What does your fibro pain feel like?

New Topic Post Reply Printable Version
35 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

kimliz59
Regular Member


Date Joined Feb 2012
Total Posts : 298
   Posted 3/13/2012 11:31 PM (GMT -6)   
I'm still in the process of trying to figure out if fibro is what I'm dealing with...
 
My pain is mostly burning, and occurs on my cheeks, the back of my neck, across my shoulders and upper back, as well as on my buttocks and down the backs of my legs. Generally my most painful spot is my armpits and right around where my bra goes.
 
Occasionally I have random pains--sometimes in my lower abdomen, and sometimes over my hipbones...it can happen almost anywhere on my body.  Almost all of my pain feels like a combination of a bad sunburn and a pulled muscle, but the random pains can be more "zappy" sometimes.
 
Is everyone's worst pain in the morning?  Sometimes mine will be really bad in the early morning, but then it gets better in the middle part of the day, only to return in early evening.  Sometimes I go days where the pain is barely there...even three or four days sometimes, and then it's back with a vengence.
 
Does this sound like anyone else's pain?  I just don't know if I'm looking in the right direction thinking I might have fibro, but I can't find anything else that comes close to my symptoms.
 
I would love to hear anyone's description of their fibro pain, just to get an idea if I'm looking in the right direction.  Thanks to anyone who takes the time to reply!

Life is not about waiting for the storm to pass; it's about learning to dance in the rain.

Possible Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease

zeebraaM
New Member


Date Joined Mar 2012
Total Posts : 11
   Posted 3/14/2012 12:24 AM (GMT -6)   
I was diagnosed with fibro about 2 years ago. I feel the way you described, like a hot burning feeling in certain places. Mostly in my shoulders and lower back. However, I do have achey bones and joints. Also my pain gets worse at night. I also was diagnosed with vitamin D deficiency so when and if you go to the Dr to get a diagnosis make sure they do bloodwork for your vitamin D!

kimliz59
Regular Member


Date Joined Feb 2012
Total Posts : 298
   Posted 3/14/2012 12:30 AM (GMT -6)   
Thanks for sharing your symptoms, zeebraaM...I appreciate it!  I have rheumatoid arthritis, so joint pain is normal for me, making it hard to sort out if I'm having it from another cause.
 
Thanks for the recommendation on Vitamin D--I do already take 1000 mg. per day.  I also take magnesium and fish oil.
 
Thanks again for responding!
Life is not about waiting for the storm to pass; it's about learning to dance in the rain.

Possible Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease

zeebraaM
New Member


Date Joined Mar 2012
Total Posts : 11
   Posted 3/14/2012 12:45 AM (GMT -6)   
Did you have your thyroid checked? I was diagnosed with that too, but only because i had a huge flare up and it made my thyroid stop working i guess, then it went back to normal after a year of medication. Hypothyroidism has similar symptoms to fibro, and can sometimes be linked.

What does the magnesium and fish oil do?

BarbF
Regular Member


Date Joined Oct 2010
Total Posts : 27
   Posted 3/14/2012 12:54 AM (GMT -6)   
I have a lot of pain in my feet, legs and hands. I do get headaches when my shoulders and neck decide to join the party of pain - but this may be more due to the surgeries Ive had to repair the spine in that area (due to a major car accident).

I have also heard that fibro pain is like having a sharp, ongoing pain deep in the bone. I must say that I agree fully with that statement!

ak angel
Veteran Member


Date Joined Apr 2011
Total Posts : 3025
   Posted 3/14/2012 3:21 AM (GMT -6)   
Kimliz59- have you been to a Dr. For a diagnoses yet? Some of your symptoms does sound familiar. I use to wake up feeling like I was 80 years old. It's a lot better since I started taking subutex for pain. I don't wake up hurting anymore. Your pain cycle sounds like mine. I always feel good in the afternoon, then comes evening I get sore in the joints. My skin is very tender to touch, but I don't have burning sensation. You will find out we have all kinds of symptoms from head to toe. Hopefully you wil be able to figure out if it's Fibromalgia or not.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 22057
   Posted 3/14/2012 6:11 AM (GMT -6)   
I get those zappy type pains...sometimes I will be walking thru a store or whatnot and it will zap my calf or thigh, makes me stumble - I hate that! lol But mostly mine is worse in the evenings. It affects mainly my neck, shoulders and back. I get a lot of headaches and sometimes it feels like there is a dagger in my shoulder blade. I sometimes too get that sensitive skin, where it feels like I got a really bad sunburn but only in one spot.

Btw, it took me YEARS to get my diagnosis! But at the end of trying to pursue what was wrong with me, the docs kept insisting that I have Fibro and I kept insisting I don't! lol I just did NOT want another chronic illness. But the rheumy confirmed it.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
Diagnosed Left sided UC in '92 - meds: 6mp, Colazal, Remicade and Bentyl*Unable to tolerate ALL mesalamines*, in '11 diagnosed with IBS, Diverticulosis, Fibromylagia..I also have Sacroiilitis, Scoliosis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry Eye and allergies controlled by Zyrtec and Singular

Artsinthepark
Regular Member


Date Joined Mar 2012
Total Posts : 27
   Posted 3/14/2012 7:31 AM (GMT -6)   
Burning sharp pains all over, touch sensativity on arms and thighs and ankles. Carpul tunnel similar pain in arms and hands. Extreem fatigue with sudden onset. Very sensative to bright light and loud noise. Insomnia or not being able to fall asleep without meds. Restless legs day and night. Emmotional imbalance. IBS, gluten sensativity. Migraine and stress headaches. Allergies.
All this and I work and homescool and am an artist! I know that I can do all things through Jesus who gives me strength!! :)

Artsinthepark
Regular Member


Date Joined Mar 2012
Total Posts : 27
   Posted 3/14/2012 7:36 AM (GMT -6)   
Oh yea I also have a small farm with sheep and goats chickens a dog two cats and gardens both veg and flowers!!! I definately advocate for hobbies and a strong support system!!!

msnova74
Regular Member


Date Joined Nov 2011
Total Posts : 65
   Posted 3/14/2012 9:19 AM (GMT -6)   
I have a strong ache all over and then will get the burning hot pain in different areas. I also get the extreme sudden-onset fatigue. I can be sensitive to noise, and light. Flourescents, and mercury vapor bulbs are the worst.

T
Fibromyalgia, MCTD, CMPS, and many other letters of the alphabet

KayC04201231
Regular Member


Date Joined Oct 2011
Total Posts : 55
   Posted 3/14/2012 11:02 AM (GMT -6)   
You sound exactly like me... Mine is not so much "pain" though as much as annoyance. I will get actual muscle pain and hurt if i exert myself too much. I will then have it for a couple days... Not sure thats Fibro or what. I am having a hard time accepting Fibro as my only issue but they cannot find anything else... Diagnosed about 3 months ago.

I will get the burning skin sensation on my arms legs and cheeks the most. I have a vitamin d deficiency. The have checked, thyroid, B12 (low but not deficient) hormones for menopause, neuropathy, all was fine... Lymes too but not in a way that rules it out completely (I cannot pay $$ for the proper tests yet) and I found this thing called candida that might be causing some of my issues... I failed the spiddle test and have had subbhorrea for awhile, so I find that extremely interesting... Let me know if you find anything out and I will do the same!

kimliz59
Regular Member


Date Joined Feb 2012
Total Posts : 298
   Posted 3/14/2012 2:49 PM (GMT -6)   
 
Thank you so much to all who replied--it is so appreciated.  I'm going to try to answer any questions and comment to all those who replied.
 
zeebraaM, I have had my thyroid checked...I have Grave's Disease (auto-immune over-active thyroid), which has been in remission for over four years, and I get it checked every three months, so I think I can rule that out, but thanks for the suggestion.
 
I take fish oil because of its anti-inflammatory properties, as I have rheumatoid arthritis, and I take magnesium because I'm a type 1 diabetic, and diabetics often have low levels of this mineral.
 
BarbF, I have occasionial migraines, but they're the same headaches I've had for years.  My hands, and to a lesser degree, my feet, feel swollen (but aren't) sometimes, and I get pins-and-needle sensations when that swollen feeling happens.  I don't get that "deep in the bone" feeling generally...I've had it on occasion with the rheumatoid arthritis, but I haven't noticed any increase since all of this other stuff started.
 
ak angel, I did speak to my rheumy about this (I already see one for RA), and she wanted to give me neurontin right away, so I guess she was on-board with fibro as a possibility.  I declined, because in addition to all of these fibro-like symptoms, I'm having swollen lymph nodes (which puzzles her), and I don't want to start taking additional medication when I'm not even sure what my problem is yet.  As a matter of fact, all of this crazy stuff started for me with swollen lymph nodes--I had that and nothing else for two months before the more fibro-like symptoms showed up.
 
My doctors are all puzzled, but my rheumy said that if my nodes are still swollen when I see her next (which is April 12th), she's sending me for a CT scan of my left armpit, which is the worst spot, although the right one isn't far behind.  (I did have a mammogram on both sides, and an ultrasound of my left armpit when this all started, as my GP wanted to rule out breast cancer.  No cancer showed on the mammo, and the ultrasound showed an enlarged lymph node "consistent with infection", but nothing that looked cancerous.)
 
The weird thing is that I never had any other kind of sickness one might expect to have with swollen lymph nodes, and the blood tests for inflammation came back normal--it's the strangest thing, but I'm going on five months of dealing with this, and I want answers!  My rheumy also told me that she'd send me for a lymph node biopsy if the CT scan looks "suspicious".  (Initially I was worried about lymphoma, as I take Enbrel for my RA, and that's a possible side effect, but I don't have any other symptoms of that either, thank God!)  But it's very mystifying and disheartening to not know what is going on, and I know many of the people here have been through that.
 
Red_34, I've had the dagger-in-the-shoulder-blade sensation before, but from my RA, and not really with what I'm dealing with now.  I can sure understand you fighting the diagnosis of another chronic illness, but I'm ready to find out what the heck this is.
 
Artsinthepark, kudos to you for doing all that you do with fibro!  I am a problem solver, but I seem to be stuck in the stage of figuring out what the problem even is!  Once I know, I will educate myself and weigh my options, and then plot a course of action.  You mentioned gluten sensitivity...just before all of this started for me, my husband and I read a book called Wheat Belly...it's by a preventive cardiologist, and he advocates getting off of (especially) wheat, but other grains as well.  The hubby and I decided to try it (the author makes a very compelling case), and it was about ten days into this "diet" that all of my problems started.  I can't see where there'd be a connection, but the timing is odd.
 
I deal with fatigue a lot, too, sometimes the sudden-onset that you describe, but that's been going on for years with the RA, too.  (I'm 52 now, and have had RA since age 26).  As I know many here can attest to, sometimes it's hard to know what to attribute a symptom to when you've got multiple things wrong. 
 
msnova74, I have a somewhat of a sensitivity to light, especially bright headlights, but I don't know as it's any worse than it's been for the last year or so...at my last check-up, my eye doctor told me I have a cataract forming in one eye, and she said it would make me sensitive to light sometimes.  Noise does bother me on occasion, but again, nothing really new...sigh.
 
KayC04201231, my pain runs the gamut...it can be mildly annoying, or it can be very bad.  Exertion does play a part--it's definitely worse after I've been more physically active.  I'm like you in that I just can't figure out what else it can be, but it seems like it's either fibro plus something else, or it's not fibro at all.  My armpits hurt so badly sometimes, and my breasts will burn severely, as will other parts of my body...just so odd.  I hope we both get better answers as time goes by.
 
Well, I thank you one and all for taking the time to share your experiences with this nasty conditon.  I will keep you posted on what I learn as my appointments come and go, and I'm saying a prayer for each one of you!! 

Life is not about waiting for the storm to pass; it's about learning to dance in the rain.

Possible Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease

Klambert1
Regular Member


Date Joined Mar 2010
Total Posts : 291
   Posted 3/14/2012 4:59 PM (GMT -6)   
   I have two kinds of pain..lol. I call it my "everyday background pain" and my "active pain". I have sore muscles, alot of tender spots and around all of my joints hurt. The pain is worse for me in the am and then again in the evening if I have done alot durning the day. Morning stiffness for sure. This is all of my everyday pain.
   Now the active pain is when my fibro starts acting up. I get zapping, shooting, stabbing, sharp and dull pains in random places all over my body. It happens fast, imagine a ball bouncing all over the inside of your body and every place where it touches it causes pain. Sometimes it feels like someone is jamming a screwdriver in my joints and muscles. I can even feel a weblike structure in my muscles, I know that sounds weird but it's hard to explain. I don't know if it's the nerve pathways or connective tissue, who knows.
    I rarely get the burning skin sensation, but I have had it maybe two or three times. If I rub on a certain spot on my skin lightly after a few minutes it starts to hurt somewhat, I guess the nerves are getting irritated. If you grab my arm, or if I run into something...ouch! the pain is amplified and lasts longer than before I had fibro. Sometimes I get restless leg syndrome. I also get this humming or vibrating sensation all over. I know several times at night I thought I felt a slight tremor or light earthquake, only to really realize it's my body.
 
I have also noticed if I overwork a certain muscle, (legs,arms) it will cause pain all over in my muscles. I kinda over did it on the treadmill a week ago. The next am I had pain in every muscle..lol, even the muscles in my fingers were killing me. And the list goes on.
 
Thankfully with me staying home and pacing myself I am not having as many flares. My pain flares are accompanied by a 24 hr virus sick feeling..very yucky. It has literally taken me year to get to where I can pick up and lightly clean around my house without having a flare. I remember sweeping the floor was to much, now I can sweep the floor without problems. I still get flares, but I am learning and my body is finally getting used to my routine. Plus I have 3 ruptured disks in my back, so that causes problems too.
 
Sorry so long, I am in a chatty mood. lol

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 22057
   Posted 3/14/2012 9:41 PM (GMT -6)   
I call it my "everyday background pain" and my "active pain"

Ohhh so very aptly put! lol
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
Diagnosed Left sided UC in '92 - meds: 6mp, Colazal, Remicade and Bentyl*Unable to tolerate ALL mesalamines*, in '11 diagnosed with IBS, Diverticulosis, Fibromylagia..I also have Sacroiilitis, Scoliosis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry Eye and allergies controlled by Zyrtec and Singular

kimliz59
Regular Member


Date Joined Feb 2012
Total Posts : 298
   Posted 3/14/2012 9:48 PM (GMT -6)   
 
Klambert,
 
No worries about the "chatty mood"--I'm grateful for all of the detail, believe me! Your descriptions of your pain were very clear, and that's not always easy information to convey.  Everyone's feedback is helping me to see how much I have in common with people who have been diagnosed, and is very valuable to me.
 
I know exactly what you mean about the night-time vibrations/humming...I live near a highway, and at first I thought maybe it was caused by a semi going by (although I've lived in the same location for ten years, and had never noticed it before), but after awhile I realized it was me!
 
I also get the random pains, but mine don't seem to travel around as quickly as you describe that yours do.  It's just weird how a certain spot can hurt so intensely, and then awhile later, there's no pain there at all.  I also understand what you mean about the heightened sense of pain when you bump yourself on something...it hurts out of all proportion to the impact.
 
For years, I suffered off and on with restless leg syndrome, but I haven't been bothered with it for a couple of years now...I wonder if it will return?  Hopefully not--that can really drive a person crazy!
 
I also know what you mean about pacing yourself.  I'm a "type A" personality who always wants things done now, but having rheumatoid arthritis for over twenty-five years has taught me the benefits of prioritizing and doing things in stages.
 
I also understand completely what you mean by "background pain" vs. "active pain"--very good way to explain it.  I'm glad to hear that you're able to stay home and that it's improved your life--you can't put a price on that.  I've been on Disability for about ten years because of my RA, so I'm able to stay home, too, and it helps a lot.
 
Thanks again for taking the time to share your experiences with me...I really do appreciate it!
 
 
 
 

Life is not about waiting for the storm to pass; it's about learning to dance in the rain.

Possible Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease

angelfeather
Regular Member


Date Joined Mar 2012
Total Posts : 100
   Posted 3/15/2012 3:47 PM (GMT -6)   
Some days I have the "give me morphine or knock me unconscious, I can't stand this anymore" kind of pain; other days it's a little milder, but there is no reprieve, ever. I'm always feeling it - that allover achey-ness that never goes away, and a general feeling of malaise - like it's a really bad case of flu, only it lasts forever. On the really awful days, I get a gnawing pain all over, and a burning, throbbing sensation that doesn't stop. Doing even the smallest household chore leaves me feeling drop-dead exhausted. I can't stand long car rides or being out shopping for anything longer than 10 minutes because I get sooo tired, and sitting at the hairdresser's makes me nauseous with all the chemical and perfumey smells. I can't take being in crowds for very long as I start feeling sick and overly tired. When I attended a chapel service recently held at a residence for children/adults with autism and down's syndrome, the noise level nearly drove me mad and I started to feel ill, and then felt guilty for feeling that way which created more emotional pain. I was a mess when I got home.
Being in a room with strong lighting or loud music for prolonged periods of time assaults my senses and exacerbate my pain - any kind of sensory or auditory overload affects me negatively and I need down time in a quiet, dimly lit room.
Reading anything that requires any kind of sharp concentration is a hopeless exercise, I only end up feeling stupid for not being able to retain any serious information. Trying to do math or anything that requires calculation - forget it! the numbers get jumbled up in my brain and nothing makes sense. I need to make lists for everything, as I can't remember simple things like grocery items.
Rubbing lotion on my super sensitive skin gives me pain. Coming out of the bath and having the cool air hit me gives me almost unbearable pain. When my cat jumps up on me for a cuddle and lands anywhere on my body, I get a bruise that takes forever to heal. Exercising is pure torture, so is attending physiotherapy - but I psych myself up to do it because I know if I don't, I might as well give up on life. Restless leg syndrome drives me crazy at night, however, I've found a way that works for me to alleviate some of the discomfort: I bend my leg from the knee to the back, and grasp my ankle with one hand - then stretch it out. When I've done that with both legs, I can usually get back into bed and sleep thru the rest of the night until I have to get up to use the bathroom. I have irritable bladder so anxiety as well as being outside in the cold fuels it, so I can't be too far away from the bathroom. I am not on disability and I don't work, but living in Canada, I do get a disability tax credit which is small, but better than nothing.

kimliz59
Regular Member


Date Joined Feb 2012
Total Posts : 298
   Posted 3/15/2012 7:46 PM (GMT -6)   
 
Hi, angelfeather~
 
I'm so sorry to hear about all you have to deal with...I've had a chronic pain condition for many many years, too, and it affects one's life in so many ways.  The saying "when you have your health, you have everything" is so true. 
 
Thank you for sharing your fibro story with me.  It's very evident that this disease, like the rheumatoid arthritis I've dealt with for so long, can vary iin severity from person to person, or even from one part of the day to the next in the same person, but it's never good.
 
I wish you the best in your struggle with fibro, and I want you to know you'll be in my thoughts and prayers. 
 
 
 
 

Life is not about waiting for the storm to pass; it's about learning to dance in the rain.

Possible Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease

angelfeather
Regular Member


Date Joined Mar 2012
Total Posts : 100
   Posted 3/16/2012 2:06 PM (GMT -6)   
Thank you very much for your kind words, kimliz59. I so appreciate your thoughts and prayers. I hold everyone here on this forum warmly in my heart and in my prayers as well - travelling this road is made a little bit easier with such wonderfully supportive company along the way, yes? :)

I'm so sorry you are in chronic pain with the RA - I hope and pray for the very best care for you in your difficult journey.

blessings and peace

kimliz59
Regular Member


Date Joined Feb 2012
Total Posts : 298
   Posted 3/16/2012 9:46 PM (GMT -6)   
Angelfeather,
 
You're so right...the heavy burden of pain that we carry is just a bit lighter when it's shared with those who understand!  I appreciate your prayers as well...hopefully we can continue to be here for each other!  :-)
Life is not about waiting for the storm to pass; it's about learning to dance in the rain.

Possible Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease

almost medfree
Veteran Member


Date Joined Jan 2004
Total Posts : 1783
   Posted 3/17/2012 6:51 AM (GMT -6)   
Hi,

My chiropractor told me yesterday that people with fibromyalgia are hypersensitive. Our pain has to do with the central nervous system. I know I am very sensitive even to noises and such.

I believe the weather has a lot to do with my fibro but I also know I have osteoarthritis. Does the weather affect you?

I also know that what I eat affects me. My b/f and I took a mini vacation this week and I ate unhealthy for a few days. Wow, did I suffer for it. I ate glutenous waffles with sugary fruit on top and for lunch one day I ate a small steak...

Good luck to you.
Fibromyalgia, CFS, multiple chemical sensivity, herniated disks, spinal stenosis, osteoarthritis, ADD, sjorgens, sleep apnea, asthma, headaches. The only medication I take is ibuprofen at night to sleep along with my supplements for sleeping. I am on a regiment of different supplements, I eat very nutritiously, and ever since my injury years ago I have been doing prescribed stretches x2 daily.

kimliz59
Regular Member


Date Joined Feb 2012
Total Posts : 298
   Posted 3/17/2012 9:09 AM (GMT -6)   
Hi almost medfree~
 
I, too have heard the "hypersensitive" explanation for fibromyalgia...that the problem lies with the brain's inability to properly process incoming information, interpreting normal signals as pain.  It sure feels real!!  shocked   
 
As far as weather, my RA isn't too affected since I began injecting Enbrel several years ago, but before that, a low-pressure system could leave me incapacitated, as could eating poorly, as you mentioned.  (Especially sugar--that was the indulgence I paid the dearest price for.)
 
As far as what affects my fibromyalgia (and I'm now pretty sure that's what I'm dealing with, although not 100%), the wax and wane of symptoms has been so variable that I'm still in the process of sorting it all out.  So far, the only factors that can guarantee an increase in symptoms are too little sleep and/or too much activity, and of course, neither of those is surprising!
 
I admire the fact that you "get by" on so little medication, with all of the conditions you have.  With my RA, I managed to avoid a biologic agent like Enbrel for many years.  The potential side effects were so daunting..."lymphomas and other cancers, fatal blood disorders, MS, TB..."  The drug comes with a side effects  "fact sheet" the size of a poster, covered front and back with fine print!  I didn't have a choice with insulin for diabetes, as a I'm a type 1, or the medication for the Grave's, but I held out as long as I could with this.
 
But, life as I knew it had ebbed away...the pain of RA is difficult to describe, but when just lying in bed breathing became so painful it left me in tears, the gamble became worth it, just to have a life.  I fought it for years with diet and every other item at my disposal before I gave in. 
 
I intend to do the same with fibro--I want to try the supplements and such first, even though my rheumy instantly wanted me to begin taking gabapentin.  (I thought I might have trouble "convincing" her that fibro might be my problem, but as always, she was there, prescription pad at-the-ready, pen poised!)  In my experience, one can always count on a doctor to diagnose a drug  "deficiency"!!  rolleyes
 
So I'm not new to the game of sleuthing it out on my own to find something non-drug that might help.  I'm so envious of people that have a doctor or other healthcare person in their corner this way.  I live in a rural area and don't have much in the way of choices for doctors, and sadly, they're all pretty much prescription-oriented problem solvers.
 
I thank you for sharing some of your experience and triggers with the fibro, and best of luck to you, too! 
 

Life is not about waiting for the storm to pass; it's about learning to dance in the rain.

Possible Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease

Post Edited (kimliz59) : 3/17/2012 8:15:10 AM (GMT-6)


Spookiesmom
Regular Member


Date Joined Jan 2012
Total Posts : 364
   Posted 3/17/2012 9:47 PM (GMT -6)   
I'm late to this post, but I've been late all day. The background pain (noise) is constant. Just a low grade, always there, always something that hurts kind of thing. A lingering case of a bad flu is another way to put it.

Noise, crowds, places like the mall, or WalMart, nope. Can't do it. I watch TV with the sound off, closed caption on. I once blew my car speakers out I had it up so loud. No more radio in car.

If there is a barometric change, I'm in big trouble. Everything starts to hurt more. I'm fortunate that I have laminate floors in my house, there is no way I could push a vacume sweeper around. I have a Swiffer sweeper, gets the sand up nicely. Spookie doesn't shed. I've learned to live with dirty windows, not even going to try to wash them, I know what would happen.

Flexeril keeps my feet quiet at night, so I can sleep. But we are all different, in our symptoms, and what works for us. Your Milage May Vary.
T2, OmniPod,Fibro,MVP,CAD,4 level cervical fusion, L5_S1 needs fusion, arthritis all over, need 2 knee replacements, Vit D3, and a lot of other meds!

kimliz59
Regular Member


Date Joined Feb 2012
Total Posts : 298
   Posted 3/18/2012 4:13 PM (GMT -6)   
 
Spookiesmom,
 
I laughed out loud at "your mileage may vary"...cracked me up!! turn
 
Thanks for sharing some of your fibro story with me.  I don't seem to have as much of the noise intolerance issue as you describe, but I do have it to a degree.
 
I take Flexeril, too, as my rheumy prescribed it years ago for the RA in my neck, but of course it will work all over.  I was only taking it every other night or so, as I didn't want to count on it to sleep, but the "bargain" I made with my rheumy last time I went (because I didn't want to start the gabapentin she recommended until I knew for sure what I was dealing with) was that I'd take the Flexeril every night, and I did for a bit, but I've kind of gone back to the every other night routine.
 
Once I get the CT scans for my swollen lymph nodes, and I see if my rheumy wants to go forward with a lymph node biopsy, then I'll  consider further medications, but I think it's foolish to begin taking a new medication when I'm not even sure what the problem is--if I get a new symptom, then I won't know if it's from the new medication, or a new development from whatever my body is dealing with.
 
Tell me about Spookie--dog or cat?  I have cats, and although I love all four-footed things, I seem to be a magnet for cats without a home!
 
Well, thanks again for sharing some of your experiences with fibro, and best of luck dealing with this demoralizing illness.
Life is not about waiting for the storm to pass; it's about learning to dance in the rain.

Possible Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease, GAD, panic attacks

Post Edited (kimliz59) : 3/18/2012 11:17:21 PM (GMT-6)


angelfeather
Regular Member


Date Joined Mar 2012
Total Posts : 100
   Posted 3/18/2012 4:41 PM (GMT -6)   
Spookiesmom, I had a good chuckle at your posting "your mileage may vary" also :) First smile of the day, so thanks for that :)

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 700
   Posted 3/18/2012 11:30 PM (GMT -6)   
Hello, Kim,
I'm Monica, sorry for the late response, but I just wanted to tell you how my fibro feels, I honestly do believe that we all experience different fibro symptoms. For me, now that my doctor pretty much has my med's down, if I am not in a flare, and my body is not trying to fight off any cold, or infection, they I am pretty lucky, in the morning, I'm stiff and sore like so many here are, but after I get up and move around, I am feeling pretty much ok. But if I over do it, like stand too long, or walk too much then I do get pain that radiates down my lower back and to my hind side. If I put a patch on like a over the counter type then it helps me. My shoulders and neck give me problems like crazy when I flare, my knees, toes and fingers also feel sore, burn and just hurt when its flare time.

It's never fun but I always try to tell myself when I am feeling bad, there are so many so much worse off than me.


Monica
New Topic Post Reply Printable Version
35 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Wednesday, October 22, 2014 4:34 AM (GMT -6)
There are a total of 2,248,150 posts in 250,088 threads.
View Active Threads


Who's Online
This forum has 157388 registered members. Please welcome our newest member, Bells.
259 Guest(s), 4 Registered Member(s) are currently online.  Details
GOP, Candybia, Nova Scotia, xy123


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer