Long time Fibro patient needs help!

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KeithF07
New Member


Date Joined Aug 2016
Total Posts : 8
   Posted 8/20/2016 5:23 PM (GMT -6)   
I also have cerebral palsy. I was diagnosed Fibro (and IBS) 15 years ago. Always been mostly manageable but the last week or so has been tough. Cramps (Mostly at belly button level), constipation (I can still #2 with "effort"), no blood in stool except for when I'm straining and I wipe (Bright red, just a little) and when I know it's a stressful time for me my cheeks tingle. August is a bad month for me because of family tragedy. Plus had some new issues stress me out the past month. I sleep OK. Not great.

I wake up feeling awful, then took a pain pill, a bath, and then bowled four games with no issues yesterday and walked about a mile and a half just to take a bus to and from.

Is it just all in my head?

Help!!

KeithF07
New Member


Date Joined Aug 2016
Total Posts : 8
   Posted 8/20/2016 6:25 PM (GMT -6)   
Cramps this morning. Bowel movements today. Then when I was walking in Walgreens and my dog that went OK.,

Now I'm sitting on my butt on my bedroom floor typing this and cramps are back. Below my eyes my cheeks are tingling again.

What the hell is wrong with me?

Luvzminis
Veteran Member


Date Joined Apr 2008
Total Posts : 2641
   Posted 8/20/2016 8:37 PM (GMT -6)   
Hi and welcome, KeilthF07! This is a great forum. Check out "Fibro 101" which is the very first post on the list--lots of good info.

So sorry you're dealing with all that. Have you seen a gastro doctor for the cramps? That might be a place to start.

I also found it helpful to see a neurologist. Since you mentioned tingling, it sounds like it could be something nerve-related.

I have fibro, and a secondary neuro condition. The neurologist's best guess was cerebral palsy, or something similar. I had MRIs and nerve conduction tests, among other tests, and things were inconclusive. If you don't mind sharing, could you tell me your symptoms for cerebral palsy---or are the symptoms so similar to fibro that it's hard to tell the difference? Just curious.

It seems the best way to deal with health issues we're just not sure of is to get them checked out. It eases the stress, too. I'm so sorry you had family tragedy, which no doubt would add to your stress. I hope you can take some time for yourself to revamp and do something relaxing, just for you.

Strange how some days can be so good and it can seem like maybe it's in our heads! I sure know that feeling. Then--wham--and something kicks up the symptoms again. I do appreciate those little breaks, though.

Hope the gastro doctor and/or neurologist can give you some answers. Keep posting here, and you should get others' input. Many (probably most) of us deal with odd symptoms at times, so we hear you and are here for you, too. Take care and best wishes.
"Don't tell God how big your storm is.
Tell the storm how big your God is."

KeithF07
New Member


Date Joined Aug 2016
Total Posts : 8
   Posted 8/20/2016 10:46 PM (GMT -6)   
I walked pigeon toed. That's basically it. I've had the tingling in my face during stressful times as soon as this started 15 years ago and was diagnosed with Fibro and IBS.

I haven't seen a DR for this for years. First go around in 2001 I was in the ER twice. And after that I went to a RA for tests to eliminate ALS. They gave me amitriptyline for sleep but it's been years since I've taken it. I've never had cramps this long. I'm just scared and I'm sure that doesn't help the stress level.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/20/2016 11:26 PM (GMT -6)   
Pain meds can slow down your bowels.
The blood when you wipe could be hemoroids.
Have you tried a daily stool softener?
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17463
   Posted 8/21/2016 6:00 AM (GMT -6)   
Hi, Keith, and welcome! How did your doctor determine that you have fibromyalgia? The reason I ask is some doctors will give this diagnosis if they don't know what is causing the problem. They should run a myriad of tests to rule out other illnesses like lupus and Lyme disease before a diagnosis of fibro is given. There is no good test for fibro. You have to have pain in all four quadrants of the body to be considered to possibly have fibro. That is the hallmark of fibro. You didn't mention that you had pain at all. Just being able to bowl four games makes me wonder. We also feel like we have the flu many times.

I would check with a gastroenterologist about the cramping. The tingling in the cheeks could possibly be nothing more than stress/anxiety symptoms but do get that checked out also.

Fibro 101...the first thread on the forum...has a lot of good info about fibro and you can see if this sounds like what you are experiencing. Good links would be Symptoms. What Else Could It Be, and A Thorough Explanation of Fibromyalgia.

Here is another link that thoroughly explains fibromyalgia. See if this sounds like what you are going through.

umm.edu/health/medical/reports/articles/fibromyalgia

I'm looking forward to hearing more from you. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

KeithF07
New Member


Date Joined Aug 2016
Total Posts : 8
   Posted 8/21/2016 8:17 AM (GMT -6)   
They diagnosed me when I was 31 after I thought I was having a heart attack after dealing with the stress after my Mom died. Everything was normal. Then a couple days later the flareup started again so they then gave a full MRI/CAT of my chest/abdomen. That was normal. So they gave me the amitriptyline to sleep/relax. Going down the tender points list kind of confirmed the Fibro because they matched me almost perfectly.

They said I had IBS after I told them about bowel issues I've had since I was a kid. I could be fine all day, than bam, I'm running to the bathroom. My brother and I refer to them as "attacks".

I'm also a "rocker" if you know what that term means, have been since I was a baby. In fact after I type a few lines of this, I stop, review what I've typed, rock a bit, and then resume.

You are right about the face tingling being from stress/anxiety, because that's the only time I get it and I've been stressing over this for two days. Like I mentioned earlier August is a bad month, it brings up terrible memories, and I have been dealing with issues a friend has had for a month as well. Also have some very minor stuff dealing with me. Nothing serious, just an inconvenience.

I've been eating pretty healthy (and nothing between meals, a weakness for me) lately and with walking I've been losing some weight (I always drop weight in summer because I walk more), but I was bad on Friday after bowling (sweet tooth) and had a couple Hostess and MnM's, and MnM's again yesterday. I don't drink much soda. I did have two Mt. Dew's Friday. But I mostly drink water.

Rarely drink booze, and only beer when I do. I've had two beers in August.

I don't not smoke. I live in Colorado and I don't even smoke THAT. LOL

Eating isn't an issue. No loss of appetite at all. Last night I took half an imodium and a muscle relaxer and slept for almost 7 hours straight, which is good for me.

Going to try to bowl again today, I'll be back later with an update.

Thanks for all the support everyone, I've never really talked to anyone about this before.

Post Edited (KeithF07) : 8/21/2016 12:08:58 PM (GMT-6)


KeithF07
New Member


Date Joined Aug 2016
Total Posts : 8
   Posted 8/21/2016 3:10 PM (GMT -6)   
OK....Back for my first update.

Haven't eaten much all day. But I did walk my dogs and then bowled and I just got home. Very little cramps today after I took a relaxing pill and half imodium last night. Haven't had to deuce yet, so we'll see how that goes later (I apologize for the TMI) .

I'm hoping I was just stressed out and bad eating was the main reason.

We'll see.

KeithF07
New Member


Date Joined Aug 2016
Total Posts : 8
   Posted 8/21/2016 5:26 PM (GMT -6)   
Ate dinner. That's never a problem. Just waiting to see if I have to do anything.

Sometimes I don't know what's worse, the IBS or the Fibro.

KeithF07
New Member


Date Joined Aug 2016
Total Posts : 8
   Posted 8/21/2016 6:59 PM (GMT -6)   
I guess the highlight of the day is I'm not cramping or constipated.

You can figure out the rest. LOL

KeithF07
New Member


Date Joined Aug 2016
Total Posts : 8
   Posted 8/22/2016 2:34 PM (GMT -6)   
Yesterday I wasn't regular at all. Today I am regular but the cramps are back.

Is this normal for IBS? Or is my stress/worrying doing this?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/22/2016 5:48 PM (GMT -6)   
Stress can make IBS worse.

You might have it and stress is making it worse.

If I was you I would talk to a gastroenterologist as soon as possible.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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