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fibro ?
Regular Member


Date Joined Nov 2009
Total Posts : 76
   Posted 1/20/2012 3:18 PM (GMT -6)   
I was looking through the fibro 101 link, not to make light of things, but some of those symptoms can be linked to specific diseases, sub normal temp may be a thyroid problem,, along with teh fatigue,

numb feeling, non dermatonal, this may be a neuropathy, it might be a motor nerve neuropathy, or a small fiber neuropathy, when we complain about things hurting I our skin, or dropping things, one mentioned having to wait for toast to cool before taking it out of the toaster,, these are signs of a neuropathy,, in that case, small fiber, these are the nerves that give us the touch sensation,, wether something is hot or cold,

itching may be a systemic thing, a lot of disease;s manifest themselvs with rashes,

I really dont think I have fibro, but have some other things going on that slowly destroying my bodys nervous system,, I have been crying most of the day after trying to remove some floor tile,, I have to wear gloves because my hands are numb and burn, and when i took my glove off, my right hand was cut to shreds and rthe glove was full of blood,, I didnt feel a thing, so that set off a crying spell,,

I have mentioned before, that I have seen what were supposed to be the best neuros in Pittsbugh, Dr Lacomis told me that I had fibro, this after being in the hosiptal for two days and extensive testing, but then said it was small fiber neuropathy,, do not just accept that things are all fibro, my current neuro says it doesnt even exist,, so who are you to believe, and were stuck in teh middle while they play semantics,, when my journey started in 2007, i was labeled crazy, then yes he has a problem to back to being crazy, so while they messed around,, I had to stop driving, had to go on SSDI,, now its just me,, my 2 dogs,, and 4 walls, and alot of crying over what I have lost, ,, we cant go out to eat anymore, I gag on anything I eat,, the pseudoma infection has never cleared, along with the MRSA, and all the so caled specilist in pittsburgh just hand out more antibiotics,,

I got off topic,, but just beware, dont let things get out of control like I have, but I dont blame all this on my self, I begged for help, but got the door shut in my face, I dont htink i;m going to die,, but every day feels like it,, and for that, I blame only them,

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 33644
   Posted 1/20/2012 3:53 PM (GMT -6)   
Hi Fibro?,

Fibromyalgia has a lot of the same symptoms as a lot of other illnesses. And it is good to check the symptoms out and make sure. I am so sorry for the neuropathy. That must be hard to deal with. You may have fibro plus other things, or you may not have fibromyalgia at all. But like you said, it isn't going to kill you. But it can be a life long term of pain and fatigue.

It is hard when you think of the things that you can't do anymore. It makes you depressed. Make sure that you are suffering depression that is going untreated. I am glad that you have dogs. They are fantastic companions.

In the meantime, try to take life one day at a time and live in the moment. It is easier said than done, but comes with practice.

Are you able to take short walks? It does the mind and body so much good. Even if it is only five minutes.

Have you thought about volunteering somewhere maybe one day a week? Something easy? It would get you out of the house.

Do keep posting. Whether you have fibro or not, we are here for you.

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 14977
   Posted 1/20/2012 4:01 PM (GMT -6)   
We always say that the symptoms of fibro are like that of other illnesses and those have to be ruled out first.  Mistakes can be made but most of us are diagnosed correctly.  If there is something that really bothers you, you should always get it checked out.  Not everything is fibro, and this is mentioned a lot on this forum.  Did you get to the link called What Else Could It Be in Fibro 101?  If not, here it is.
 
 
I'm glad you got to the bottom of what was causing your problems.  Hopefully you will be on the mend soon.
 
By the way, I healed my dog of four different bacteria, including staph and MRSA by using probiotics.  You might ask about that.
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

sawa
Regular Member


Date Joined Jan 2011
Total Posts : 274
   Posted 1/21/2012 1:37 PM (GMT -6)   
Sherrine, You know I wondered about probiotics healing staph and MRSA. I have some extended family members who have had repeated infections of that nature. I am a big advocate of probiotics but I never mentioned that to them. I can tell from experience that not taking my probiotics faithfully this winter season has not been good because last year I never had one cold and took probiotics every day and the past 60 days I haven't took any and I have had three colds that turned into sinus infections and my dr wants me to see an ear,nose and throat doctor. I am gonna get some more probiotics and try that first. I have been preaching to my mother for a year the importance of probiotics and then when I ran out I haven't bought more. Shame on me. "Immunity starts in the colon".
There is nothing you can't do if you set your mind to it.

fibro ?
Regular Member


Date Joined Nov 2009
Total Posts : 76
   Posted 1/22/2012 6:05 PM (GMT -6)   
Its just hard getting Doctors to listen to you, and I have been through many,, I think my rheummy was right, sereonegative Sjogrens, with CNS involvement
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