pain in arms and knees

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mattee
New Member


Date Joined Feb 2011
Total Posts : 7
   Posted 2/17/2011 6:34 PM (GMT -6)   
Ok it's like I know I have RLS, and have had for years, but now it feels like it is in both my arms between my elbow and shoulder. MY legs are real wiggley right now that I can't sit nor lay. I feel like the pain in my arms is like deep and when I push there it hurts really bad. Has anyone every experienced severe restless leg syndrome in both their arms and legs? I am just wondering, I normally take Lortab 10 mg as needed and I am out of meds. It has been several days, could that be it....I am just so confused and frustrated. Please tell me I am not the only person with fibro that has severe RLS...advice would be helpful.
Suffer from Fibromyalgia since 1998. I consider myself much worse since first diagnosed. I have very severe restless leg syndrome and sciatic. Also have scoliosis of the spine, degenerative disc disease with bulges in cervical and lumbar spine. Trust me

Medications....Effexor XR, Celexa, Pravastatin, Lisinopril, Neurontin (1800mg daily), Lortab 10mg, Requip, Ativan, Flexeril

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 2/17/2011 11:04 PM (GMT -6)   
Hi Mattee~

First of all, Welcome to the Fibro Family. I don't think we've met yet. And second, please try to relax. I'm sure it's very difficult to have RLS and then someone tells you to relax is almost a joke, but if you can try it sure would help. The more you worry the more things are going to feel weird and out of control.

I don't have RLS but have had bouts where at night my legs will jerk and jolt around. Also, my arms/hands will all of a sudden fling our and whatever I'm doing goes with it. Could be my lunch fir all I know. Often it's the puter mouse or a pen if I'm trying to write. Those are always fun...NOT!

If I may ask a couple of questions it might help you, me or others think of things that might be happening. Of course the best answer will come from your doctor. You are out of meds, right? Have you had the prescription for a long time and finally ran out, or are you taking more than directed because of pain and are out before it's time for a refill? The latter happen often and to the most honest and unsuspecting people. When we are distraught with pain we will do almost anything to relieve it. If you have been taking pain meds daily for more than a couple of weeks, then you will have withdrawal symptoms. That might have something to do with it, in fact a LOT to do with it. Are you having any other withdrawal symptoms like nausea, headaches, vomiting?

One thing you can do to help with the pain in your arms and legs.....first off don't push on them if you don't have to. It only makes it worse. Also, keep those muscles that are the most tender very warm. Bundle up, use a heating pad, soak in a very warm bath...whatever it takes get those things warm and keep them warm. Heat is our best and first line of defense.

But most important, please get to your doctor. If you have taken more meds than you should it might be best to just tell him what happened and why. If you have a good doc he/she will understand. That one is your call. A better idea would be to keep a pain journal and keep a record of your pain. Take it with you when you see your doctor and he can not only see that you're serious about this but he'll have a real picture of your pain levels and how they react during the day. Here's the link to a free journal page.

[url]http://www.painfoundation.org/learn/publications/files/TargetDailyLog.pdf[url]

It's also listed in the Chronic Pain 101 at the top of the page. Just copy one for each day and be judicious about filling them out.

We've had many people over the years who have fibro and RLS so rest assured that you're not alone. So warm up those legs and arms and keep us posted as to how you're doing.

Warm hugs,
Chutz smilewinkgrin
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.

"Gravitation is not responsible for people falling in love." Albert Einstein

mattee
New Member


Date Joined Feb 2011
Total Posts : 7
   Posted 2/18/2011 4:08 AM (GMT -6)   
Chutz,
 
Thank you very much for your response. I just get so frustrated. You know when you feel like you are  talking and no one is listening. I get so tired of chasing doctor after doctor and having to start the same story over and over. I worked all my life and was a very active person. In the last year and a half I have pretty much shut all that down. I am collecting disability as of a year as of a 1 and half years and will qualify for medicare in July. Obviously I am lost in our system where I have no insurance and cannot afford health insurance much less a specialist. The RLS thing has been happening for probably 15 years but was tolerable until the last 2 years. I know inactivity is not helping but honestly I don't have the energy or the courage. My pain med cannot be filled for a week. I only get 60 a month and on my flair ups (cold weather) I tend to take more. I do not abuse medication but I get to the point where my legs and knees hurt so bad I have trouble walking. I will call my doctor and let him know what is going on because if this is withdrawals, I never want to have this again. That could be why I am feeling someewhat spacey in the head right now as well. Thank you for listening and thanks for the site. It is so nice to have someone to talk too. Just wondering, do you suffer from reflux...that is something else I am fighting with. When I do get to sleep, it is not long before the burning starts in my throat. It just makes everything worse. Sorry to vent so new to the site, just frustrated.
 
Thanks for listening
Suffer from Fibromyalgia since 1998. I consider myself much worse since first diagnosed. I have very severe restless leg syndrome and sciatic. Also have scoliosis of the spine, degenerative disc disease with bulges in cervical and lumbar spine. Trust me

Medications....Effexor XR, Celexa, Pravastatin, Lisinopril, Neurontin (1800mg daily), Lortab 10mg, Requip, Ativan, Flexeril

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 2/18/2011 10:12 AM (GMT -6)   
welcome,

I agree with the withdrawel being the probable blame on the restless leg/arm issue. Seen it happen with 2 very dear people and on occasion have experienced it myself. In my case, I get very similar symptoms if I miss my afternoon dose. when I am trying to sit back and relax (read, watch tv) I get that fidgety, restless, irritable leg and lower back achiness.

Also, I think that a lot of the meds we take can cause heartburn/reflux. they can be very rough on our stomachs. your doctor should be able to prescribe you something to help alleviate that symptom.

hope to hear more from you soon. let us know how it goes with the rls issue and the meds.
Denita
***************************************

Fibro, meniscus tears in both knees, arthritis in both knees, B-12 defficiency, pernicious anemia, vit. D defficiency, mild alergies, and insomnia. soon to be on thyroid meds and treatment for thyroid cancer.

Snue
Regular Member


Date Joined Feb 2005
Total Posts : 188
   Posted 2/18/2011 1:07 PM (GMT -6)   
Hi I have RLS and used to get it in my arms and other places too. I described it as a squirly feeling or crazy legs or crazy arms. I would feel like I would have to stretch my legs to make it stop or stretch my arms and my wrist joints. I would use my stepper at home to wear out my legs.
It finally got so bad I asked my doctor for a natural approach before I tried medicine. He said no caffeine and take a multi vit with iron and c. I did that and within two days I had no more RLS!!!! I didn't realize how much caffeine I was drinking, but when you are so fatigued from fibro you reach for those comfort foods and drinks and something to give you some energy, so my cups of tea were getting stronger and stronger and more frequent. But now I only get it once in a blue moon. The cutting caffeine: including chocolate :( and adding the vit worked for me.
Dx 2002 Fibromyalgia
Also have RLS, UARS (like sleep apnea) and hypoglycemia.
Trying to stay positive and live one day at a time.

Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 917
   Posted 2/19/2011 6:21 PM (GMT -6)   
Hi Mattee,
Your to do list sounds like what I have wrong with me only add in 50 years of arthritis, bone spurs,
and sinus problems. The only dr meds I take when absolute necessary are Skelaxin and Hydrocordone
(only since they took darvacet off the market) all the rest I treat with herbs. For the legs try a banana
a day (I learned this one from a long distance truck driver) as it helps with the RLS. Good Luck

Nana Monster

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 2/20/2011 3:06 AM (GMT -6)   
Hi Mattee~~

One things we all need to remember...please don't apologize for venting even it's it seems to be long or you feel you're new and shouldn't be carrying on. You are not new to pain so that makes you a veteran. And listening is what we're all about, then offering you some reassurance and comfort is why we are here. Some times you are the one who needs to vent, cry, scream and even feel sorry for yourself...it's all OK. But on other days you'll be stronger and will be the one who lends the shoulder for others to cry on. Who knows, maybe next week I'll be searching for a shoulder to lean on...it happens to everyone. I've been MIA for over a month due to depression/fibro pain/ or whatever...just not being able to face each day. I kept in touch with a few people but otherwise I just couldn't post. But forum friends knew and understood what I was going through and gently encouraged and reminded me that there were people who really did care about me and were waiting for me to come back.

Well, here I am but at any moment any of us will be the next to vent..and it's OK. Today I'm stronger and better so here's a gentle but warm hug for you. We're always together in spirit.

((((Mattee))))

Warmest hugs,
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.

"Gravitation is not responsible for people falling in love." Albert Einstein
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