Just diagnosed and scared

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soonersfan1
Regular Member


Date Joined Jan 2008
Total Posts : 29
   Posted 1/7/2008 5:03 PM (GMT -7)   
 I have been reading some of the posts here and decided to post one myself. I was just diagnosed with HEP C Dec. 28th. I had been sick with a cold and cough and had went in for
a yearly check up. DR did blood work and called a few days later and said my liver enzimes were slightly elevated but nothing to really worry about. I think he said normal was something like 50 and mine were 82. In the mean time I started having back pain, All the muscles in my back were so tight so I went back to the DR for that. He sent me for more blood tests and they came back positive for HEP C. THe Dr. had felt around my liver area to see if it felt enlarged and said it didnt appear to be but have been having some achyness
in the area ever since. I am suppose to be seeing another DR. that hes refering me to soon. In the meantime my back still hurts on and off, not all the time.. I am scared and
afraid. If anyone has any advise I would appreciate it.....
                                                                                            Soonerfan

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 1/7/2008 5:21 PM (GMT -7)   
Hi Soonersfan, Welcome to the forum. My husband was diagnosed with Hep C in 1994. We just learned in July 2006 that he has cirrhosis. A person can have Hep C many years before it progresses to cirrhosis, and sometimes it never progresses to cirrhosis. Hep C does not have to be a death sentence. There are treatments available. You need to take care of yourself. Avoid alcohol. I read a study that showed alcohol can actually cause the viral load to multiply. Alcohol combined with Hep C can be very devasting to the liver. Do as much research as you can on the disease. I have learned a lot just by coming here. It also helps to talk to others that understand how you are feeling. There many caring people here that can help you through this.

Relax and understand that it is not hopeless. You will be in my prayers.


Butterflythree
 
There is always hope!


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/7/2008 6:30 PM (GMT -7)   

Welcome to the forum, Soonerfan.  I agree totally with Butterfly.  You are probably being referred to a GI doc (gastroenterologist), who can explain treatment for hep C to you, and perhaps want to do a biopsy or refer you for some scans.  As for your back pain, that does not sound liver-related at all.  Perhaps just muscle strain or possibly kidney problems.

Please come back and let us know how you are doing.

Connie


CaryF
Veteran Member


Date Joined Nov 2007
Total Posts : 505
   Posted 1/8/2008 9:56 AM (GMT -7)   
Dear Soonerfan,

The best thing I did for myself when was diagnosed was to become as educated as possible, then dramatically changed my diet and always ensure I am as hydrated as possible to take the stress off my entire GI system and help it flush. I was even a total Vegan when I went through treatment. Give your body every chance to help itself & of course rest & exercise & support are vital too.

soonersfan1
Regular Member


Date Joined Jan 2008
Total Posts : 29
   Posted 1/8/2008 2:08 PM (GMT -7)   
Thank you guys for your advise.I have really been watching what I eat I have found that nothing sweet help me to not be as sick at my stomach. I use to drink soda all day, have had only water for a few days, except for one cup of coffee in the mornings.
I had an episode like this back in 1993 went to DR after DR and they could never find out what was wrong. I had extream fatique, confussion, dizzyness I was sick for about 2 yrs like that back then. I am wondering if that might have been what was wrong then. My Dr now seems to think it was but can it just go away like that and come back without treatment? It's strange because I dont drink, have NEVER used drugs and I end up with this crap. I do have 2 small home done tatoos and I had a shot of Gamma Goblin in the 70's I read that you could get it that way.
I guess it really dont matter How I got it just that I have it.
Thanks for letting me vent. It seems to help until I get to the specialist and get more answers

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 1/8/2008 7:30 PM (GMT -7)   
If you are used to drinking caffienated soda all day you may experience withdrawal symptoms by quitting cold turkey. You can get headaches and flu like symptoms. Thought this would be useful for you to know in case you start having them and don't know what's going on. I hope that everything turns out well for you after seeing the specialist. You are always welcome to come here and vent. I have done it a few times myself.

Take Care!
Butterflythree
 
There is always hope!


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 1/9/2008 4:56 AM (GMT -7)   
soonersfan

Welcome to the forum. Venting does help relieve the tension/anxiety that comes from the unknown. Please take advantage of the members knowledge and understanding.

Lucy

CaryF
Veteran Member


Date Joined Nov 2007
Total Posts : 505
   Posted 1/9/2008 1:14 PM (GMT -7)   
Hi Sooner,

Hope your back is feeling better. Sorry to hear of your diagnosis but please find some comfort in the knowledge you are not alone - there are plenty of us out here. I manage my Hep C best with diet. There is a great book called "The Liver Clease Diet" by Dr. Sandra Cabot I use as a Hep C diet bible. You can probalbly get it on Amazon & maybe even cheaper used. I also ensure I am as hydrated as possible - I try to drink a gallon water daily! It was hard at first but now I love it. I also take a supplement called Hep Helper that has great organic ingredients - but at the very least get yourself some good quality Milk Thistle (preferably organic & take 1000MG daily - likewise with Vit. C).
Don't fall for any crazy supplement or "natural" cures (as I did initially). They are pricey & unproven & especially don't buy/take any herbs from China. This is not a head cold - but a serious chronic illnesss. Hope this helps.

1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 1/9/2008 2:26 PM (GMT -7)   

Hi Sooner and welcome to the forum. I hope you are feeling better. I was blessed when I found this site. The members are very kind and full of knowledge. They listened to me when I first joined and helped me get thru the loss of my mother. (She died in Nov from liver cancer). Their knowledge is endless and their advice is priceless. Good luck and know that you are not alone.

 Shelly


soonersfan1
Regular Member


Date Joined Jan 2008
Total Posts : 29
   Posted 1/10/2008 3:11 PM (GMT -7)   
HI again, I was thinking of ordering the hep helper that CaryF was talking about. Is that something that like the DR will be ok with? I went to the web site and it sounds like a really good product that I would like to try.
I am now getting acid reflux I think because I am having a bitter like taste in my mouth and I believe that the Hep helper said it helps with that. Anyone with a little more info on the hep helper please let me know.
Something else that I was wondering about since I work, Does most people get jaundice? I would not be able to go to work and that scary. I have not had jaundice and hope it dont happen.
Soonersfan

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/10/2008 4:12 PM (GMT -7)   

Sooner, it's doubtful you will get jaundiced...not unless you go into bad liver failure with high bilirubin.  I was diagnosed in '93 with Hep C and developed liver cancer as a result--but have never been jaundiced.

I would check with you doctor (preferably a GI doc) about any natural products you want to try.

Best of luck,

Connie


tobip
New Member


Date Joined Jan 2008
Total Posts : 5
   Posted 1/22/2008 10:41 AM (GMT -7)   
hi every one,im new to this sight but i would like to see if any one could fill me in on hep b and c...my stepdaughter has it and me and my hubby are raising her 2 youngest children but she is staying here right now....is there anything we should be worried about?would appreciate any input...thank you deb

tobip
New Member


Date Joined Jan 2008
Total Posts : 5
   Posted 1/22/2008 10:47 AM (GMT -7)   
hi im not sure im doing this right so im trying again.. :-)
we just found out the other day my step-daughter has hep b and c....we are raising 2 youngest grandchildren and have been for 2 yrs....well she is staying with us right now and were a little worried about kids getting this...can anyone fill me in im really ignorant on the subject.....and she is also drug user ....so if anyone could help me with info i sure would appreciate it...thanks very much ...deb

1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 1/22/2008 4:18 PM (GMT -7)   

Hi Deb and welcome to the forum, I would like to list how someone can get Hep B & C.

Hepatitis B virus can be spread by:

unprotected sex
injecting drug use (sharing needles)
during birth from mother to child
contact with blood or open sores of an infected person
human bites
sharing a household with an infected person Though this is ambiguous) 
sharing items such as razors, toothbrushes, or washcloths
pre-chewing food for babies or sharing chewing gum
using unsterilized needles in ear or body piercing, tattooing, or
acupuncture - so check needles are always taken out of sterile packages in front of you
using the same immunisation needle on more than one person - insist on a clean needle every time 
Hepatitis B virus IS NOT spread by:
casual contact like holding hands
eating food prepared by a carrier
kissing on the cheek or dry lip kissing
sharing silverware, plates, or cups
visiting an infected person's home
playing with a child who is a carrier
sneezing or coughing

HepC is transmitted through blood, so sharing needles is the most common cause of Hep C. Transfusions before 1992 were not screened for Hep C so some people aquired it thru this means. Unprotected sex can transmit the disease but it's not common.

Deb, my best advice is to look up as much as you can online and get educated on these diseases. Education is the key to making smart informed decisions. I hope this helps a little.

Shelly


soonersfan1
Regular Member


Date Joined Jan 2008
Total Posts : 29
   Posted 1/23/2008 4:25 PM (GMT -7)   
 I dont go to the Gastro Dr. until March 11th. I was just wanting to know if anyone has heard of taking H202 and baking soda and apple cider vinegar? I know that from most of what I have read on here that most think that these natural remedys will not work. I bought some of the Milk thistle and now I am scared to take it because I have high blood pressure for which I take medicine and also take pottasium. Anyone know if there is anything at all I could do before I get in to the DR. in March? Seems like its a long time
to just sit and wait and do nothing..... Any help or thoughts would be appreciated.
                                                                 Thanks, Soonerfan
PS..I have been Drinking almost a gallon of water a day...
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