Opioids for pain from fibromyalgia

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nccarol
New Member


Date Joined Sep 2017
Total Posts : 1
   Posted 9/13/2017 10:14 AM (GMT -6)   
Hi I was wondering if anyone has been on opioid for long term chronic pain as well as other treatments or supplements and are experiencing doctors now saying fibro does not respond well to pain meds. I live in Asheville NC and due to an epidemic of opioid abuse here as well as all over my doctor said new studies are showing the medications people have been on for their chronic pain is not working due to chronic pain syndrome where the meds can actually make the pain worse. I myself have never misused my prescription nor asked for more I think they are being more cautious due to abuse. I do alternative therapies along with my meds but my hydrocodone 4 pills a day does help significantly

Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1380
   Posted 9/13/2017 1:30 PM (GMT -6)   
Hi Carol, welcome to the family. I have a rx for hydro that I use very sparingly, mostly for bone pain. I have had more success w a muscle relaxer for the Fibro. My usual go to is Advil. I have had Fibro all my life but wasn't dx w Fibro till about 12 yrs ago.

Some ppl find the meds help, some find that the meds don't really touch the pain. Even w the common dx of Fibro, ppl respond to the meds in many ways.

It is good that you also have alternative therapies to help cope w the pain. We have to be very resourceful in our methods of coping.

I would suggest you check out the top of the 1st page for 'Fibro 101', there is a lot of information gathered thru the yrs by many members.

I wish you a peaceful day.

God bless. Alice~

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2012
   Posted 9/13/2017 3:25 PM (GMT -6)   
Hi,

I use some low dose tramadol, which just keeps the edge off my pain.

I wasn't clear, is he wanting to take you off of meds?

With fibromyalgia , we have to try alternative methods to feel better.

A supplement Curamed has helped with stiffness,

I use an acupressure pad and pillow, which is calming when stress is high, lowers the pain levels and helps with deeper sleep.

I get a lot of help with topical pain relievers. So if a particular area is bad..that can really help. With me, its usually my low back..or rib area.

Welcome and ask any questions

Lj

dmb124
Regular Member


Date Joined Sep 2016
Total Posts : 24
   Posted 9/14/2017 7:32 AM (GMT -6)   
I have been taking vicoprofen (hydrocodone & ibuprofen) for several years. I take 1-2 per day. That is enough to take the edge off of the pain. I mainly take it for my back but it helps with the fibro pain, also. I know many doctors are trying to back off prescribing opioids, but some people really can't function well without it. I, thankfully, have a great doctor that knows in some cases, opioids are necessary. I don't take as much as many people, but most days, it's the only way I can go to work and actually live (not just survive). That being said, I use alternative methods to cope, also. I have discovered that sunlight helps my pain a huge amount. I also use massage, chiropractic care, memory foam mattress, and supplements. All of this combined with the meds, allows me to work, be an involved mother, and (I hope) a good wife.

I wish you luck.
Michele

Fibro, RA, GERD, hiatal hernia, migraines, TMD, hypermobility joint disorder

kellyinCali
Regular Member


Date Joined Apr 2009
Total Posts : 217
   Posted 9/14/2017 11:18 AM (GMT -6)   
Is there a war on drugs or a war on patients?!*

I take only Baclofen (muscle relaxer) as needed daily and Ibuprofren.

Ask your doctor to give you a "Combo med" like Hydrocodone and acetamenophin. The "pure" opiods are more attractive to recreational users.

I suggest a trigger point therapy massage tool. It can also be helpful to learn where "referred pain" comes from (trigger points).

https://www.amazon.com/Body-Back-Companys-Trigger-Therapy/dp/B0006VJ6TO/ref=pd_lpo_vtph_200_bs_tr_t_1/137-9254013-9679609?_encoding=UTF8&psc=1&refRid=M9A3CV3GE13DA2NHW22Q

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2012
   Posted 9/14/2017 7:25 PM (GMT -6)   
There is a war on drugs and patients..

I get that these drugs were overused and overprescribed,

But for patients who did not get addicted , but rather just some common sense help....

This should stay between you and your dr.. not a one size fits all solution.

Does it seem like some drs copped out by over prescribing, and will now cop out by over reacting?

Sigh..people are not all the same..some have addictive issues , some do not.

We will hope for some common sense..

kellyinCali
Regular Member


Date Joined Apr 2009
Total Posts : 217
   Posted 9/15/2017 4:21 AM (GMT -6)   
Ljm2014 - I could not have said that better myself!

What's more, many "chronic pain" patients are on disability. They don't want to pay (refer) for "DIAGNOSTICS" either. They treat us like hypochondriacs and now they take away our pain meds. I think unless the person is running out early, these meds should NOT be taken away from them and if they are, at least be "weaned" with another med until the patient can resume the same quality of life. I used to take Soma (instead of Baclofen) and they took that away saying it was over prescribed. Over prescribed or just cheap and being sold on the streets now? So many of us are "med sensitive" - why fix what isn't broken?

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2012
   Posted 9/15/2017 6:00 AM (GMT -6)   
Hi,

Not familiar with soma, is it a muscle relaxer?

Oddly i cannot take muscle relaxers­čśĆ

kellyinCali
Regular Member


Date Joined Apr 2009
Total Posts : 217
   Posted 9/15/2017 4:24 PM (GMT -6)   
Yes. It is a muscle relaxer.

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1339
   Posted 9/16/2017 11:32 PM (GMT -6)   
NCCarol

Posted earlier this evening about this subject in the chronic pain area. "Opioid epidemic " label has been on almost every newscast for last year or so, along w/number of OD, fatal as well as those who were rescued. My heart goes out to all who are affected.

That being said, I had nothing to do w/that : never shared or sold my medications. Taking away my pain meds affects me & my family.
Does not add or subtract from those numbers.

Am experiencing 'life after' years on opioids & Fentanyal.. (Have read a bit about mast cells, etc because I found the info on this site. Thnx.)

Despite occasional comments on news about new regulations exemption for chronic pain patients, which I NEVER believed, I was not only one in this area, SUDDENLY, dropped by Doctor, no more meds, & no advice or meds to wean. So Used what was left of my script, taking smaller & smaller amounts. Not pleasant but never was I tempted to go out & buy street drugs !!

Pain level increased as meds decreased. Am back to pre-med life style. Extreme fatigue with that pain & all that entails. Missed enjoying what few summer time activities I had done last year & several previous years: not a lot, but certainly more. Like Out of state relatives' visits. And funerals. And births.

Am Continuing physical therapy (aquatherapy) though do much much less exercise & can barely tolerate being touched. Sleep is elusive until I am so exhausted I just cannot stay awake & doze / nap most of a day & nite.
Herniated cervical discs & other disc /spine issues, Arthritis, spurs
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1339
   Posted 9/17/2017 3:56 PM (GMT -6)   
Rock on

Interesting comments about bicep pain.. I have myofascial pain & attribute years of my biceps' pain to that.
Herniated cervical discs & other disc /spine issues, Arthritis, spurs
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2012
   Posted 9/17/2017 6:43 PM (GMT -6)   
Have you guys looked into the trigger points for biceps? The fact that it seems so constant , really makes me think trigger points..

Also.. i had this strange pain in the tops of my thighs , i kept trying to look that up as a trigger point...no nothing...after years of it reoccurring, i finally looked it up with top of thigh pain and fibro..yep...its was out there only under fibro pain...still no idea as to cause..thank goodness its occassional and not constant..cause its intense...

Lj

kellyinCali
Regular Member


Date Joined Apr 2009
Total Posts : 217
   Posted 9/18/2017 5:14 PM (GMT -6)   
Ljm2014: I definitely get the "top of the thighs" pain. Mine was intense too. Thankfully, it is better now. Fibro likes to "travel around the body." There are books on trigger points. Sometimes, the trigger point is "referring" pain to another area.

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2012
   Posted 9/18/2017 8:39 PM (GMT -6)   
Yep,

This appeared to be non trigger point area..exclusive to fibro..

Since fascia covers every blood vessel, every organ, muscles, tendons etc..i am thinking it must be a non muscle ,fascia issue..

I was getting some gentle therapy after a bad fall..and woked pretty much on everything , including the lymphatics, and it eased up..

They loosened me up, now i have to work at keep things loosened up
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