Fibro/Central Sensitization

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fish29
Regular Member


Date Joined Apr 2011
Total Posts : 70
   Posted 4/13/2011 9:30 AM (GMT -6)   
Good Morning Everyone,


I went to see my doctor yesterday, and she strongly belives I have developed central sensitization, which she and some believe really is fibro, but for now are 2 separate terms used. The difference (I think) is that I always have a flare. There is not one day that I feel better. Obviously there are many ways this could have happened to me. Lots of stress and disruption of my spinal cord, nevermind the actual chronic pain I have been dealing with for almost 4 years now.

She started me on Savella because I did not do well on Lyrica (swelling), I'm staying on my pain meds, and let me stay on Neurontin. I also got some Voltaren Gel.

Is anyone on Savella? I have read good things besides the nausea, and Voltaren Gel?

I went to PT yesterday and we started working a bit on the nerves in my legs. I woke up at 4am and had the worst pain you could imagine, probably for disturbing the nerves?

Could you please give me some thoughts- should I start walking? Has PT been good for you? Is there any recommendations you would have for me as far as adding in things to my treatment plan? I do take a lot of vitamins because people have been telling me over the months to change that part. Anything you think I should avoid? Or is it trial and error?

I get that my situation is much more complicated because of the nerve damage in my legs, but do most of these treatments help you regain some control?

Thanks :)

fish29
Regular Member


Date Joined Apr 2011
Total Posts : 70
   Posted 4/13/2011 9:37 AM (GMT -6)   
Oh and for an idea of what I go through, I am classic MS symptoms. To the point that they and I were convinced I had MS. I have to say I was NOT relieved to find out I did not because that would mean a LONG time for dx. But you all helped me so much, I was able to speak with her and explain what I read, as well as what my PT thought. She agreed 100%.
So I really appreciate that :)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 14644
   Posted 4/13/2011 1:10 PM (GMT -6)   
Chompers, I've had unbelievable hip pain, too, at times.  It isn't constant.  My doctor told me it's bursitis and is very common with fibromites.  He offered to give me cortisone shots in my hips but I declined because it comes and goes with me.  But perhaps this could help you.  You might ask your doctor about it.
 
I was sitting on the examining table and he presses, not really hard, on the sides of my thighs and I just about saw stars!  I grabbed his arms and pulled his hands away because of the pain.  The pain was in my leg and he said that this was bursitis.  I guess the nerve runs from the hips down the legs so that's how I got that diagnosis.
 
I did keep moving.  I used my cane when I had to and didn't leave the house to walk the dog without it.  I couldn't go as far as usual but I did the best I could.  So, I do encourage you to keep moving.  Get up and down and walk a little.  If you stay pretty much sedentary you will be even stiffer and have more pain.  At least that's what happened to me.
 
Also, reread the gentle stretching exercises in Fibro 101.  There are three that entail you moving your legs which would help stretch muscles around your hips, too.  Check them out and see if this helps you too.
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

fish29
Regular Member


Date Joined Apr 2011
Total Posts : 70
   Posted 4/14/2011 8:40 AM (GMT -6)   
Thank you! Actually I have trigger points in those areas so I get trigger injections in the hips and buttocks now. But I don't have brutitis which is actual inflammation of the substance in that area.

here2see
New Member


Date Joined Jul 2011
Total Posts : 2
   Posted 7/5/2011 8:07 PM (GMT -6)   
So fish 29 has the Voltaren Gel helped the hip pain? I use rice socks to ease my hip pain. and what about bio freeze, it seems to help me too!
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