Welcome Sailordave!! You have found the right place for information about end stage cirrhosis. I am VERY new to this forum, and it took me a long time to post, but i gathered a great deal of information from just lurking in the threads and posts. I highly recommend you spend some time doing the same. EndStageLiverDisease(ESLD) is different for everyone, but we are all here to share information and help as best as we can.
At this point, my husband has not been officially diagnosed with esld. but he has not driven in almost a year. Farmers and their tractors are hard to separate...have you considered talking to some local farmers about taking over for a season or two???
has the social worker at the hospital talked to his daughters??? Clearly, there needs to be some extra efforts for them, either thru family or friends during this challenging time.
once again, i am a rookie, and i am quite sure pink grandma and shel and others will be here with more support.
thank you for posting...we are all going thru the same thing, and we are all pulling fo you and your family...
Hello rainbeau, pink grandma and june17. Thanks you so much for responding so quickly. I'm in the process of looking through some of the old threads and the site for the american liver foundation. Our families live in nova scotia, canada. We have a local AA that will be of great help. He's had a couple of bad nights in the hospital, has had to be restrained and sedated. He really doesn't want to be in the hospital and wants to be home. I don't think he's come to terms with how serious this is, maybe things will change when they take him off some of the drugs he's on and when his body finally adjusts to being alcohol free. We've been told that he'll be in the hospital until next week at least. I'm away at school in another province and will be heading home on friday, my wife has been taking her parents to halifax to visit their son every couple of days. As you have experienced in the past, the family is torn. Life has changed for us all. My heart goes out to you all, i'm just beginning to understand what you've all been through or going through. This is truely heartbreaking but with help and kindness of strangers and the doctors, we are determined to help my brother in law. We just hope and pray that he will accept it.
He could be dead in two weeks but he guarentees he'll be dead before his daughter turns 18 if he drinks. He met with arthur earlier in the day and doc said arthur wasn't receptive or ready for help but when he heard the info again in front of mom and dad he admitted to having to do something. So doc is arranging for a psycologist to meet with him. he wouldn't do it before arthur said the words himself.
We are all hoping and praying that he's serious and not just trying the placate the doctors and family. As we find out more I'll let you know.
I've spend the best part of the afternoon reading the posts on the various threads. A box of kleenex later and suffering from dehydration I can say only this, I never had any idea of the pain and suffering, the highs and the crushing lows. You folks have got to be some of the strongest people. I can only hope that we can find the strength and compassion you all have shown.
God bless you all.
Dave, welcome to Healing Well. As you can see this site is full of information and wonderful people. You'll find that most members are more than willing to help you thru this horrible time. I agree that your brother-in-law has to want to change before there is any hope of healing. I have worked with lots of alcoholics and unfortunately they do not remember what they said, did, or physically experienced while in DT's. That's the saddest part for me. The families see it and are crushed when they see their loved ones in restraints etc.but the patient clearly doesn't remember it. I personally wished I could video the episode to show the patient later but of course the law prohibits it. On the otherhand my heart breaks for the patient. I absolutely understand that their addiction to alcohol is so overwhelming they really can't help it. How horrible it must be for them.
You have come to the right place for educational and emotional support. You will receive good advice here and can vent all you want to. Feel free to ask questions too. There are people here that can tell you first hand what they went thru and some of them have overcome alcoholism so they are very knowledgeable. Keep us posted.
Greetings, Art has been discharged from the hospital. His liver is functioning at better that 10% and he has checked himself into the local detox centre. They expect him to stay for about 5 days. He will have to go back for frequent check ups for the next 6 months, no transplant yet has he is not sick enough. He has set up appointments with the local AA as well as with a councillor. He is by no means out of the woods yet but has taken the first steps to heal. His mother has been very supportave but as his father has drank most of his life and "there's nothing wrong with me" thinks all Art needs to do is go easy on the booze, no need to stop drinking. His father is our next project as he's not taking it seriously. Thanks to all and best wishes.
Thanks to all,
Good evening chefbonnie, so sorry to hear about your hubby. My thoughts on the medical system is this, be pushy, upfront, nagging etc. Unfortunately the old saying holds true, the squeaky wheel gets the grease. it seems that the more noise you make the more help you'll get if for no other reason but to get you out out of their hair. If that doesn't get the desired results, write and visit your MLA/MP. They often have enough stroke to get the results desired.
I don't have any advice for the rest of your questions as I'm a bit out of the loop with regards to my brother inlaw and his liver troubles. I'm only getting my info second hand from his mother and my wife as I haven't had a chance to talk to him directly yet. From what I've read in other threads, (you should read them too and have a box of kleenex handy), you will find many others that have gone through or are going through the same. They will give some insite as to what others are doing to cope with this. I've been trying to find a cookbook or something along that line for a liver friendly diet, so far not much luck. Art should be out of detox later this week and hopefully he's made some progress. Not sure what med he's on if any. He's not allowed any visitors while in detox so I guess we'll just have to wait until he comes home. He also has hepititus, not sure what type. The doctor said this is a good thing as it indicates his liver is working. I'm no medical expert but that doesn't sound right to me, I can't believe any type of hep is a good thing. As you, we are very frustrated.
Sorry I couldn't have been more help. There are many ears and shoulders here if you ever need one.
Chilli You are so right about the ER Dr.s We have made many trips to the ER for many different reasons. In all of the 10 Dr.s I have seen in the ER There has been one with some knowledge of ESLD. Don't get me wrong there have been a few that call in a specialist to get some insight. But there have been some that will not listen to me. We had two occasions were they pump him full of morphine for pain. We had one experience where he was in the ER waiting to be admitted for 9 hours and they wouldn't give him any lactalos!!! I tried everything. That just created more problems. I have finally decided that I am not leaving home without the lactalose!!!! Hang in there. And be sure to let us know if there is anything we can do.
Hi dansbrother, thanks for the info. I think arthur is going to the domician or cuba, not sure which. I'll be sure to pass along the info to my wife, I forgot about the embassy/consulate people, very good idea.