Extreme body pain

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cilly
Veteran Member


Date Joined Aug 2014
Total Posts : 1345
   Posted 1/21/2017 12:42 AM (GMT -6)   
Hi all,
Currently have fibro shooting pains ,taking Advil .

I can't use hot bath or shower as I have lupus and it gives me flare.


What else can I do to be pain free.

Should I try lyrica or neurotin.

I am tired of so many meds I already take.

Any suggestions

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17460
   Posted 1/21/2017 6:58 AM (GMT -6)   
First off, if you are trying to be pain-free I think you will be disappointed. I haven't been pain-free since I developed fibro. But I have accepted this fact and am quite happy if I get the pain under control so I can live my life the way I want to. And I DO keep my pain under control.

Having lupus added to fibro is so bad. We have another member...couchtater...who also has lupus too. I'm so sorry you are dealing with these illnesses.

I can only tell you what I use for my pain. Along with ibuprofen, I use Tylenol as needed, magnesium malate and vitamin D3 which both relieve pain, and a muscle relaxer called Robaxin. I also take a good quality krill oil and also CoQ10. I started taking the CoQ10 after I was given a statin medication. The statin medications can deplete the body of CoQ 10 and that causes muscle pain. But once I added the CoQ10, much of the muscle pain left me. I still have pain but this over the counter supplement sure helps me. CoQ 10 is found in all cells of the body.

I used to take a product called Curamin. It has herbs in it that help with pain and that did help me when I was unable to use ibuprofen. It has several herbs, including tumeric which has been talked a lot about lately on the forum. So this might help you too.

Does using a heating pad or a Bed Buddy affect your lupus? A Bed Buddy is filled with a grain-like product and you can heat it in the microwave for a few minutes. It comes in various sizes and you can find them at Bed, Bath and Beyond and other places...even on line.

I hope some of this will help you.

Sherrine


Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
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God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5948
   Posted 1/23/2017 10:41 PM (GMT -6)   
I wish I had a good answer for you, Cilly. But I'm afraid my outlook these days is not too sunny when it comes to pain. Every time I think I might be getting it under control - pow.

I do take Neurontin (Gabapentin actually, the generic version) 3 times a day. It's supposed to help with nerve pain, and I guess I'd be worse off without it.

I've started taking ibuprofen recently, too. about once a year I try it again, just to see, and I always come to the conclusion it doesn't help me...but this time, maybe it is...a little.

Does it help you?

Debbie
Moderator, Fibromyalgia Forum

Fibromyalgia, degenerative disc disease, discectomy L4-L5 - (w/lots of Sciatic Nerve damage), frozen shoulder, Hashimoto's Thyroiditis, IBS, migraine, dizziness (mostly from visual stimuli), elevated liver enzymes, tachycardia, hearing loss (probably Menieres).

cilly
Veteran Member


Date Joined Aug 2014
Total Posts : 1345
   Posted 1/24/2017 1:28 AM (GMT -6)   
It does help me ,I need Gabapentin for sure.

I have been trying biofreeze lately.

I need to try bedbuddy.

I am stuck in bed and I get GERD a lot lately.

Need to walk everyday.
Cilly

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5948
   Posted 1/24/2017 11:01 AM (GMT -6)   
Being stuck in bed is one problem I haven't had...I'm sorry, that must be so discouraging.

My problem is that it's such a fine line between just enough and too much. And it doesn't seem to change...I don't get stronger over time and to a point where I can get away with doing more.

If we aren't patient people going into Fibro, we'd better learn to be once it has its claws in us!!

Debbie
Moderator, Fibromyalgia Forum

Fibromyalgia, degenerative disc disease, discectomy L4-L5 - (w/lots of Sciatic Nerve damage), frozen shoulder, Hashimoto's Thyroiditis, IBS, migraine, dizziness (mostly from visual stimuli), elevated liver enzymes, tachycardia, hearing loss (probably Menieres).
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