Botox injections

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Tonya1215
New Member


Date Joined Nov 2011
Total Posts : 6
   Posted 11/2/2011 3:03 PM (GMT -7)   
Hello my name is Tonya!! I have been reading this site for sometime but never replied or posted. My story in short is I have been diagnosed with Fibro for about 7 years had it for 9 years. I have Chronic migraines and headaches as well that go along with it. I have pain all over but my main pain is right side of neck, and right arm, in pain every second of the day. While for the most part I am very lucky that it rarely puts me bedridden I still live in pain all the time. The only thing that keeps me from being bedridden is major excerise.
My question is I have been through many meds trying to control my migraines and the newest thing that is the next step is botox and I have been told and read that it also helps with the Fibro part of it as well. I would like to know if anyone has had this experience.
Thanks
Tonya

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 35356
   Posted 11/3/2011 8:54 AM (GMT -7)   
Hi Tonya,

I basically wanted to welcome you to the forum. I don't have any experience with botox. But somebody here might have. I hope that you get the answers that you are searching for. Best wishes to you...

If you get a chance, we have a thread called "fibro 101" It is the second thread on the forum. Please feel free to read there, there is some wonderful information.

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Ang92
New Member


Date Joined Oct 2011
Total Posts : 12
   Posted 11/4/2011 6:44 AM (GMT -7)   
Welcome Tonya, I also don't have any exp or knowledge of Botox and Fibro. But, I certainly have exp with constant pain on left side of my neck. When it gets unbearable, I will get a Hot Stone Massage which helps to lessen the pain to a comfortable degree.

A family member sent me an article a few days ago on fibro and Chiropractic use. I haven't read the article in its entirety, and chances are I will also not use this method. At this point in my life, fibro has made me even more afraid of trying anything that may be associated with more pain or problems.

Hopefully someone comes along who's had exp with botox. Meanwhile, if you use this method, please share your exp........

Andrea11
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 11/4/2011 6:54 AM (GMT -7)   
Interestingly, I was interested in Botox for other reasons and wondering if it would make my fibro worse. Looking forward to the responses - thanks for posting! Also, if you get Botox to treat your headaches/fibro, where is it injected??

Trinity Moon
New Member


Date Joined Nov 2011
Total Posts : 3
   Posted 11/4/2011 2:29 PM (GMT -7)   
Aloha Tonya,

I have been on botox injections for my migraines for the last 7 months. I would like to say that it has helped me with no side effects. The injections are given once every 3 months. At first the effects lasted only 6 weeks before I was back taking other pain relievers both prescription and over the counter. The second series lasted 8 weeks and I just received by third series. I have 2 types of migraines: hormonal (with cycle) and regular 2-3 per week type, which is not as bad as the hormonal one. The botox works with the regular migraines, but I have been prescribed Sumatriptan nasal spray for the bad one (haven't tried this one yet).

The botox is injected on my forehead, temporal areas, above my eyebrows, between my eyebrows, behind my neck from base to shoulder, and different areas of my scalp.

So the benefit of the botox is less severe almost daily migraines and no wrinkles... yeah, I can do this. I hope this helps...

Andrea11
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 11/4/2011 4:57 PM (GMT -7)   
Thanks for the great info. Is this covered by insurance and who does the injections - your neurologist??

Trinity Moon
New Member


Date Joined Nov 2011
Total Posts : 3
   Posted 11/5/2011 1:56 AM (GMT -7)   
Because it is FDA approved for migraines it is covered by my insurance plan. And yes, my neurologist does the injections.

Andrea11
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 11/6/2011 6:11 AM (GMT -7)   
Nice!! I imagine you had to exhaust all other options for migraines to get him to try the Botox on you, though, right? I am somewhat adverse to using medications so I wish I could find one that would just go straight to the Botox. I had my pain management dr. go straight to injections (which didn't work) in my neck because of this..

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 11/6/2011 11:13 PM (GMT -7)   
My doctor asked if I would be interested in trying botox injections for fibro pain. I have areas where the pain is more severe all of the time but it also is a large area...neck, shoulders, shoulder blades... I declined the treatment but kept it in the back of my mind. Who knows...

Here's a bit I found on how botox works.
Chutz


How does Botox work?
Botox works to relax the contraction of muscles by blocking nerve impulses. The result is muscles that can no longer contract, and so the wrinkles relax and soften. It usually takes two to four days to see cosmetic improvement and the effects tend to last from four to six months. Most patients require retreatment to remove wrinkles and lines as they begin to reappear, but after each injection the wrinkles return as less severe as the muscles are trained to relax
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Fibromyalgia, IDDM. UC, , Osteoarthritis slowly meandering around everywhere
~~~~~
The most exciting phrase to hear in science, the one that heralds the most discoveries, is not "Eureka!" (I found it!) but "That's funny..." ~Isaac Asimov

Tonya1215
New Member


Date Joined Nov 2011
Total Posts : 6
   Posted 11/7/2011 11:55 PM (GMT -7)   
sorry haven't replied sooner. Yes as pp said it is covered for the migraines but not cosmetically. I think my doc said it has only been covered from insurance for under 2 years and people were paying out of pocket before that point but it has been used for migraine purposes for a LONG time. Yes it is through my neurologist and we have exhausted a lot of medications to get to this point but I don't see if brought up why a doctor might not try this first or early on. I know my pain points of injection will be neck, a few different places on back of head and a few towards front. She said it will be close enough to forehead that you will no longer see those lines, however I am secretly hoping they get close enough to these crowfeet LOL. I am going to be setting it up soon to get it started and I will let people know but I am sure it will take a few times before major improvement happens. The injections will happen every 3 months and the dosage is smaller then that of people that get it done cosmetically.

luv2ride
Regular Member


Date Joined Jul 2010
Total Posts : 460
   Posted 10/6/2014 7:42 PM (GMT -7)   
I know it's 3 years later from when this was posted, but I'm wondering if the botox helped or not. I just had my first set of shots 3 weeks ago and it's been hell. I also have FMS but developed major headaches almost 3 years ago after being rear ended (car accident). Then 1.5 years ago I was rear ended again which made the headaches so much worse. I've tried chiropractic, decompression, massage, PT, acupuncture, dry needling, and pain meds. Nothing has had lasting pain relief. I did topomax but it only lessened it a bit but my dr kept doubling the dose so I eventually fired him as I was so drugged it was hard to function.

Anyway, my main complaint with the botox injections (head, neck, upper back), is the horrific pain and stiffness in my neck and upper back. My neck is so weak now that I cannot lean over. The headaches got worse the day after the botox and lasted more than 2 weeks. Now they are not gone but are less severe. These are different headaches than before. Nothing relieves them. I will not be doing the botox again since I cannot stand the pain in my neck and upper back anymore... The injections were into my upper back and neck trigger points... occipital areas, forehead, behind ears, and TMJ area.

Hoping someone out there has had good luck with them. Let me know! My dr wants me to try 3 rounds before giving up on botox.

CountingMySpoons
Regular Member


Date Joined Sep 2014
Total Posts : 76
   Posted 10/7/2014 9:51 AM (GMT -7)   
Interesting that this came up. A friend was wondering the same thing so I did a little research (and have a post about it planned for my blog soon). Reading through the medical literature, the studies that have been done regarding botox for myofascial pain (beyond headaches) are few, and overall not very optimistic. However, the biggest issue with all of the studies is that the sample size is really too small to get a good result. Out of 5 published studies in one review only 1 showed that botox helped myofascial pain any more than a saline injection. That said, based on what I've read I'd give it a try if I had a doctor willing to do it and it would be covered by insurance.

There are many types of trigger point injections, the most common are lidocaine and steroids, saline is also used, as is botox. The general gist of the research is that lidocaine seems to be the most effective (based on studies), but again research is slim and most often not well designed.
Julie,
Check out my blog: Counting My Spoons - Living well despite chronic illness.

Fibromyalgia, Migraines, Cluster Headaches, Endometriosis, Hypothyroid

Loring
Regular Member


Date Joined Jul 2014
Total Posts : 195
   Posted 10/7/2014 11:55 AM (GMT -7)   
I was going to do botox injections by a Neurologist at a Pain Management Department in a Hospital. It came abruptly to a halt. They decided that I needed long term physiotherapy. I did begin Physiotherapy at the Hospital but they could not provide it for a long term. I am in Canada. Many treatments in Hospitals are covered by our Health Care system. Botox was not covered. I was checking with my coverage through work insurance to see if they would pay but it didn't happen. The Neurologist also said it was not a long term solution. Another Doctor pointed out - there is no long term solution.

One of the ladies that attended Physiotherapy in their heated pool was getting botox and was having success. The lady had such bad migraines - she said she would drink Drano if it stopped her headaches. Not funny, just sad.

I did not get botox but I am getting nerve blocks. It would be like lidocaine. I cannot stop the head pain. I, too, was rear ended and injured now in August - another car accident. I have a caring Headache Doctor who does the nerve blocks. They are covered by our Heath Care system.

Loring


Osteoarthritis in Multiple Joints, Fibromyalgia, Neuralgia, Chronic Daily Headaches, I.B., Hard of Hearing...

luv2ride
Regular Member


Date Joined Jul 2010
Total Posts : 460
   Posted 10/7/2014 12:14 PM (GMT -7)   
Hi Loring,

How are the occipital nerve blocks working for you? I tried those initially and they worked great for me, but only lasted 5 hours at the longest. They were supposed to last a couple of weeks. The days that I got them, when the nurse found the perfect spot to inject, I managed to get so much done for the next few hours... it was wonderful. Wish they were a long term solution.

I don't think you missed much with the botox. I had to pay out of pocket for the meds this time - cost $1200. When you're desperate for relief, you will do anything. Used my credit card.

Wish the whole neck issue would fix. Wondering now about possible surgery... will not have a fusion but maybe have bulging discs shaved down or stenosis area opened up more. I think my nerve blocks were marcaine and saline.
Female
Fibromyalgia, ulcerative colitis, endometriosis, IBS, auto-immune thyroiditis, surgical menopause
Armour Thyroid, Lialda, Cymbalta, Prometrium, Estradiol, Testosterone, Cyclobenzaprine, Tramadol
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, November 20, 2014 2:46 PM (GMT -7)
There are a total of 2,273,520 posts in 252,753 threads.
View Active Threads


Who's Online
This forum has 158550 registered members. Please welcome our newest member, alibaba33.
409 Guest(s), 21 Registered Member(s) are currently online.  Details
tiffteacup, GreyBlazer, garylouisville, Utahgal, gedman, Travling_guy, IHL, Tudpock18, turtlepower, alibaba33, fruitgirl, Charlie3, Traveler, Poppie, Miss spice bomb, Kurrykid, mjw11, Melaine, dpiddy, huckleberryrapscallion, Shaba.Doug


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer