Bad pain with shaking

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

PumpkinMarie
New Member


Date Joined Sep 2012
Total Posts : 5
   Posted 9/4/2012 5:26 PM (GMT -6)   
confused
I was dianosed with FM back in 2002.. I was on Lyrica and Cymbalta for over 2 yrs and I didnt get any relief from them. All it seemed to do was make me feel like I was a zombie.. SO DOCTOR. slowly took me off them..Now my doctor has no clue what to do for me but put me on Prednisone for chronic imflamation (normal sed rate should be under 17 and my sed rate goes up and down between 58-78)..and Vicodin for pain at night. I take tylenol during the day..but it doesnt do much. Ive tried Aleve and Ibuprophin and they do nothing. Ive been taking the Prednisone and Vicodin for many yrs now..but note I only take the vicodin once a night and the prednisone for a week at a time..once a day...then off for two weeks..kind of a prednisone therapy...
Ok in saying all that...nothing helps with my all over chronic extreme FM pain...when I have this pain I shake bad...mostly my arms and hands and im not able to grip good and drop things often. Anyone else have this problem!? Its been happening for about 1 yr now...

dustinshunny
Regular Member


Date Joined Jul 2012
Total Posts : 388
   Posted 9/4/2012 6:14 PM (GMT -6)   
When my fibro is acting up I drop everything I touch! So frustrating! I take savella for fibro, it has worked really good for me, you just have to get past the first 2-3 weeks of your body getting used to it. I take 800 mg of magnesium and 25 mg of DHEA I think it helps. Then I have cyclobenzaprene (MR), and tramadol (pain).

I have been on savella since March, and the tramadol and cyclobenzaprene like April or may I think.

The only Savella side effects is is has decreased my appetite a lot and I have lost 15 PDS, but not a problem since I gained due to fibro. I have a bit of dry mouth so I drink a lot of water :-). Hope this helps you !
Fibro only Dx, 150 mg savella, 100 mg tramadol, MR when needed, 800 mg magnesium, 25 mg DHEA daily.

An awesome fibro doctor, and an amazing hubby to be, and 4 wonderful kids :-)

PumpkinMarie
New Member


Date Joined Sep 2012
Total Posts : 5
   Posted 9/4/2012 6:24 PM (GMT -6)   
Thank you for responding.
Ive also been on Tramadol before and didnt get much relief. Unfortunatly I am on SSI because of fms and other problems..so the gov ins i have wont cover Savella.. :(
I also have gained weight from fms and taking prednisone..plus menopause doesnt help.. i feel like the ins i have could care less if i die in pain... i wish i had the money to get a better ins. but SSI doesnt pay much and i barely live on what i have.. my doctor seriously doesnt know what to do..California is about bankrupt and who knows what more cuts they may make on SSI and the Ins that comes with it.. I hate being on SSI..its no life.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12405
   Posted 9/4/2012 6:27 PM (GMT -6)   
I have fibro as well as lupus and I get those violent shakes. It's mainly when I'm very fatigued.
I usually have it happen no longer than 30 minutes, but I had one to last for 3 hours the other day.
They scare the bejammers out of me.
Joy
When life throws you lemons....
Pick them up and throw them right back at them! :))

MomWithFibroTeen
Regular Member


Date Joined Jun 2012
Total Posts : 26
   Posted 9/4/2012 6:39 PM (GMT -6)   
Yup, you need to be tested for other diseases. My son's rheumy told me that if the Sed Rate is high, it is more than Fibro

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/4/2012 7:22 PM (GMT -6)   
Welcome to the forum...so sorry for your pain.

Have you been tested for any autoimmune connective tissue diseases? CTD's have simular symptoms of fibro. I have fibro along with MCTD... an overlap of a few autoimmune diseases. People who have CTD's may be more likely to also have fibro.

Fibro does not cause inflammmation or damage to the joints, muscles or other tissue.

Prednisone does nothing to help my fibro pain, but it has helped with the inflammation of my MCTD. Lots of bloodwork is usually run to rule out the possibility of having any of the autoimmune diseases. If you haven't had bloodwork done recently, it is something you should ask your doctor about.

Glad you have joined us...keep us posted :)

hugs, Robin
Fibromyalgia, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"

dustinshunny
Regular Member


Date Joined Jul 2012
Total Posts : 388
   Posted 9/4/2012 7:26 PM (GMT -6)   
That's horrible pumpkin! Savella is expensive too, like 175 a mo I think
Fibro only Dx, 150 mg savella, 100 mg tramadol, MR when needed, 800 mg magnesium, 25 mg DHEA daily.

An awesome fibro doctor, and an amazing hubby to be, and 4 wonderful kids :-)

dustinshunny
Regular Member


Date Joined Jul 2012
Total Posts : 388
   Posted 9/4/2012 7:33 PM (GMT -6)   
Just thought of something if you go to the manufactors website andsavella is Forrest labs I think, if you cant afford it you print the paper fill it out take it to Dr they fill in there part mail with a script and if you are approved they send your Dr 3 mo supply at a time to dispense to you. It has to be done every three months . If mine wasn't covered I was going to do that. Whether they say yes or no it is worth trying! A friend told me about that. It paper is right on web site !
Fibro only Dx, 150 mg savella, 100 mg tramadol, MR when needed, 800 mg magnesium, 25 mg DHEA daily.

An awesome fibro doctor, and an amazing hubby to be, and 4 wonderful kids :-)

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 9/4/2012 7:42 PM (GMT -6)   
Savella retails for $162.99 for one month's supply. My insurance saves me $137.99, so I pay $25.00...it is simply crazy!!!

Hoping you can find some pain relief soon!!!

Hugs, Robin
Fibromyalgia, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"

Painstop
Regular Member


Date Joined Sep 2012
Total Posts : 21
   Posted 9/4/2012 9:29 PM (GMT -6)   
I have been dx with fibro, then about 2 yrs after the dxs I began to shake in my hands, arms, and legs that was noticeable to others and quite embarrassing to me. The shaking got worse, I was having chest pains on and off. I saw GP and she ran a tsh and have been dx with hyperthyroid due to a goiter. She told me that would cause pain and shaking. Waiting now to see endocrinologist.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15393
   Posted 9/5/2012 7:51 AM (GMT -6)   
Hi, Pumpkin...and Painstop....and welcome!  You have been given great advice.  You might want to see a rheumatologist.  Fibro isn't an inflammatory illness.  I have high levels of inflammation also but I also have several inflammatory illnesses along with fibro.
 
A word of warning.  Prednisone is a steroid and you can get steroid-induced osteoporosis.  You said you were entering menopause so that is not a good thing.  I know I'd talk to the doctor about that.  Prednisone can be a nasty medication.  I had to take it for Crohn's disease but only occasionally.  Thank goodness I'm off it now.
 
I do use ibuprofen and Tylenol.  But I also use malic acid/magnesium supplements, vitamin D supplements and an alternative product for pain called Curamin.  These help me and have helped some on this forum too.  The only prescription drug I take for fibro and ankylosing spondylitis is called Robaxin and it's a muscle relaxer.  This has helped me significantly with my back, neck, and shoulder pain.  I used to have knots all over my back but now I only have a few.  So this is something else you can ask your doctor about.
 
If you sit or lay too much you will be stiff as a board and have more pain, also.  You do need to keep moving with fibro.  I do gentle stretching exercises, walk daily, and pace myself when doing things.  All of this helps with the pain and fatigue. 
 
Be sure to read Fibro 101...the first thread on the forum.  There are  links to good info about fibro and you will learn a lot there.  There are links about the supplements I mentioned and how they work in the body too.
 
I'm looking forward to getting to know both of you.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

PumpkinMarie
New Member


Date Joined Sep 2012
Total Posts : 5
   Posted 9/5/2012 1:09 PM (GMT -6)   
Thank you ALL so much for you advice..comments..stories..but most of all for caring.
I do take many supplements..vit D..magnesium..potassium..vit C...lethicin..and several more...I also have Flexeril..a muscle relaxer..My doctor has tried me on anything and everything my Ins will cover..I will check out drug companies to see if they can help...but I was told once since I have Ins I didnt qualify for thier assistance. My doctor knows Im in menopause and is being very careful with the Prdenisone..Ive had several bone scans.Ive been tested for all autoimmune diseases..several times for Lupus.. and ive been to a Rheumatologist 3 times...they send me back to my doctor saying they cant help me..and to take prednisone and vicodin as I am already taking. My doctor thinks I have Polymyalgia with FMS ..and the Polymyalgia is causing the high imflamation..
All I know is im tired of tests that get me know where... He think I msy have Lupus but with several negative tests my Ins wont accept it... Im about at my wits end with such chronic pain...I do light exercise..and the next day I hurt so bad I cant move.. Im hoping for someone..some doctoer to come up with spmething besides a drug that makes you feel like a zzombie and cant function anyway.. I pray ALL the time to the Lord..he is my only strength and what keeps me going. :)

artist95
Regular Member


Date Joined Aug 2012
Total Posts : 22
   Posted 9/6/2012 12:36 AM (GMT -6)   
Pumpkin as I'm typing I'm shaking! This is new for me. I just stopped all pills since my pills do not work for joint pain anyway. the shaking began a couple weeks ago. Maybe its the nerves going haywire I'm done guessing I need dx. I started Immunocal yesterday very good for cancer survivors. I hope you find some relief tonight. I don't sleep much and now I'm off of everything, not looking forward to nite. :( I will keep u all in my prayers tonight.

PumpkinMarie
New Member


Date Joined Sep 2012
Total Posts : 5
   Posted 9/6/2012 1:00 AM (GMT -6)   
Hello Artist..
Well I guess we will be shaking together tonight..as I am also. Most nights I get 3-4 hours sleep..but not good sleep..tossing n turning alot.. I just took my nightly vicodin..so hopefully I'll be able to sleep soon....Yes...you do need a DX... do you take any supplements? I hope you can get some sleep tonight.. You will also be in my prayers... :)
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, October 24, 2014 4:31 AM (GMT -6)
There are a total of 2,250,062 posts in 250,296 threads.
View Active Threads


Who's Online
This forum has 157500 registered members. Please welcome our newest member, Sapper75.
226 Guest(s), 7 Registered Member(s) are currently online.  Details
THE HAPPY TURTLE, exilescot, dmacell, Stills, Jo-nock, Lonelysoul, MrMattyMatt


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer