I've been on Healing Well before in the Crohn's Disease forum so I know this is the best place on earth to come for moral support, and boy do I need it!
It's true I've had Crohn's for about 8 years now and I would normally just head over to that forum, but something new has come up.
Starting around Christmas time I starting feeling really sick. This is nothing new for me, I thought it was just another flare up, in fact it's so mundane I just took extra pain medication, stayed in bed a little more and ate a little less. I made an appointment to see my doctor after Christmas in the middle of Jan. I wasn't too worried. I did notice that my urine was really dark like coca cola colored and didn't smell too good, so I drank more water, I thought it was cause I wasn't eating much. I noticed that I was really itchy all the time, but I had just changed my laundry detergent so I thought it was likely allergies, and lastly I have been finding it really hard to concentrate and think clearly, but I'd just started a new medication for depression which was known to cause that as a side effect, never mind that depression can make it hard to concentrate. Needless to say, I wasn't worried in fact I was really happy about the 60 lbs I'd lost.
Then I went for routine blood work. My doctor called my home 5 times to make sure I came in to see her the day she got my test results. I don't know what they were but I guess my liver function tests where so far through the roof, she said she'd never seen results that bad where the person wasn't being treated intensively in the hospital, and how tough was I anyway? I just shrugged and said I'm used to being sick, so I don't let it keep me from living anymore. Anyway she booked me for an ultrasound, the earliest I could get in was a week later (good old Canada) and my blood work was monitored every 2 days all week. During the week my liver enzymes did come down slightly, which prompted her to think perhaps i just had a gallstone blockage and the crisis was over.
Today I had the ultrasound. They called in a doctor to do it, instead of the usual technician. Very unusual to say the least. They found a 6 inch hemangioma (tumor). The doctor who did the test told me that many people have these types of tumors their entire lives and never have a problem, but that in all her years of practice she had NEVER seen one like mine, and it quote "didn't look good". I looked hemangioma up on line and the average size of the benign tumor is 1-5 cm (0.4 to 2 inch). So I'm kinda freaking out here. If anyone has time to respond this evening. If you know anything about what's going on with me, what to watch for, what to ask my doctor tomorrow when I see my gp. Am I scared about nothing, jumping to wrong conclusions? Help!