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MEG25801
Regular Member


Date Joined Jun 2008
Total Posts : 204
   Posted 10/15/2010 6:41 AM (GMT -6)   
I have an unusual question...read somewhere (can't remember where it was now) about a correlation between fibro and agent orange. How many of your fathers were exposed to agent orange in Vietnam?

Thanks
Missy
Diagnosed with Panic Disorder(16 yrs ago)-GERD(12 years ago)-GAD(16 yrs ago)-IBS(12 years ago)-DDD(6 years ago)-Arthritis(since teenager)-Controled HBP(2 years ago)-Diagnosed with fibromyalgia 9-29-08.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol~Lyrica

Lordsdaughter
Regular Member


Date Joined Oct 2010
Total Posts : 54
   Posted 10/15/2010 6:56 AM (GMT -6)   
Hmmm thats interesting. My uncle was exposed

Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1335
   Posted 10/15/2010 8:51 AM (GMT -6)   
Missy,
 
Nice to see you again. Good, but scary question. I would be very interested in finding out about that connection. My father was of the older generation (WWII era), but my DH served in VN, as did my brother. They both were exposed to AO. I have wondered for yrs if health issues they deal w/ were from that exposure. I have also been concerned about the health of my sons and my niece and nephews. 
 
If you come across that article again, pls let me know. I will try to find some info on it, also.
 
Was your father in VN?
 
God bless.  Alice.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15190
   Posted 10/15/2010 10:38 AM (GMT -6)   
My father wasn't in the military due to a heart defect.  We have not had any "connection" with Agent Orange.  But, I do know that servicemen have had the symptoms of fibro and they said they think it's from Agent Orange.
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 10/15/2010 2:07 PM (GMT -6)   
I don't think there would be much correlation, simply because you have people who suffer from Fibro in many countries that weren't even involved in the Vietnam War. I'm from Canada, and I would expect that very few Fibro sufferers here have fathers who fought in Vietnam. I could be wrong, but it's a good question to ask.

I do know that Agent Orange is suspected in the many handicaps found in babies born in countries where it was used. My girlfriend has an adopted boy from Cambodia who was born missing both arms at the elbow, and missing one foot. There are many children there with similar issues, so it definitely caused bodily harm long after it was actually used.

Pam
DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily

Mrs_Mike
Regular Member


Date Joined Sep 2010
Total Posts : 235
   Posted 10/15/2010 4:27 PM (GMT -6)   
Wow this has me very interested. My dad was heavily exposed to agent orange. When my brother n I were growing up, we had acne worse than our derm had seen on any other teens. They said that was probably due to AO! Hmmmmm...
Fibromyalgia, migraines, arthritis, PCOS, IBS, anxiety, chronic insomnia; Lyrica, ambien, yaz, lidocaine patches, ultram, advil, midrin, migraten, skelaxin, (fish oil, D3, B's 12& 6, probiotic, DHEA, soy isoflavone, I'm missing something I'm sure.) PS: I think fibromyalgia is a jerk!

Love, hope, and hugs,
Mrs_Mike

sonhasfibro
Regular Member


Date Joined Oct 2010
Total Posts : 57
   Posted 10/16/2010 12:44 AM (GMT -6)   
OMG My son used to be a bit excentric and buy helmets and such from e-bay.
He bought a real ww2 gas mask and wore it in a halloween parade before he got ill.

Never thought about that until now....

Does anybody know how or if they have testing for AO

grammygnecco
New Member


Date Joined Feb 2013
Total Posts : 3
   Posted 2/22/2013 3:13 PM (GMT -6)   
My daughter has fibromyalgia and my son (now deceased) had hypertrophic cardiomyopathy.  Both of these things are congenital and NEITHER of them are present on either side of the family.  My husband was exposed to agent orange and had hodgkin's lymphoma.  (in remission) 
 
I am certain that that chemical did something that caused my kids to become ill.

mrsbugzy
Veteran Member


Date Joined May 2012
Total Posts : 641
   Posted 2/22/2013 6:46 PM (GMT -6)   
very interesting, my docs are now thinking i have fibro, and not long ago my biological father said his doc needed a list of all our problems because he was exposedin Nam....
Gluten intolerance, gluten free for 10+ years,
hypothyroidism for 20+ years (family history)
total colectomy with ileo rectal anastomosis 1/12
Mom of 10 year old with chronic kidney issues
Had grapefuit sized ovarian cyst entangled with remaining good intestine removed :(

Spookiesmom
Regular Member


Date Joined Jan 2012
Total Posts : 364
   Posted 2/22/2013 9:11 PM (GMT -6)   
Yes, there is a DEFINAT connection to AO and diabetes. Other issues, I suggest contacting your local VA.
T2, OmniPod,Fibro,MVP,CAD,4 level cervical fusion, L5_S1 needs fusion, arthritis all over, need 2 knee replacements, Vit D3, and a lot of other meds!

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5542
   Posted 2/23/2013 12:03 AM (GMT -6)   
My dad was in WWII and he told me a story about his whole platoon being instructed to go into a building that was full of some kind of gas - as a training exercise. It made them very sick.

They never found out what it was they had been exposed to. Real nice. I think so much of what's wrong with all of us must be environmental - -

Debbie
Moderator, Fibromyalgia Forum

Fibromyalgia, herniated disc L4-5, (recent discectomy), DDD, Hashimoto's thyroiditis, IBS, migraines, tachycardia, hearing loss (probably Menieres) with balance issues, chemical sensitivities

Fishchris
Regular Member


Date Joined Feb 2012
Total Posts : 446
   Posted 2/23/2013 11:47 AM (GMT -6)   

Well now that sounds like a $10,000 question for me !

My father was exposed to Agent Orange in Vietnam, and died from a rare lung disease at the age of 47 (I was 11). Even the government admitted that he death was "connected to his time spent in the service".... but never went so far as to use the exact words "agent orange". Instead, it was like, just be quiet about everything, and we will take care of you......

Now, sorry to throw a wrench in your theory, but after I tell you the next little fact, please read on... their is much more...

I was adopted. So what dif that my father had been exposed to agent orange, right ?

~~~~~~~~~~

Skip forward a few decades, and at the age of 21, I found myself working at the Ortho division (pesticides) of a Chevron refinery. We were pressure washing equipment, pipes, fittings, etc, that had been contaminated with a hideous chemical compound called Difolitan. This is a defoliant which kills not only any plant life, but most animal life it comes into contact with > JUST LIKE AGENT ORANGE ! In fact, chemically speaking AO and Difolitan are both very closely related. Hmmmm.

It had the weirdest, funkiest smell ! It was like, you could barely smell it, but when you finally got the faintest whif, it made you want to run and vomit ! And if it got on something, cloths, boots, whatever, you might as well just throw it away, because nothing would remove it.

Oh, another "fun fact" about Difolitan.... It was not made "on purpose", but rather, was the by-product of some other hideous crap that was being made. And it was SOOO toxic, that it was not legal for use, or sale in the US. So, how to get rid of it ? Why simple... just barrel it up, and send it to 3rd world countries that don't have the strict environmental and health guidelines that the US does.... probably for the cost of shipping :(

~~~~~~~~~~~~~

One time while working around this stuff, my throat started swelling shut. Me and my co-workers also started having all kinds of weird mental stuff start happening... depression and such. That's when we all agreed, "Ya' know what ? No more of this $#!+.....

Sometime within the next year is when I developed Fibromyalgia and IBS. That was 26 years ago.

Simply a coincidence ??? You decide.

Fish

 

 

 

 


Post Edited (Fishchris) : 2/23/2013 9:51:04 AM (GMT-7)


steppingstone
Regular Member


Date Joined Apr 2010
Total Posts : 366
   Posted 2/24/2013 1:02 AM (GMT -6)   
No one in my family was in Vietnam, so my Fibromyalgia is not related to Agent Orange. However, I was raised on a farm, and was exposed to a number of different pesticides during my childhood.

mrsbugzy
Veteran Member


Date Joined May 2012
Total Posts : 641
   Posted 2/25/2013 5:20 PM (GMT -6)   
Well, I did call my father and he is calling his doc at VA and discussing all my health issues with him...interested to see what he has to say...
Gluten intolerance, gluten free for 10+ years,
hypothyroidism for 20+ years (family history)
total colectomy with ileo rectal anastomosis 1/12
Mom of 10 year old with chronic kidney issues
Had grapefuit sized ovarian cyst entangled with remaining good intestine removed :(

grammygnecco
New Member


Date Joined Feb 2013
Total Posts : 3
   Posted 2/25/2013 8:06 PM (GMT -6)   
Good luck, mrsbugzy. I hope you get the answers you are searching for!

smartredfox
Regular Member


Date Joined Jan 2010
Total Posts : 103
   Posted 2/25/2013 9:02 PM (GMT -6)   
OH PLEASE SHARE if you hear anything else. My dad was heavily exposed and I've read before that they are finding correlation. Of course there isn't just ONE cause for fibromyalgia so just because you parent wasn't exposed doesn't mean there isn't correlation. I was just beginning to research it 2 years ago then my dad passed. I kinda forgot about it since. But now I'm "re"intrigued!! :-)! I might call my VA. I'm a vet too and need to be seen about a service connected injury too. Might as well make it a double date.

grammygnecco
New Member


Date Joined Feb 2013
Total Posts : 3
   Posted 2/26/2013 11:06 AM (GMT -6)   
True, there isn't one cause of Fibro...just as there isn't one cause for so many things these poor men/women suffer from. However, their suffering must not be over looked because of this. I think you should look into your father's situation...doesn't cost anything.
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