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Danibby
New Member


Date Joined Jan 2017
Total Posts : 2
   Posted 1/9/2017 9:13 PM (GMT -6)   
Hi my name is Dani and I'm a 31 year old female and mother of 3, I'm scared to death and majorly depressed. I started having symptoms that would come and go in 2011 but October of 2016 everything went bad. I have lost 24lbs and I'm in constant pain. I have terrible anxiety and just feel like it's never going to get better. I have seen a cardiologist and neurologist and Rheumatologist I just had an MRI of the brain and I'm waiting for the results. So far with all my blood work they have diagnosed me with fibromyalgia. I don't even know where to begin or really what causes my flare ups. I have no appetite and I ache constantly. A hot bath with help ease my pain but it's so weird I get so weak after a hot bath and I feel so sick it's all so scary. I hate medication and I'm so scared to start it please someone give me some insight.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17462
   Posted 1/10/2017 8:10 AM (GMT -6)   
Hi, Dani, and welcome! Fear! This is causing you all the anxiety and stress which causes more pain. I went through this in the beginning. I was afraid I was going to die and I too had three small children. It's a terrible feeling and you feel totally out of control. (Fibromyalgia is not a terminal illness. It's a pain illness.)

My doctor put me on Valium and I pretty much became a zombie and it affected my personality. But one day in church the sermon was on fear and the scripture used was the one you can find in my signature. I chose that for my signature because it has had such an impact on my life! Once I realized it was fear causing so much stress and anxiety I could recognize it for what it was and have now been able to kick it to the curb...along with that awful Valium.

They don't know the cause of Fibro but, as I implied above, stress and anxiety can make the pain worse. It is important to keep moving with fibro. If you sit or lay too much you will be stiff as a board and have more pain. Gentle exercise is highly recommended for fibro...things like walking, swimming, and yoga. I walk daily. When I started out walking I could only go four houses down and had to turn around and head back home if I was going to make it. But I didn't tell myself I couldn't do it. Instead I headed out the next day and could walk a little further! Pretty soon I was walking all over the neighborhood and enjoying the sites and the beauty all around me. When I got home I had less pain and more energy too! So I have continued walking and my body has thanked me for it.

I didn't want to take those high powered medications either because I have had negative reactions to medications in the past. I decided to go the route of over the counter medications and supplements and it has worked for me. But, what works for one doesn't necessarily work for another. It's a trial and error type thing but to me this was a good place to start. If I hadn't gotten relief, I would have tried the other medications because it would have been a quality of life situation for me.

Now you are wondering what I take. 😊 I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a muscle relaxer called Robaxin that has made a significant difference in my pain. The prescription for this tells me to take two tablets four times a day but I only need one tablet twice a day! It helps me and I don't get sleepy, can drive, etc. I just took what I needed to tamp down the discomfort. I don't try to be pain-free because I would have to take way too much medication. I also take krill oil and CoQ10 and both help with pain also. With all of the above I have lived successfully with fibro for nearly 29 years. My three small children are now all adults. I have done so much in my life and and have lived it to the fullest while having fibro. The more you focus on your life instead of pain, the pain will fade somewhat in the background. Put your life first...not the illness.

I also have a positive attitude. This has helped me so much...almost as much as medication. I count my blessings, realize things could be a lot worse, and am so thankful for all the things I can do. You have your children who will keep you active and busy. Believe it or not, it's a real blessing with fibro.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. There are links about magnesium malate and vitamin D3 and how they work in the body. Many of us are deficient in these nutrients and that can cause more pain. Also there is a wonderful link on how to maintain a positive attitude when you have chronic pain. All of Fibro 101 is good so do read it.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2055
   Posted 1/10/2017 5:08 PM (GMT -6)   
I got it worse as a young mother also..although i can remember some of the symptoms even from younger..

Its just important for you to know, that, with a drs. Help and self help you can feel better..

I worked until i had our daughters, then quit to be a full time mom..raised the kids,,always had lots of their friends over, did volunteer work, travelled some..i had to pace my work out sometimes differently, but once you find the things that work for you , you can managae much better.

Ask any questions, there are many great members here

Lj

Danibby
New Member


Date Joined Jan 2017
Total Posts : 2
   Posted 1/10/2017 7:54 PM (GMT -6)   
I'm
Sitting here in tears about how in detail your response was to me. Thank you both so much. I'm going to read the 101 and check out all the vitamins. I use to be such a positive person but lately I've become a big ball of negative. I know it's fear and the devil getting the best of me and I need to pull out of this funk. I truly beleive this group is going to help me with all of that.

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2055
   Posted 1/11/2017 9:17 PM (GMT -6)   
At times its just helpful knowing others understand where you are..

This is a good place for that..we have good days and bad days, but we keep moving forward...

If i had to start over..i would want to know about

D ribose
Curamed
Topical pain relievers

Let the house work wait when it needs to , just stop and enjoy the kids😊

Hallahan
Regular Member


Date Joined Feb 2014
Total Posts : 215
   Posted 1/12/2017 11:45 AM (GMT -6)   
What works for one person may not work for another.

It takes time to figure out what's best for you so please be patient. It's a matter of managing fibromyalgia and it can be done as you will see on this forum. You'll learn what works and what not to do and how to pace yourself.

When you are feeling really crappy this is a good site to come to. You are not alone in this.

As the Beatles say: We get by with a little help from our friends.

Don't be afraid. There are worse diagnoses.

Barb

fybroman
New Member


Date Joined Jan 2017
Total Posts : 7
   Posted 1/12/2017 1:57 PM (GMT -6)   
I'm a male with fibro for over 10 years now and I know your feelings. My medical facility had a pain management clinic that had a 7 week long two days a week that taught you all about pain what causes it and different ways to relieve yourself from it. I went to the clinic in bad shape I was getting only 1 hour sleep a night in pain everyplace and was unable to work any more. My depression caused me to one night to get up from my chair and just start walking I ended up 5 miles away at the steps of the hospital and declared myself 5150. That's when everything changed. The clinic taught me so much and at the end of the 7 weeks I was a new man. I was and still now control my pain I don't let it control me. I learned that heat is your best friend. I sleep with a heated mattris pad cover set on low and I don't wake up in pain unable to move anymore. I learned self awairness of my body and I can tell when my body is starting to have a flair up and adjust my activities for such. You can live a normal and healthy life stile with fibro you just need to be taught how. Check with your health care adviser and see if they have a pain management clinic that they can send you to. Its more than just taking more meds it becomes a life stile change that was very hard for me at first but I have managed with the support of my wife and son.
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