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keener
New Member


Date Joined Jan 2013
Total Posts : 8
   Posted 1/26/2013 4:38 PM (GMT -6)   
Hey everyone I am new here.  I have been keeping an eye out on the Alzheimers forum for advice for they FIL but came across this forum (thank God)
 
I have NEVER been diagnosed with Fibro (no insurance) but my mother and sister both have it
 
My pain is EVERYWHERE but the worst part is my hair...why does my hair hurt? sometimes it hurts to even wash it? I am also losing so much hair?
 
My body aches constantly and all i wanna do is sleep.
 
without a prescription what can I take to help all the pain!
 
I do take motrin and vitamins
 
Thank you all for your help!

Kaylem
New Member


Date Joined Jan 2013
Total Posts : 8
   Posted 1/26/2013 4:48 PM (GMT -6)   
Hi there, am new myself. Do you mean scalp soreness? I definitely suffer with that! Feels like my head is covered in bruises!

Unfortunately if its fibromyalgia (which is does sound like although other illness's have similar symptoms) you might need prescription pain relief. I tend to avoid pain relief mostly because I've become immune to it over the years. Now, I find ibuprofen more helpful than tramadol. When I was in the US (I'm not US resident) before Christmas I picked up a bottle of Motrin PM which I have found great for combating pain and getting a bit of sleep.
There are alternative treatments to try, such as the alternative medicine route. Someone might be able to point you in the right direction. Have recently started taking a Vitamin B12 supplement and am going to start on MSM, magnesium, and turmeric capsules.

You have my sympathies. xx Currently am in a fibro flare for the last three weeks. Just started on a new prescription medication called Cymbalta and the side effects are horrible on top of the fibro flare.

keener
New Member


Date Joined Jan 2013
Total Posts : 8
   Posted 1/26/2013 4:53 PM (GMT -6)   
Yes I did buy MSM and magnesium seemed to help a LITTLE.

Yes I mean my scalp is sore...UGGGG its terrible and happens for 2 weeks before I start my menstrual cycle it seems. Its such a bummer to live like this! I want to crawl in a hole and never come out...

Kaylem
New Member


Date Joined Jan 2013
Total Posts : 8
   Posted 1/26/2013 5:19 PM (GMT -6)   
Yes, I understand! I have other symptoms (night sweats/vivid dreams/severe cramps) at the time of the month. . and they start from about a week before.. so really most of the month is spent in pain.

Also I find if I get a good day - and a good day means I'm still in pain but I can grit my teeth and try to distract myself from it - that people think "sure she's able to be out and about and she's in a good mood, sure there's nothing wrong with her" I almost feel like theyre thinking I'm a fake then when the following day it hits me like a truck again!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12297
   Posted 1/26/2013 7:26 PM (GMT -6)   
Try taking Vitamin D and folic acid.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Luvzminis
Veteran Member


Date Joined Apr 2008
Total Posts : 1887
   Posted 1/26/2013 11:04 PM (GMT -6)   
I once told my doctor, "Even my hair hurts!" and he said it's likely nerve pain.

I take Neurontin, and that seems to help me.  Perhaps you could get a prescription?
Otherwise, sometimes just warm steaming can help, or standing in a fairly warm shower.
And though it may sound a little silly, sometimes I wear a winter cap, even in the house.  Warmth seems to help.

Hope your pain is better soon!!

Post Edited (Luvzminis) : 1/26/2013 9:07:22 PM (GMT-7)


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5557
   Posted 1/26/2013 11:37 PM (GMT -6)   
Hi, Keener, and welcome.

Did you notice our 1st thread at the top of the list, "Fibro 101"? It might answer some of your questions, or at least help.

Scalp pain is one I haven't had so far (I probably shouldn't say that, because now I will!) but just about everything else hurts, or has at one time or another. From what you've described, it certainly could be Fibro...and sometimes meds do help. I know I'd be a lot worse off without them....but then, some people can get by without them, and of course, that's great.

Anyway, I hope you'll post some more...we are a caring bunch.

Debbie
Moderator, Fibromyalgia Forum

Fibromyalgia, herniated disc L4-5, (recent discectomy), DDD, Hashimoto's thyroiditis, IBS, migraines, tachycardia, hearing loss (probably Menieres) with balance issues, chemical sensitivities

Monic
New Member


Date Joined Mar 2013
Total Posts : 1
   Posted 3/2/2013 1:41 PM (GMT -6)   
I am sure there are many reasons for hair to hurt.  In my case, I noticed it when I was taking anti-histamines to dry up sniffles while I had a severe cold.  Since I first observed this, I have confirmed several times that drugs like Allegra do seem to make the hair sensitive.  I also noticed that a small cut on my forehead was extremely sensitive to the touch after taking anti-histamines.

DeniseRN
New Member


Date Joined Mar 2013
Total Posts : 1
   Posted 3/2/2013 4:01 PM (GMT -6)   
I also have a very tender scalp with my fibro. I've noticed that certain shampoos and conditioners make it worse and washing my hair too often makes it worse. Feels like a million pinpricks.

Fishchris
Regular Member


Date Joined Feb 2012
Total Posts : 446
   Posted 3/2/2013 8:03 PM (GMT -6)   

Hello Keener :)

First off, technically speaking, hair is not living tissue, and has no nerves, so your hair itself can't really hurt.

But heck yes, Fibro can cause your scalp to be super sensitive ! Mine used to hurt really bad at X's, just from trying to comb my hair. You didn't mention it, but I also had spells of such severe itching, I would just litterally try to scratch my hair out ! > And no, I did not have dry scalp / dandruff. In fact, my scalp gets really oily pretty quickly.

Thank God this ^ is one of the many Fibro symptoms I used to get often, which I have not had any issues with at all, in more than 2 years now.

I didn't really do anything with my scalp specifically in mind, to fix this problem. It just seemed to go away with many of the rest of my symptoms, as I worked myself back into shape.

Peace,

Fish

 

PS, Now I'm bald :) Not sure how that would have worked before 3 years ago... Shaving might have been too painful to bother with ?

 

 

 

 


On a mission to help at least one person with Fibro / IBS, knock it into submission like I have. More than one person would be even better though ;)

mrsbugzy
Veteran Member


Date Joined May 2012
Total Posts : 641
   Posted 3/3/2013 4:37 AM (GMT -6)   
Yup. Hair hurts..or as it was pointed out, not hair itself, but scalp, and I think some days I itch it sooo bad that i expect skin to come off in my hands!!
I am trying to be more diligent about what shampoos I am using, as I like to trade up to keep hair from getting weighed down, or greasy, or what have you...
I have had my hair VERY short, and now is long again..and I am finding the longer, the more it hurts. I am not sure if it is from the weight, or what..maybe because I have to brush it more, keep pulling it up out of my face..but, my husband likes it long..so I am trying to leave it. I know that sounds dumb, but he has put up with so much because of my health, I feel it is only fair to him.
So, maybe going short would help, as the longer it gets the more weight you have pulling on the root..and keep an eye on your shampoos.
Good luck!
celiac disease,
hypothyroidism for 20+ years
total colectomy with ileo rectal anastomosis 1/12
newly diagnosed with fibromyalgia

Doc~ "you don't understand, and ostomy bag is life altering"
Me~ "NO, you don't understand, an ostomy bag is a bag of crap you deal with. Life altering is not being alive to be with my family"

captainstefanie
Regular Member


Date Joined Feb 2013
Total Posts : 21
   Posted 3/3/2013 9:39 AM (GMT -6)   
my scalp hurts like that quite often as well. i always figured it was nerve pain. the worst is when i accidentally allow my scalp to get sunburned. a sunburn on top of that nerve pain is awful! i try to put sunscreen on it when i know it's exposed and i'm going to be outside for a while. i shed a good amount of hair every day but i've always been like that so i'm not sure what, if any, is the cause for that.
bipolar II, generalized anxiety, fibromyalgia, 18 year headache sufferer (migraines, tension headaches, cluster headaches, basically any kind of headache) significant degeneration of thoracic and lumbar spine, hypothyroidism, occipital neuralgia

captainstefanie
Regular Member


Date Joined Feb 2013
Total Posts : 21
   Posted 3/3/2013 9:40 AM (GMT -6)   
also, the title of this thread made me giggle a little because in one episode of sex and the city charlotte is so hungover that she says her hair hurts :)
bipolar II, generalized anxiety, fibromyalgia, 18 year headache sufferer (migraines, tension headaches, cluster headaches, basically any kind of headache) significant degeneration of thoracic and lumbar spine, hypothyroidism, occipital neuralgia

Me-Ouch
Regular Member


Date Joined Dec 2012
Total Posts : 90
   Posted 3/5/2013 1:59 AM (GMT -6)   
oh Wow I get a tender scalp all the time, it's so often, at least once or twice a week. What I do is contrary to what others have said, I vigorously massage it with shampoo in the shower, and find that the massage helps by the next day. My hairdresser has known me for so many years, I recently discussed this with her. I asked her to check my scalp to see if she saw anything weird and she said it looks very healthy and assumes it's from the fibro. Sucks, doesn't it? It's very painful and I've had it for years and just since joining this site realized it's probably fibro-related.

As far as medications, I don't think you necessarily have to do prescriptions, I don't, because if there are any bad side effects, I get them, so I try to stay off of as many meds as I can. I do over the counter extra strength aspirin and tylenol, plus I do take 2000 i.u. daily of Vitamin D Supplements and use heat as much as I can. Hot soaks in the tub, hot showers, heating pads and being that I live in Chicago (brrrrrr) I have an electric blanket on my bed too. Heat is my friend yeah
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