Foot/Ankle pain & stiffness, itching/burning thigh

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Lisa_Michelle
New Member


Date Joined May 2013
Total Posts : 1
   Posted 5/5/2013 12:11 AM (GMT -6)   
Hello,

I was diagnosed w/ Fibro about 8 months ago. Just wondering if the following symptoms I've been having for several months now is likely related to Fibro or not..wondering if others w/ Fibro experience this?

Started out with subtle stiffness to both ankles when getting out of bed in the morning, so stiff I'd walk like a duck. The past few months it's progressed to a lot of pain to both feet (more the to left), so tender when walking, sometimes throb/ache so bad (if I've been on my feet for more than 1 hour) that I can't stand it. Such tenderness to the arches of my feet (they are very high arches). When I get up from lying down or sitting, so much pain to feet, ankles, achilles tendon area. Have to walk down stairs slowly and with feet sideways as they just don't bend that well at ankle.

about ?5-6 months ago began waking up in the night with the most excrutiating hot burning pain to my outer left thigh; felt like someone had pour boiling water on it. The intense burning would last about 15 seconds, I'd actually be screaming it was so intense. When the burning stopped, that area of my thigh would feel sort of numb and "fuzzy" feeling (reduced sensation). Had MRI of head, all good. Xrays of spine, all good. Upon reading, it seemed this was something called "Meralgia Paresthetica" and my family doc agreed. Strange though, I had no known risk factors for it. I experience this horrible burning almost everynight, it wakes me up and I hear myself screaming "no, no, no." It's not like a cramp that you can stand up and walk off. I also get a weird tingling, sometimes cold (feeling inside, not to the skin) to the sides of BOTH thighs.

3 months ago my feet were getting so bad and painful that I went to a Podiatrist. 5 minute appt, he tells me that I need expensive orthotics. Said I had symptoms "like" Plantar Fasciitis but that's not what I had. Told me I am an "underpronator", very high arches, walk too much on outside of feet. He was really fairly useless but good at taking my $550 for orthotics (which didn't help, by the way).

I then started physio, weekly for about 7 weeks. Physiotherapist felt I DID have Plantar Fasciitis. She felt the burning to thigh was due to knots in my Iliotibial bands in my thigh, she could feel lots of knots in them. I would nearly go through the roof when she would press on these areas. She acknowledged that I had major stiffness to ankles, poor range of motion, and felt that the issues with my feet were affecting my legs/thigh. When she'd work on my legs (she'd roll this hard roller thingy over the sides of thighs), it was so tender...and then I'd get very intense ITCHING to these areas.

I have almost constant intense itching to the areas from the sides of my hips down the sides of my thighs (both) to my knees. Very tender to these areas.....seems there's a fine line between major tenderness even when pressing on these areas, and the itching. I could scratch and scratch and scratch and I can't relieve the itch. No rash or redness to skin. And when I'm walking, I will get this sudden feeling of hot to the back of my heel and sides of my ankles. It's like a sudden blast of hot hot air. It's the weirdest feeling. Feels like someone is blowing hot air from a hair dryer right up close to these areas.

I'm going to try wearing night splints on my feet/ankles to see if that helps.

Some nights it's so hard to sleep, my feet almost feel like they're pulsating with pain. feels like every inch of the sides and undersides of my feet are so so tender.

I'm only 45 and live alone so I don't have anyone to help me. Being on my feet to do housework or get groceries, well I pay for it dearly. 30 minutes at the grocery store and I come home almost in tears, takes me hours if not days to put all of my groceries away (non-perishable stuff).

Doc has put me onto a new anti-inflammatory med but haven't noticed any real improvement with that and I don't want to have things feel better, then I over-do and we still haven't fixed the root cause.

I'm going to see a new Podiatrist next week (as 1st one so useless).

When I'm sitting in my vehicle driving, even for 20 minutes, then go to get out of vehicle, I walk like I have a stick up my butt, so much pain, feet so sore and stiff.

I have tried all kinds of orthotic type gadgets, expensive foot massagers, arch supports, you name it. I feel like an old lady.

Does all of these go along w/ Fibro?....or is it something else that's only exacerbated by having Fibro?

Post Edited (Lisa_Michelle) : 5/4/2013 11:17:37 PM (GMT-6)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12225
   Posted 5/5/2013 1:05 AM (GMT -6)   
I've had the same thing happen to my feet. It was planters facittis. The only thing that stopped the constant stiffness and pain was the following things:
1. Get some gel heel inserts.
2. Wear only flat shoes. Sneakers are the best.
3. Never go barefoot.
4. The foot splints at night are great!
5. Get a frozen bottle of water to roll under your foot 15 mins a foot in 5 minutes spells.
6. Get a tennis ball and roll it around on the floor keeping it under your arch and heels.
7. Sit in a chair with feet flat on the floor. Rise your foot up on the toes and lower. Repeat for 5 minutes. Then switch and raise your toes and lower. Repeat for 5 minutes.
8. Get a rubber stretch band and use it to pull your toes up with your leg extended.
9. Ask your doctor to let you have ultrasound therapy on the tight muscles in your foot. This I think helped me the most. It feels nice and tickles a little. :)
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

MysticSoul
Regular Member


Date Joined Feb 2011
Total Posts : 42
   Posted 5/5/2013 7:15 AM (GMT -6)   
HI Lisa

I tried to email you on this but you don’t list an email address on your profile.

Last July I had been walking about 5 miles a day and cycling two or three hours a day. Woke up one morning with right Achilles pain. Then it spread to the whole foot. A week later the left foot then two weeks later woke up with pain in every cell of my body.

I had been a runner and top athlete all my life. I could walk/hike 20+ miles a day with no pain. Now I take the electric carts at the stores. My feet hurt so bad that just getting up to go to the bathroom makes me want to not move and pee my pants.

I did physical therapy for 6 weeks, orthotics and lots of stretching. One book I am reading says you have to stretch 8 to 10 times a day.I did night splints for a week and they did not help and kept me awake – like wearing combat boots to bed.

The most probable diagnosis is TMS (Tension Myoneuronal Syndrome) which is caused by the brain and nervous system.

If you email me I would love to compare notes and what might work in the future....
Had recovered for many years and living a great life. Now back worse than ever since 2007 - total hell 24/7.

MysticSoul
Regular Member


Date Joined Feb 2011
Total Posts : 42
   Posted 5/5/2013 7:18 AM (GMT -6)   
Oh....a lot of foot pain comes from tight calves and hamstrings
Had recovered for many years and living a great life. Now back worse than ever since 2007 - total hell 24/7.

almost medfree
Veteran Member


Date Joined Jan 2004
Total Posts : 1783
   Posted 5/5/2013 9:13 AM (GMT -6)   
Organic sesame massage oil has helped my extreme itch and burning. I have this on my extremities and my back.
Fibromyalgia, CFS, MCS, scoleosis, herniated disks, spinal stenosis, osteoarthritis, sjorgens, sleep apnea, asthma, allergies, headaches. On a regiment of different supplements including sleep supplements. I eat nutritiously and do not eat foods I'm sensitive to and ever since a back injury triggered my fibromyalgia, I have been doing prescribed stretches twice daily.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12225
   Posted 5/5/2013 3:35 PM (GMT -6)   
MS,
I'm also wondering if you're suffering from the same condition a friend of mine had. All of a sudden she started having problems with her Achillies tendons in her legs. She had to have a type of surgery that readjusted the tendons.

PS. I don't give out my Email due to some problems I had awhile back with certain people.
You can ask me here.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

sl
New Member


Date Joined Jul 2013
Total Posts : 1
   Posted 7/17/2013 12:43 PM (GMT -6)   
Hi I have been suffering with the same problems for 8 years I have been to many specialists and doctors I had plantar
fasciitis in 2001 and had to take off from work for 6 weeks it went away after a steroid shot and wearing orthotics for 6 months then in 2003 I started to notice pain, stiffness and weakness in my legs and thighs but it was not so bad that I could not function but it has gotten so bad that I had to go to down to work 3 days a week  because of the  pain as well. and no one really seems to know what it is they say it's fibro. But my symptoms are exactly as you described and I thank you so much for the description. I have a DR appt. tomorrow and I will get a referral from him for the podiatrist hopefully I get some relief because I can't sleep because of the burning and itchiness. I also take certain meds and they don't really work. 

sheken50
New Member


Date Joined Jul 2011
Total Posts : 4
   Posted 7/18/2013 7:39 AM (GMT -6)   
All the above symptoms I have to told I've to live with it my feet are that bad some days I walk around on my knees in home having bad pain with lower back at the moment went back docs again go most months sure they must be p... Off with me pain clinc was waste of time injections in spine never helped told to paste my self when pains bad I laughter do they think we carry on in chronic pain I do want I can to be honest very little now days well yet another med anyone taking naproxen one one drug on top of 7 others only started them yesterday helped me sleep well unsure as of yet they are helping pain

Luvzminis
Veteran Member


Date Joined Apr 2008
Total Posts : 1864
   Posted 7/18/2013 11:36 AM (GMT -6)   
My feet are very sensitive, and I have very high arches. It has helped me to wear soft socks to bed, to keep them warm so they don't cramp. Although, it's hot out now, and we have no AC, so I wear very light cotton socks to bed, and my feet are so 'touchy' that they still cramp often in the morning.  Yesterday I had a toe cramp in my left foot, and cramping in my arch in my right foot. rolleyes

I used to have specially made orthotics, which helped me a lot. But in recent years, I can't stand the hard surfaces of those orthotics, so I buy soft arch supports at Wal-Mart, in their foot care section. I especially like the lavender-colored ones, as they are thick and offer good support. The brand is Profoot.

I have also had good luck with socks which have some support in the arch. And, I love my tennis shoes which have gel soles. I sometimes buy the Wal-Mart generic brand of 'Odor Eaters,' and they help sore feet, too.

Here's a little more info from a recent post (scroll down to my post):
 
I have tried a few things in the FootSmart catalog, too.  The arch bands help, but they can sometimes get too tight, when my feet are acting up.

I hope this helps a bit!! Sore feet are not fun!  I still struggle with walking a lot on hard surfaces, especially sidewalks and in bigger stores.
"Don't let the fear of striking out hold you back." Babe Ruth

Post Edited (Luvzminis) : 7/18/2013 10:39:16 AM (GMT-6)


Luvzminis
Veteran Member


Date Joined Apr 2008
Total Posts : 1864
   Posted 7/18/2013 11:59 AM (GMT -6)   
sheken50: I took naproxen after my appendix surgery in 2011, and a month later, ended up with nasty gastritis. I can't say what specifically caused my gastritis/pain, but I later learned NSAIDS could lead to gastritis. I now take Tylenol for pain, which seems to be better for my inflamed stomach.
"Don't let the fear of striking out hold you back." Babe Ruth

liz574
Regular Member


Date Joined May 2013
Total Posts : 186
   Posted 7/20/2013 5:35 PM (GMT -6)   
Lisa Michelle, I had that burning thing just one night and it was excruciating and the cold thigh thing for a few days...thankfully it got better soon, but my feet developed an achy, cold, and with a sorta tingly sensation going on every single night for months. The simplest thing alleviated it....a 20 minute foot massage by an experienced medical massage therapist. That's it, that's all it took! It was trigger points causing all of that nonsense. For the cold, I try to keep my feet warm as much as possible, along with the weekly foot massage seems to take care of things. You can also learn to reduce your trigger points yourself (self-massage). Check out a book called The Trigger Point Therapy Workbook.

Luvzminis
Veteran Member


Date Joined Apr 2008
Total Posts : 1864
   Posted 7/24/2013 6:33 AM (GMT -6)   
Just adding that I sometimes buy products from Dream Products, Inc., and they have several products to help with foot problems (hope it is okay to mention that here; if not, moderators please remove). You could do a search on this.

I like, too that they have a paper catalog, which I prefer to shopping online. My neck can't take the computer for too long!

Good luck!
"Don't let the fear of striking out hold you back." Babe Ruth

hoy1
New Member


Date Joined Oct 2013
Total Posts : 1
   Posted 10/1/2013 5:47 PM (GMT -6)   
I too have been DX with Fibromyalgia. My Neurologist does not agree with the DX. I was told to walk, it's the best treatment. I walk 3-5 days per week, 3-5 miles per day. I am still in constant pain. My biggest issue is SEVERE leg pain at night. It starts sometimes as soon as I go to bed & other nights not until around 3 a.m. But, once it starts I can no longer sleep. The pain starts in my thigh & goes all the way down to just below my knee. Only my right leg.  The only medication I am on is Lyirca for the Fibro. This has been going on for the last few weeks. I am in my 7th week of walking. I have seen no relief from the Fibro. I do have relief from the Neuropathy though. I am 51 year old female. Need to lose about 15 more pounds. Have lost 9 since I stared walking. So, I don't think it's from my weight. Unlees I'm just naive & I am more overwieght than I think. Help ANY suggestions would be GREAT!!!!  mad

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12225
   Posted 10/1/2013 5:54 PM (GMT -6)   
You might have sicatic going on. You might have a pinch nerve in your back causing the shooting pain in your leg.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

fibropatty
New Member


Date Joined Oct 2013
Total Posts : 2
   Posted 10/8/2013 12:55 PM (GMT -6)   
Liz574 had it right all along! There is no question that you are suffering from trigger point pain. You can go to either a trigger point therapist (physical therapist or specially-trained massage therapist well-versed in myofascial pain relief) or you can save the money and treat yourself using The Trigger Point Therapy Workbook (latest edition released in September 2013).

If you use the book, read & understand the first three chapters, then go to the part of the book that covers the location of your current intense pain. Look for the illustration that shows cross-hatching on the spot where you are feeling the pain. Then read the information referenced by that illustration.

The illustration should also show a black dot referencing the location of the trigger point causing your pain. Refer back to the illustration when you attempt to deactivate the trigger point.

In all likelihood, you'll be amazed to see your own experiences showing up in print. That happens a lot with this book. Follow the instructions to locate the muscle(s), and the trigger point(s) within the muscle(s) that are sending referred pain to where you hurt.

Do the treatment exactly as they instruct you and you should find your pain diminish within days and disappear within weeks. Then follow instructions to prevent re-injuring/irritating the muscles.

fibropatty
New Member


Date Joined Oct 2013
Total Posts : 2
   Posted 10/8/2013 1:19 PM (GMT -6)   
P.S. Intense itching of this type may not respond to inflammatory itching (like that caused by a rash or allergy) treatment. When pain gets severe enough, the nerves can switch from pain signals to itch signals which you are normally better able to handle. For pain masquerading as intense itching, you need to recognize and treat it as pain. Again, trigger point therapy is usually the fastest, and most long-lasting, avenue to relief.

In large part due to the rapid and global expansion of symptom-relief medications during the 20th century, and into the 21st century, we have come to have almost a 'knee-jerk reaction' to pain and other unpleasant symptoms. We don't really care about the cause...we just want to pop a pill and get symptom relief. Then we're 'happy.' The sad truth is that we often lose sight of the fact that are bodies were designed to give us these symptoms in order to prompt us to address the CAUSE, not the symptoms.

When trigger points in the fascia or body of a muscle cause you pain (and they frequently do!), it only makes sense to get rid of the pain by getting rid of the trigger points causing the pain. Taking pain medications only prolongs the pain, and allows the trigger points to become more difficult to deactivate. Use your common sense: find the cause of the symptoms, then remove the cause instead of fighting the symptoms and the symptoms will resolve on their own!

txcola
Regular Member


Date Joined Jul 2013
Total Posts : 134
   Posted 10/16/2013 4:49 PM (GMT -6)   
I too have foot and leg issues, cramping etc. I always thought it was from my fibro. I make sure my legs never get cold. I wear tights and socks to bed during cooler weather. Good shoes are a must. My absolute fave are from Merill they cost a fortune, but worth every penny.

Walking and stretching is the best for this. It is hard to do, but very necessary. If not doable, a hot tub works wonders.

varies_66
Regular Member


Date Joined Oct 2013
Total Posts : 32
   Posted 12/9/2013 2:05 PM (GMT -6)   
The worst is a few times a year my foot feels like it is getting stung by a bee every 10 seconds.

This weekend it was on top of the foot, other times the arches or heel. Regular sleep is not possible due to the pain, just lay there until I drift off and then awake shortly after due to feeling the pain in my sleep.

Only lasts for a few days.

varies_66
Regular Member


Date Joined Oct 2013
Total Posts : 32
   Posted 12/9/2013 2:05 PM (GMT -6)   
The worst is a few times a year my foot feels like it is getting stung by a bee every 10 seconds.

This weekend it was on top of the foot, other times the arches or heel. Regular sleep is not possible due to the pain, just lay there until I drift off and then awake shortly after due to feeling the pain in my sleep.

Only lasts for a few days.
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