severe flare up after surgery. please help!!

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Nal
Regular Member


Date Joined Jan 2006
Total Posts : 409
   Posted 1/14/2013 5:34 PM (GMT -6)   
I dont know if I am losing my mind or what is going on!!  I had to have an emergency apendectomy last Tuesday.  The appendix was not ruputured but was inflammed.  They gave me IV Levaquin for an antibiotic during the surgery, general anesthesia and then I had a combo of morphine for pain in the beginning and switched to dialauded and morphine later that evening.
 
I have been living a nightmare ever since!!  Every symptom I have ever had has come back and increased ten fold!!  I have severe dizziness, brain fog (feel like I am in a cloud), heart palpitations, skin burning pain, muscle aches.  I dont know what to do.  I have contacted the surgeon.  They cant find any cause for any of this other than possibly a Fibro flare up along with a Lyme disease flare up.
 
Has anyone else gone through something similar to this either from surgery or from antibiotics?  I feel like death right now :(.  Thanks for listening.
 
Nancy
 

applevenus
Veteran Member


Date Joined Aug 2011
Total Posts : 934
   Posted 1/14/2013 5:39 PM (GMT -6)   
You said you contacted the surgeon. Did you go in or just talk to them on the phone? I think I'd try to drink water as much as possible in the meantime and be seen. So sorry you are going through this, I wish I had some idea how to help.
47F, Fibromyalgia, Vitamin D deficiency, Sleep Apnea/CPAP therapy, Tinnitus (ringing ears), allergies/multiple chemical sensitivities, possible Chronic Fatigue & occasional IBS symptoms. Poster child. lol
I take a bunch of vitamins daily. Flexeril on an as needed basis.

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5514
   Posted 1/14/2013 5:41 PM (GMT -6)   
Nancy,

Well, interestingly enough, there was a thread on this a few weeks ago...several people (including me) had stories of problems with Levaquin. My mom was given it in the hospital, and literally was out of her mind until it got out of her system. Didn't know where she was, I'm not sure she knew WHO she was...but paranoiia was the overriding emotion.

People react so differently to things. I would get documented all the things you took, and see if they can't pin it down.

Sorry you're feeling so bad. Hope things improve for you soon! I had my appendix out too - not fun.

Debbie
Moderator, Fibromyalgia Forum

Fibromyalgia, herniated disc L4-5, (recent discectomy), DDD, Hashimoto's thyroiditis, IBS, migraines, tachycardia, hearing loss (probably Menieres) with balance issues, chemical sensitivities

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 409
   Posted 1/14/2013 6:06 PM (GMT -6)   
Thanks.  I did go in.  Ive had horrid reactions to antibiotics in the past similar to this.  I dont understand why?
 
You all said there was a thread on this recently?  Do you all remember what it was called?  Thank you.  Im so scared!  Im hoping this will get out of my system quickly.  I cant take this much longer. 

Luvzminis
Veteran Member


Date Joined Apr 2008
Total Posts : 1828
   Posted 1/14/2013 8:36 PM (GMT -6)   
I had an emergency surgery for a burst appendix a couple of years ago and was hospitalized for 6 days with drains, tubes, etc. Not sure what they gave me for pain relief, but I didn't have any problems. I had IVs "like crazy" to flush the toxins out of my system. Perhaps (likely?) you are having a bad reaction to the meds, and maybe even an allergy? Just guessing.
Yes--I hope, too, that it will get out of your system quickly. Don't hesitate to ask (and ask again) for medical help until you are feeling better.

Shygal122
Regular Member


Date Joined Jan 2013
Total Posts : 34
   Posted 1/14/2013 9:59 PM (GMT -6)   
Honestly, there are so many things that can set off a flare up I wouldn't know which from the ones u mentioned, is the culprit....but I can tell you a week ago I was on antibiotics for only 3 days and as I finished my last dose, I experienced the worst flare up ever! I think anything that changes our flow is going to cause a flare up, let it be foreign body, meds, stress, weather etc.

I just pray, I pray hard that they find something fast!

Feel better and please keep us posted! Xoxo
Fibromyalgia Dx: 2011 :(
Gastritis, GERD, Vit D deficient

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 15131
   Posted 1/14/2013 10:06 PM (GMT -6)   
It could be the Levaquin. My niece was given that medication for a bad cold and she ended up bed-ridden for five weeks. She had to have her mother come from Serbia to take care of her two children. She had horrible muscle pain and it took her a while to get back to normal. Google Levaquin and you will see some people have a lot of problems with that medication. Others, on the other hand have been helped. If you are still taking that, perhaps they can switch you to a different antibiotic...one you know you can take successfully. It's worth to ask anyway.

I just googled Levaquin at Drugs.com and some of your symptoms are there so you might want to read that. You seem to have several of the side effects of this medication. I'm on my iPad so I can't put a link in for you.

I hope you start to feel better soon.

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 1/14/2013 8:14:17 PM (GMT-7)


Nal
Regular Member


Date Joined Jan 2006
Total Posts : 409
   Posted 1/14/2013 10:44 PM (GMT -6)   
Fortunately (or unfortunately) I have had every one of those symptoms before. Now they All hit me at once!! I have herd the side effects of it. Now I was only on it the one day during surgery in my IV. Not on any antibiotics now. If it was an allergic reaction wouldn't I maybe have different symptoms other than symptoms are common to me?

I asked the dr about an allergic reaction. He said that if I was having one I would also have a rash with this drug. Apparently there's nothing they can give you if it's an allergic reaction? Is there something they can test? Could it also be yeast? I have an alternative dr who thinks its toxin build up. I just don't know. I'm so confused

Is skin burning pain common with anyone else here? I took my Ativan earlier. It's finally kicking in. I just dont know what to do anymore. I'm trying to stay calm but it's hard!! If it's a herx, are these some common symptoms? How long can it last? Any herbs that I can try to get me through it?

Thanks guys so much. I really appreciate the support

Woolrow
Regular Member


Date Joined Jan 2010
Total Posts : 102
   Posted 1/16/2013 12:48 AM (GMT -6)   
I had an appendectomy for a burst appendix several years ago. Just sayin that it took me a very long time to recover. Months. I'm not sure all I was given but for sure after the surgery, I was Cipro and Flagell. Both these made me feel much worse. I started feeling a bit better when I was off those two meds.

It was a very bad experience for me, something I am reluctant to talk about
because they shamed me in the hospital and treated me like a common street junkie. I was SO sick I could not even defend myself. And DH was simply scared and bewildered.

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 409
   Posted 1/16/2013 1:44 AM (GMT -6)   
I'm so sorry they made you feel that way. I'll never in a million years understand why people have to look at those of us who suffer from Fibro and / or Lyme disease like we're nuts or completely wrong. Believe me there are so many days that I actually wish I had an illness that was fully recognized by the medical community and one that was much more manageable.

I do see a neurologist on Thursday. I'm holding out no hope but were trying to make sure that this latest bout of severe spaciness and light headed issue is not actually something else going on

Feedingmynerves
New Member


Date Joined Jan 2013
Total Posts : 12
   Posted 1/16/2013 12:18 PM (GMT -6)   
Nancy, I have read your posts and feel without a shadow of a doubt that you are suffering from fluoroquinolone poisoning. This happens when sensitive systems react to a harsh class of antibiotics called fluoroquinolones. This includes drugs like Cipro, Levaquin, and Avelox. They are neuro toxins that attack our nerve coverings and wear away their protection from things in our diet or environment that trigger other reactions. This leads to issues like fibromyalgia and problems with all areas of our nervous system, joints, tendons, etc. I am not a medical professional but I am an anatomy teacher who has recently fallen victim to their damaging effects. I was floxed in June of 2012 after 5 pills of Cipro. Doctors are not ready to credit these drugs with causing our problems. Your problem after your surgery was definitely from the Levaquin and possibly because you have been previously floxed before with a similar drug. This may even be the root of why you are dealing with fibromyalgia in the first place. I would do some diligent research in this matter. The things you do in the coming days will help lesson the effects of their damage and begin to heal you. This may take time, lots of patience, research and I believe prayer. Dietary changes are a MUST and especially in the area of the meats you eat. Most of our food industry in laden with antibiotic ridden meats. Choose organic and antibiotic free dairy and meats, and cheeses. Drink tons of water and start a detox program soon. You can do this with your diet. I have found huge support with a Facebook group called Fluoroquinolone Toxicity Group. They have saved me. I am healing slowly but doing it the right way. Avoid any NAIDS (ibuprofen, Advil, alive, ect) As these will worsen symptoms and do more damage. Please mark your medical files allergic to FQ's and tell your pharmacy as well. I have tons of research and info to share And just want to help others. I searched this forum because I suspected there were people on here that were dealing with the unknown and your post caught my attention. Please know that I want to help you get better. That's my mission now that I have learned so much. God bless you in your healing.
Holli

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 409
   Posted 1/16/2013 1:22 PM (GMT -6)   
What's best way to start detoxing?

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 409
   Posted 1/16/2013 1:24 PM (GMT -6)   
I have taken cipro in the past with no problems at all. Yes I love to learn mOre on how to heal from this. We have to use a food bank for food because of limited income so all organic is not a possibility. Where is a good place to start?

beautymom5
Regular Member


Date Joined May 2009
Total Posts : 84
   Posted 1/16/2013 1:58 PM (GMT -6)   
Nal..start making your bread home made. I would make anything you can from scratch. also add some vitamins and minerals to your diet.

Vit D, B and magnisuim is a must and also calcium. If you are already take these I would take a little bit more. D-Ribose is good too.

Editing to add..Essential oils in Bath work wonders. I love taking a hot bath with Epsom Salt and Frankincense and myrrh and Lavender. Sometimes I use just lavender and the Epsom Salt.

Post Edited (beautymom5) : 1/16/2013 12:01:04 PM (GMT-7)


Feedingmynerves
New Member


Date Joined Jan 2013
Total Posts : 12
   Posted 1/16/2013 4:24 PM (GMT -6)   
I agree with Beautymom5. I would begin eating as clean as possible. This means as close to the earth as possible, eliminating all of the chemical junk that's put in our food. This would include artificial ingredients, food colors, preservatives, processed food, non-organic meats, etc. It sounds hard, but simple planning and label reading and you'll have it all down in no time. I don't like to spend a ton on groceries and I have managed this eating style for me and my whole family without breaking the bank. My husband just had a stent put in his heart at 38 years old so it's really helping him too. I eat salmon (wild caught, because farm raised fish has antibiotics in it), bison, deer, shrimp, crab legs and anything that hasn't been touched by man and chemicals before it was caught. I drink filtered water (not tap to avoid fluoride) with limes or lemons squeezed in it. This is an excellent detox drink. Start to supplement with Magnesium via a pure route, not a hard pill form since those contain titanium dioxide and other chemical binders. Eat lots of spinach, cruciferous vegetables and healthy fruits. Cut out white flour, sugar, rice, breads, pastas and substitute with things made with whole wheat flour, whole grains, unrefined sugars. Cut out caffeine, alcohol, and body products with chemicals. This may all sound extreme initially, but as you start to find your own triggers this will all make more sense. I was able to add back my morning coffee at month 4 with no problem. Initially it made my whole body twitch and burn. Your body and liver are working overtime to rid your body of this medicine and filter the continued contaminents that we keep placing inside it. Anything you can do to take the load off your liver is a huge plus. Take epsom salt baths when you can after your surgery restrictions are lifted. This will give you a natural form of magnesium to help bind to the levaquin. Don't go crazy on supplements of every kind you hear about. It's always best to get your vitamins and minerals through your food the way it should be given. I do agree with getting your D and B vitamins because they help the nervous system work properly and Levaquin depletes these. Make smoothies with lots of berries, bananas, spinach, organic yogurt, and things you like. This will give a very good way for the nutrients to get into your system. Use extra virgin olive oil and unrefined organic coconut oils in your cooking. I even use the coconut oil as a lotion after baths. Watch your deoderants, toothpaste, body products, perfumes for chemicals. I have made my own cleaning products, and have switched a ton of unhealthy products to jumpstart the healing. Don't let all this be sensory overload. That will only add to the anxiety and depression that this situation has already brought to our bodies. Meditate, stretch, keep moving as best as you can to aid in circulation to your healing nerves. Be careful with strenuous exercise or movement while your tendons and joints are temporarily compromised.

Check out this link from my support group. Its a primer for floxed individuals. There is a 2nd and 3rd one available if you need it. I would encourage you to check out the group page. Tons of vital information and a very supportive group of individuals that know exactly with what you are dealing with. Look for Fluoroquinolone Toxicity Group.

http://www.facebook.com/groups/46690244194/doc/10151143388994195/

Continued healing,
Holli

CatKittyFish
New Member


Date Joined Aug 2012
Total Posts : 17
   Posted 1/21/2013 12:22 AM (GMT -6)   
so I saw someone post about vitamines...what do you do if your alergic to vitiamine B?

Feedingmynerves
New Member


Date Joined Jan 2013
Total Posts : 12
   Posted 1/27/2013 3:58 PM (GMT -6)   
Vitamin B is found naturally in meats, shellfish, cheese and egg yolks. If you are allergic to a supplement form of vitamin B it's probably from the binding agents in the pill form. Use a natural source of B from your food or get a natural gummy vitamin that excludes harsh ingredients.
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