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McFibro
Regular Member


Date Joined Aug 2011
Total Posts : 57
   Posted 9/25/2011 1:37 AM (GMT -6)   
Along with everything else, I started developing ear pain in my left ear. My Dr. said there was pressure on the eustachian tube. Because of all of my other symptoms, like suboccipital neuralgia, migraine with aura and now the ear thing, he ordered an MRI of the brain with and w/o contrast. Has anyone else had this-the ear pain that is. The Dr. feels he's really on  to something and I'm so hopeful for an answer to all of this nerve pain, fibro, neuralgia. The only thing that eases my pain is pain medicine and I'd really like to get off it. I appreciate hearing your experiences and thanks for listening. Take Care, Anne

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 9/25/2011 11:06 AM (GMT -6)   
Hope your Dr is really onto something and his research not only helps you but many many more who are suffering. Don't feel bad for being on medication we all do what we have to.
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

jr991
Regular Member


Date Joined Feb 2011
Total Posts : 186
   Posted 9/25/2011 1:50 PM (GMT -6)   
I have off and on ear pain, but experience near constant eye and temple pain. I have always been told I have eustachian tube problems as well. Please let us know if you find out any more.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15393
   Posted 9/25/2011 2:00 PM (GMT -6)   
Because the eustachian tube is shorter and I think there is a little bend in it with children, they get earaches easily.  So, this isn't a far fetched idea your doctor has.  When I have a cold, I sometimes get a mild earache from the fluid backing up into the tube.  Air pressure affects it and that's why some get earaches when flying.  They have to chew gum or, in the case of a baby, be sucking on something. 
 
I hope your doctor is correct.  Earaches are no fun at all.
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

applevenus
Veteran Member


Date Joined Aug 2011
Total Posts : 934
   Posted 9/26/2011 12:03 AM (GMT -6)   
I've had ear pain, but only as an adult. I never had this problem as a child. It's never really terrible, I might need to take an advil for it. Another thing that helps, even though I feel really silly -- is ear muffs. The heat helps it. But now for at least a couple months, I've had terrible high pitched ears ringing. In fact, they're doing it right now. about 10-11 years ago, I had sinus surgery, & for that, I needed an MRI. The ENT told me that my eustachian tubes were at an odd angle, but as long as I wasn't having trouble with my ears, not to worry about it. I wasn't at the time, but tomorrow I am going to see the same ENT & I'll let you know what I find out.
46F, Fibromyalgia, Vitamin D deficiency, allergies/chemical sensitivities, possible Chronic Fatigue & maybe some IBS (only God knows what else is going on!)
http://fibromyalgiajournal.blogspot.com/

CrushFibro
Regular Member


Date Joined Nov 2010
Total Posts : 310
   Posted 9/26/2011 9:40 PM (GMT -6)   
I microwaved a wet hand towel and am resting my ear against this right now while I'm surfing because I'm having ear pain/pressure. It's been going on for several weeks now -- at first it was both ears, now it's just the left.

It's definitely causing diminished hearing. I have been far too busy so I haven't been to the doctor. I don't think it's an inner ear infection; more likely fluid in the middle ear and a blocked eustachian tube. I read that the heat helps so I've been trying that route, using my steroid nasal spray for the allergies, and running a vaporizing.

Any other suggestions?? I'm all ears! smilewinkgrin tongue

applevenus
Veteran Member


Date Joined Aug 2011
Total Posts : 934
   Posted 9/26/2011 9:53 PM (GMT -6)   
I had my hearing test & it was normal, I was surprised because during much of the test, I couldn't tell the difference between the high pitched tones the audiologist used for testing and the tinnitis whine! ENT said my hearing was on high end of normal. They checked my eustachian tubes & pressure & said that they are in normal limits. Soooo, in about a month, I am going for a diagnostic test to check for acoustic neuroma (tumors or growth at the brain stem). I do not think I have that, but they have to be sure to rule it out just in case. The test will not hurt, all I'll need to do is lie back & relax. In the meantime, my ENT wants me to pop my ears 3 times after each meal. I don't think meals have anything to do with it, but that's just a way I csn remember to pop my ears 3x at a time, 3x a day.
46F, Fibromyalgia, Vitamin D deficiency, allergies/chemical sensitivities, possible Chronic Fatigue & maybe some IBS (only God knows what else is going on!)
http://fibromyalgiajournal.blogspot.com/

McFibro
Regular Member


Date Joined Aug 2011
Total Posts : 57
   Posted 9/26/2011 11:21 PM (GMT -6)   
I'll let you all know what conclusions my Dr. draws from all of this testing. I could post a very lengthy paragraph about all of his suspicions, but I'll wait until I have the MRI on Friday and hopefully I can pass on information that will help all of you. Thanks for all of your information. Take Care, Anne

Free Spirit
Regular Member


Date Joined Nov 2010
Total Posts : 190
   Posted 9/28/2011 7:32 AM (GMT -6)   
Don't know if this will help anyone, it is what has been working for me:

I drop just a little peroxide in my ears every morning after flushing my sinus. Most days it bubbles, which is a sign that there is something in my ears that doesn't belong. The doc said it will not do any damage. Since I started this regimen, my ears do not hurt anymore and the sinus pain is almost gone. The true test will be during this winter. Other years, the cold weather caused a lot of ear pain.

applevenus
Veteran Member


Date Joined Aug 2011
Total Posts : 934
   Posted 9/28/2011 9:41 AM (GMT -6)   
Yes, hydrogen peroxide is what's in Debrox, an ear wax softening/removal product. I've used both regular peroxide and the Debrox, hoping it might make the ear ringing stop, but it didn't. For ear pain, will probably help if there is infection present. What we do is have someone pour a capful of peroxide in ear while we lie on one side. Oooh at first it is SOOO cold but then it warms up and does the bubbling. When the bubbling has finished, we put a paper towel to the ear and turn over to do the other ear :)
46F, Fibromyalgia, Vitamin D deficiency, allergies/chemical sensitivities, possible Chronic Fatigue & maybe some IBS (only God knows what else is going on!)
http://fibromyalgiajournal.blogspot.com/

CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1327
   Posted 9/28/2011 1:34 PM (GMT -6)   
Just curious if any of you with ear problems are going through perimenopause? I swear, everything in my head got sooooo bad during perimenopause. I had 2 sinus surgeries, my teeth hurt all the time, I had alot of sore throats, my ears/eustachian tubes would act up and I'd have roaring/muffling of sound, and my eyes acted up. I would have bizarre tingling in my scalp and face. I just couldn't believe the number of "head" problems I had during this time. I'm convinced there's something about our fluctuating hormones around that time in our lives that can cause MAJOR problems.
The good news it, it eventually calms down! And then you die. hahahaha Just kidding! Trying to add a little humor here!

Angelic_Victory
Veteran Member


Date Joined Sep 2012
Total Posts : 1977
   Posted 1/12/2013 10:44 AM (GMT -6)   
I get ear pain on and off. I've quit mentioning it to my pcp because he just looks in my ear and says he sees no infection. I have tmj and clenching my jaw causes ear pain but lately I have been sleeping with a mouth guard and I still get the ear pain.
I'd be interested to hear what your dr finds. Good luck.
Nail patella syndrome, osteoarthritis, complex migraines, eosinophilic esophagitis, major depressive disorder, OCD, and fibromyalgia, IBS

Meds: flovent 220 mcg, flexeril 10 mg, zonisanide 100 mg, omeprazole 40 mg, Cymbalta 60 mg,dicyclomine 20 mg, elavil, 10 mg, Xanax prn, hydrocodone prn.

applevenus
Veteran Member


Date Joined Aug 2011
Total Posts : 934
   Posted 1/13/2013 12:50 AM (GMT -6)   
Good point, Trigeminal Neuralgia (sp?)

Zarazonya
New Member


Date Joined Jul 2013
Total Posts : 1
   Posted 7/3/2013 6:37 PM (GMT -6)   
Hi i too have Fibro and get those awful ear aches. They get so bad that i have trouble moving my head and the pain goes deep into my ear and i will even feel it into my neck. On the very bad days i will even feel it down into the middle of to top of my chest and have sore throat. Doctors that i have seen have all ignored me and i guess too that it dont help that when i do get to finally see a doc about it that its not on one of my painful days, and my pain specialist just blames every pain i ever have on the fibro. So sadly i have never been able to get any tests done to know what it cud be. Somedays i will have it for the entire day and then the next day it will be back again. I never know when it will happen but it is very painful. It gets so sensitive that i cant even touch the outside of my ear and i have hurt the heck out of my self trying to rub compact on the cheek on that side. Me it is always in my right ear. I have also now for years had such a sensitive ear that if i get wind in that ear i will end up in pain, but seems alot worse now. Wanted to know if u got any news McFibro from ur doc. Wud love to have something that i cud talk to my doc about that wud maybe get him to check for me. Thanks :)

Kimmers66
Regular Member


Date Joined Jul 2013
Total Posts : 20
   Posted 8/5/2013 12:58 AM (GMT -6)   
I experienced ear pain for 2 months, dr put me on 2 rounds of antibiotics and then realized it was TMJ not a ear infection after all. I do believe one of the symptoms of FB is TMJ
Aubree's Grandma!

love being a Grandma helps me through all this pain....


DX with Hashimotos in 1997
DX with Fibromyalgia in 2012

nigela
New Member


Date Joined Sep 2013
Total Posts : 2
   Posted 9/16/2013 4:47 AM (GMT -6)   
Hi I have had pain in ear for 8 months now. had fluid seen behind drum. itchy at first. finally given antibiotics but the stinging pain remains 2 months after had course. occ pain in other ear too. On anti fungal ear drops now. Get sore throat one side only that comes and goes. However had fibro symptoms for years. Now a bad sacro iliac joint problem causing pain.The stinging pain in ear is so bad when i have laid on it in bed-the longer i have the worse it is. anyone else get throat and ear pain with fibro?
Nigela

debsoap
Regular Member


Date Joined May 2013
Total Posts : 65
   Posted 9/16/2013 10:16 AM (GMT -6)   
CathyA I agree with you! I have been told I am perimenopausal and I have has all kinds if weird head things. Seeing lights and ears full of pressure making sounds amplified and some shooting pains in ears. It's acting up again this morning annis usually worse in mornings. Sinuses don't seems I be too clogged but might be deeper :( neck and shoulders hurt and are tight!
I hope you get some answers McFibro!
Take Hematogen for anemia and vitamin D defficient. Aleve when I absolutely have to and Flexeril.
IBS .... Back pain and neck pain.
Dacree

IAmFreedom!
New Member


Date Joined Mar 2013
Total Posts : 5
   Posted 9/16/2013 1:43 PM (GMT -6)   
Hi, I have been having ear pain as well, for about 6 months now. Stabbing 'ice-pick' type pain to left ear. Comes and goes without any sort of warning. Bad enough to make you drop your coffee cup and grab the side of your head. But when it's gone, 2 sec later, it's like it was never there in the first place. Doc looked at ear the other day and said it looks beautiful and healthy. Pfft! That helps. Then said to me: It's probably just the nerve pain. JUST? JUST NERVE PAIN? ya thanks. He put me on Lyrica that day...even tho I react oppositely to almost all meds and have been on none for the fibro for over a year now. Today is day 4. I haven't taken my meds yet today, waiting on a call back from doc's office. I am having reactions to it ALTHOUGH it has been three days without the stabbing pains in my body...BUT i do feel like someone ran me over a few times, threw me down a cliff and then stomped on me for a while. I hurt in places I never even knew I had. I'm not sure this is working for me lol. sad

nigela
New Member


Date Joined Sep 2013
Total Posts : 2
   Posted 9/16/2013 2:42 PM (GMT -6)   
Hi I have had pain in ear for 8 months now. had fluid seen behind drum. itchy at first. finally given antibiotics but the stinging pain remains 2 months after had course. occ pain in other ear too. On anti fungal ear drops now. Get sore throat one side only that comes and goes. However had fibro symptoms for years. Now a bad sacro iliac joint problem causing pain.The stinging pain in ear is so bad when i have laid on it in bed-the longer i have the worse it is. anyone else get throat and ear pain with fibro?
Nigela
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