I did a search and didn't find much..Myofascial Pain

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Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 5/9/2011 5:02 AM (GMT -7)   
I have been researching, reading everything I can.  The more I read, the more I think my issues are more with Myofascial PAin than with fibro.  They all say fibro is more body wide and myofascial is more localized.  My pain is my neck/shoulders with those lumps they speak of, and periformis muscle/sciatica.  I also read that many rheumy's still lump the 2 together.  Do many of you find this to be true?
Gluten Intolerant, Small Fiber Sensory Polyneuropathy, Gluten Ataxia, Sleep Apnea, CFS, Raynauds, Hypothyroid, Fibromyalgia

NotSoCrazyAfterall
Regular Member


Date Joined Mar 2011
Total Posts : 86
   Posted 5/9/2011 7:54 AM (GMT -7)   
I have to agree with you in that I feel the same way. Here is a link to Devin Starlanyl's website. She was an M.D. who has Fibro and MPS and had to quit because of it. She has fought for doctors to recognize these two conditions as docs frequently assume Myofascial Pain Syndrome is the same as Fibro. She covers this issue in detail so I hope this link will help you find what you are looking for. I also have a book that maps where the pain shows up and where that sneaky triggerpoint is so you can try to treat it yourself if need be.  Her stuff was the first I read that truly validated everything I go through.

http://homepages.sover.net/~devstar/phsympt.htm

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15525
   Posted 5/9/2011 8:56 AM (GMT -7)   
There is a link in Fibro 101 that tells you all about Myofacial Pain Syndrome and another all about fibromyalgia.  You can read and compare there
 
My pain is mostly in my back and shoulders but I can have traveling pain anywhere on my body.  That's the difference, I think.  I could have both fibro and myofacial, too.  The pain of fibro is in all four quadrants of the body but it doesn't have to be happening all at once.  Sometimes I'll have a hip or some toes, my knees or my fingers bothering me. 
 
Sherrine 
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 5/9/2011 6:43 PM (GMT -7)   
Thanks, both of you!

Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 5/10/2011 4:49 AM (GMT -7)   
Ok, now I have read more on the subject and not sure what to think.  Probably dealing with both at the same time.  I did read a book written by Dr. Devin Starlanyl this last weekend, was very interesting.  As I read these books a light comes on and it hits me that over theyears I have suffered this or that.  The chemical sensitivites they speak of happened to me, quite severely.  I am thinking some of these symptoms come and go, am I correct?  A few years back I was having terrible reactions to chemical scents.  My boss mixed Carpet Fresh and Resolve on the carpets at work and it set off asthma like reactions in me.  My lungs nearly froze, I was gasping for air.  I did see an ENT whom did a Cat Scan of my sinuses and was shocked I wasn't even sicker than I was, yet they never really could pinpoint a reason other than the chemical reaction.  At that time my PCP gave me an inhaler to keep on hand.  That year the chemical reactions were terrible.  One day my daughter and I drove pass a carnival with rides..all I could smell was heavy diesel fuel, made me sick to my stomach and all she could smell was popcorn.  3 tiered candles make me ill, some perfumes, orange scented cleaners and such.
 
As I read though, I realize I probably have been dealing with fibro/myofascial since my early 30's.  When I think about all the trips to doctors and all the disappointments over the years, I get so disappointed in the medical profession.
Gluten Intolerant, Small Fiber Sensory Polyneuropathy, Gluten Ataxia, Sleep Apnea, CFS, Raynauds, Hypothyroid, Fibromyalgia

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15525
   Posted 5/10/2011 5:33 AM (GMT -7)   
I think I have both, too...at least that's what my massage therapist tells me.  My muscle fibers will overlap and then cause the knots.  She smooths them back where they should be.
 
Don't be too hard on the medical community.  It has been instilled in us that doctors can "fix" the problem.  There is a lot that medical science doesn't know and fibro and myofacial pain syndromes are a couple.  When the doctors don't know what causes something, they can't truly help it.  They try to help with all these drugs but they are just masking symptoms.  They are doing the best they can with the knowledge they have.  Of course there are the doctors that don't even try or bother to learn about these illnesses either.  Those you need to stay away from.  But, I do know, I would have died, from another illness, 21 years ago if it weren't for good doctors so I do have great respect for doctors...the good ones, that is.   wink  
 
Sherrine 
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2788
   Posted 5/10/2011 6:18 AM (GMT -7)   
Hi Deb...
 
 
This is a link I found awhile ago as I was dx'd with MFP as well as fibro. 
 
Donna

Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 5/10/2011 6:26 AM (GMT -7)   
I wasn't being hard on them for not curing it or knowing how to treat it.  I just wish they would put more effort into diagnosing.  Like celiac diease or gluten intolerance, there is an average of 11 yrs before being diagnosed.  I have gone to doctors for years for my headaches...not a one ever mentioned fibro.  I have tried to get them to check into adrenal fatigue, which is one of the symptoms of fibro, and you would of thought I had 2 heads asking such a thing.
 
Thanks for the link Donna, very interesting.
Gluten Intolerant, Small Fiber Sensory Polyneuropathy, Gluten Ataxia, Sleep Apnea, CFS, Raynauds, Hypothyroid, Fibromyalgia

NotSoCrazyAfterall
Regular Member


Date Joined Mar 2011
Total Posts : 86
   Posted 5/10/2011 7:37 AM (GMT -7)   
I agree again, Deb. When I found all this out and started looking back, I realized I had had a lot of this coming on since I was a teen at least. My chemical sensitivities come and go a lot too as well as many other symptoms. Sometimes, I can't even follow a diesel truck on the freeway. Just last year, we tried to go for a car ride in my sis-in-law's car while on vacation with them. I had to make us turn around and go all the way back to their house so we could use our car instead all because her air conditioning was low on freeon (sp?) and I could not stand that smell!

I guess in the end, the work all of us do now to educate our caregivers, will make it better for the next generation of Fibromites if they don't find out it is an auto-immune disease in the meantime.
"Does it really hurt that much?" Uh...yeah!

fish29
Regular Member


Date Joined Apr 2011
Total Posts : 70
   Posted 5/10/2011 10:09 AM (GMT -7)   
Hi Deb,

I too have Myo.. and central sensitization (what some people think fibro is).

Get yourself-
A great person who works with myofascial http://www.myofascialtherapy.org/
Some simple treatment tools- your therapist will help you
A guide book on trigger points- "save yourself from Myofascial Pain" was the best one I found
An electric blanket that has moist heat

You will feel 50% better in the first week.. and it only continues!

I actually have a bit of a life now. I have gone out, been okay to go to work etc.

Now if yours are bad you can search around and have some trigger point injections. My buttocks were horrible, I got 2 injections and was able to sit for a while month without pain! They only hurt a little and are done in under 5 min.

I had "classic" symptoms of MS- face going numb, vision problems, weird sensation, numbness in hands.. had the MRI and came back clean, so I started searching again, the hand numbness was almost completely gone in 3 days! I would wake up with numb hands and fingers, and my fingers would stay numb for HOURS.. not anymore. When I feel a tingle I do the trigger points and I'm good to go.

I wish you much luck.
Tethered Cord Syndrome, Fibromyalgia and Myofascial Pain Syndrome (newly diagnosed)
Morphine (IR & ER), Baclofen, Neurontin, Savella, Voltaren Gel

Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 5/10/2011 5:50 PM (GMT -7)   
Thanks Chompers.
Gluten Intolerant, Small Fiber Sensory Polyneuropathy, Gluten Ataxia, Sleep Apnea, CFS, Raynauds, Hypothyroid, Fibromyalgia

ivy62610
New Member


Date Joined Jul 2011
Total Posts : 3
   Posted 9/19/2011 11:12 PM (GMT -7)   
try http://fmscommunity.org/

Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 9/20/2011 3:42 AM (GMT -7)   
Thank you.
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