From Fatigue to Fantastic...yeah, right

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MT Lady
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Date Joined Jul 2008
Total Posts : 946
   Posted 5/6/2012 4:50 PM (GMT -6)   
CONSUMER alert!!
Jacob Teitelbaum gets FDA warning letter.

The FDA has ordered Jacob Teitelbaum, M.D., doing business as From Fatigued to Fantastic, LLC, to stop making illegal therapeutic claims for Corvalen (D-Ribose), Coenzyme Q10, Jigsaw Magnesium w/ SRT, "BMR Complex (Thyroid Glandular), Energy Revitalization System, Acetyl-L-Carnitine, Chol-less, Thymic Protein, Alpha Lipoic acid, Black Co...hosh, and Eskimo 3 Fish Oil. http://www.casewatch.org/fdawarning/prod/2012/teitelbaum.shtml Teitelbaum is medical director of Chronicity (formerly named Fibromyalgia and Fatigue Centers) which operates 13 clinics in the United States. Last year the FDA warned Chronicity to stop making illegal claims for Chol-less and several other products. http://www.casewatch.org/fdawarning/prod/2011/chronicity.shtmlSee More

Sherrine
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Date Joined Apr 2005
Total Posts : 15418
   Posted 5/7/2012 7:34 AM (GMT -6)   
Miriam, thanks for this!  This is the problems with some things.  They claim "cures" and there are none.  But there is a place for herbal medications.  I use one for pain and it really does help me BUT I still have to take ibuprofen, too.  My pain is such, from a rheumatic disease, that the herbal can't handle it alone and neither can the ibuprofen.  But both together do help me.
 
Things like the CoQ10 really help...but mainly for your heart.  CoQ10 is in  your body naturally but you can be deficient in it for various reasons.  My doctor suggested that I take this and I am.  But it is suggested that it can help against cancer, too, but that's not why I'm taking it.  I would never use this as an alternative to prescription medication to heal myself!  Therein lies the problem with the FDA. 
 
Teitelbaum makes it sound like these herbs and supplements work just as well, and even better, than medications your MD would give.  Unfortunately, many are gullible and do whatever he says to do.  It is sooo important to do your own research, talk to your own doctor, etc. before taking anything.  I do take vitamins and supplements and have asked my doctor first before taking them.  There are some good supplements out there that do help.
 
The FDA is throwing the baby out with the bath water, too.  LOL  Most supplements, if taken in moderation, do not hurt you and can help you some but some of the medications that the FDA gives a green light to can kill you!  My rheumy has one he wants me to take and one side effect is "infections that can be fatal".  Gee, I really, really want to take that one!  Even my Internist agrees with me and said he understands my concerns.  So, again, do your own research!
 
Again, I'm glad you posted this.  It's about time some of these things are taken down a notch or two.  There are NO CURES for fibromyalgia.  Period.  If you are cured using a product, you didn't have fibro to begin with!  Researchers don't know what causes this illness so no cures have been developed because they don't know what things to target in our bodies.  I know.  I sound like a broken record!  LOL
 
Sherrine 

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

vestabula
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Date Joined Nov 2008
Total Posts : 2786
   Posted 5/7/2012 10:49 AM (GMT -6)   
Hi Miriam...I did some research on Teitelbaum some months ago for a fibro friend who was going to his so called office.  I believe she had her initial 'consultation' and she left with over $800 of over priced supplements and the promise she would be 'cured'.  A few months later she felt worse...he then 'tested' her and said she had parasites, 'possible' Lupus and Epstein Barr.  Another giant load of supplements.  THEN he informed her that fibro' is a complicated disorder and it could take years for her to start feeling better and wanted to make another expensive adjustment to all the supplements.  That's when I did some researching on my own and found pages of complaints by patients who had been duped. 
 
I'm glad the FDA is stepping in...too many people have been given false hope!
 
Huggies
Donna

Acheybody
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Date Joined Nov 2008
Total Posts : 5614
   Posted 5/7/2012 12:35 PM (GMT -6)   
Eskimo Fish Oil? I've never heard of an Eskimo fish....
Moderator, Fibromyalgia Forum

Fibromyalgia, herniated disc L4-5, (with recent surgery), bulging disc L5-S1, other assorted spinal deterioration, scoliosis, Hashimoto's Thyroiditis, IBS, migraines, tachycardia, hearing loss (probably Menieres)

MT Lady
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Date Joined Jul 2008
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   Posted 5/7/2012 12:49 PM (GMT -6)   
I was one of those that bought his book "From Fatigue to Fantastic" and followed his program, buying so many of his supplements and I cannot say it helped. Maybe I felt somewhat better but was that a placebo effect?

Sherrine, I took am very much in favor of a holistic approach to health, combined with western medicine. I take quite a few supplements including CoQ10 which by the way, was recommended by my cardiologist and I take it combined with some heart meds.

Currently, one of my beloved Golden Retrievers was diagnosed with hemangiosarcoma, a very aggressive form of cancer of the blood vessels. They are such a stoic breed...showed NO signs of illness until the mass on his spleen ruptured, then he required emergent surgery. The oncologist estimates 3 to 5 months and his chemo plan was simply too aggressive for our liking and would only buy him, at most, two months. So we have decided to try to give him the best quality of life we can, for as long as he is with us. We are now working with a holistic vet and have him on a Chinese herbal treatment which will support his immune system and "might" even extend his life. There is a holistic vet, Dr. Steve Marsden, doing research now with this plan and has a Golden with Benji's cancer that is on the herbs and one year out, NO chemo. I am hopeful.

Miriam
Fibromyalgia, Osteoarthritis, scoliosis, DDD L1/L2, L3/L4, L5/S1, sciatica, severe spinal stenosis L5/S1, severe facet joint pain syndrome, hypothyroidism.

Sherrine
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Date Joined Apr 2005
Total Posts : 15418
   Posted 5/7/2012 1:12 PM (GMT -6)   
I know you use supplements and I know what you have gone through getting off a ton of medications, too!  Good for you!  We share this information here, too, but, unlike Teitelbaum, we are not saying it's a cure!  LOL  Some helps some of us and doesn't help others.  But, no, there is no cure.  He has been racking in the money like crazy!
 
Remember when my dog Sabra was so sick with skin infections....staph, pseudomonis, MRSA, etc?  All the antibiotics didn't work and the bacteria built up a resistance to them.  I turned to probiotics, and it cleared her right up!  So, I do agree with you and I hope what you are doing for your dog gives them a longer and more comfortable time to be with you. 
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

applevenus
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Date Joined Aug 2011
Total Posts : 934
   Posted 5/7/2012 10:06 PM (GMT -6)   
I hope Reese's Peanut Butter Cups cure Fibromyalgia. I'm testing it tonight.
46F, Fibromyalgia, Vitamin D deficiency, Sleep Apnea/CPAP therapy, allergies/multiple chemical sensitivities, possible Chronic Fatigue & occasional IBS symptoms.

I take vitamins, Tramadol for pain, Flexeril as needed.

MT Lady
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Date Joined Jul 2008
Total Posts : 946
   Posted 5/7/2012 10:10 PM (GMT -6)   
Thanks Sherrine. All we can do is try. Benji is a rescue, we adopted him four years ago. He'll be 11 in a few months, August. He's been a wonderful companion and loving, loyal friend. Unconditional love, that is what we get from our dogs. He deserves whatever we can afford to do for him but most importantly, we will make sure he will not suffer.
be well
Miriam xoxoxo
Fibromyalgia, Osteoarthritis, scoliosis, DDD L1/L2, L3/L4, L5/S1, sciatica, severe spinal stenosis L5/S1, severe facet joint pain syndrome, hypothyroidism.

*Jaden
Regular Member


Date Joined Dec 2011
Total Posts : 275
   Posted 5/8/2012 7:48 PM (GMT -6)   
applevenus, how'd that work out for ya? :) If hot chocolate and dark chocolate were a cure, Id definitely be fixed!

MT Lady, we had a black lab named George (I know, so very imaginative lol) My dad found him on a site (used to work as head electrician building prisons, department stores, etc) and brought him home in 98; he was 2. He died last year. He had a lot of trouble with his hips and shoulders toward the last few years of his life, and my dad did everything he could to try to ease his pain. George was never an indoor dog (we live in the sticks) but during the winter dad would bring him in to sleep by the fire; he bought the all-natural/homeopathic joint care supplements, too. They seemed to help, but even at the end it was too advanced; dad thinks he might have had cancer as well. Ugh, and here I am tearing up just thinking about him! He was a good dog, and we miss him a lot.
Fibromyalgia, IBS, Lactose Intolerance, Fructose Intolerance, Migraine
Bursitis, Plantar Fasciitis, Achilles TendonitisVitamin D & B12 deficiency
Anxiety/Panic attacks
Dicyclomine, Vitamin D/B12, Calcium, Digestive Advantage
Clonazepam and ibuprofen as needed

applevenus
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Date Joined Aug 2011
Total Posts : 934
   Posted 5/8/2012 10:41 PM (GMT -6)   
Reese's didn't cure it. I am shocked. I'm suing!
46F, Fibromyalgia, Vitamin D deficiency, Sleep Apnea/CPAP therapy, allergies/multiple chemical sensitivities, possible Chronic Fatigue & occasional IBS symptoms.

I take vitamins, Tramadol for pain, Flexeril as needed.

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5614
   Posted 5/9/2012 12:56 AM (GMT -6)   
Maybe you just didn't follow directions well enough, Applevenus. They're in really small print! :) I think you need to eat 5 every 8 hours, with a full glass of water, at least 2 hours after a meal.

Reese's Peanut Butter cups are not for everyone. Tell your doctor if you experience euphoria, a sugar rush, or loss of appetite. These may indicate a serious condition.
Moderator, Fibromyalgia Forum

Fibromyalgia, herniated disc L4-5, (with recent surgery), bulging disc L5-S1, other assorted spinal deterioration, scoliosis, Hashimoto's Thyroiditis, IBS, migraines, tachycardia, hearing loss (probably Menieres)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15418
   Posted 5/9/2012 7:22 AM (GMT -6)   
AND, Apple, you have to stand on your head while doing all that Debbie told you.  Give it another try.  devil
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2786
   Posted 5/9/2012 8:13 AM (GMT -6)   
Not only do you have to stand on your head, but you have to sing several choruses of "Muskrat Love' while doing so.  Oh...and try switching to Milky Way bars.
 
Donna

*Jaden
Regular Member


Date Joined Dec 2011
Total Posts : 275
   Posted 5/9/2012 8:41 PM (GMT -6)   
yeah yeah yeah

You guys just all gave me a great fit of the giggles! Love it!

smilewinkgrin smilewinkgrin smilewinkgrin
Fibromyalgia, IBS, Lactose Intolerance, Fructose Intolerance, Migraine, Anxiety/Panic attacks, Bursitis, Plantar Fasciitis, Achilles Tendonitis
Vitamin D & B12 deficiency
___________________________________________________________________
Dicyclomine, Vitamin D/B12, Calcium, Digestive Advantage
Clonazepam and ibuprofen as needed

Aunt Dee Dee
New Member


Date Joined Nov 2012
Total Posts : 6
   Posted 11/15/2012 2:35 AM (GMT -6)   
Hi folks:

I wish the information you chose to share had more thought and time put into it before commenting. First, Dr Teitelbaum regularly writes about many health topics and discusses a holistic and comprehensive approach as you advocate above. He discusses products that can be helpful for all types of health issues, just as you indicate the benefits of CoQ10 for heart health. Perhaps actually reading the FDA letter and also reading Dr Teitelbaum's articles would have helped. He does recommend some natural remedies over prescriptions when they are shown as more effective and typically provides references to published studies when making these claims. He does not ever recommend abandoning conventional treatments when it is the most effective approach to an illness. The FDA does not like the fact that things like CoQ10 as mentioned in this thread are recommended for specific health conditions and states that this classifies them as drugs which requires FDA study and approval. Did Sherrine and Miriam get FDA approval for the CoQ10 for heart support before advocating that above?

Second, he does not market a cure to fibro but rather provides valuable information that people spend years searching for. He clearly explains that there are several underlying issues that contribute to fibro and offers suggestions to address each of these issues to "support recovery".

Third, I was a patient of Dr Teitelbaum's and he never recommended anything close to what Donna mentions from her "research". His treatment protocol is a combination of prescriptions when needed and nutritional support and does not come close to $800 worth of supplements to get started. His office not only offers supplement discounts for the few that I was started on but also pointed me to other places where I could find the supplements cheaper since they are a small office and not a large retailer. Any testing for other illnesses such as lupus was done before my initial visit and Dr Teitelbaum DOES NOT test for Epstein Barr since it is an infection that most of us have been exposed to at some point and time and will therefore, test positive, even without an active infection being present.

Fibro is a complicated illness and Dr Teitelbaum will tell you that getting better is not an overnight process and that it can take several months to get better (any research would discover that this is discussed right on his website) as opposed to several years as Donna indicated.

Your friend may have saw a doctor who claimed to work with Dr Teitelbaum's protocol or perhaps one of the Fibro and Fatigue Center doctors. When I researched these centers, Dr Teitelbaum was the medical director. As the medical director, he helped train the doctors on his protocol but each center was run by the doctor who owned the center. I found that some centers were following Dr Teitelbaum's work closely but others were only using small parts of Dr Teitelbaum's protocol and were recommending hundreds of dollars of supplements at the first visit. Because Dr Teitelbaum had no administrative role with these centers and it was his work that I was interested in, I chose to work with him directly.

Fibro can be debilitating and can ruin lives, careers, marriages, etc. Finding the right approach and answers can be a difficult and long search and what works for one person may not work for another. There is not one "magic bullet" for fibro and similar illnesses. Healing can be as complicated as the illness and not everyone can commit to getting better.

Dr Teitelbaum's approach worked for me and for many others as I was able to consult with other patients to work though the protocol. For some of my issues prescriptions were the best treatments and for others, the natural treatments far surpassed any prescriptions that I had tried. Again, the response to any treatment is different for everyone and is very much trial and error for many issues.

We do now know what contributes to fibro and this continues to help me tremendously as I work to maintain my health. I worked very hard to get better with the support of Dr Teitelbaum, his staff and other patients so it is very disheartening to see comments that are merely "thrown" out to people who may be looking for help. Your comments on this thread were clearly not substantiated.

It is also unprofessional and inappropriate to comment on the assumed money Dr Teitelbaum has been "racking in". You clearly know nothing about how many people he helps and how much charity work he does. Very disappointing to come across a discussion that not only stems from ignorance but seems to enjoy "trashing" the reputation of a man that you have had no direct experience with but claim to know so much about. I would have higher expectations from discussions that should be designed to help people especially from forum moderators.

I hope you all find a way to heal but I can assure you that what you have here is embarrassing. I recommend doing your homework the next time.

Aunt Dee Dee
New Member


Date Joined Nov 2012
Total Posts : 6
   Posted 11/15/2012 10:16 AM (GMT -6)   
DW:

Thank you for your response. You absolutely came across with a welcome tone and that is appreciated. There is nothing wrong with challenging each other as that is also how we learn and grow. I too remain on numerous treatments, prescription and natural, due to the ever challenging autonomic dysfunction with my fibro. I understand the need to be skeptics since there is so much information out there and so little that actually helps. However, filtering information can be done in a professional and respectful way.

I agree that collective support and helping each other put together the pieces of each other's own puzzles is a great way to heal. With fibro, you learn quickly that you need to take what works for you from the various doctors, writings, forums, etc. This is why I was so surprised to see such negative comments about a doctor who offers so much to people in our position. Since when is it reasonable to think that we will agree with everything that one practitioner might say or advocate? So why jump to judgment in this case? I am sure that in our own journeys, most of us have been misunderstood or judged because of the lack of understanding from doctors, family members, friends, coworkers, etc when it comes to fibro. We should, therefore, know better and strive to represent our community as a whole in a more positive light.

You are correct that doctors are not perfect either and also need to be questioned and challenged when necessary. I did not perceive these comments as a healthy challenge but if this is what helps some people feel better than I hope it is not repeatedly done at the expense of someone's reputation.

Thank you again for your understanding and I hope you continue to find support from the folks here.

~SimplyUs~
Regular Member


Date Joined Aug 2012
Total Posts : 205
   Posted 11/17/2012 5:48 AM (GMT -6)   
aunt dee dee,
what type of autonomic dysfunction with your fibro?!!! Struggling to find how fibro fits me, and would appreciate your response.

Thanks
Rhiannon
Hanging in there like a monkey on a vine, knowing that through this journey; there is something positive to find.

Aunt Dee Dee
New Member


Date Joined Nov 2012
Total Posts : 6
   Posted 11/17/2012 1:41 PM (GMT -6)   
Rhiannon:

My blood pressure runs low and drops even lower with any type of activity; exercise, shopping, housework. When this happens, it can take 2-3 days to recover. It started with the stress of my job, even though I loved it. I put everything into Monday thru Friday and then noticed that I had to use Saturdays and Sundays to recover from the week. Eventually, the 2 days wasn't enough to get me back on my feet for Monday. Apparently, my body was zapped but I was still trying to tap into reserves that weren't there anymore. It also causes dizziness, different than vertigo, problems with my pulse and lots of sweating. I can do the activities now but have learned to listen to my body and not over do things.

For maintenance I have found that hydrocotisone and dexedrine work the best to keep my blood pressure from dropping and keep my pulse steady. I have tried some prescriptions similar to dexedrine (adderall, ritalin) when it was back ordered last year and nothing seemed to work as well. Felt like a "head" case when I found myself calling around to different pharmacies trying to see if they had any in stock. Luckily, my regular pharmacist knows me well and knows my issues. I have been able to work down to a low dose of dexedrine that now works well along with the hydrocortisone.

For maintenance of my other fibro issues, I still depend on my vitamin powder, extra magnesium, probiotics, carnitine, iron at bed time, bioidentical hormones, and a compounded thyroid (T3) prescription. This time of year I like to use something to keep my immune system from crashing. I like the colloidal silver and have started using the monolaurin to see if that is helpful as well.

Good thing I'm better now, huh? ;D It has all become such a part of my daily routine that it doesn't seem like all that much anymore until listing it out like this. Just as some of the other folks have mentioned, at first the list seems endless but it does get better once you start to address some of the major issues. I really am down to a minimum of treatments now.

Good luck with your search for answers. I know how difficult it can be. I think there are more of us out there than doctors realize and just not enough awareness. It seems like something is going to have to change!!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15418
   Posted 11/17/2012 4:15 PM (GMT -6)   
Hi, Aunt Dee Dee, and welcome!  I'm sorry if I offended you with anything I was saying but I do stand by what I said.  Jacob Teitelbaum has made claims, sells supplements at his site (yes, I'm sure he makes money with this), sells books and is or was the director of the Fibromyalgia and Fatigue Centers.  It seems to me that he should be held responsible for what doctors are prescribing at these centers since they are affiliated with his name.  You implied that he doesn't have control but if he is the director, he should have control.
 
Your experience sounds different than Donna's friend, but that friend went through that nevertheless thinking that since it was a Fibromyalgia and Fatigue Center associated with Dr. Teitelbaum, it would be just fine.  Apparently not so.  That bothers me.  Yes, every person should do their own homework when it comes to their health but some don't or don't know how and just trust a name they have heard about.  That's why I said in one of my posts that you do your own research, talk to your doctor before taking anything, etc.  We with fibro do need to learn as much as possible about this illness since we have to be our own advocates.
 
Here is a link to a Chicago Tribune article this past May about all the numerous problems the FDA was having concerning Dr. Teitelbaum. 
 
 
Here is a link to Dr. Teitelbaum's protocol for chronic fatigue and fibromyalgia.  After reading this, I certainly can see how you can rack up $800 in supplements. 
 
 
I'm very happy that you did have some success with this.  I just have a major problem with anyone offering a "cure" for fibro since doctors don't know what causes it in the first place.  Just the title of his book...From Fatigue to Fantastic...is implying a cure to people that are suffering so much.  We do know what helps one doesn't necessarily help another.  There are things we can take to help us...anything from Tylenol and supplements to narcotics.  We can change lifestyles and do gentle exercises, etc.  But there is no cure...yet. 
 
Have you had the opportunity to read Fibro 101...the first thread on the forum?  There is a link called Doctors Respond To New York Times Article that is very good.  Most of these doctors have spent their career studying fibro and are now thinking this is a neurological problem.  I do hope they find out in the near future.  When they do, it will be all over the news.  Here is a link to that article. 
 
 
I have had success with a few supplements.  Malic acid/magnesium supplements have helped quite a few on this forum including me.  There have been blind studies on malic acid and how it helps with the pain of fibromyalgia.  I also use vitamin D3 and sometimes a product called Curamin that has four herbs including tumeric in it and it has helped too.  Notice I say helped.  I don't claim any cures.  I take other supplements to help my body including CoQ10 (I take a statin drug so I take this.) and folic acid to help with absorption since I also have Crohn's disease.  Yes, what works for one doesn't necessarily work for another and that is stressed on this forum.  It's a trial and error process, unfortunately.
 
So, I do welcome you and we will just have to agree to disagree on this topic.  I have given my opinion and you have given yours.  It's up to each individual to decide what they want to do.  Again, I'm sorry if I offended you and I hope you will stick around with us.  We do have a wonderful group of members who love to help one another and, as a bonus, we really do care about each other too.  I hope to hear more from you soon.
 
Sherrine 
 
 
 
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Aunt Dee Dee
New Member


Date Joined Nov 2012
Total Posts : 6
   Posted 11/18/2012 1:52 AM (GMT -6)   
Sherrine:

Thank you for taking the time to respond. I have no problem agreeing to disagree but it seems that you are making statements that you have not researched yourself and this surprises me coming from a forum moderator. It is unfortunate that anyone would feel that they were taken advantage of, especially with spending over $800 on supplements at a first visit. However, as I mentioned, as the medical director, not owner, co-owner, CEO, CFO, administrative officer, etc but as the medical director, Dr Teitelbaum trained the physicians on his protocol. Along the lines of your thinking, if someone took the advice of the folks from this forum and had a horrible reaction to something that was suggested, you, as a moderator would be responsible for that.

You also seem to be stuck on the word "cure" but Dr Teitelbaum never claims he has a cure for fibro. When he does discuss cures, he uses this term in his many articles about other health topics. If you visit his website, you will find plenty examples of articles where he is merely trying to guide the reader to a treatment that can be highly effective. You will also see that he often sites studies and articles that have been published in medical journals. I invite you to visit the health topics section of his website.

http://www.vitality101.com/health-a-z%20

The Chicago Tribune article that you provided includes the author's interpretation of the letter from the FDA. If you read the actual letter, you will see that the problem, according to the FDA, was due to the information he was providing regarding some of the very same supplements that are discussed on this forum. "The therapeutic claims on your website establish that these products are drugs because they are intended for use in the cure, mitigation, treatment, or prevention of disease." Here is a copy of the actual letter for you to review rather than relying on the interpretation of ONE author.

http://www.fda.gov/ICECI/EnforcementActions/WarningLetters/2012/ucm301795.htm

The link you provided that includes Dr Teitelbaum's protocol (12 years old btw), is a listing of possible treatment options for each category that he discusses. If someone were to review these options, it is fairly obvious that a patient could not possibly take all 131 possible treatments as many of them are redundant; several types of antibiotics, several options for anti-depressants, etc. Everything that you list for yourself is a part of Dr T's protocol. If you had an updated copy of his protocol you would also see that Curamin is listed as well. He has written many articles on this for pain. Here is an example.

http://www.vitality101.com/nutrition-overview/curcumin

Finally, the New York Times article that you promote highlights views and opinions of many of Dr Teitelbaum's colleagues and the very same work that he has been doing for over 25 years. The articles below are just a few examples of the work Dr Teitelbaum has been doing on hypothalamic dysfunction and the problems patients face with testing within the normal lab ranges. Both are topics that were discussed in the article you provided. I can assure you that if you take the time to read some of his work, it will broaden your knowledge beyond the thinking that fibro is merely a neurological problem. I don't think you will be disappointed.

http://www.vitality101.com/health-a-z/CFS_FM-sonoma_working_group

http://www.vitality101.com/health-a-z/Hormones-adrenal_problems_in_cfs

http://www.vitality101.com/health-a-z/Cfs_fm-autonomic_dysfunction_in_fibromyalgia

http://www.vitality101.com/health-a-z/Thyroid-tragic_and_invisible_epidemic_of_thryroid_disease

In conclusion, I was never offended by your thoughts or opinions but rather disturbed that information was carelessly presented without having done the proper research or homework first. You are discounting the work of a man who not only provides many of the answers that people are searching for (and yes, he has different answers for every patient since "one size does not fit all) but who also is in line with the same school of thought that you promote by others. I do hope at some point you are able to find some time to read some of the links I provided. I think you will find that we are more on the same page than you realize.

~SimplyUs~
Regular Member


Date Joined Aug 2012
Total Posts : 205
   Posted 11/18/2012 4:57 AM (GMT -6)   
Enough , please ladies. points were made so be done with it.

To be feeling lost, hopeless and depressed; trying to find hope (not miracles), and have to here this negativity, its too much.

I appreciate both views with the upmost respect. I appreciate the time and care that went into your posts. Just quit bickering back and forth.
Hanging in there like a monkey on a vine, knowing that through this journey; there is something positive to find.

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2786
   Posted 11/18/2012 7:17 AM (GMT -6)   
Aunt Dee...no need to insult our moderator. This is a forum of opinion, friendship, and shared experiences. You have only posted four times in total and you chose a thread that was MONTHS old...a Teitlelbaum Topic which has been discussed on here before. It seems to me you have done to Sherrine exactly what you claim we have done to Teitelbaum...made rash, uneducated comments and attacking her character without doing proper research. Sherrine has been a faithful moderator on here for years and helped HUNDREDS of us with her positive support and compassion. AND knowledge.


I have a dear friend who a year after deciding The Doctor is a money making machine, is still paying for supplements he claimed would 'cure her'. I know you don't believe he uses that word, but I have read commentary by him where he makes these kinds of reckless statements. I HAVE done research and insulting me by saying I have no idea what I'm talking about is not what this forum is about.



If Teitelbaum helped you...good deal. No need to attack others who have not had this experience.

Post Edited By Moderator (Sherrine) : 11/18/2012 5:49:43 AM (GMT-7)


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15418
   Posted 11/18/2012 7:51 AM (GMT -6)   
I'm locking this thread since it is getting inflammatory.

Sherrie
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
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God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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