How did your Fibromyalgia start?

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Runckle
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Date Joined Nov 2010
Total Posts : 93
   Posted 11/4/2010 4:16 PM (GMT -6)   
I was at my peak of fitness when it all started. Hardly ever had a problem in my life then Boom! when I was 24 it came on like a ton of bricks when no-one had a clue what was wrong with me. It took 10 years before I was able to determine what I had. A friend who was a nurse during the war was able to tell me what I had, not a Doctor. This was all in 1997 and still they don't believe that I have this condition.

Post Edited (Runckle) : 11/5/2010 2:15:42 AM (GMT-6)


sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 11/4/2010 5:15 PM (GMT -6)   
I believe mine started when I fell off a horse when I was very young. I have also had several other things that could have helped it along but I have been in pain for as long as I can remember.
Gentle Hugs
Shirley
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Vannie
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Date Joined Aug 2010
Total Posts : 795
   Posted 11/4/2010 8:02 PM (GMT -6)   
My symptoms started about ten years ago, but I ignored them. Eventually, this Spring, my feet hurt so much, that I had trouble walking.  They burned. And...one of my pinky fingers was so sensitive I couldn't touch it or let it touch anything. It felt as though it had been severley burned.

Notluvinit
Regular Member


Date Joined May 2010
Total Posts : 75
   Posted 11/4/2010 11:53 PM (GMT -6)   
Mine started August 09 when I was put in the hospital with chest pain and panic attacks was sent home with no diagnosis. Then in Oct of 09 i started having leg/hip pain, twitching and burning and could not sleep at all...My doc at that time said it was not fibromyalgia. Finally, I was sent to a Rheumatologist and she diagnosed me with fibro.

Lordsdaughter
Regular Member


Date Joined Oct 2010
Total Posts : 54
   Posted 11/5/2010 6:01 AM (GMT -6)   
I think mine started 11 years ago after the birth of my son and my back surgery.

Frankey
Regular Member


Date Joined Nov 2010
Total Posts : 299
   Posted 11/5/2010 9:03 AM (GMT -6)   
Mine started 4 years ago. My first symptom was sudden numbness and tingling in my left arm. Went to the ER and they thought it was a pinched nerve. Went for Physical Therapy and they wouldn't treat me without confirmation of it being a pinched nerve. Had an MRI, no pinched nerve. Went for an EMG, it was fine. Right after the EMG numbness and tingling began in my leg (like literally within hours). Went for a brain scan it was fine. Began being treated by a holistic/chiropractor. Things continued to get worse, chest pain, heart issues - heart checked out and cardiologist wanted to dx me with panic disorder but my PCP didn't believe it. Then came on the anxiety, acid relux, ibs, loss of appetite, pain everywhere, foggy head. Saw 2 neurologists, after already seeing a peripheral nerve specialist. Tested for all autoimmune, lyme, rare family diseases, basically 10 blood tests every week for 2 months - even genetic testing! Finally one day my brother poked my back and I screamed bloody murder. Went to my Dr the next day for the exam and she diagnosed it but sent me to a rheumatologist for official dx - in total from beginning of symptoms to dx it took 8 months. The onset of my symptoms were so close together and some so severe, they believe it was a virus that caused my onset.
"Just when the caterpillar thought the world was over, it became a butterfly" - Proverb

Runckle
Regular Member


Date Joined Nov 2010
Total Posts : 93
   Posted 11/5/2010 9:27 AM (GMT -6)   
My impression was that it was a virus that brought on my condition!

Post Edited (Runckle) : 11/5/2010 2:20:47 PM (GMT-6)


MeGoSun
Regular Member


Date Joined Nov 2010
Total Posts : 389
   Posted 11/5/2010 12:59 PM (GMT -6)   
Can't tell you when it started. Not even sure it's what I have. My doctors tell me that I've abused my joints over the years and there's nothing that can be done but to take meds for the pain. Looking for a new doctor but that's not so easy. Been unemployeed for 2 yrs. and not everyone takes my husbands insurance. My sister said that she thought I had it about 4 yrs. ago so I started looking into it. I do have hypothyroid. I have read that they can some times go together. I am 51 yrs. and have been told I have tennis elbow in both elbows and carpal tunnel in both wrists by a rhemotoid doctor after about a 5 minute exam. lol Besides that my neck, knees, ankles and upper and lower back are painful. I also have numbness of my pinky finger part of ring finger and side of hand to my wrist. I think it comes from my elbow. Right now my right knee is very painful when I get up from sitting and only get a little better when I walk.  I don't have time to sit and relax much, my mother in law is in the last stage of dementia and I am up and down the stairs caring for her. What is the best over the counter meds for pain if any. I have been taking advil but it is not even touching the pain now. I am tired all the time and my mood swings can be bad at times. Mostly 3 weeks prior to my peroid until after. Just wanted to vent and see what others think. Thanks

Runckle
Regular Member


Date Joined Nov 2010
Total Posts : 93
   Posted 11/5/2010 3:17 PM (GMT -6)   
@ Megosun
Try reading this book:- Living with M.E. By Dr Charles Shepherd It will describe every CFS related condition. You will be able to see which condition your akin to.

Best wishes
Runckle
Fibromyalgia, Depression, Memory problems, Psoriasis, Hiatus Hernia, Asthma, Anger problems, Osteoarthritis, Fitness Problems, IBS, Pituitary Glandular problems!
Note * Florence Nightingale, Elizabeth Barret Browning and Charles Darwin were ME/CFS sufferers...
From Living with M.E. By Dr Charles Shepherd Page 11 Line 11...

MeGoSun
Regular Member


Date Joined Nov 2010
Total Posts : 389
   Posted 11/5/2010 5:18 PM (GMT -6)   
Thank you very much. I going to get asap.

retmomcop
New Member


Date Joined Nov 2010
Total Posts : 4
   Posted 11/16/2010 8:35 AM (GMT -6)   
Mine started immediately after having an Epidural Steroid Injection.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15394
   Posted 11/16/2010 12:28 PM (GMT -6)   
Runckle, I was watching television when I was hit with this illness.  I had no trauma, no virus, no accident, no surgery, no nothing!  Like you, Boom!, I went to being healthy to being in extreme pain...in a 45 minute period.  This is part of the problem with fibro.  People remember when it started but there are various reasons.  Plus, what works for one for pain doesn't necessarily work for another.  It's so confusing, not only to us but also to the doctors studying this illness.  The most advanced studies are now leaning towards this being a neurological illness.  I hope they find the cause soon.  At least they are looking now!  For years, this wan't considered an illness. 
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 11/16/2010 12:46 PM (GMT -6)   
@Megosun - do you have access to an OTC drug called Aleve, or is that still considered a prescription in the States? I've heard a few people say it was the best OTC they had tried for Fibro, so maybe that's an option for you.

I have had pain for as far back as I can remember, but I know that a family incident in my mid-teens caused an unreal amount of stress in my life (my mom walked out on the family and then my dad kicked me out of the house - at age 15). I don't doubt that the stress I was experiencing at that time put me over the edge and vaulted me into Fibroland. So, I've been living with it for over 30 years now.

All the other issues I deal with have been more recent - starting in 2004 until present day. Most of the time, it all just blurs though into one huge "pain ball" and I can't tell what starts where.

Take care,
Pam
DX: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Diabetes (just diagnosed), Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Hard Start for IV's, Unable to vomit due to surgery.

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine + Vitamin D + Multi daily

ktpie
Regular Member


Date Joined Nov 2010
Total Posts : 38
   Posted 11/16/2010 3:21 PM (GMT -6)   
Mine came on like a ton of bricks as well. Everything was fine. Then, my best friend died. Shortly after, the love of my life died. I was living in the Pacific NorthWest. It was cold, damp, horrible... My car broke down. I was walking to the bus stop when a sharp shooting pain jolted up my right leg and into my lower back, sending me to the sidewalk. I just laid like that in the rain for a very long time until a man picked me up. I'm just thankful he was a soccer-dad and not a serial killer/rapist! I couldn't use the bathroom for three days. I couldn't move. I went to the emergency room three times - and they prescribed anti-biotics (Doctors can be really stupid/careless). It took me nearly 8 months, losing my whole house, all my furniture/antiques, using up all my savings on rent, moving into my car, driving down the coast to get away from the damp climate, living in the woods for a month, and then living in a hostel, etc. before I was ever able to get a diagnosis. It's actually a much longer, more horrible story than this... but I think I'll save it for the book! ;P
Diagnosis: Severe Fibromyaglia Syndrome. / Syndrome = multiple problems. Don't say, "I have Fibromyalgia, Chronic Fatigue, Depression, etc." - just say - "I have Fibromyalgia."

http://medical-dictionary.thefreedictionary.com/fibromyalgia+syndrome

Treatment: All natural. Anti-inflammatory foods + a gluten-free diet. Think positive daily. Natural anti-inflammatory cream. Vitamin D. Fish Oil.

Myself 09
Veteran Member


Date Joined Dec 2009
Total Posts : 4442
   Posted 11/16/2010 3:31 PM (GMT -6)   
I first started noticing symptoms immediately after a trip to Italy for research and defending my dissertation prospectus. I was doing a production as well, and was having serious trouble remembering lines. I was sleeping badly, waking up in a lot of pain, and had very little energy. Even after doing some floor work and stretching, I still felt awful. A

t first, I thought that my problems were linked to a busy schedule. When the show ended, and then the school year ended, my symptoms did not resolve themselves. I knew what it was, since my sister had been diagnosed with FM at least a decade earlier.
Fibromyalgia DX 2005. Ulcerative Colitis, arthritis, TMJ. Family History of Fibro--2 out of 3 siblings diagnosed.

There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot.

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5601
   Posted 11/16/2010 7:12 PM (GMT -6)   
Mine seemed to come on gradually, starting in high school...then with each of my 3 pregnancies came more symptoms. I really started seeking answers after my last child was born and I was on the floor in tears every night with back pain. Finally found a decent doctor who diagnosed me about 1992.

Debbie
...fibromyalgia, hashimoto's thyroiditis, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......daily Nortriptyline, Levothyroxine, & Clonopin, and Darvocet as needed

CRZ49
Regular Member


Date Joined Nov 2010
Total Posts : 23
   Posted 11/17/2010 6:31 AM (GMT -6)   
Mine started about a year into my first (horrible) marriage. When I went to the doctor, it was labeled "stress" and nothing was done.

I went to a second doctor. He told me I needed to "talk to someone" and sent me to a shrink. It was the shrink who suspected fibro and sent me to a Rheumy....it was confirmed.
When all else fails, eat a cookie!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 11/17/2010 10:38 AM (GMT -6)   
I think my fibro started in relation to my Crohns. My oldest daughter also suffers with Fibro, and she thinks a rollover crash she was in in her teens is what triggered hers. She is on Savella now, and finding alot of relief from it. Mine isn't as bad as hers, but I am pretty careful on what I do, so as not to trigger it. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2786
   Posted 11/17/2010 12:11 PM (GMT -6)   

I visited a friend while my husband was teaching at GITMO for one semester.  I slept in a bedroom that had been treated for fleas with some kind of powder insecticide...she did not vacuum it up and I had no idea that it was on my mattress, under the sheet.  I immediately began having tingling/numb sensations in my legs...had every test known to man done including heavy metal poisoning.  I thought I had MS but the scan came back clear.  Soon after the pain started.  Went back to the doctor for RA, Lupus and another round of MS testing.  Everything was perfect.  DX'd with fibro about five years later.  I still think it was the flea powder, but who knows?

Donna


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15394
   Posted 11/17/2010 1:11 PM (GMT -6)   
You know, Nanners, I have Crohn's too and it never occured to me that there could be a relationship there!  I had problems with Crohn's for over a decade before fibro hit but two years after fibro, I ended up having major surgery because of the Crohn's.  Hmmm....you just might be on to something.  I could never figure out what happened!
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 11/17/2010 4:16 PM (GMT -6)   
Sherrine, I always thought maybe the multiple surgeries I had within a 3 year period triggered mine. Strange, how yours showed up before and mine after. But I still beleive somehow mine is related to the Crohns. On the Crohns forum we have alot of folks who suffer with fibro too. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

bojo
New Member


Date Joined Nov 2010
Total Posts : 6
   Posted 11/17/2010 5:48 PM (GMT -6)   
Im in the process of getting it officially diagnosed. I want paper work.ive been having issues with my docotr for over 10 years. Ive gone to an arthritis specialist 10 years ago and he said i had the arly signs of it.I have fought it for so long,having foggy head,pms anxiety,pain chest arm ,wrist, pain. Im having a heck of a time grooming now,im going to have troubles this Christmas i know that for a fact.
Iv had tender points,soft tissue ,painrestless nights for years,dont sleep all night. Im having consant pain in my right side of the shouldermpain down the arm in my left breast. Both sides hurt but my left sides the worst. I want to be fully diagnosed,so id get some help for it.If its something ,i want/need to know so i do waht i can and not diagnose myself all the time!
I need a doctor to help me, so far mine wont!!!!

lisaanne2
Regular Member


Date Joined Sep 2010
Total Posts : 67
   Posted 11/17/2010 6:30 PM (GMT -6)   
Mine started 10 years ago , i had my daughter and i dont know what brought it on but after having her i never felt healthy again , starting having lots of muscle and joint pain and headaches.

nicincali
New Member


Date Joined Nov 2010
Total Posts : 5
   Posted 11/20/2010 2:52 PM (GMT -6)   
My fibromyalgia started in 2007. I was working for the City of Livingston (Montana). I drove a 15 passenger van taking senior citizens and disabled people to and from their desired destinations. I had parked the van, got everybody out and I was still standing inside the van. The only thing bigger then me was a motor home parked in front of me. I had given it sufficient space to back up and leave, but obviously they didn't think so. The driver backed up into the bus. At this rate it was not a huge impact by any means, but it caused the fibromyalgia.

Note to Vannie: This works for me it might work for you. The burning and swelling pain caused by the fibro...I use MSM cream, which can be bought at a health food store or online and it takes that pain away in seconds! I get the pinky and skin pain you talking about. I just gave a bottle to my aunt, she couldn't believe how fast it worked! She went online and bought 5 bottles!

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 11/20/2010 6:47 PM (GMT -6)   
I have had odd symptoms for years. I'm 49 and when I was 15 my horse slipped on an asphalt road and my head slammed the road too, major concussion, ride to hosp in ambulance.

My sister was killed in 1984 which was extremely traumatic and instead of counseling I drank heavily, still worked and was productive but watch out in the evenings / nights / late nights / very early mornings.....LOL

in 1986 I totaled my 2 year old Nissan 200sx and took out the passenger window with my head, another concussion and ambulance ride.

I started showing dogs and had gotten my life straightened out about 15 years ago and can remember how bad my lower back and neck hurt from the long drives.

in 1998ish I had 3 surgeries and was in the hospital 5 times, female surgeries and appendix, nice long extended stays in the hospital getting every test known to man.....Diagnosis that they came up with was ovarian cancer which I did not have.

3 years ago I started getting huge blisters on my hands, my dermatologist diagnosed porphyria (PCT) along with hepatitis C. 6 months of treatment with interferon and ribaviron.

I cleared the hep c, it is called a Sustained Virological Response. I have no live virus but will always carry the antibodies and cannot transmit it. I have not felt the same since. Geeze I wrote a novel
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 
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