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Fightingmomma25
Regular Member


Date Joined May 2012
Total Posts : 35
   Posted 7/19/2012 8:40 PM (GMT -6)   
Has anyone ever looked at chiari malformation and fibromyalgia???

Fightingmomma25
Regular Member


Date Joined May 2012
Total Posts : 35
   Posted 7/20/2012 8:52 AM (GMT -6)   
It's very interesting .. Just wanted to know if anyone has both together ?? I am having an MRI sent to new York to a nucca dr who can read my MRI for chiari and he can see fibromyalgia. Excited to know!
Fibromyalgia and chronic fatigue. Effexor , omega 3&6 , magnesium , vit b 6 vit b 12 frolic acid , and percocets for pain

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 7/20/2012 6:09 PM (GMT -6)   
Chiari Malformation can be diagnosed with an MRI...but Fibromyalgia is not something that is seen on an MRI.....

Did your Dr. actually say this to you?

And with Chiari....they should be able to see on the MRIl, along with a physical examination...tell you what Type you are as there is Type 1 through Type 4 the most severe...
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Fightingmomma25
Regular Member


Date Joined May 2012
Total Posts : 35
   Posted Yesterday 1:12 PM (GMT -6)   
So the thing is you need to have an upright stand up
MRI and dr rosa can see shrinkage in the brain where the pain receptors are. He is located in rock hill new York I suggested calling for more info.. Also health Canada released an article that fibro is curable. They have found it is definitly
Caused by pain memory storage and hVe found a medication that will block that and is almost done its trials. Hope for all!
Fibromyalgia and chronic fatigue. Effexor , omega 3&6 , magnesium , vit b 6 vit b 12 frolic acid , and percocets for pain

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted Yesterday 1:36 PM (GMT -6)   
Can you get us the link to this supposed article about Fibro being curable?

I'm not doubting what you have read or have been told. I am saying that there isn't a single Dr. in the U.S. that has found Fibro to be curable....and many of them have been studying Fibro for over 20 years and have this as their main area of practice...

Anyone can write an article and get it published. This doesn't mean that it is true.

The same thing with Fibro being diagnosed by an MRI. If all these things were fact...it would be news everywhere and ever trained Dr. would be following this new protocol.

What medicine is being done in this Canadian drug trial?
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Fightingmomma25
Regular Member


Date Joined May 2012
Total Posts : 35
   Posted Yesterday 5:26 PM (GMT -6)   
The MRI thing is new there are very few people who have the proper
Machine to do a stand up MRI . My sister has upper cervical issues and is going to this dr rosa this week heentioned when she told him I have fibro that he can see it o this specific MRI that he and only a few others are capable of doing. Also is seeing through the fibro fog it os quoted by drs that in certain mris fibro patients do show different swelling in the area of the brain that processes pain. It is just a matter of more research and trials and the USDA allowing such research and they make billions from pharamceuticals. I don't have the link it was my dr from the pain clinic who told
Me about the new findings with health Canada and how they released it as a curable disease however the medication they say cures it is not yet available. I know health Canada and the USDA are different so

I'm not saying I believe it all but it's worth the hoping!
The whole thing about if they could see it on an MRI we'd all know I don't know to be true because this dr reads things differently then a normal dr also he has the new machine I believe only 5 are available in the us. Some of the reason I am starting to believe it all isa clinic in Quebec here in Canada called the " physco physio clinic" they are showing 70% of fibro clients do their sound therapy treatment are 100% symptom free... And the others have drastically reduced.. The sound therapy is a big machine that helps delete trauma from the memory ... If I had 6000 I'd go in a heart beat but def worth checking it out!
I say wel if they're curing people who don't we all know about it? Well bcuz there a private hospital and not covered by Canada's healthcare so it isn't considered in the governments prognosis of possible treatments....
My sister is a acupuncturist and Chinese medicine practitioner so she is digging deep to try to find cures for me which I am always skeptical of and hate the word cure! But this dr rosa has told her he 100% in his studies can see fibro on an MRI... I don't live in the states but it's worth a call to his office for info of what it is he sees
Fibromyalgia and chronic fatigue. Effexor , omega 3&6 , magnesium , vit b 6 vit b 12 frolic acid , and percocets for pain

Fightingmomma25
Regular Member


Date Joined May 2012
Total Posts : 35
   Posted Yesterday 5:28 PM (GMT -6)   
Sorry I forgot to say about the medicine my dr is 80 and hard to understand I only see him once a week .. I believe it is a beta blocker similar to what someone with shakes would use to stop them from having the shakes but it has not yet been approved in Canada althoug my pharmacist
Mentioned in Europe they have a few more
Meds then we do that are getting amazing feed back
Fibromyalgia and chronic fatigue. Effexor , omega 3&6 , magnesium , vit b 6 vit b 12 frolic acid , and percocets for pain

Fightingmomma25
Regular Member


Date Joined May 2012
Total Posts : 35
   Posted Yesterday 5:39 PM (GMT -6)   
I'm working on gettig a copy or link of the release I will post it in a new thread when I get it!
Fibromyalgia and chronic fatigue. Effexor , omega 3&6 , magnesium , vit b 6 vit b 12 frolic acid , and percocets for pain

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted Yesterday 6:09 PM (GMT -6)   
I'm curious...you say you "only" see your Dr. once a week...Why do you go so often? I see my Dr. once every 3 months at this point.
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3190
   Posted Today 2:33 AM (GMT -6)   
This post caught my eye because I do have chiari malformation (mild) and fibro (and a host of other stuff).

Fightingmomma - I googled the doctor you mentioned and saw that he is a chiroprator. Is this correct?

As Snowbunny said - if this were true, it would be news everywhere.... especially the parts about fibro being seen on an MRI and fibro being "curable"...

While I'm all for trying different methods of treatment and medications... I also think it's really important that we are well informed with correct information...

--Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask
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