A fibromyalgia poem...

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camas
Regular Member


Date Joined Dec 2010
Total Posts : 120
   Posted 5/7/2012 4:06 PM (GMT -6)   
This poem was in the Fibromyalgia Network news elert for April 2012. I too sometimes forget who I
am, that I'm more than this illness. I think as this poem says so well, the worst thing for me about fibro
is never knowing what tomorrow will bring. When someone asks me to go somewhere or do something I
always have to do a mental and physical scan and ask myself,"How do I feel? Will people be ok if I cancel
at the last minute? Is there somewhere I can get away by myself for a few minutes? Will it be very noisy?
What kind of food will be served?" And the list goes on.
 
 
By Hannah Hill
 
As a Fibromyalgia sufferer I do not want your sympathy, I just want you to understand who I am because I may forget.
Yesterday I may have been limping, today I may be skipping, tomorrow I may be having a sofa day.
Yesterday I may have been on top of the world, today I may want to stay indoors, tomorrow I may not be able to get out of bed.
Although my pain is all over, yesterday my leg may have been hurting more than my arm, today it’s my head, tomorrow it may be my back.
Yesterday I was able to make a three-course meal, today it’s a frozen meal, tomorrow it’s jam and bread.
Yesterday I climbed a mountain, today I may manage a mile, tomorrow I may manage a smile.
Yesterday I may have been engaging in great conversation, today I may forget my words, tomorrow I may have forgotten we spoke.
It's not easy living with Fibromyalgia, even harder when others do not understand you!
 
 
 
editted to give your post a title...  Hugs...
 

Post Edited By Moderator (getting by) : 5/8/2012 5:58:18 AM (GMT-6)


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5616
   Posted 5/7/2012 11:31 PM (GMT -6)   
How true! After awhile, sadly, we learn to expect less of ourselves, and others do, too.

Of course, there are those times when it is worth it to push through it and overextend - but in general - we have to pace ourselves in ways that most people just can't understand.

Debbie
Moderator, Fibromyalgia Forum

Fibromyalgia, herniated disc L4-5, (with recent surgery), bulging disc L5-S1, other assorted spinal deterioration, scoliosis, Hashimoto's Thyroiditis, IBS, migraines, tachycardia, hearing loss (probably Menieres)

Booklvr
Regular Member


Date Joined Mar 2012
Total Posts : 80
   Posted 5/8/2012 5:44 PM (GMT -6)   
This is great. I posted it on facebook with a note about May 12 being Fibromayalgia Awareness Day.  Not many people know I have fibro because I haven't wanted to widely discuss it. However, this poem is a great help to introduce the news to my family and friends.  Thanks for posting!
*****************************************************************************
Fibromayalgia, Chronic Fatigue Syndrome, Periodic Limb Movement Disorder, Insomnia, Hashimoto Disease, Endometriosis

*Jaden
Regular Member


Date Joined Dec 2011
Total Posts : 275
   Posted 5/8/2012 7:37 PM (GMT -6)   
I saw this on Facebook a few weeks ago--its so true. I can definitely relate, especially about the cooking. I try every night to make a real meal. My BF's family is a "hot-dog-and-sandwich" kind of family, so I made a deal that I would cook if his dad would buy the groceries. Now they get a fresh, hot, nutritious meal every night (or leftovers) but there are some times when I wish I hadn't even started this. There are times I really just don't feel like doing anything, but I have to bite the bullet and keep going; no one else can cook more than spaghetti or biscuits from a can :/
Fibromyalgia, IBS, Lactose Intolerance, Fructose Intolerance, Migraine
Vitamin D & B12 deficiency, Anxiety/Panic attacks
Dicyclomine, Vitamin D/B12, Calcium, Digestive Advantage
Clonazepam and ibuprofen as needed
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