Fibromyalgia vs Alzheimers

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GO_za
New Member


Date Joined Aug 2011
Total Posts : 6
   Posted 8/16/2011 9:37 AM (GMT -6)   
Hi there
 
Has anybody ever done some research or heard about this.  Could there be a link between the two illnesses????? confused

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15105
   Posted 8/16/2011 10:52 AM (GMT -6)   
Hi, Go_za, and welcome!  No, there isn't any connection between fibromyalgia and Alzheimer's, according to the Mayo Clinic.  They say Alzheimer's occurs on it's own and isn't because of another disease.  We have cognitive memory problems.  I've had fibro for 24 years and have had cognitive memory problems.  If I had Alzheimer's, I probably wouldn't be here typing this to you.  Here is a link from the Mayo Clinic explaining various dementias.
 
 
Be sure to check out Fibro 101...the second thread on the forum.  There are links to good information about fibromyalgia and you will learn a lot there.
 
I'm glad you joined us and I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from  you soon!
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 944
   Posted 8/16/2011 2:33 PM (GMT -6)   
I'm wondering if she was referring to some studies that have been done looking at the brain size of people with FM, that our brains shrink and the size of AZ patients' brains shrink. Other than that, I don't think there is any correlation
Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.

GO_za
New Member


Date Joined Aug 2011
Total Posts : 6
   Posted 8/17/2011 2:53 AM (GMT -6)   
Good day Sherrine and MT Lady thank you very much for your input. Let me explain to you my concern. about a year ago I was diagnosed with FM and about 8 months ago I started to get a BIT forgetful at work. I have been at the same fob for 6 years so say I want to for instance type a letter that I have been doing for 6 years the minute I want to start typing I forgot what I wanted to type. Anyway then my left arm from the elbow right down to my wrist but only muscle started paining like hell it is a constnat sharp pain. A month ago I got out of bed in the morning went to the toilet wanted to get back to my bedroom to get dressed for work and got dizzy but did not loose consciousness but it was bad enough. It happened that evening again while I turned around in bed I got so dizzy that my family called the ambulance to take me to hospital as they thought I had a stroke. Cardiologists did test and no problem with my heart. The otherday I went to a friends doctor who is more of a homeopatic doctor. When I described the situation to me he immediately tippend on Alzheimers desease and he send me now to have metal tests done. As I am in South Africa the test have to be sent to Norway and it take 3 weeks to come back and FM here is just a sichness to everybody that is in the head and not taken seriously at all. So I am quite anxious now because of the memory loss I have which is on a daily basis getting worse and the dizzyness if the FM and the Alzheimers could be related in some way. Well I have to wit for the metal results to come back I suppose to know what is what but I just thought I would enquire her on this forum if anybody know anything about it. Thank again and thank you for this wonderful website :)

MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 944
   Posted 8/17/2011 9:07 AM (GMT -6)   
The pain you described in your arm could very well be carpal tunnel which could easily be diagnosed by a doctor, which can be caused by repetitive motion, like typing. The dizziness could be something caused by an inner ear issue and again, a doctor could diagnose that. I have had FM for over 22 years and have never had a problem with dizziness, but there are others on this forum that have FM and have dizziness issues. I have had carpal tunnel problems in the past and when it flares, I use wrist splints that I bought at the corner drug store. I understand it can get much worse and some people do have surgery for it.
My mom was diagnosed with Alzheimer's 8 years ago and is currently very stable and living in an assisted living facility. She was 81 at the time of her diagnosis. She did try to hide it from us for a while, so I'm not really sure what her early symptoms were, but at least for her, her main problem is memory loss. She has some balance problems when walking and uses a walker, but she also has back problems.
People with FM also have some memory issues, forgetting we where put things, forgetting what we are looking for, etc. Do you have a university near you? Here in the U.S., some of the best physicians are at teaching hospitals and universities. A neuropsychiatrist was the person that diagnosed my mom, well she was told "probable Alzheimer's" because the only definitive diagnosis for Alz currently is after death, at autopsy.
I'm not sure if any of this helped you. You might want to visit the site www.alz.org. They have staff on hand that you can call and will help with questions, although I realize you are in South Africa; I'm not sure if they have offices there or not, but it's worth a search on the internet.
I wish you well
Miriam
Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15105
   Posted 8/17/2011 11:17 AM (GMT -6)   
Oh, goodness, Go!  I can see why you are anxious.  I'm not a doctor but what you have written doesn't describe symptoms of Alzheimer's that I can see.  Go through that Mayo Clinic site I posted in my first post to you.  This hospital is one of the very best in the US and I trust their information. 
 
The pain in the arm.....that's exactly how my fibro hit me one night.  I started getting pain in my feet and it worked up my body.  When it got to my elbows, it was like a severely banged them.  The "electrical-type" pain shot down both my arms and stayed that way for over two weeks.  It's a very intense, horrible pain.  Everyone with fibo has a different story as to how they came down with it. 
 
I'm dealing with some light-headedness right now.  This comes and goes for me.  I live in Florida and the heat and humidity causes sinus problems and I think this is what is going on.  It's probably hot and humid this time of year in South Africa, too.
 
Cognitive memory problems are very common with fibromyalgia.  I've tried to start the car with the key to my freezer.  I couldn't remember my phone number one time and had to get my checkbook out to see what it was!  I have a very good mind but sometimes it stalls on me!  smilewinkgrin    This really kicked in when my husband died suddenly.  I couldn't remember anything and my kids tell me we had conversations on subjects but I have absolutely no recollection of them!  I immediately thought it was Alzheimer's too and that was frightening.  I saw my doctor and he said it was fibromyalgia.  That put my mind at ease and my memory improved.  The stress and anxiety over this can cause your memory to be worse.  I find if I just relax, laugh at myself and move on, I do just fine.  I still have some problems but it doesn't prohibit me from my daily activities.  Even the stress over your arm can kick in the "fibro fog".  Here is a link about fibro fog that might help you.
 
 
Did your doctor run you through tests to rule out other illnesses?  The symptoms of fibro are like other illnesses so they are ruled out before a diagnosis of fibro is given. 
 
Be sure to check out Fibro 101...the second thread on the forum.  There are good links to good information about fibro and you will learn a lot there.  Good links to start with are called Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia.  Another link called Doctors Respond to New York Times Article is excellent too and might help your doctor if they believe that fibro is all in you head.  It sure isn't! 
 
Here are some teaching hospitals in South Africa.  Perhaps one is near you and you might find a doctor that believes fibromyalgia is an illness.  Here in the US, fibromyalgia is recognized by the American Medical Association, the American College of Rheumatology, the National Institute of Health and also the World Health Organization to name a few! 
 
                South Africa 

By the way, could you do me a favor?  Please use paragraphs when you write.  It's really hard to read and I'm older and get lost and have to start over again!  I separate my paragraphs with two spaces and that makes it easier to read, I think.  Thanks in advance!

I hope this has helped you some.  Please try to relax, think positive thoughts and enjoy each new day.  You will get answers soon.  Don't hesitate to ask more questions because we are her to help you.  Feel better!

 

Sherrine

 
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

GO_za
New Member


Date Joined Aug 2011
Total Posts : 6
   Posted 9/29/2011 8:05 AM (GMT -6)   
Good day Sherrine
 
After a long time I am back again and I have some news that is quite positive.  (BY the way thanks for the list of hospitals........ you dont want to go to those ones believe me!!!!! nono nono ) They are DISGUSTINGLY FILTHY.
 
Anyway I went to another doctor that was a friend of my deceased partner and he made me do metal tests and guess what ?????  I have an exceptianelly high content of nickel in my system. 
 
I have been on medication for the last two weeks and absolutely feel GREAT.
 
The only problem I still have is the pain in my arm and there I had an ultrasound done and the diagnose is "compression of the ulnar nerve at the level of the cubital tunnel raising suspicion of an entrapment neuropathy"
 
So there we go hope you are well and MT Lady as well.
 
 

hippokonder
New Member


Date Joined May 2012
Total Posts : 1
   Posted 5/28/2012 4:07 PM (GMT -6)   
Hi, I am the lucky winner of CFS/ME and am reading medicine as much as I can. The overview I get suggest that the autoimmune diseases have been treated seperatly, in contrast to canser. They both appear all over the body, and dependent on where they appear the symptoms vary a lot. The 3 newest added to the group for my concern is Alzheimer, Ashtma and migraine. So when the diseases are close to be understood, the question is which markers is used to measure the cause and the presence of the disease? Another question is: Does it spread like canser? On the last one I would defnetly say no, because I belive it is damage made by blood quality combined with genes. The answer for the first question is partly yes, you can test the blood and say this is not healthy for a person with autoimmune genes, and the substance in the blood has thought to be either high amount of lactic acid, high amount of cytocines or high amount of immunoglobulines. I guess that by 2012 the final answer will be immunoglobulines. This is not three substances we are not supposed to have, but over long time and high levels they damage the tissue in the body. Dependent on where they damage the tissue you get different results and sympthomes. I have read about the connection between viruses and alzheimer and brain tissue damage, I have also read about tre connection between viruses and autoimmune diseases and tissue damages. And yes, I choose my reading sourses carefully. (I have almost full access to the international medical research webpage PubMed.)

ak angel
Veteran Member


Date Joined Apr 2011
Total Posts : 2932
   Posted 5/29/2012 12:44 AM (GMT -6)   
Hippolonder - I was wondering if you have any info on the memory problems with fibro patients? I suffer from it really bad. I was tested neurological and it was real bad results. I do have other health problmes, but I kind of wonder about early alzheimers.
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