Bone Crushing Leg Pain - Help!?

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pennstate71
Regular Member


Date Joined Mar 2010
Total Posts : 90
   Posted 12/6/2010 12:05 PM (GMT -6)   
Has anyone else ever had this kind of pain?  I also have lupus so I have intense hip, and ankle pain - but mostly severe knee pain.  However - when it gets bad it starts with my lower legs between my knee and ankle - just feels like my bones are being crushed into pieces...then moves up to my upper legs.  The pain is so aweful and feels like theyre bruised all over.  It's not the same fibro pain I get in my back or that muscle pain I'm used to but just feels like the bone pain is horrific.  I don't know if its more related to the lupus - but folks seem to think its more to do with fibro...almost like shin splints times 300.  I take 4 10 mg percocets per day and when its this bad it only makes my head foggy but does NOTHING for the pain...not even close.  I use heat which helps a bit and ended up in the ER once for it and they gave me IV Diluadid which would last about 45 minutes and then I was back to writhing in pain. Of course they couldn't give me more for 2-3 more hours.  So of course after 11 hours there...they increased some of my Lupus meds, increased my steroids and increased my savella to 150 mg per day.
 
Does this sound familiar to anyone??  I take vitamin D supplements but they are still most likely oing to do a density scan...the pain is just horrible combined with the already stabbin joint pain from the lupus...blah...thanks in advance!

Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 917
   Posted 12/6/2010 6:18 PM (GMT -6)   
Hi Penn,

This sounds a lot like what I go through when my arthritis acts up badly. The bones feel like they are on fire
or other times if you're touched they'll crumble. I've been living with this for almost 40 years (and I"m almost
57). It goes in remission and then will flare up when you least expect it. Most of my severe pain comes in
hurricane season as the barometric pressure goes off the scales. I do bromelain as an anti-inflammatory,
super cissus RX for the muscles and tendons (has a built in painkiller) and bio-sil to help with popping and
crunching. For the severe times there isn't much help other than to ride it out. Good luck and hope you feel
better.

Nana Monster

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 12/6/2010 7:21 PM (GMT -6)   
Hi Penn, Bone crushing pain is how I always describe my flare pain, it's how I
first described my pain to my rheumy. It's intense to the point where I feel
like I'm going to pass out at times...it's as if my legs were in a very tight vise
with something ramming into them. I attribute the pain to fibro. I also have some connective tissue diseases going on and my worst flares are when every-
thing starts acting up.

I get some relief using muscle relaxers, doing deep breathing, meditation and
soaking in a warm- hot bath.

The leg pain is horrific and I had a bad episode yesterday...a cold front was
moving in and I'll blame it on that :)

Hope the pain subsides!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

GSDgirl
Veteran Member


Date Joined Mar 2010
Total Posts : 1286
   Posted 12/6/2010 10:35 PM (GMT -6)   
Pennstate, I don't have a solution for you but I am with you on the percosets band vicodan do nothing for pain. Hope you find some relief
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,
 

KristaM
Regular Member


Date Joined Sep 2010
Total Posts : 198
   Posted 12/6/2010 10:35 PM (GMT -6)   
Hi there,

Yes I often get this pain in the lower legs...like shin splints, but worse and if I have to bend down, I feel like my bones won't straighten out to stand me up again! Not fun!
Fibromyalgia, Chronic Pain, Fatigue, Rheumatoid Arthritis, Dizziness, Degenerative Disk Disease L4/5 and L5/S1, Pelvic Inflammatory Disease, Vitamin D deficiency

Lyrica 100 mg 3x daily, Hydromorphone, Vit D & Multi

eyeluvses
New Member


Date Joined Sep 2012
Total Posts : 2
   Posted 10/1/2012 12:07 AM (GMT -6)   
I am so glad I found this thread, because I have been going through incredible pain. I take Gabepentin which helps with the neuropathy pain but lately is doing nothing for this bone crushing feeling. I have not gone to the hospital for it yet but have gotten very close.

dustinshunny
Regular Member


Date Joined Jul 2012
Total Posts : 388
   Posted 10/1/2012 5:17 AM (GMT -6)   
I only have fibro and I get bad pains also in my lower legs..... no way to really describe it.
Fibro only Dx, 150 mg savella, 100 mg tramadol, MR when needed, 800 mg magnesium, 25 mg DHEA daily.

An awesome fibro doctor, and an amazing hubby to be, and 4 wonderful kids :-)

MyAchingLegs
New Member


Date Joined Sep 2012
Total Posts : 6
   Posted 10/1/2012 3:55 PM (GMT -6)   
I got it for the first time about 6 weeks ago. I had never felt anything like that in my life. It felt as though my leg muscles were so tight, they were going to rip themselves off of the bone and then the bone itself just screamed a very loud "aching" pain. My legs also felt very weak, so I was quite scared for awhile. I also had twitching and fascilations to boot. Fibro is my only diagnosis. I finally agreed to go on meds for the fibro and Neurontin took care of some of it. I still have the same kinds of pain, only more mild. It is awful and I'm hoping that it will subside in time on its own. Good luck and I am so sorry that you are going through this too!

eyeluvses
New Member


Date Joined Sep 2012
Total Posts : 2
   Posted 10/1/2012 5:34 PM (GMT -6)   
Thanks for the support, it is hard for others to understand. My family knows the pain is real which is a relief because I have ran across others whose families don't even get that the pain is very real. My family complains that I cry in my sleep from the pain, and as my husband put it, it is kinda hard to fake something in your sleep.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 10/1/2012 5:41 PM (GMT -6)   
Just FYI to those who are new, Eyeluvses and Myachinglegs..this thread is close to 2 years old..

It is always good to use the button in the upper left hand corner that reads Post New Topic..

This way, you can introduce yourself by telling your story about your journey with Fibro...And let us know what treatments have worked for you...and people can find you better that way to welcome you:)
SB (Snowbunny) and the pup that snores (my yellow lab:))

3, two-level, cervical fusions over the past 11 years. The last one was anterior and posterior with lots of fun titanium!
Still have active herniations along with knee problems and another Morton's neuroma in left foot.
I try to find joy in each day even with chronic pain:)

~SimplyUs~
Regular Member


Date Joined Aug 2012
Total Posts : 205
   Posted 10/1/2012 11:01 PM (GMT -6)   
What I experience sounds alot like yours. I cant take pain pills due to liver and pancreatic problems (or so that is what the gastro is saying at this point). Heat is the only thing that helps me. I soak in a hot bath. The pain eases almost as soon as I get in, however it returns before I can even finish drying off. Most times it is lower legs and sometimes it is from hips to feet.  It seems that I do not really suffer from the average symptoms of fibro. I was dx in dec. of 11 with fibro and have had two other primary dr.s and two rheumys confirm the fibro dx. So according to them this is a text book symptom of fibro. I wish I could offer you the answer that could make it all go away. I havent been to er with it, but I have asked my husband to just chop 'em off 'cuz dear God it could not be worse than the deep intense throbbing and atleast with that solution there would be relief eventually. I am starting to get the same feeling in my hands and lower arms. The pain is so bad and can come out of no where and for no forseen reason. More often after or while I am running errands, but can hit when I have enjoyed a leisurely day as well. I choose to deal with this by seeing Dr. after Dr. (idiots just run same basic blood work), in hopes that I can find some peace and regain my life back. I keep going to them because that seems to be how they learn to understand just how bad it is. I also keep asking for referrals to different specialists in a desperate attempt to find a dr. to fix it. Maybe you can try a pain management facility. My mother-in-law swears by the acupunture methods, but the thought freaks me out and I dont know if I could make myself go through with it.
 
I wish you the best and hope that you find help for this soon.
 
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