I have a LONG history with not-so-helpful doctors. It’s more than frustrating, it’s
maddening. I deal with them in 2
ways. First, I share with them what I’ve
learned through research I’ve done on the internet and reading about my conditions
(fibro, myofascial pain, sleep disorder due to fibro, and another sleep
disorder idiopathic hypersomnelence). I’ve
made a chart showing the symptoms of each and what is similar and what is
different. I also know what my top complaints are before seeing the doctor
(headaches, fatigue, muscle pain, etc.) If they don’t agree with what I believe is wrong
or they try to give me more meds I resort to option 2 – Never see them
again. I went to a Pain Management
Center last month based on a referral from my primary Dr. I wanted to get trigger point
therapy/massage. The Pain Management doctor spoke to me
for about 10 mins, concluded I had fibro (I knew that 13 years ago!), gave me
anti-depressants (didn’t ask for them and don’t want them) and a referral for
aqua therapy (been there done that).
When I asked the nurse if I could talk to the Dr. again she was rude and
just gave me the prescriptions and note to follow up on 2 months. After repeatedly calling to speak to this Dr.
I encountered more rude and bitter employees and will never go back there
again. I’ve told everyone I know how
horrible they were. It is truly sad
since anyone with pain just wants to be seen, heard and understood with
compassion and some empathy. Those
people were crazy!
You need to keep looking until you find a dr. or specialist
that you are comfortable with and will listen to you. Educate yourself on your symptoms, treatment
options, nutrition, and exercise before you see them. You need to tell them what you want and what
you will and will not tolerate for treatment, medications, etc. My primary care doctor isn’t a specialist for
fibro but she listens and reviews the reports from the specialists with
me. She listens to me and tries to find
treatment options that I am comfortable with.
It took me 13 years to find a good one…so there is hope (not really
promising given how long it took me, I know).
Educate yourself and keep trying.