Bladder pain/problems and fibro

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Klambert1
Regular Member


Date Joined Mar 2010
Total Posts : 291
   Posted 6/27/2012 12:23 PM (GMT -6)   
Hello everyone,
 
I am not new to bladder infections, I have had them all of my life (maybe a sign of fibro and I didn't know it) anyway sometimes I get bladder pain and spasms after I urinate. It feels like a bladder infection, but a few times I went to the md and had no infection. I had pain that started last thursday BUT it was only after I had a pretting intense flare. I took an otc uti test today, showed positive for white blood cells but negative for nitrates...so that's iffy, I may try to test again. I have no odor, fever, back pain or any other symptoms of uti.
So my question is, does fibro cause bladder pain that mimmicks an infection? I have read that it can cause bladder irritation. Has anyone had this problem and not have a bladder infection? I may just keep and eye on it, because I only have the pain and spasms.
The thing is, if I told my md fibro can cause bladder irritation he would probably laugh at me. Ya know they don't think fibro can cause that stuff.
 
Thanks!

bayoub2
Veteran Member


Date Joined Sep 2006
Total Posts : 2861
   Posted 6/27/2012 1:00 PM (GMT -6)   
WOW! I get the exact same thing. The spasms, the pressure, the urgency and then ...nothing!! My urine tests have been positive for microscopic blood cells but no infection. I have had a cystoscopy and they found no probs, just my bladder did not hold a large volume. They said there is not much they could do-so I think you are right, it must be a fibro thing.

I had 2 bad, painful flares that lasted a few days. But if it continues to bother you alot, I'd go back and let them test again.

Let me know if you find any answers and good luck

Maggie
"We never realize how strong we are, until being strong is the only thing left"
Major Depressive Disorder, ptsd, fibromyalgia, chronic pain, l3/4, L4/5 gone, bursitis arthritis sciatica

seroquel, hydrocodone clonazepam norvasc multi vitamin and magnesium

Mrsppmrxky
Regular Member


Date Joined Jul 2006
Total Posts : 360
   Posted 6/27/2012 6:05 PM (GMT -6)   
Have you been tested for interstitial cystitis? I have had bladder problems my entire life. It goes in flares. The testing I had was done under general anaesthesia (sp) when I was having another procedure done. It was confirmed that I had the tiny microscopic holes in the lining of my bladder and that is where i was getting infections.

I had to go on muscle spasm medicine for a while until it calmed down. I also have antibiotics on hand to treat it at home if symptoms flare up of infections. (mine were worse than labor pains. TMI, it would even cause my intestines to spasm)

I hope you can see a urologist that will believe you and help you seek out the answers.

Klambert1
Regular Member


Date Joined Mar 2010
Total Posts : 291
   Posted 6/27/2012 7:20 PM (GMT -6)   
I didn't know there was a test to check for interstitial cystitis. I did have an md tell me years ago that she thought thats what it was. I had another doctor years ago (probably 15 years ago) prescribe me antibiotics and told me after I had sex to take one pill...strange...to take an antibiotic after sex.

AZUMI
Regular Member


Date Joined Apr 2012
Total Posts : 60
   Posted 6/27/2012 7:59 PM (GMT -6)   
Wow what a wacky fibro world, I have the same promblems but i think on the 101 site they talk about that. Like I am going through the process of finding out what causes my chronic ibs syptoms at the moment. I will go though all this probably to find there is nothing wrong and its just another fibro thing......................An interesting fact though, i first though i might have ms when 1st going though the dx stage because they also have bladder and bowel problems which goes to show like the researchers are finding out that it is more nerologic based after all.
hope that helps...................:)
Azumi

Mrsppmrxky
Regular Member


Date Joined Jul 2006
Total Posts : 360
   Posted 6/28/2012 2:15 PM (GMT -6)   
The procedure that I had done under general anesth. was that they distend the bladder to it's fullest and look at it with a microscope and see if it looks like a colander (best description.) It can be done when you are awake, but my dr. said I was having such painful spams and had so many procedures to see what was going on by the military drs that she wanted me asleep and we also coupled it with my gyn dr. going in for a look see about my endo. problems.

You need to find out if they will give you a dip stick test. The infection level will show up very small, but you can have a roaring infection that is within the wall itself. It won't show up on a test except for the spasms you are having. Thus, they give you the RX to take the antibiotics for so long at home when it flares up.

I hope that explains it a little better. If not, just ask. ;)

TiredArtist
Regular Member


Date Joined Jan 2012
Total Posts : 130
   Posted 6/28/2012 3:21 PM (GMT -6)   
You should check the medicene you're taking and make sure it's not a side effect. I have some issues with this as well I get urges an then nothing and it takes forever to urinate sometimes even if I feel I really have to go. I have yet to bring it up to my dr.

Chili9
New Member


Date Joined Jun 2012
Total Posts : 18
   Posted 6/28/2012 5:36 PM (GMT -6)   
I've had problems with my bladder since I was a child (fibro pain started when I was 4) and I'm now 31, but my mum had to write notes to my teacher to ask her to allow me to go to the toilet whenever I needed to, I've been tested on numerous occasions for bladder and urine infections and all negative and I'm up around 3 times a night to the toilet, when I do need to go, it's slightly painful but if I'm REALLY needing to go it gets unbearable! I think irritable bladder is one of the symptoms so I've just accepted it as that:( fed up of tests being negative and making you out to be a drama queen!
Hope you get to the bottom of what it is, always something with fibro from head to toe...sucks!
Hugs

cats
Regular Member


Date Joined Jun 2012
Total Posts : 28
   Posted 6/28/2012 8:12 PM (GMT -6)   
With fibro you can get the feeling like you have a bladder infection. In the book I have on fibro it is listed as a symptom as is colitis symptoms. You don't really have it, it just feels like it. Fibro is a strange thing. I tend to run a higher than normal pulse. A rapid heartbeat is another fibro thing. can't say how many tests I have had over the years to rule things out. they always come back negative so we know its the fibro up to some new tricks.

Mrsppmrxky
Regular Member


Date Joined Jul 2006
Total Posts : 360
   Posted 6/29/2012 1:23 AM (GMT -6)   
Cats, thanks for the info on the rapid heart rate! I have everyone of the symptoms you listed. ;$ My resting heart rate was 112 for the longest time. I go get my check up in 2 weeks, so I hope it is still improved! last time it was around 78 and my BP was normal. (I always felt exhausted .......no wonder, my heart was beating like I had run a race.)

There are anti-spasmodics for the bladder if that is all that it is. That is the WORST pain and since I have had it off and on for 53 yrs, I can not tolerate it at all. Oxybutynin helped me keep from pulling my hair out.

When I have my bladder flare up, I also change my diet and don't do spicey foods, pepper, mustard or vinegars. Those are sometmes trigger items for me. I never, never, never drink caffiene tea..........that will send me into spasms in just a few hours after drinking it.

Chili9
New Member


Date Joined Jun 2012
Total Posts : 18
   Posted 6/29/2012 11:22 AM (GMT -6)   
Cats strange you mention Colitis because I was tested for that and Crohns, had to get a colonscopy and an endoscopy (think that's how you spell them??) fibro tends to mimic a lot of other diseases, I've been tested for these along with MS, Lyme disease, athritis, Lupus, even had heart monitors, and all this has led to hyperventilation syndrome due to years of worry, panic attacks and stress with it all:(
I have found however since becoming vegetarian, eating lots of fruit and veg and drinking cranberry juice and taking supplements etc have made my stomach problems feel a bit better than before but maybe I'm not going through such a bad flare up!?!
I think certain foods can as you say make symptoms worse, I can't eat spicy foods anymore either, had to go to hospital the last time I ate something spicy, jeez I hate fibro!!:-S

applevenus
Veteran Member


Date Joined Aug 2011
Total Posts : 934
   Posted 7/1/2012 3:25 PM (GMT -6)   
Interstitial cystitis is an overlapping condition with Fibromyalgia. It can mimic a bladder infection and you may even test positive for blood in your urine from it.
46F, Fibromyalgia, Vitamin D deficiency, Sleep Apnea/CPAP therapy, allergies/multiple chemical sensitivities, possible Chronic Fatigue & occasional IBS symptoms.

I take vitamins, Tramadol for pain, Flexeril as needed.

steppingstone
Regular Member


Date Joined Apr 2010
Total Posts : 366
   Posted 7/2/2012 12:41 AM (GMT -6)   
Klambert, I had UTIs most of my life until I had a hysterectomy for adenomyosis nearly 2 years ago. Since that time, I have only had one, which is a record for me. At times, I would have all of the symptoms of a UTI, only to hear that there was no infection when I went to the doctor. The symptoms would then finally subside on their own after a few days, only to resurface at a later point. It seemed that certain points in my cycle would trigger them. My MD once mentioned that I might have interstitial Cystitis, and that if I kept getting the infections and/or symptoms, that he would need to send me to the a urologist to be checked for this. However, I had my hysterectomy soon after this, so it was not necessary.

I do know that sometimes when I have had the symptoms and have tested negative, the test has come back postitive for a UTI when the test was sent to the hospital's lab for further culturing. So it is imptortant to insist on this if you are having a great deal of discomfort. Sometimes, the doctors have advised me to schedule another lab appointment to get rechecked after two weeks when medications have been prescribed. There have been times that I have forgotten to do this, and the medications have not totally cleared up the infection. Then the symptoms have returned a week or so after that even worse than they were before.

I have a 15 year old daughter who has problems with these, also. I have started getting her Cranberry Chews (the Walgreen's in our town carries these). They have about the same amount of cranberries in each one as what would be contained in 7 glasses of cranberry juice cocktail. She has been on these for over a year, and has only had one infection during that time. She is also very sensitive to any type of bubble baths, and most soaps (she can use only Dove). I also have a tendancy to forget to drink enough water, and will drink coffee or soda instead. This nearly always gets me into trouble if I don't catch myself within a few days. I usually try to drink about 60-80 oz per day.

Good luck with your situation. I don't believe that anything hurts like these do. I hope that you are able to find relief soon.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, October 25, 2014 12:31 AM (GMT -6)
There are a total of 2,250,834 posts in 250,376 threads.
View Active Threads


Who's Online
This forum has 157539 registered members. Please welcome our newest member, aaronb.
264 Guest(s), 8 Registered Member(s) are currently online.  Details
Chye, aaronb, Admin, kelpster1, Mississippi Jane, jf0310, marigold33, Brismom


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer