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Date Joined Nov 2013
Total Posts : 1
Posted 11/19/2013 9:18 PM (GMT -6)
Hi everyone, I've been reading the forums lately but been holding back a little. My name is Jennifer, and I was "diagnosed" with FM a little over a month ago, but I've had symptoms for the better part of 10 years (the doctor tells me I have FM, but refuses to note it in my medical chart). I've also had migraines for the past 2 1/2 years. I've tried so many different things for the migraines (Zoloft, Wellbutrin, Depakote, Inderal, Imitrex, Fioricet) which of course did nothing. The doctor put me on Effexor, Neurontin, Robaxin, and Naproxen...which isn't helping. I'm of course allowed to take Tylenol and Ibuprofen...which have the efficiency of tic tacs. I've tried telling him that since starting this treatment plan, I've had more bad days than good (I've had 4 good days in the past 4 weeks). I'm more depressed, my body constantly hurts, I don't want to do anything but sit on the couch...and when I force myself to actually do housework I pay for it later that night. I've had a headache for the past 2 weeks straight (but just keep throwing Tylenol and Naproxen at it, I'm sure it will eventually work! /sarcasm). My marriage is starting to suffer significantly because my husband is now doing the bare minimum that needs done around the house, and I've considered leaving him and my daughter recently because I'm so tired of being such a burden. On top of everything else, I have a strong family history of Psoriatic Arthritis and Lupus...double whammy. But yet my doc doesn't want to explore any testing for either of these. So I saw him today for my monthly checkup and I told him that this isn't working...I'm feeling worse than I did before, and I have absolutely no pain control (unless I take the odd Percocet when I'm at my mom's house). His plan? Take Tylenol or Naproxen. I started bawling, telling him that none of these work, I could overdose on both before I even see a dent in my pain. Then I made the mistake of telling him that the codiene worked...and the 2 doses that I did take, I was finally comfortable (and energetic) enough where I could actually clean my house. Now he wants me to see a Psychiatrist instead because he feels that the majority of my pain is in my head, not my body.
I'm fairly knowledgeable when it comes to FM thanks to being in the healthcare field for the past 10 years, and both my mother and my grandmother having FM for the past 25 years. I try and do some light exercise, stretching, things like that, but these aren't helping. I'm at the end of my rope. I don't know what else to do. Why is it that the things that help the pain are the things that (according to my doctor) are 'absolutely forbidden' in Fibromyalgia? Why do I deserve to live my life like this? What happened to my right to have my pain as controlled as possible? What am I doing wrong? Should I just give up, and accept that there is no salvation to the pain I'm in, and just suck it up? Or should I just bail on this doctor, and try and find one that will actually listen to me?
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Date Joined Apr 2011
Total Posts : 3197
Posted 11/20/2013 12:05 AM (GMT -6)
Welcome! As I read your post I just want to tell you don't give up. There is hope in finding a better Dr. Your going to have stay strong and do some homework on finding one. You need to see a board certified rheumatologist who works with fibro patients and lupus. Many of them will work with you for pain control and if not they will send you to pain management. Sometimes it even takes a few rounds with rheumy Dr's to find the right one that works well for you. Go on line and look up the reviews on the Dr's and ask around.
Going to a psychiatrist is not a bad thing. I am so grateful for mine. My psychiatrist saw my severe pain and how bad my health was. She was the one that got my disability when no other Dr. seem to care. So I would recommend one. Depression is very common when suffering chronic illness. Pain will set off my depression. If you have the finances a therapist is great too. They can help mend that marriage. Psychiatrist mostly cares for your medical/mental such as prescript
ions. Therapist spends time working out issues in your life with you.
Many of us have been through many Dr's until we found the right one. So you have to take control of your health and find those caring Dr's. When I came to this forum I was desperate too. I received great encouragements and ideas that it turned my health around in a 360 degrees. I hope you can find strength and do the same.
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Date Joined Jul 2009
Total Posts : 14475
Posted 11/20/2013 1:58 AM (GMT -6)
I agree with angel. You need a better rhuemy. It wouldn't hurt to talk with a therapist. I see one now for coping skills in how to deal with the frustrations of being sick all the time.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors
When life throws you lemons....
Pick them up and throw them right back at them! :))
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Date Joined Jun 2013
Total Posts : 377
Posted 11/20/2013 5:06 AM (GMT -6)
Hello a good place to possibly find a doctor in your area whom treats FM. Go to www.fmaware.org
Click on the pink NFA button. under the resources column click on physicians directory. These are specific doctors in each state whom treat this. Yes you do deserve the right to be treated appropriately! Don't give up. Find some help so you can be more of the person you use to be for yourself and your family. Take care keep us posted.
Take Charge and take care,
If you always think the way you've always thought, you'll always get what you've always got.
DX with Fibro in 2001 Boo
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Date Joined Sep 2007
Total Posts : 41702
Posted 11/20/2013 6:34 AM (GMT -6)
Welcome to the fibromyalgia forum hon,
I too think a different doctor is in order, but I would see the psychiatrist. Especially if they are "Mind and Body". I got a lot of help from my psychiatrist. He prescribes a lot of my fibromyalgia medications. I see a DO for the pain though.
If you get a chance, check out the first thread on the forum called "fibro 101". It is full of all kinds of good information.
Take care, keep posting as it does help to get things off of your chest and mind.
Hang in there sweetie, this will get better...
Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression, allergies
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Date Joined Nov 2008
Total Posts : 5948
Posted 11/20/2013 11:22 AM (GMT -6)
I remember that desperate pain. Ugh. I sure feel for you.
I went through a long search for a doc who would take me seriously and really care enough to help me. I finally found one - an allergist/internal medicine guy, who diagnosed me (back in the early 90s) and has treated me ever since. He put me on Nortritpyline, an antidepressant, for sleep....that helped me turn the first corner. He was flat-out against narcotics for chronic pain at that time (except a few for extreme flares), and I understood that.
But as I've gotten older, and serious spinal issues have added to the mix, he has adjusted accordingly. He is reasonable, in other words. He looks at each patient as an individual. He always tells me the pros and cons of everything, and doesn't just throw the stuff out like candy, but he actually cares. I feel very lucky.
I agree with you 100% - in this day and age, no one should have to suffer the way you are! So I would say, absolutely: BAIL!
Good luck - I hope you'll keep posting, because we do care!
Moderator, Fibromyalgia Forum
Fibromyalgia, degenerative disc disease, discectomy L4-L5 - (w/lots of Sciatic Nerve damage), frozen shoulder, Hashimoto's Thyroiditis, IBS, migraine, dizziness (mostly from visual stimuli), elevated liver enzymes, tachycardia, hearing loss (probably Menieres).
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