My dad is still going through all of the complications. Once in awhile he will have a good day, but overall things are not good. He didn't end up having the TIPS done because they were able to stablize him in the hospital. This seems to be the cycle. He gets bad, gets admitted to the hospital, they adjust his meds, etc, and then he is sent home.
Anyway, he finally had the initial meeting at the transplant hospital. The doctor gave him a book to read and they will contact him in the coming weeks to get all of the testing/evaluations done, etc. During the meeting (we know because my uncle went there too) when he was asked about how much he drank he said the odd 1 or 2 beers and maybe the ocassional drink of rye. This is completely untrue of course, which I am sure the doctor knows as well.
My concern is that something like this will effect him being placed on the transplant list. I am not 100% sure, but I think that the psychiatrist and other members of the transplant team will bring up this issue.
I think that he is in a lot of denial about how much he has drank over the years. In a lot of ways he would be classed as a high-functioning alcoholic. He always went to work, etc, and his "rock bottom" has been the cirrohsis. He hasn't drank in 9+ months, mainly because he has been so sick and sleeping a lot, he didn't have an opportunity to go and buy any alcohol.
I have read a lot about how many people will go to AA for 6+ months before being listed. I know that my dad will agree to go, but after his first meeting he will end up saying that he won't go back because he isn't like everyone else there. (Dad is stubborn that way) In many ways he isn't taking the transplant info seriously. He thinks it will be no big deal and that he will be back at home in a week or so. I also worry that this type of attitude will also cause more problems with the transplant team.
They are also making an issue about a missed appointment, even after it was explained that it was a miscommunication. He had a banding procedure done on his throat, and he was able to get in sooner at the local hospital then with the specialist in the city. The other one was cancelled, but there is no record of it. I don't know. We understand this issue, but I know when dad is having a bad day, he won't/can't always make it to things. We try our best to give notice and change the appointment if necessary.
Lately he has been having more trouble breathing. He has stopped smoking and seems to be doing well. My mom still smokes though, so I am not sure how much that causes problems. It's a relief that he has quit smoking since it was becoming a hazzard with his confusion and being sleepy.
Also, he has a hernia that he needs to get operated on. They didn't see this as a priority the last time he was in the hospital, which was understandable, but now he is always saying how painful it is. We're hoping his new doctor will be able to organize the right referral for that procedure.
Any insights would be appreciated.