New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

anxious612
New Member


Date Joined Oct 2010
Total Posts : 19
   Posted 5/15/2011 4:50 PM (GMT -6)   
Anyone out there ever receive disability for their fibromyalgia?  I have a hearing coming up soon and was hoping to get alittle information from someone who can't work because of their fibro.  I have been been dealing with this pain for two years and was hoping that I would get better so I wouldn't have to be going through all this hassle.  I miss working so much that I would give anything to be able to go back to work again. I also have some other issues also and I am working with a lawyer too. 

woodanemone
Regular Member


Date Joined Apr 2011
Total Posts : 48
   Posted 5/15/2011 6:20 PM (GMT -6)   
I cannot get it because of my fibro. I did get temporay disability for mental health reasons - the judge ruled I would be cured in 2 yrs. So I think it is this December or next I lose my disability and insurance - I will be quitting all medical treatment cold turkey - that should be fun!
What I can say from my hearing is I was terrified. My lawyer did her best to make me feel better. Bring pen and paper. I do not remember I thing anyone said in there. I was shaken to the point I wanted to throw up - not trying to scare you - I have GAD. Also bring water - you mouth might feel like you are eating cotton. You may also want to ask your lawyer about notes you should have of things you are going to need to know. I have trouble recalling my birthday, phone number etc - So it may sound silly, but you may want to write it down.
Fibromyalgia, PTSD, Depression, GAD, Tachycardia

Meds: Ativan, Bystolic, Ambein, Savella, Mobic, Seroquel XR,
Paxil, Good Old Tylenol, B12, D3, Arniflora

myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 5/15/2011 6:47 PM (GMT -6)   
I was just awarded disability for fibromyalgia and depression a couple of months ago. Although there are differing opinions as to what a person should do - I don't think writing down things is a good idea. The judge wants to see you as you are. If you can't remember things, that may be a symptom of your fibromyalgia. When the judge asked me to raise my right hand, I had to stop and think for a bit which hand that is. If we are going to be working, we need to show what we are capable of.

My lawyer told me I needed to remember 2 things.
1. be honest
2. be honest
It was the best advice he gave me.

My memory isn't the best with my fibro - but I'll try and remember more about that day. I have a thread in here somewhere from, but I don't know how to find it. It was in late March.
DX fibromyalgia 2007, OCD, depression, anxiety, sleep apnea, sleep problems, lack of energy.
meds - fluoxetine (prozac), nabumetone, c-pap machine.
A friend loves at all times. Proverbs 17:17

sagescott
Regular Member


Date Joined Mar 2011
Total Posts : 55
   Posted 5/16/2011 8:30 AM (GMT -6)   
Hi. Myjoy

Regarding disability ,Did you get approved the first time? Because I'm finding a lot of people getting denied the first time ,and getting approved the second.I can't imagine waiting more then six months to have a decision, but that's what I hear is the average time it takes.

I'm sure you were very happy to get approved.I just got a lawyer to represent me,thats doing all paper work and foot work . Without help it is too much and I'm too weak.I also heard that it does help ,If there is more than one diagnosis, besides fibromyalgia.Can you give any advice that will help us understand this difficult process ,and how long your decision took.

Thank-you,

Sage

myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 5/16/2011 9:29 AM (GMT -6)   
Sage - My first attempt (without a lawyer) was denied. From the time I started the whole process, it took 2yrs to get disability. (I had not worked in 4yrs) But once I got my hearing, I was very blessed....the judge granted his decision from the bench, so I did not have to wait.

All I can say is to listen to your attorney. Keep track of all the doctors you have had. This judge looked at some of my records from 20+yrs ago. He brought up treatments I had had in 1984. Answer all the judge's questions as best you can, but do not add things like you are guessing what he is after. It is the judge's job to find out what he wants and needs to know. If you don't understand a question....say so.
DX fibromyalgia 2007, OCD, depression, anxiety, sleep apnea, sleep problems, lack of energy.
meds - fluoxetine (prozac), nabumetone, c-pap machine.
A friend loves at all times. Proverbs 17:17

sagescott
Regular Member


Date Joined Mar 2011
Total Posts : 55
   Posted 5/16/2011 4:55 PM (GMT -6)   
Hi Myjoy,

Thanks for replying so quickly.That definitely helped me and gave me some hope to hang in there.

It's a lot of stress,just what we need,but its good to know you got approved.I'm glad my children are a little older ,and they do not have to rely on me so much. I will be patient and hope for the best.It's scary but I have to take care of myself.I kept avoiding this as long as I could.

Thank-you for your advice,
Sage

Klambert1
Regular Member


Date Joined Mar 2010
Total Posts : 291
   Posted 5/16/2011 5:03 PM (GMT -6)   
I can no longer work because of my fibro. I also have severe degenerative disk disease and osteoarthritis. I have good days and bad, but more bad days. I do not know what the next day will bring. I have missed to much time from work and got in trouble. They have even known for a year of what I have. I was told if I miss anymore time then they would have to let me go. To me thats discrimination of a disability. I even asked them to work with me and asked for better chairs, etc, but no, nothing happened. I am an RN worked for 5 yrs on a busy floor, night shift duty. Last year or so I took another position on the same floor, a sitting position (downgraded from RN) for 8 hrs 4 days a week. I just can not do it anymore, to much pain. The noise, the stress, even the constant getting up and sitting wears me out, then sitting to long hurts and makes me stiff. I will applying for disability soon. I have pushed myself because of the guilt of getting disability...Working when sometimes it even hurts to click the mouse button, and esp. my fibro fog.

KL

ak angel
Veteran Member


Date Joined Apr 2011
Total Posts : 3038
   Posted 5/16/2011 5:13 PM (GMT -6)   
I have been awarded disability this year. It took 2 tries. The first time I didn't know what I was doing. The second time I worked hard at it. You really have to make sure your dr's are on the same page you are on with this disability. I think I got mine through mostly by my psy. dr. I had suffered depression for many years due to having FM. I would of problaby not had as good of chance if if was FM only diagnosis. If you are trying for a second time on your own, I would have a lawyer. I did't need one, but there seems to have some perks with a lawyer. I have seen people get awarded their medicare early. I am having to wait 2 years from the time I filed on the second one. I know some got their medicare early because they considerd all those years you have been applying and got denied. I had to do a lot of up keep calling social security to make sure they were working on it. It took 9 months for me to receive it. I was very lucky that I had long term insurance effective and they were paying me while I was waiting. I had to pay them back, but I didn't lose my house or car.

sagescott
Regular Member


Date Joined Mar 2011
Total Posts : 55
   Posted 5/16/2011 6:14 PM (GMT -6)   
Anxious612


Good luck with your hearing sure you'll do good,we are ail strong people that have to deal with life and fibromyalgia.
It seems like everyone here either has been through this or is experiencing the disability process.

keep us posted how it goes,and I will too.

Sage

anxious612
New Member


Date Joined Oct 2010
Total Posts : 19
   Posted 5/17/2011 8:38 AM (GMT -6)   
Thanks for all the support and replies. I feels so good to be able to talk with people who are going through the same situation as me. I was just wondering for some people that say that it took 2 tries. Does your first application count as your first try and then you got yourself a lawyer then finally won? I was turned down my first try during my application then I went on to get a lawyer and now am waiting for my hearing. I have degenerative disc and ulcerative colitis and other problems also so maybe that will help me also. I just can't wait until this is all over with. Thanks again for all your support.

Moonsinger
Regular Member


Date Joined May 2011
Total Posts : 227
   Posted 5/17/2011 7:51 PM (GMT -6)   
All I can say is, good luck!

Andrea11
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 5/17/2011 8:18 PM (GMT -6)   
Hi, Anxious612. I am a new member, suffer from fibromyalgia, and incidentally, am a Social Security disability attorney. It is understandable that you would be anxious, but as I tell all my clients, leave the worrying to your attorney and try to focus on your health, going to your doctor's appointments, being compliant with your prescribed treatment, etc.While you are waiting for your hearing date, you may want to take some notes on what it's like to live with fibromyalgia (and your other impairments) every day, what activities it prevents you from engaging in, what your average pain levels are, etc. Then when your lawyer is ready to prepare you for the hearing, you can easily (and efficiently) "paint the picture" for them of what it is like to live with this disability. You mentioned that you would like to work again one day - let your attorney know that.They may want to suggest a continuing evaluation (BTW, woodanemone, this sounds like what your judge issued but I think you may want to contact your attorney to confirm exactly what the decision stated as it sounds like you may have misinterpreted it a little bit) to the judge. Also, there is a Social Security Ruling that specifically addresses Chronic Fatigue Syndrome/Fibromyalgia that your attorney should be familiar with.

Good luck - I wish you the best at your hearing, and with the management of your fibro. None of you should feel any "shame" in accepting disability.I am sure many of you tried your best to continue to work and be productive, but it is a daily struggle with this illness for many of us.The only blessing I find in it at all is that I am now in a better position to understand my clients and what they are coping with if they are suffering from chronic pain/fatigue.

Andrea11
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 5/17/2011 9:06 PM (GMT -6)   
BTW, Anxious612, you were asking about applications/denials, etc. - this may help - scroll to the section that says "Likelihood of receiving benefits" http://en.wikipedia.org/wiki/Social_security_disability

sagescott
Regular Member


Date Joined Mar 2011
Total Posts : 55
   Posted 5/17/2011 10:53 PM (GMT -6)   
Hi Andria11,

It'd great to hear from someone who has it and works with it on a daily basis.I hope you don't mind if we have some questions in the future,that you might be able to help us with.I think its great that you really can understand your clients point of view,because you've been there.

I'm just in the beginning phase of disability ,so hopefully all will go well.Just stopped working. Isn't hard to be an attorney , and have fibromyalgia?

Welcome to the website any knowledge you can provide would be appreciated


Thank-you, Sage

samandkennasmom
Regular Member


Date Joined Mar 2011
Total Posts : 24
   Posted 5/18/2011 6:53 AM (GMT 0)   
Hi,
I was just curious as to how much it costs to get a lawyer for helping with trying for disability? How do you go about applying? I've had fibromyalgia for 16 years and chronic headaches and would like to finally give in and try for disability. I didn't want to do that and have held off for as long as I could cause I feel bad but don't think I can make it any longer. Thanks much and I didn't mean to hijack your thread,hope it's ok..
Hugs
Michele

lackingenergy
New Member


Date Joined May 2011
Total Posts : 5
   Posted 5/18/2011 1:30 AM (GMT -6)   
Hi,
I was on Long term disability first thru my employer- after a year I think thats when they hired Allsup to represent me in a ssi disability case. I was denied the first time. Was scheduled a hearing. And got it when I had the hearing. Unfortunetly, they dont seem to understand what it means to have all these issues! Its horrible! I myself have been dealing with this stuff since I was 18yrs old. I am now 39 but at 37 I actually had a heart attack due to the stress and pain I am in 24/7!!! I use to work 40-70 hr work weeks. I loved it! I was a work a-holic!! And Havent been able to since 2006! its a bummer when you think your at the mercy of someone who has never gone thru this before. Because my guess if they have or are- most aren't working! So ya its tough! But just be honest! And make sure you let them know what life is for you! I have alot of depression/anxiety with my stuff. So if thats you- be sure to add that! Because its all part of it!

I hope things go well for you!

Andrea11
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 5/18/2011 6:24 AM (GMT -6)   
Sage - thanks for the welcome. To answer your question, yes it is. It is a daily struggle but I am still young and need to provide for my family for as long as possible so I am just going to have to keep on, keeping on until I strike the lottery and can work when I choose to. Or until it gets bad enough that I can't work like some of you, but I'm hoping I can figure something out and avoid that. :(

Michele - we work on a contingency fee basis, so if we don't win, we don't get paid. The government has capped our fees so we basically all charge the same. I am continually frustrated when I see people in court who haven't hired attorneys - to me it's a no-brainer. Unless I had a terminal disease or something that "obviously disabling," I would definitely hire an attorney if I was a layperson. Sure there are people who sometimes get approved who aren't represented by an attorney but why take the chance? Obviously I'm a tad biased, but really, this is a no-brainer. Generally, we don't charge anything up front - the government pays us out of your back due benefits if you win. Remember when picking an attorney, often "bigger" isn't better. Please keep that in mind and don't fall victim to hype (i.e. commercials, flashy websites, etc.). Do your homework, if you can.

Lackingenergy - good advice. Every single symptom is part of it and should be reported to your attorney - headaches, mental impairments, vision problems, dizziness, etc.

Good luck, Anxious612. Keep us posted!

Stephanie008
Regular Member


Date Joined Oct 2010
Total Posts : 183
   Posted 5/18/2011 4:37 PM (GMT -6)   
I think fighting for SSA disability is different everywhere and for everyone. It depends in the state you live in. Although, it is a Federal law, it doesn't matter, some states give you a harder time than others. I strongly believe that your doctors have a great incluence on whether you get disability or not. You have to be on the same page. Let your docs know that you are applying for disability and need his understanding and support. If they refuse to support you on this decision, then it is time to look for another doctor. Most of the time you are denied 1 time and approved on the 2nd time. By what I have read, I noticed that a lot of you had to go in front of a judge. Was this on the 1st, 2nd, or 3rd try? It is different everywhere, but from I hear in FL fibromyalgia is good enough to get Social Security income. It also depends on your employment history. This has a lot to do w/ whether they make it easier for you or more difficult. If you have worked most of your life and this is the 1st time you are applying, there should be no reason for denial as long as your docs agree w/ your circumstances and support you. Good luck to all.

Stephanie008
Regular Member


Date Joined Oct 2010
Total Posts : 183
   Posted 5/18/2011 4:42 PM (GMT -6)   
Thank you to Andrea11 for your advice. This is such a relief to hear someone who is a professional and understands our pain. We appreciate your support, advice. I have one question, what do they do exactly when they say that they will review your SSA in a few years? Do we have to go through the whole process again? or is this just a review to make sure we are keeping up w/ medical care. I am currently on disability and do not anticipate going back to work. I have a multitude of health issues. Breast Cancer remission, Rheumatoid Arthritis and Fibromyalgia as well as Bi-Polar and Refractory anemia. What are your thoughts for what will happen in my review in 3 years? Any input is greatly appreciated. Thank you.

samandkennasmom
Regular Member


Date Joined Mar 2011
Total Posts : 24
   Posted 5/19/2011 12:49 AM (GMT -6)   
Hi
Just wanted to say thanks to Andrea for her help and for this thread, I live in Wisconsin, I'm sure it's one of the harder states for disability. Thanks also for posting this thread, can't have to much knowledge, right?

Hugs
Michele

Andrea11
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 5/19/2011 10:11 PM (GMT -6)   
Simplistic007- as I understand it, they generally follow a similar process to the one initially used to evaluate you for disability. Contact the attorney who represented you when you received your disability and ask her for tips on how to handle the continuing review. Here's some more info that might help - http://www.jamesdisabilitylaw.com/continuing-disability-reviews.htm.

Thanks, Michele.

Stephanie008
Regular Member


Date Joined Oct 2010
Total Posts : 183
   Posted 5/20/2011 7:21 AM (GMT -6)   
Andrea11, thank you very much for your input. Have a blessed day.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, October 31, 2014 11:40 PM (GMT -6)
There are a total of 2,256,519 posts in 251,000 threads.
View Active Threads


Who's Online
This forum has 157718 registered members. Please welcome our newest member, Liam717.
228 Guest(s), 10 Registered Member(s) are currently online.  Details
rowingmom, artist95, Paddicake77, Mascoe1, Tbrown2, Dixie6, Jaybee_007, Patrick M, teragram, Cornell


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer