What Does Your Fibro Fog Feel Like?

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jr991
Regular Member


Date Joined Feb 2011
Total Posts : 186
   Posted 7/19/2012 11:28 AM (GMT -6)   
I'm just wondering what others fibro fog feels like to them? My head has been in a fog for the last 10 years or so long before my other symptoms started occurring. For me the feeling is kind of like this light headed, slightly dizzy, spaced out feeling. It closely resembles almost being drunk and it makes my eyesight seem a little weird... it's very hard to explain. The thing that bothers me the most is I never have relief from this, although sometimes it's more tolerable than others. It almost feels like I have a neurological disorder of some sort. Does anyone else feel this way and is it with you constantly or only on some days?

Sherrine
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Date Joined Apr 2005
Total Posts : 14995
   Posted 7/19/2012 11:47 AM (GMT -6)   
I'll have that feeling occasionally but I think it's sinus or perhaps allergies.  Some days, especially if I'm well-rested, I do great.  If I'm tired, I can't remember my own name.  But, if you laugh at it, it does seem to get better.  If you worry about it, you REALLY won't be able to think...at least that has been my experience.
 
Here is a cute link called Fibro Fog Follies to show you are not alone with this.
 
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

crazykitty
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Date Joined Jul 2009
Total Posts : 4796
   Posted 7/19/2012 11:53 AM (GMT -6)   
Sometimes the fog makes me feel like I can not connect the dots...my brain has a hard time processing simple things when the fog is thick. My fog is the worst during a bad flare, those are days I choose not to drive.

The fog is frustrating and can be funny at times. Have you ever experianced occular migraines?....those tend to make me feel light headed, dizzy and I see some strange visual stuff...wavy lines.

You should mention this to your doctor to be checked...it will give you peace of mind. Wish you well :)

Hugs, Robin
Fibromyalgia, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"

dustinshunny
Regular Member


Date Joined Jul 2012
Total Posts : 388
   Posted 7/19/2012 12:36 PM (GMT -6)   
I feel all of these ways, but I do have days my head is clear, today not being one of them :-) ...I have the dizzy lightheaded,can't concentrate, can seem think anything out, hungover feeling etc
Fibro only Dx, 150 mg savella, 100 mg tramadol, MR when needed, 800 mg magnesium, 25 mg DHEA daily.

An awesome fibro doctor, and an amazing hubby to be, and 4 wonderful kids :-)

ak angel
Veteran Member


Date Joined Apr 2011
Total Posts : 2905
   Posted 7/19/2012 2:50 PM (GMT -6)   
Jr, I just was complaining about the fibro fog. I was setting up a medset because I been forgetting some of my meds. Well today I realized I set it up wrong. Lol I guess I do believe what my neuro Dr. told me. The days when I sleep poor, is when I really notice the fibro fog. He believes it's all caused by our poor sleep pattern. I have poor concentration. It's hard for me to sit and focus on a lecture or a sermon.

Spookiesmom
Regular Member


Date Joined Jan 2012
Total Posts : 361
   Posted 7/19/2012 9:27 PM (GMT -6)   
When I'm foggy, I feel like I'm in the minute. I know, and am aware of what I need to do, or did. But did I?

I shouldn't have worked for as long as I did. I'd get home in the am and check the bus for dents. Ok, I didn't hit anything, and nobody was calling to give me grief. Some days I honestly didn't know. Scarey!
T2, OmniPod,Fibro,MVP,CAD,4 level cervical fusion, L5_S1 needs fusion, arthritis all over, need 2 knee replacements, Vit D3, and a lot of other meds!

ak angel
Veteran Member


Date Joined Apr 2011
Total Posts : 2905
   Posted 7/19/2012 9:45 PM (GMT -6)   
Deep well, I wish I could blame the meds. I am mostly on vitamins. It has been an on going problem for a few years. My Dr. Told my husband I would need to be supervised. I have good and bad days.

OzzieShaz
Regular Member


Date Joined Jul 2012
Total Posts : 48
   Posted 7/20/2012 7:12 AM (GMT -6)   
My Fibro Fog has two main symptoms, most days I will find myself not able to think of the word I need to type or say, it will be an everyday word but my brain just can't "find" it. My other symptom is being spaced out I will catch myself looking out the window at work or just staring at something, I have to make myself focus which can be hard. The worse my fibro the worse the fog.
Diagnosed July 2011
Fibro, Costochondritis, Spondylolesthesis with Bulging disc and Chronic Arthritis L5-S1

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 21924
   Posted 7/20/2012 8:19 AM (GMT -6)   
It only hits me on some days, not all the time (thank goodness!) But it's like the others stated; it feels like certain things just get forgotten about or you can't remember a word that you normally know. For instance, I was in up state MI and all weekend I could not remember the word down state when any would ask where I was from. I couldn't recall what CITY I lived in either!

But it sort of sounds like you may have ocular migraines like crazykitty suggested. I only have it happen to me once or twice and it freaked me out!
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
Diagnosed Left sided UC in '92 - meds: 6mp, Colazal, Remicade and Bentyl*Unable to tolerate ALL mesalamines*, in '11 diagnosed with IBS, Diverticulosis, Fibromylagia..I also have Sacroiilitis, Scoliosis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry Eye and allergies controlled by Zyrtec and Singular

capstjacques
New Member


Date Joined May 2009
Total Posts : 6
   Posted 7/20/2012 2:32 PM (GMT -6)   
For me; it feels like many of you described...but I notice it most when there is barometric pressure change or I am reacting to a strong chemical smell like perfume, etc. nono
 

steppingstone
Regular Member


Date Joined Apr 2010
Total Posts : 366
   Posted 7/21/2012 12:24 AM (GMT -6)   
Mine is much worse when I am not well rested. I usually feel as if I have a head full of cob-webs.

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5452
   Posted 7/21/2012 1:17 AM (GMT -6)   
JR,

Mine is all the time. I've sometimes thought of it as feeling like I'm underwater...actually, the way you described it really hit the nail on my head!  turn   The whole half-drunk feeling, the dizziness, "off" vision, and overwhelming spaciness...like you, this started way before any of my other symptoms. I can trace it all the way back to my childhood, although it's become more all-encompassing and multi-layered (good old fibro and old age!)

Let's put it this way - I have never really felt clear-headed, and all my friends called me "Spacequeen" in my young and single days.

Debbie
Moderator, Fibromyalgia Forum

Fibromyalgia, herniated disc L4-5, (recent discectomy), DDD, Hashimoto's thyroiditis, IBS, migraines, tachycardia, hearing loss (probably Menieres) with balance issues, chemical sensitivities

jr991
Regular Member


Date Joined Feb 2011
Total Posts : 186
   Posted 7/23/2012 10:11 AM (GMT -6)   
Thank you to everyone who responded. It sounds like mostly everyone's description is quite similar in that it effects their cognitive function. I had always had a hard time identifying whether my head symptoms are actually what is referred to as "brain fog" or not so I thought it would be helpful to hear how others describe it.

I more closely resemble Acheybody's fog... It's like I'm half drunk or have a permanent head cold that causes an out of it feeling, with dizziness/wooziness.

@ Acheybody
Are your head symptoms aggravated in busy environments like the grocery store or when you're standing in a line? Mine get horribly worse and I feel like I could collapse but never do... then when I get out to the car where it's quiet and not overly stimulating it settles down again.

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5452
   Posted 7/23/2012 11:11 AM (GMT -6)   
JR,
 
Yes!  That's why it's always so difficult for me to interact with more than one person at a time.  Overstimulation happens so fast, and gets me so worn out...even with people closest to me.  The kids always wonder why Mom cries on Christmas, or when we play a board game.  sad  
 
I love "Avatar," but I wouldn't even consider watching it in 3-D.  I would probably fall out of my seat!
 
When I was first looking for answers (medical) I was convinced that I had allergies that needed injections, and I gave myself shots for 2 years, thinking it would clear my head.  It never did, so I quit doing it.  Oh, the quacks out there!
 
Misery really does love company, doesn't it?  At least it makes us know we're not totally crazy.
 
Debbie
Moderator, Fibromyalgia Forum

Fibromyalgia, herniated disc L4-5, (recent discectomy), DDD, Hashimoto's thyroiditis, IBS, migraines, tachycardia, hearing loss (probably Menieres) with balance issues, chemical sensitivities

camas
Regular Member


Date Joined Dec 2010
Total Posts : 117
   Posted 7/23/2012 1:01 PM (GMT -6)   
 
I have a hard time finding the right word during conversations, so annoying.
 
Because I have a hard time following lengthy conversations, I tend to interrupt
and then have to talk fast so I don't lose my train of thought. But then my response
is hurky jerky because I can't remember what word I'm trying to say.
 
Graduated with honors from college and now sound like a total airhead!
 
Just thankful for the good days when everything is in sync.
 
 

tidertechie
New Member


Date Joined Jul 2012
Total Posts : 1
   Posted 7/23/2012 9:45 PM (GMT -6)   
Mine has several similarities to those described, but I also have a weird feeling in my mouth almost to the point of slurred speech. So you can add that to the forgetting common terms, forgetting things like the train just jumped of the track, etc.

The good news is I have found a HUGE difference when I get a deep sleep. Im not referring to getting the correct number of hours of sleep but actually getting deep sleep. I usually use a sleep aid for about three days and that is enough to help clear up the fog and leg jerks/electric shock feelings.

Twinksgma
New Member


Date Joined Dec 2012
Total Posts : 1
   Posted 12/29/2012 11:07 PM (GMT -6)   
I am too overwhelmed to know where to start. Having ADD but managing it, or laughing at it worked for years. However since a particularly bad FMS flare and acute low back pain last April which lasted for several months, I find I am quicker to get confused, not understanding something simple that is common instinct reactions, always a math nerd and now basic equations stop me in my tracks, I get overwhelmed most quickly from being over stimulated. Two kids talking at once to me, or talking over the TV. I often find I tune everything out that my kids think I am deaf. Auditory sensitivity gets mixed in there too. I am digging for better ways to manage each day. I have been researching ADD in girls and women and I find what I have always experience is totally different for my son. May be it is time to address the ADD with my doctor and possibly trying one of the short acting stimulants in order to give myself more flexibility. My son takes Extended Release Adderal which works well for him on school days. Otherwise he doesn't take it. I am 47 yr old mother of 3 (2 girls 1 boy - ages 23, 19, 14) And my biggest motivator to search for help is my Twin 4 yr old granddaughters. If things continue, I will not feel comfortable being totally responsible for their well being when they visit. Too often pans that started as water to brew tea are forgotten and soon I find an empty ruined pan. I don't dare light candles if no one is home to be sure they are extinguished if I decide to leave. I am finding acceptable ways physically to cope and how to recognize a possible flare on the horizon if I don't change course. My mind is a different story. I find myself disoriented when driving lately. I have had a brain MRI and angiogram to rule out more obvious issues. The inability to recall an everyday word, follow a train of thought, or losing too much time trying to find where I put something away. All of this increases my anxiety which muddles my cognitive behavior. Any Any thoughts please.

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5452
   Posted 12/29/2012 11:33 PM (GMT -6)   
I wish I had some good advice, Twinksgma...I don't. I'm in the throes of fog myself, I'm afraid. I was shocked to see that this thread had been started in July! (Seems like only yesterday....) I know what you mean about leaving pans cooking on the stove. I had a tea kettle a few months ago that had no "whistler." Well, that pan didn't last long :(

How about starting a new introductory thread? - we'd like to get to know you.

Debbie
Moderator, Fibromyalgia Forum

Fibromyalgia, herniated disc L4-5, (recent discectomy), DDD, Hashimoto's thyroiditis, IBS, migraines, tachycardia, hearing loss (probably Menieres) with balance issues, chemical sensitivities

Yrsilly
Regular Member


Date Joined Nov 2007
Total Posts : 58
   Posted 12/31/2012 1:55 AM (GMT -6)   
I describe my fog to the doctors as feeling as though one my sip of my drink and I would be drunk or at other times, like a bad hangover. I have days where I can not find words that I clearly know and if I allow myself to get frustrated, it gets worse. I tried explaining it to my husband as though my memory is searching through a rolodex and if I get upset, the darn thing spins faster and faster. I have to just excuse myself from the conversation and try to regroup.

I have never been able to tune out noise so when too many different conversations or going on, or a room is visually too busy, I feel very uncomfortable. The stimuli is too much for me and again, I have to remove myself from the situation. My eyes will play tricks on me with spatial relationships, so much so that I now have two dented rear fenders from backing into walls. Best one yet..LOL, I backed into the closed garage door having forgotten to open it. If I look into the mirror, my irises are like pin points and my ears are ringing. I have had MRIs of the brain and all is normal there.

I live by a calendar now and have almost obsessive behavior in writing everything down on it immediately. Sticky notes line my desk and I complete one task entirely before beginning another. Everything is filed or trashed after I have read it. These are my coping mechanisms and they usually work for me, but like on the 21st when I went to see the Rheum, he came out, sat down next to me, held my hand and said, " Honey, you're appt is NEXT month on the 21st at this time". I just smiled and said, " Well two out of three ain't bad!" tongue

steppingstone
Regular Member


Date Joined Apr 2010
Total Posts : 366
   Posted 12/31/2012 10:57 AM (GMT -6)   
Twinksgma, I also have been diagnosed with ADD. I am 53, and have taken Adderall XR at a 40 mg daily dose since I was about your age. For me, it has been a godsend, and I don't know if I could function if I didn't take it.

For me, the the Fibro Fog is like having a brain full of nothing but thick, sticky cobwebs, and my thoughts seem to have trouble finding their way through. This is especially problematic if my thoughts require me to perform some action, because then I just sit and think about what I need to do rather than getting up and doing it. This is much worse if I don't get an adequate amount of sleep the night before, which often seems to be the case. I also become worse in situations where I am overstimulated, such as when there is alot of noise, movement, or commotion in general. This totally fries me. If the fog is bad, I just sit, staring into space. The Adderall XR helps me to be less fatigued. I find that I can think more clearly, and, in a sense, put my thoughts into actions more easily. Before I started taking it, I had trouble completing tasks from start to finish (I would abandon them midway because I would become distracted). I am much better about seeing them through, now. I still have some difficulty focusing on conversations, and have the common problem of spacing off mid-sentence not being able to find the right words. However,I think that the Adderall does help a bit with this, also.

camas
Regular Member


Date Joined Dec 2010
Total Posts : 117
   Posted 12/31/2012 1:00 PM (GMT -6)   
Twinksgma, You described fibro fog very well. Just a completely muddled feeling.

I have thoughts in my head, but when I go to join in a conversation I can't think of the
right word to describe what I'm trying to say.

When I was getting my hair cut the other day I was trying to tell the beautician how
I wanted it cut and for the life of me couldn't think of the right words. It gets so
frustrating.

Steppingstone, I sure do understand what you mean about the inertia, just sitting and thinking
about doing some rather than getting up and doing it. But on that note I'm going to push myself
out of this chair, put on my swimming suit and go to low impact water aerobics.

Thanks to all on this site and Happy New Year.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12075
   Posted 12/31/2012 2:49 PM (GMT -6)   
My fog is like today. I feel like I have a head full of cotton, ears ringing, I just want to lay down and sleep not try to think right now

picture walking around in a pitch dark room not knowing which way to go and hung over
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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