/14/2010 6:06 AM (GMT -6)   
Hi and welcome! I personally don't have any experience with gabapentin but there are alot of other members who have and I'm sure they will be here soon with some advice. I just wanted to welcome you to the forum and send a gentle hug your way.
Dx: Fibro, HTN, Depression, IBS, Lupus like symptoms

"The Lord is close to the broken hearted and He saves those whose spirits have been crushed" Psalm 34:18

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 9/14/2010 9:05 AM (GMT -6)   
Hi KRP and welcome to our fibro family, one thing I have learned with medicines is that what works for one of us may not work for another. I took gabapentin a long time ago but it never really did anything for me. It sounds like it is your body adjusting to the new dosage but you are right about calling your doctor and asking him about it. Always better to be safe than sorry. Sorry I cant be more helpful here. Glad that you have found us here and please let us know what the dr. says.
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Forum Moderator

Date Joined Apr 2005
Total Posts : 17060
   Posted 9/14/2010 11:11 AM (GMT -6)   
Hi, KRP, and welcome!  I'm glad you found us and joined in.  I have never taken gabapentin.  It's the generic for neurontin.  These do sound like possible side affects of the medication.  Your pharmacist would know, as well as your doctor.
I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements and vitamin D3 supplements for my pain and fatigue. 
Be sure to check out Fibro 101...the first thread on the forum.  There are links to good info about fibromyalgia and you will learn a lot.  There are links about the malic acid/magnesium supplements and vitamin D there too because many with fibro are deficient in some of these vitamins and nutrients.
Do keep moving.  Exerise is good for this illnesses but usually it's gentle exercise like walking and swimming.  But, if you can do the things you love and not have more pain, then go for it!  Everyone's body reacts differently.
I'm happy you are here.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.
Forum Moderator/Fibromyalgia
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Regular Member

Date Joined Jun 2010
Total Posts : 197
   Posted 9/14/2010 3:48 PM (GMT -6)   
Welcom to our family. Everyone here is so helpful and gives us a shoulder to lean on when we need it. I did take Gab. and it did work for me in the very beginning. They kept increasing the dosage and as my pain inscreased I could not tell that it was doing much good. I have been switched on and off so many meds that I can't even name them anymore. My dad takes the Gab and loves it. He said it really helps him and some of the side effects you speak of he had in the beginning as well.
I hope things level out a bit for you. Exercise is huge so keep moving. We all have good days and bad. I had a really good morning and right now I feel like a truck has run over me, so sometimes it's minute by minute.

Regular Member

Date Joined Sep 2010
Total Posts : 29
   Posted 9/14/2010 4:03 PM (GMT -6)   
I was 20 years old when I was diagnosed. I was fortunate and was able to get my under control at least in my twenties. I still had pain but the worst for me was the fatigue issue. It was when I turned 30 that I started have more problems and more illnesses diagnosed. Welcome. I am new here myself and I am already finding comfort from the site.

I was put on Vioxx, flexerial and Trazodone. I still take the Trazodone and now I take Mobric for my arthritis. I am feelin better on that medication.

Hugs and Prayers,


Forum Moderator

Date Joined Nov 2008
Total Posts : 5927
   Posted 9/14/2010 4:43 PM (GMT -6)   
Hi KRP -

Welcome! I had a short relationship with Lyrica this year that didn't last, because it just stopped taking my pain away after a few weeks. I only mention this because apparently the way it works is similar to gabapentin. But as everyone says, drugs all behave so differenly for different people.

You're so young, and Fibro is nothing to sneeze at....not fair! Hopefully, the gabapentin will do the trick for you and you can continue to get some of your old life back. How is your support system?

...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

Regular Member

Date Joined Aug 2010
Total Posts : 80
   Posted 9/14/2010 5:22 PM (GMT -6)   
Hi...welcome...this is a great place to chat with others who understand. I am pretty new here and haven't had the fibro dx very long either. Working my way through the meds to find one that works. I did try gabapentin for about a month but dr took me off due to extreme back pain. My brother took it for many years and he did mention having the side effects each time he did a dose increase but for sure you would want to mention it to your dr. Best to keep them aware of the whole picture. Good luck to you.
Trying to keep my focus...

Fibro, deg/bulg discs in neck, rotator cuff tear, exteme nerve pain in hands after carpal tunnel on both, multiple foot surgeries with pain still, IBS, tension headaches, (Lap band)

Savella, MS contin, Vicoden, claritin, prilosec, flonase, vitamins, calcium

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 9/14/2010 5:37 PM (GMT -6)   
Hi glad you joined the family. I have found relaxation therapy very
helpful in reducing my stress...the more stress...the more pain. Taking time
out during the day to do deep breathing exercises and meditation does help with
my pain. Soaking in a hot bath feels good to me too. I have several microwave
heating pads that are put to good use also.

When it comes to meds, it's all trial and error, what works for one, doesn't
always work for another. I'm on Savella and take cyclobenzaprine for flares...
it does take the edge off. Walking also helps, without it I really hurt.
Hoping you can find something that works well for you!

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Regular Member

Date Joined Aug 2010
Total Posts : 101
   Posted 9/14/2010 8:13 PM (GMT -6)   
Hi krp! Welcome to our family.

Dx: IBS, Severe Migraines, Chronic Fatigue Syndrome, High Blood Pressure, Low vitamin d levels, Anxiety, Severe Depression, ringing in the ears, dizziness, impaired coordination, constant chronic pain all over my body.

Meds: Lyrica twice a day 25mg, Cymbalta 30mg at bedtime with lunesta 3mg at bedtime, NUCYNTA 100mg 1 Tablet 4x's a day
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