New - I think I have Fibro. question

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annakat
New Member


Date Joined Sep 2017
Total Posts : 2
   Posted 9/26/2017 2:16 PM (GMT -6)   
Hello,
I have not been diagnosed with FM. My GP ran all kinds of bloodwork and the only issues were I was low on Iron, Folic Acid & B12. In the past I have had MRI's, Scopes, CT scans, ultrasounds on various parts of my body over the past 3 years and never found a cause for whatever pain I was having at the time.
I never even thought of FM until one day I asked my Chiropractor why I feel bruised when there isn't a bruise in sight. He mentioned FM, so I went to my GP for bloodwork and direction.
I think I've had this for quite awhile but never put the symptoms together. I was shocked when I read the list of symptoms that I had experienced almost all of them in the last 3 years and some further back. Not all at once, but here and there over the years that I couldn't explain.
I've had a chronic headache (headache... just one, cuz it NEVER WENT AWAY) since August 2015 and that's when everything seemed to go downhill. After the headache, it was neck pain and neck/shoulder stiffness. I started massage therapy and the tighter I was the more painful the massage. I didn't understand why arm massages were excruciatingly painful. Lots of trigger points on my body made me yell in pain when rubbed out. Honestly I just thought it was because I am overweight and out of shape. I blamed myself for any health issues and was afraid to tell a doctor because they would just say the same thing... lose weight, exercise.
I finally went to the GP when the "bruising" pain was all over. And I was severely muscle fatigued.
And now I feel I'm getting worse, my hands started to tingle and go numb, and have pain especially in the morning. Every inch of my body hurts. 2 weeks ago my feet started to tingle and have pain, and I'm just sitting at my desk.
I guess my question would be, can Fibro start off light (over a course of years) and then all of a sudden come to head like I feel it is now? I'm friggen miserable!

OH, and my GP put me on Cymbalta before I even had any tests done and just wants to see me in 3 months to recheck my bloodwork and deficiencies.
Think I should go to a Rhuematologist?

Thanks,
Annakat

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17460
   Posted 9/26/2017 6:40 PM (GMT -6)   
Hi, Annakat, and welcome! Yes, do go see a board certified rheumatologist and make sure they treat fibro patients. There are still some doctors out there in the Dark Ages that don't believe this is a true illness.

Do be checked for diabetes while you are at it. This could possibly be causing the tingling and numbness of your hands and feet. You want to rule that out.

Losing weight does help with the pain. I lost 85 pounds around 8-9 years ago and have kept it off. I counted carbs...not the strict version though. I allow myself around 100 carbs a day. I would lose about 2 pounds a week and that's a healthy way to lose weight.

Gentle exercise does help with fibro. I HATE exercise but I do walk daily as my gentle form of exercise. I don't feel like heading out th door but once I get going I enjoy it. I check out everyone's landscaping, watch the critters scurrying for their breakfasts, look at the flowers, blue sky, etc. and this makes me happy. By the time I get home. I have less pain and more energy! Give it a try! It won't hurt and could really help you. It gets the circulation moving.

I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a prescription muscle relaxer called Robaxin that has made a significant difference in my pain. I only take a fraction of what was prescribed so I don't get the typical side affects of muscle relaxers. I live alone and need to be able to drive, etc. I don't even know if ve taken a muscle relaxer...except my pain is so much less.

Fibro isn't considered a progressive illness. This is another reason to be checked out by a good rheumatologist. But you also aren't getting a lot f help either.

I do Trigger Point Therapy on myself. I bought The Trigger Point Therapy Workbook on Amazon and it's really good. It has diagrams that show where to look for the Trigger points that are causing you specific pain. I fixed my frozen shoulder using this book.

I do get gentle massages once a month. I'm having one tomorrow! Yay! They do help me.

Be sure to read Fibro 101... the first thread on the forum. There are links to good info about fibro and you can learn a lot there.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

annakat
New Member


Date Joined Sep 2017
Total Posts : 2
   Posted 9/27/2017 8:40 AM (GMT -6)   
Hi Sherrine, thanks for the feedback. I will definitely call a Rheumatologist and set up an appointment. What stinks is there is only ONE in my Network for my insurance, so I hope she's good and treats Fibro.
I have started going to the warm water pool and it feels awesome. So I will be doing that to get in exercise and I started a low carb diet as well. I kind of feel the pain is more inflammation, which I believe isn't Fibro, but I can't be sure. What I realized was last week I was sick and had to take Prednisone for my breathing and when on that, I felt a heck of a lot better. As soon as I finished the prednisone, the pain was back in full swing.
Guess more tests are probably in order.
Thanks again
Annakat

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17460
   Posted 9/27/2017 12:02 PM (GMT -6)   
Anna, you are doing really good things for yourself! Water exercise is a gentle exercise and yoga is also if you like that. These are good for fibro along with walking.

The low carb way of eating really so good for you. I don't call it a diet because for me it is a way of eating for life. I can eat anything I want but stay around 100 carbs per day. Portion control is a must and you need to read labels. Many times I put my meal on a dessert plate. Dinner plates these days are huge. But a filled dessert plate holds plenty of food. I have my great, great, great, great grandmother's dishes. The dinner plate back in the early 1800's is the size of our dessert plates now! These people were farmers and burned a ton of calories a day but yet that's was the size of their plates. Amazing!

You might have fibro and something else too. This is why I'm so glad you are seeing a rheumatologist. Check her out at healthgrades.com and vitals.com. These sites give decent info on the doctors and also patient reviews. But remember...when someone has had a problem they tear the doctor apart. When someone has a good experience they usually are just happy and don't go on the Internet to compliment the doctor. But it will show if the doctor had legal actions against them, where they went to medical school. Etc.

Do let us know how you are doing because we do care about you.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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