Fibromyalgia and Vision Problems

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

jr991
Regular Member


Date Joined Feb 2011
Total Posts : 186
   Posted 6/6/2011 9:59 AM (GMT -6)   
Was just wondering if anyone here with Fibro experiences any types of visual problems or disturbances.  I have have problems with tons of eye floaters, eye pain, light sensitivity, and after images (palinopsia).
 
Anyone else experience these?
 
Thanks!

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 35074
   Posted 6/6/2011 10:17 AM (GMT -6)   
My eyes seemed to get dry, I have had the floaters for a long time. Some of this is normal for me due to age, so I don't know if the fibro is the cause or not.

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 6/6/2011 11:44 AM (GMT -6)   
The only eye related problems I've had were side effects from Lyrica - very blurry vision. At my last eye exam (just over a year ago), my doctor told me my eyes looked perfect. I told her it was probably the only part of my body that wasn't screwed up right now. She didn't laugh.

I'd suggest seeing your eye doctor asap for a checkup. If there is a problem, you'll want to deal with it quickly, so you don't endanger your vision.

Good luck,

Pam
DX: Fibromyalgia, Severe Myofascial Pain, Osteoarthritis in ALL my joints, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Type 2 Diabetes, Reynauds, Visual Migraines, Drug Related Hot Flashes, Hard Start for IV's, Unable to vomit due to surgery.

Meds: Oxycontin, Tramadol, Tramacet, Cymbalta, Cesamet, Flexeril

carlybob1
Regular Member


Date Joined Sep 2010
Total Posts : 204
   Posted 6/6/2011 5:04 PM (GMT -6)   
Dont know if it is related, but Ive had floaters in my vision for years as well as flashes of lights. my eye dr say it is harmless in my case.

ak angel
Veteran Member


Date Joined Apr 2011
Total Posts : 3037
   Posted 6/7/2011 12:03 AM (GMT -6)   
My dr told me that I have no tears in my eyes when he checked them. He wanted to implant some artificial thing to relieve the dry eyes. I couldn't afford it so I put moisture drops in them. Works well. I have read that dry eyes are common with FM patients. Not sure if that is true. The dr put some kind of paper on my eyes and it showed the percent of moisture I had. It very important, lol. Maybe I cried so much from the pain and lost all my tears!

Andrea11
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 6/7/2011 9:28 PM (GMT -6)   
I have noticed an increase in floaters since my pain started up (I previously only had the chronic fatigue). They seem to be worse when I'm experiencing headaches. I'm going to a neuro soon and plan to tell the Dr. about this symptom...Good luck!

Myself 09
Veteran Member


Date Joined Dec 2009
Total Posts : 4468
   Posted 6/8/2011 7:45 AM (GMT -6)   
I had the moisture plugs put in... and they worked pretty well. Luckily my insurance pays for it.

Dry eye, seriously.
Fibromyalgia DX 2005. Ulcerative Colitis, arthritis, TMJ. Family History of Fibro--2 out of 3 siblings diagnosed.

There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot.

NotSoCrazyAfterall
Regular Member


Date Joined Mar 2011
Total Posts : 86
   Posted 6/8/2011 1:48 PM (GMT -6)   
something to consider if your eyes are esp. dry - Sjogren's disease. I've heard before the people who had FM actually turned out to have this instead. Just a thought. You can read about it here: http://www.sjogrens.org/home/about-sjogrens-syndrome

I've had lots of vision problems with Fibro. I often use how clear my vision is to let me know if I am ok or not. sometimes it's so sharp, it's actually painful. Other times, it's fuzzy. I had my eyes tested on a fuzzy day and the glasses came out all wrong. I had to get retested and get another pair! I'll never do that again. I know better now.
"Does it really hurt that much?" Uh...yeah!

Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 6/9/2011 6:37 AM (GMT -6)   
I've been tested for sjogrens several times, always negative.  I have very dry eyes, use Restasis, Systane, Refresh, you name it, I have tried it.  I work for an optometrist, so at least I can get samples.
 
Carlybob, I think I would get another opinion on the flashes of lights, just to be safe, I don't think that is normal for anyone.  I might be wrong, but 2nd opinions are never a bad thing.
 
I always find it amazing how many things all of us share.  It's like there was this huge list of issues and they gathered them all up and gave them the name of fibromyalgia. rolleyes
Gluten Intolerant, Small Fiber Sensory Polyneuropathy, Gluten Ataxia, Sleep Apnea, CFS, Raynauds, Hypothyroid, Fibromyalgia

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15413
   Posted 6/9/2011 10:35 AM (GMT -6)   
Deb is correct.  Flashes in the eyes could be a migraine OR it could be something more serious.  I would see an opthalmologist if I were you to make sure my eyes were healthy.  It will give you peace of mind.
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 6/9/2011 10:46 AM (GMT -6)   
Definately get your eyes checked if you are seeing flashes...it could be a sign of retina detatchment.

I've had my eyes dialated 5 times this year at the opthamologists because I was seeing blue flashes, and did see a retina specialist. Luckily there wasn't a problem, but I'm glad I did go because like Sherrine said, it will give you peace of mind...and that is worth it!

Hugs, Robin
Fibromyalgia, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"

jr991
Regular Member


Date Joined Feb 2011
Total Posts : 186
   Posted 6/19/2011 11:13 PM (GMT -6)   
hey and thanks to all who took the time to respond. I've been to the eye doctors and and opthamologist a few times and the world if that my eyes are perfect in their opinion. They don't see the thousands of transparent floaters that I see, which tells me they are in the pre macular bursa.They can'y offer any explanation to the daily eye tension/strain pain. I'ts anooying not getting the answers.

Fantod
Regular Member


Date Joined Jun 2011
Total Posts : 33
   Posted 6/20/2011 9:28 AM (GMT -6)   
Vision problems are extremely common among Fibromyalgia (FMS) patients. Most FMS patients require more frequent prescription eye glass changes. Common complaints include blurred vision, inability to focus, and floaters. Take care.

tooyoungforfibro
New Member


Date Joined Jun 2011
Total Posts : 9
   Posted 6/29/2011 2:44 PM (GMT -6)   
I get pain behind my eyes and dry eyes. My vision also goes blurry sometimes. I've had to get my vision tested several times and they always tell me my eyes are perfect so I can only guess it is from fibro.
I hope this helps you.

Marissa
tooyoungforfibro.wordpress.com

Shanny63
Regular Member


Date Joined Jun 2011
Total Posts : 339
   Posted 6/29/2011 6:16 PM (GMT -6)   
Whenever I am having a flare up I seem to get heaps more floaters and sometimes blurry vision...

FibroNana
Regular Member


Date Joined Sep 2010
Total Posts : 193
   Posted 6/29/2011 6:48 PM (GMT -6)   
I just LOVE this forum! I have noticed that when I start to go into a flare the first thing is my vision goes blurry..and I've have 3 rx changes in the past 3 years..

I'm going tomorrow for an exam. not sure what floaters mean..but I'm having some serious issues with my eyes..very dry and just can't get my brain and eyes to get on the same page..

please share about floaters?

Oh and on another note, I was so tired of feeling sorry for myself..today I put on some ole motown and some good ole pure blues, cranked up the system and danced and sang..and man oh man do I feel so much better..

yep, still hurt, yep eyes and brain feel like mush...but my spirit feels so GOOOOODD!!
Fibromyalgia,meralgia paresthetica,degenerative disc disease,rheumatiod arthritis,depression,asthma
Cymbalta,neurotin,predisone,percocet
Juiceplus,coq10,malic-acid/magnesium,probiotics,fish oil

Marilyn K.
Regular Member


Date Joined Jan 2011
Total Posts : 250
   Posted 6/30/2011 3:48 PM (GMT -6)   
I am with everybody eles. Dry eyes and sensitive to light. When I was taking trazodone I had long streaks that was really weird. I quite taking it.

bcb1200
Regular Member


Date Joined Nov 2010
Total Posts : 29
   Posted 6/30/2011 5:24 PM (GMT -6)   
Yes...I ahve had this. Vision issues, along with dizzines, was one of my worst symptoms. But then I learned that the "Fibromyalgia" diagnosis I had was wrong...and I really had lyme disease a few co-infections (Babesia and Bartonella).

I've been in treatment for 14 months for lyme disease and am nearly back to 100%. All of my vision issues, etc are completely gone! I expect to make a full recovery.

I suggest you consider lyme as the root of your fibromyalgia. I originaly tested negative and ruled it out. Then I learned the tests are garbage and most doctors don't know how to diagnose it. You must find an ILADS trained LLMD. (Lyme Literate MD).

I year ago I thought I was going to have to live with these symptoms for the rest of my life. Now I'm nearly symptom free and enjoying life again. You can too! Don't accept this diagnosis. Do your own reasearch! Be your own advocate! Fibromalgia is the name doctors have assigned to a group of symptoms of which there is no known cause. Yet most lyme doctors / scientists / activists believe lyme disease is the root of fibromyalgia. I have met dozens of lymies who were originally misdiagnosed with Fibro. Some suffered for years before finally getting a proper diagnosis and most are well today.

Something to consider.

Lyme14
Regular Member


Date Joined Jun 2011
Total Posts : 381
   Posted 6/30/2011 10:48 PM (GMT -6)   
 
 
I have eye pain, light sensitivity, some blurred vision and general difficulty seeing compared to a few years ago.  I have had glasses since age 8 and have kept up with prescriptions--told I have healthy eyes by the eye doctor.  It's my belief that neurotoxins are involved in vision issues, as they put pressure on the optic nerve, creating contrast deficits that are not correctible with glasses.
 
Best wishes to you all on your journey with fibro!

AgentBodyLover
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 6/8/2012 2:07 PM (GMT -6)   
Sorry to intrude on this thread, but I have a side question!

@NotSoCrazyAfterAll: You mentioned in another thread from a while back that you were diagnosed with a genetic Salt disorder. Can you pleaseeeee tell me more about this? e.g. condition name, any specific symptoms, rashes? Were you intolerant to Epsom Salt bathes?

Jasmine Grace
Veteran Member


Date Joined Jun 2013
Total Posts : 815
   Posted 6/9/2013 2:34 AM (GMT -6)   
There is an inflammatory condition called anterior uveitis that has the following symptoms:
Blurred vision
Dark, floating spots in the vision
Eye pain
Redness of the eye
Sensitivity to light
(I have these symptoms myself but haven't mentioned them to the doctor yet)

It can be associated with autoimmune disorders (like lupus) or systemic infection or it can occur independently of autoimmune conditions. Considering the possibility that FMS may be autoimmune or a systemic infection...
 
I also get dry eyes, afterimages and dizziness.
Sometimes everything looks to me to be warped into an upside down U shape that has shallower slopes... more like a hill...
 

Post Edited (Jasmine Grace) : 6/9/2013 1:40:05 AM (GMT-6)


DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1001
   Posted 6/9/2013 6:37 PM (GMT -6)   
Yes, another set set of symptoms some of us share.. floaters, dry eyes, sensitive to light, occasional blurry vision, eyes tire quickly so was forced to cut back on my reading & computer use.. the last 1 yr+ also dancing eyes.

Jasmine Grace. I know 2 people with uveitis.. both, after seeing regular eye dr - kind who who write scrip for glasses - & both were initially misdiagnosed several times - with pink eye.. Know this IMHO suggest if you believe you have this that you see specialist..

Always good to see others w/ shared symptoms as a reality check that I am sane. Thanks.

Wishing low pain levels to.all
Diane

Herniated cervical discs & other assorted disc / spine issues, Arthritis
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis

Fentanyl, oxocodone & muscle relaxers - 1,000 Vit D & multiple daily vit

Pelagicdancer
Regular Member


Date Joined Jan 2013
Total Posts : 65
   Posted 6/10/2013 2:21 PM (GMT -6)   
I have blurry vision, floaters, dry eyes (but not super-dry, I still produce tears, it's more a perception of my eyes feeling dry and kind of itchy or irritated sometimes), eyes get tired or have trouble focussing, sometimes the area around the back of my eyes will ache, I am generally very sensitive to light, and so on.

They do get a little bloodshot but nothing to the degree of the photos that come up when I Google "anterior uveitis". I saw an optometrist and an opthamologist before so I would assume they would have been able to tell if I had something like that, right??

All they said I had was astigmatism (I can't recall what type though) and some problems with my eye muscles (weak or tired or something? they said it was consistant with being in an accident and didn't seem worried about it) which might improve and I should do some eye exercises and get glasses and come back in a while. My vision has gotten worse since then so I guess I should go back, it's been more than a while.

I've had some nearsightedness since I was pretty young, but my vision has changed and gotten much worse since my major fibro symptoms started, so that is interesting. It's hard to describe, it's just "weird" sometimes, like I feel like it's hard to focus on more than one thing/small area at a time. And I now have problems with seeing things up close, not just far away (I can still read though).

I don't think this is just normal aging, I'm not very old and things have happened fairly quickly compared to other people.

Jasmine Grace
Veteran Member


Date Joined Jun 2013
Total Posts : 815
   Posted 6/10/2013 10:10 PM (GMT -6)   
I actually have four problems with my eyes that have been diagnosed by the optometrist:
Astigmatism (inherited from my parents)
Hyperopia (longsightedness)
The optometrist said that the muscles around my eyes are constantly contracting and holding that contraction for a long time, then suddenly relaxing and contracting right away again, which has a special name that I can't remember. I just said, "That makes sense, since the fibro does that to the rest of my muscles too. Why not the muscles around my eyes as well?"
Presbyopia - which I know is really strange for someone so young; the optometrist wondered at it himself!
Age: 18

Conditions: Fibromyalgia, chronic fatigue syndrome, chronic pain syndrome, irritable bowel syndrome, allergies, dermatitis, low immunity, food intolerances, panic attacks , tinnitus, restless legs syndrome... and I won't list the rest

Goals: to be an occupational therapist who specialises in treating people with blindness and people with fibromyalgia
To travel around the world
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, October 31, 2014 1:56 AM (GMT -6)
There are a total of 2,256,069 posts in 250,943 threads.
View Active Threads


Who's Online
This forum has 157687 registered members. Please welcome our newest member, Zoophilijess.
175 Guest(s), 2 Registered Member(s) are currently online.  Details
BadDay, Flip Flop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer