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FernE
New Member


Date Joined Jan 2011
Total Posts : 5
   Posted 1/5/2011 4:15 PM (GMT -6)   
Ok, so I have FM, PCOS, authritis, and extensive cardiac issues. For years I have dealt w/ ovarian cysts, some ruptured. I have had my gallbladder and appendix removed years ago. Lately I have been having intense pelvic pain that radiates down my right groin and thigh. I have been to er, obgyn, family doc and no one knows what it is. I would have sworn it was an ovarian cyst, but it is not. They did blood work, ultrasounds, CAT scans, xrays you name it they have done it. I hurt so bad, and they make me feel like it is all in my head.

Has anyone felt this pain? Is it th FM? It is enough to drop me to my knees in the middle of a store...I need answers...I need help!? confused

AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1604
   Posted 1/5/2011 5:12 PM (GMT -6)   
I've had a flare up of sacroiliitis (inflammation of the sacroiliac joint) that sent excruciating pain into my groin and thigh (in the front). I've also had 2 herniated discs that sent extreme pain down the back of my leg. Have you been checked for back, hip, or sacroiliac problems? These areas can all refer pain to the groin, and problems don't always show up on an x-ray or CT scan. Sometimes an MRI can be helpful in pinpointing problems in these areas (my personal experience).

Then again, fibro can cause some pretty severe, unusual pain.

I hope you get some answers soon. In addition to the back issues, I also have endometriosis, and I know that pelvic pain can be horrendous to deal with.

Hugs - Austen

steppingstone
Regular Member


Date Joined Apr 2010
Total Posts : 366
   Posted 1/5/2011 6:07 PM (GMT -6)   
I have also had pelvic pain in the past due to back problems. At one point, I had been to numerous doctors for a pain in my right side that had lasted for several months. None of the doctors seemed to be able to determine what was causing my pain. It was written off as being everything from Irritable Bowel Syndrome to stress. I was beginning to doubt my own sanity. Then, I made the association between the pain in my side and back pain that I was having. I scheduled an appointment with a reputable chiropracter, and I felt instant relief. He explained that I had a condition which causes my back to curve forward. When this happens, it can put pressure on nerves that are in the pelvic area. I still occasionally have this problem, and the pain usually seems to start in the pelvic area as opposed to the back.
















Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 1/5/2011 7:54 PM (GMT -6)   
It could be endometriosis. Unfortunately, the only way to diagnose endometriosis is by surgery. If you choose to have a diagnostic laproscopic surgery, make sure that your doc has experience with endo and is prepared to surgically remove it then and there.

It could also be adhesions from previous surgeries or the ruptured cysts.

Good luck.

kimrich
New Member


Date Joined Jan 2011
Total Posts : 1
   Posted 1/5/2011 9:17 PM (GMT -6)   
Hi im new to this site but have had fibro since I was 24 and im now 36. it actually has been not to bad for me but flare ups during certain times. I get back, neck, chest, rib and shoulder pain and it seems to have a massage seems to help. is your pain a real hurtful pain or a aching pain? i was on Elavil< currently off it but thinking about starting again. my sleep is weird.....some night are fine and others i will start to fall asleep and feel like im startled and then can be wide awake. very strange. i live with flexal in my bed and seems to help>
Let me know if other expierence the same. Shotness of breath is also a concern>

Kim

FernE
New Member


Date Joined Jan 2011
Total Posts : 5
   Posted 1/6/2011 11:42 PM (GMT -6)   
Thanks for the responses. My obgyn is looking into the endo, but says that is unlikely. I wish an MRI were an option, but I have a cardiac defibrillator and a metal ring around valve in heart. So, magnets are a no, no. I do have a severe curve in spine, but go to chiropractor regularly. The pain is intense, I feel like I am being torn apart. It drops me to my knees, often. It lasts for 3 weeks out of the month. I do not know where to go next. I know that it sounds crazy, but having my chest cracked open hurts less then this...at least I knew that would heal and the pain would stop. This is a constant unwanted companion.

hippychick79
Regular Member


Date Joined Dec 2010
Total Posts : 127
   Posted 1/6/2011 11:56 PM (GMT -6)   
Hi I'm sorry to hear that you are having problems like this. I had endometriosis starting at age 18 and hysterectomy by 24 because it would not stop from coming back. If you have had cycsts before then it could very well be that..I experienced that as well and you are right it will drop you to your knees. I had several cysts that burst too and while it was quite painful when it happened shortly after it was such a relief. The endoscopic surgery to check isn't bad at all..very worth it for me. And while they are "checking things out" they can fix the problem and give you options before hand on which would be best if something is found.
On the same taken I've had those pains after the hysterectomy as well. But they weren't as severe. I have ibs as well and not to be gross but if you get too constipated with it as I can at times and it gets even a little compacted it can press on some painful areas. I usually find it helps a lot to take a mild laxative.
Anyway that's my experience I do hope you find the answer you are looking for and some relief!
*soft hugs*
Hippy
*Fibromyalgia*G.A.D*Panic attacks/disorder*IBS*
"Sickness and death are unavoidable in life. To experience illness is not itself misfortune, but to be defeated by illness IS misfortune"~~~Daisaku Ikeda

FernE
New Member


Date Joined Jan 2011
Total Posts : 5
   Posted 1/7/2011 3:23 AM (GMT -6)   
Thanks Hippy. I think I will insist on the lap procedure, just to be sure. I think i am also going to talk to my chiropractor and see if there is any way it could be caused by my spine, or a rib being out... think i may start with a healer too, acupressure or acupuncture. I am open to relief in any form it may take.

Thanks for the hugs :)
Sends some back your way
Fern

AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1604
   Posted 1/7/2011 9:03 AM (GMT -6)   
Just out of curiosity, does the pain come on spontaneously or with movement? I know for me, my endometriosis pain is just spontaneous, worse at certain times of the month. My nerve pain related to my back and sacroiliiac joint is/was brought on with movement.

Have you kept a pain journal? I know that has helped some people on this board pinpoint/describe their pain. Also, several people here have had laparoscopies (I've had 4 done) and might be able to share some helpful tips if you decide to go that route.

I hope you are able to get some relief soon; I know how frustrating it can be to have "mysterious" pelvic pain.

Hugs - Austen

FernE
New Member


Date Joined Jan 2011
Total Posts : 5
   Posted 1/7/2011 12:13 PM (GMT -6)   
Thanks Austin, I have not kept a pain journal...even the thought of it is so depressing to me I want cry. Though I suppose it could be helpful and should seriously consider one. The pain is a constant ache, with moments of searing pain that make me feel like I am being torn into pieces. There are also times (about to get real graphic) that I have an intense pressure in my vaginal area...feels like everything is trying to fall out of me. I have never had children, but when I described the pain to my sister in-law, she said it sounds like what she felt while she was crowning. Now, I don't know about that, but it is extreme. As for laps...I'm an old pro. Have had many surgeries and procedures over my 32 years. Unfortunately. Hugs to u. Fern

solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 532
   Posted 1/7/2011 12:45 PM (GMT -6)   
Hi Fern. Welcome to the HW family. Sorry you have to be here with us though.

I kind of wonder if the pain are feeling is from your hip joint. When most people say hip they think of the outside top of the leg but the actual joint is in the pelvis. I have had some problems with that joint and your description sounds kind of familiar. The reasons for hip joint pain could be many such as small bony irregularities in the cup and socket structure, slight dislocation, etc. Maybe you could mention that thought to your chiropractor and see what he says. My chiropractor was able to help me and I now rarely get that awful pain.

Hang in there and keep looking for the reason. Lee
Attitude is everything.

Pain2011
New Member


Date Joined Aug 2011
Total Posts : 2
   Posted 8/20/2011 7:26 AM (GMT -6)   
Hi!! Can anyone help me? I have a 12 year old she is suffering from chronic pelvic pain. She is pre-menarchal and has visited the hospital and endured hospital stays for 3 months now. Did anyone have this experience? If so? What did you do? Is there any relief for a child? She is in so much pain?

bubbaryn
Regular Member


Date Joined Oct 2010
Total Posts : 114
   Posted 8/20/2011 9:51 PM (GMT -6)   
Fern, I've had those pains. I went and saw OBGYN and told her and she said that it is most likely due to the Fibro. I get the pain you describe plus if you touch a certain part of my womenly area, I'll shoot through the roof with pain. Dr did want a pelvis ultrasound but never had it done. Just haven't had the money to do it. It comes and goes all the time! So yes, there is someone else with the same pains! It's horrible! Look at it this way, u're not alone. They also wanted me to see a pelvis specialist but again, no money. Good luck because it very well could be the Fibro!
Fibro, Diabetes, Cubital Tunnel, Chronic Fatigue, Premenopausal, Depression and Anxiety

Meds:


Metformin
Zoloft
Clonazepam
Ultram
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