muscle contractions/twitches/jerking

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Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 8/25/2011 1:29 AM (GMT -7)   
Hey all,
I've been experiencing random muscle jerks all over my body. They mostly happen when I'm resting, or sitting watching t.v. or reading, or at the computer.  When I'm up moving around I don't have them.  The twitching isn't continuous in one particular muscle, but completely random and happen every few seconds when I'm trying to sleep, and every minute or so when I'm watching t.v., reading or at the computer.  I can get one in my right foot, then 20 seconds or so later, my entire torso will jerk, followed by my left thigh, etc, etc.  The jerks can be quite violent! 
I'm just wondering if fibro can cause these types of myoclonic jerks?  They've gotten much worse since I was rear-ended in a car accident 3 months ago. I have 3 herniated disks in my neck, and some severe muscle sprains.  I'm awake right now at 2:30am because the twitching woke me up and kept happening every few seconds. Annoying is an understatement!
Thanks for any input!
Moderator of Lupus and Fibromyalgia forums

37 years old, diagnosed in 2000. SLE, Fibromyalgia, APS, Sjogrens, Raynauds, Thrombocytopenia, Vasculitis, Stroke – 2002, Bilateral sacroilitis, Clinical Depression/PTSD/Anxiety/panic disorder, Optic Neuritis. Prednisone, Plaquenil, Coumadin, Cozaar, Zoloft, Didrocal, Seroquel

Regular Member

Date Joined Sep 2010
Total Posts : 194
   Posted 8/25/2011 7:08 AM (GMT -7)   

When I was in the worst of my flare or flares, that was what freaked me out the most...there was no explanation for it..I also had the violent jerks in my torso..It can be very scary but I can speak from my experience that they do subside when the flare does...I hardly have any at this time...

hang in there!!!!

Fibromyalgia,meralgia paresthetica,degenerative disc disease,rheumatiod arthritis,depression,asthma
One day for women/50+, estroven, magnesium/Malic acid, fish oil, probiotics

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 8/25/2011 7:42 AM (GMT -7)   
Thank you Jerrie!
They started in the fall of '09, and I've had all kinds of tests and specialists trying to figure out what the cause is.  I guess it would make sense that they're worse now since my car accident.  My fibro is flaring for sure.  They were so bad last night!  Full body lurching! LOL!
Thanks again Jerrie!
Moderator of Lupus and Fibromyalgia forums

37 years old, diagnosed in 2000. SLE, Fibromyalgia, APS, Sjogrens, Raynauds, Thrombocytopenia, Vasculitis, Stroke – 2002, Bilateral sacroilitis, Clinical Depression/PTSD/Anxiety/panic disorder, Optic Neuritis. Prednisone, Plaquenil, Coumadin, Cozaar, Zoloft, Didrocal, Seroquel

Regular Member

Date Joined Nov 2010
Total Posts : 321
   Posted 8/25/2011 4:52 PM (GMT -7)   
I have a specific spot in my right knee that is the "home" to my muscle twitching and it drives me crazy when it happens -- over and over in one specific spot. I cannot imagine what is like for people who have twitches that move about their body -- just that one spot puts me on edge and interrupts sleep.

In July I started a new med (Viibryd) in which you titrate up to the regular dosage. As soon as I moved to the full dose I started getting all kinds of new twitches and my restless leg syndrome kicked into high gear. I couldn't stand the jerking. I went back to the medium dose and found some relief to the madness.

I wish your twitches would go away. Please tell them they overstayed their welcome.

Nana Monster
Veteran Member

Date Joined Jul 2009
Total Posts : 952
   Posted 8/25/2011 9:34 PM (GMT -7)   
Since I've been using the beta-alanine mine are almost non existant. When I use about
8-10 a day I don't have any but when I run low and baby them using 2-4 a day I have
mild ones. I've done the regular muscle relaxer route and this seems to be the answer
for me.

Veteran Member

Date Joined Oct 2009
Total Posts : 4677
   Posted 8/25/2011 11:59 PM (GMT -7)   
Through keeping my food log/journal, recording everything I eat, drink, and al the meds, I discovered my spasms only occur when I take certain meds, including some of the ones some of you are taking.
Keeping good track, with the direction of my allergist, using a daily calendar with lots of writing space, works lots better than trying to remember what to avoid.  When I get a reaction I can go back to the journal and see if something new is happening or if I've reacted to the suspect food or medication before.
Last evening I had some particularly strong muscle twitches/ clonus.  I wasn't particularly frightened because I had just started vicodin again after an appendectomy.  I made my regular notes though!

Forum Moderator

Date Joined Apr 2005
Total Posts : 17128
   Posted 8/26/2011 11:26 AM (GMT -7)   
You've gotten some really good advice, Ginny.  I don't have that very often.  If I do, it is very sporadic but we are all so different even though we have the same illness!  If you've been thoroughly checked out, then I wouldn't worry about it.  Just thinking about it probably makes it worse!
I do hope you get relief from them.
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Veteran Member

Date Joined Mar 2005
Total Posts : 1431
   Posted 8/27/2011 9:37 AM (GMT -7)   
Are you on any meds? I got them pretty bad when I started taking sertraline.

New Member

Date Joined Aug 2011
Total Posts : 2
   Posted 8/28/2011 11:43 PM (GMT -7)   
I was diagnosed with ADHD, hypothyroidism and Fibromyalgia, I have seen all the psycotherapist, RA doctors and others taken tons of medicine then I said enough is enough I also was diagnosed depressed, had acid reflux from meds, so I started doing research and have found a lot of info, for the pain of fibro start taking magnesium either triple mag by vital nutrients or magnesium Malate, and probiotics a good one. It worked wonders for me when nothing else would. Read help my body is killing me by Dr Conners and listen to what he is saying. Go to his web site. Also find a functional medicine doctor they run the test that mainstream medical doctor don't , they work with your body as a whole not just the one symptom. I have spent years suffering until I said no more and took matters into my own hands, I have made more progress since then than any of those so called specialist and drugs could do. Never stop asking why, don't listen to there's no specific reason that's what they say when they don't understand things, fight for your health. I am off almost all my meds now, Apple cider vinegar 1 tbls. In glass of water is great for acid reflux or heartburn and some stomach aches it doesn't taste great but it works a cutting down glue in your diet works. I am still on my way to better health and you can be to, don't let people make you feel bad because they don't have a clue, if you don't experience it you don't know what your talking about. Good luck. with your research. And keep fighting. B

Regular Member

Date Joined Oct 2010
Total Posts : 114
   Posted 8/30/2011 10:25 AM (GMT -7)   
The Sleep Study Dr. told me that those spasms a lot of times are because your body is so tired! And the worse your tiredness gets the worse the spasms get. Who knows, I guess it makes sense. But I know it drives me crazy.
Fibro, Diabetes, Cubital Tunnel, Chronic Fatigue, Premenopausal, Depression and Anxiety


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