seizures and Fibro

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nsbennett
New Member


Date Joined Mar 2011
Total Posts : 19
   Posted 9/12/2011 7:54 AM (GMT -6)   
Hello all,
 
It's been a while since I last logged on, I've been crazy busy with school and working.  This past Friday I was at work, I went outside to get the mail and all I can remember is walking back towards the building.  Apparently I went back inside and to my desk and then said that the room was spinning.  I began seizing after that for about 5 mins.  I was taken to the ER they did a full work up and MRI, everything came back normal.  I go back in a week to have my EEG done.  I did a little research online and found out that there is a link between fibro and Psychogenic Nonepileptic Seizures.  These are caused by high amounts of stress.  I was wondering if anyone has been diagnosed with this condition and has been able to find some kind of relief. 
 
Thanks  

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2786
   Posted 9/12/2011 9:55 AM (GMT -6)   
Hi there...there was a post last week about someone having seizures and all her tests coming back normal.  I have been on this forum for several years and it was the first time I had ever heard of fibro causing seizures.  There have been some members who got them from medications they were taking but not from fibro.  I have never heard of this and I have had fibro for 20+ years.  I certainly am not  saying it isn't possible...fibro is an insidoius disease with all kinds of strange symptoms.  I just never heard of it before.  It must have been frightening for you and I'm so sorry this happened.  Maybe someone else with more knowledge on the subject will chime in...
 
Donna

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15413
   Posted 9/12/2011 10:45 AM (GMT -6)   
I agree with Donna.  I've had fibro for 24 years and have never heard that it can cause a condition with seizures.  I checked the Mayo Clinic and National Institute of Health sites and see no mention of this.  They do use Lyrica, which is an anti-seizure medication, for fibro but it's not because you can get seizures.  The med mixtures helps some people. 
 
As Donna suggested, perhaps it's your medication or another underlying condition.  I'm not a doctor but that would be my guess.
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

ak angel
Veteran Member


Date Joined Apr 2011
Total Posts : 3036
   Posted 9/12/2011 3:09 PM (GMT -6)   
Nsbenette- I would like to know what meds you are on? I have suffered 4 seizures all medicated related. So many of our fibro drugs cause seizures. A lot of times is because of the dose being high or drug interaction. That was my case. I had my first seizures on tramadol. The dose I was taking was high and I was taking an antidepressant that can easily cause seizures. Those two mixed was not a good combination my Dr. Said. I had my worse seizure on welbutrin. My brain swelled and caused long lasting cognitive problems. Yes, stress can cause seizures, but usually if you are considered seizure prone already. After 2 seizures you are considered to have epilepsy. I hope it was drug related for you because they usually won't return. Like now, I am off my seizure meds because they were drug related. Seizures meds are hard on your body. Did anything happen to your licence? A lot of times you have to prove to the DMV that you are clear to drive. Please look at your meds and make sure there wasn't something they didn't see. ER didn't diagnosed me right. It was my neurologist did. They just sent me home after all my test were negative too!

mamabee3
Regular Member


Date Joined Jun 2011
Total Posts : 34
   Posted 9/12/2011 11:04 PM (GMT -6)   
I also had a medication related seizure too a few weeks ago. Still testing but most is coming back normal.

I hope you find answers!

Pumpkin11
New Member


Date Joined Dec 2011
Total Posts : 4
   Posted 12/5/2011 5:08 PM (GMT -6)   
Epilepsy.com does now have a short article about PNES being linked to Fibro. I personally was not told the 2 were linked even though I had the 2 diagnoses. I discovered the link on my own. What has helped me was treatment with routine xanax. Also, I have definite "aura" sensations and can limit my activites or get home or call for help during this time prior to the PNES. I have also ER backup Ativan if the event is prolonged or becomes tachycardic or my BP is too high too long. They are pretty scary as you are relatively aware that something is going on during the event though you seem clouded. I was diagnosed with Photo Stim at UC Epilepsy Unit in Ohio....single most terrifying event in my life due to you have some awareness that your body is out of control and mind and you don't know what is going on ...I did not know if I was dying or losing my mind and you can't stop the seizure. I could feel extreme palpitations and racing heart and severe uncontrolled movements, but could not make them stop. I ended up with head jerking, seeing psychodelic colors only and then I heard this murderous screaming...which was ME...I did not know it was me! I was restarted on xanax and this helps to control the stress/anxiety that leads to the seizure. I had tried antidepressants, BP meds(made it much worse), lyrica and neurontin with no success...xanax has helped tremendously. People are afraid of benzos but if your body/brain needs them it can restore your quality of life...it has allowed me to leave the house again independently! There is a thought that Fibro has something to do with decreased GABA in the brain - benzos help bring that level up of GABA but they are NOT for everyone. You must really have a team of good MD's to help you with the use of them!

beachlover89
Regular Member


Date Joined Nov 2011
Total Posts : 265
   Posted 12/5/2011 8:03 PM (GMT -6)   
I was dx a week ago with FM and had one (and only) in September so I wasn't on any FM meds. Not sure why I had one but it seems like I researched it and found a link with seizures and FM...but it may have been a fluke. I hope this helps! :)
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bwfm
Regular Member


Date Joined Apr 2010
Total Posts : 436
   Posted 12/6/2011 1:12 AM (GMT -6)   
The first thing I wondered, too, was if you were on Ultram. I never had a seizure when I was on it, because I took it according to directions, but my ex-son-in-law used to take Ultram for a different type of pain and he abused it and had seizures. I had a very healthy respect for that medication. I don't take it anymore.

I hope you find out something soon.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15413
   Posted 12/6/2011 8:28 AM (GMT -6)   
A possible side affect of Savella is seizures, too.  It most likely is very rare...but possible.
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

alm2162
New Member


Date Joined Jun 2012
Total Posts : 1
   Posted 6/2/2012 2:14 PM (GMT -6)   
I have seizure about once a year. Two things seem to contribute to them. Around my period and stress and low blood sugar. My blood sugar drops drastically at this time as I produce to much insulin. I find it very hard to keep my blood sugar up during my period. Staying on a low carb high protein diet helps. My IBS however feels better when I eat carbs, I am fiber intolerant. So that basically leaves me eating protein. Any way if you are a hypoglycemic FM patient low blood sugar could be the seizure problem.

ladywithfibro
Regular Member


Date Joined Nov 2010
Total Posts : 454
   Posted 6/3/2012 12:05 AM (GMT -6)   
When I was in the hosp in april and may, they sd my seizures (turns out I had 2 the same day as the heart attack) they sd the reason for them was very low magnesium and potassium. I did some research and there seems to be a link between fibro and magnessium. I would suggest making sure those levels are tested.
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