Thought I was alone

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CHILI
New Member


Date Joined Feb 2008
Total Posts : 13
   Posted 2/21/2008 1:55 PM (GMT -7)   
Just found this site and already I'm feeling better. We live in a small rural community with little in the way of support groups or good medical providers. I have been caring for my son, age, 46, who has end stage liver disease, hep c, and type II diabetes. He had another bleed last Sept and at that time we agreed that he should no longer live alone. He moved in with me and my husband and I have been his primary caretaker up until last month when he announced he wanted to move to the coast. He simply cannot care for himself and living on his own causes me a great deal of worry. Since he made that decision, he has been very difficult to live with. He has been mean, cranky, oppositional, and very non-social. I can do nothing to please him. We too have no idea as to how serious his condition is. He has total body breakouts that itch and bleed. He is tired all of the time. The doctor has suggested Hospice but my son refuses. He has good moments...perhaps for an hour or sometimes a half day. I just need some help in trying to find ways to make him feel better both emotionally and physically. I do not support his decision to move out and he is angry with me for not helping him do so. The location he has chosen is at least an hours drive to the hospital over a mountain range. Sigh, I am at a loss.

1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 2/21/2008 3:29 PM (GMT -7)   
Hi CHILI and welcome to Healing Well. I am sorry that your son is so ill and you are feeling so frustrated. You will find that this site provides a tremendous amount of information that the members have provided. The info is based on personal experience or well gleaned information that members have researched. Pink Grandma is our forum moderator and she is not only compassionate but well informed. As for the current situation with your son it is difficult for you and your husband I know. He is a grown adult and if he is of sound mind then he can make his own decisions. However; if he is reliant on you for financial support and taxing him to and from appointments etc. then it is a different story. I am sympathetic to his frustration too. Certainly he must realize that if the Dr suggested Hospice it is because he is end stage and unlikely to recover. That would be a tremendous emotional blow for him. He knows that he is deteriorating physcially and surly he is angry and scared. Has he stated why he wants to move? As hard as it is it seems to me that you need to have an honest and candid talk with him regarding his prognosis which by all indications in your post the prognosis is poor. It is common for end stage patients to display a variety of emotions so don't be surprised. He probably has encephalopathy and is not aware of his own actions and anger. The tiredness is also common. I would suggest that he rest as often as needed and that you and your husband encourage him to nap frequently. Pain is also a problem for end stage liver disease. It may be some help to you to read some of the posts as there is a wealth of information in them. As far as your statement "We too have no idea as to how serious his condition is" His condition is very serious and you may want to do some research on the interent in relation to end stage liver disease. I hope that this has helped a little. Please continue to post and ask questions, vent, or whatever. We are all here for you.
Shelly

CHILI
New Member


Date Joined Feb 2008
Total Posts : 13
   Posted 2/21/2008 4:05 PM (GMT -7)   
Hi Shelly, Thank you so much for the encouraging response. You have no idea what a relief it is for me to have people to talk with about my son's situation. I do read all that I can regarding his illness and I think I am on top of it as far as the technical stuff goes. At this point, I am seeking more information on the other side of the coin. Doctors are so vague. Each day I try to walk a mile in my son's shoes. My intellectual grasp of the disease is never consistent with what I observe every day. Jim is nocturnal. He spends his nights on the internet or watching TV. Because he is up all night, he tends to sleep away most of the day. He perks up in the late afternoon and then is busy with his cameras. He is a very talented photographer and I am delighted he has that hobby to keep him alert and busy. My concerns are related to his inability to take his meds on time and to take the correct dosage. I do monitor that but often have to wake him up for each medication time. My husband and I run shifts so that Jim is never alone. However, when he is feeling good, he hops in his car and goes off visiting. I so wish he wasn't allowed to drive but I am powerless in that area. Two weeks ago he was drinking again. He became really mad at me when I was informed about it. You are right. He is an adult and he can make his own decisions and choices. I know I can't keep him safe and cared for if he doesn't want it. But I so want to help make his world a little better and it seems as though I'm making it worse. I don't understand why he is always angry with me. Two weeks ago he "fired" his doctor because the doc won't let him have any more pain pills. Jim went into a rage. It was then that the doctor suggested Hospice as a way to monitor pain medications. I don't think Jim is Hospice ready. The doc doesn't seem to think he needs the pain meds. Jim was addicted to them. I don't know for sure but I think some of his crabby behavior is due to drug the withdrawal. I just don't understand these bizarre behaviors. Is this normal? Should I support his desire to move away? How can I be helpful and non-intrusive? Lee

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 2/21/2008 7:06 PM (GMT -7)   
Hello Chili and welcome to HealingWell. You are not alone anymore. There are a but of nice people of this forum who will be very supportive.
about your son driving......His doctor should send something to Dept of Motor Vehicles to have his license suspended. They did that to my husband, but my husband was smart enough to give up his license a voluntarily a year earlier. Talk to his doctor about it.
Getting their sleep mixed up is a classic symptom of liver disease.
Crankiness is another. It's hard for some people to hand over the reins of their life to someone else. Probably deep down he knows that his time is limited and that's a hard pill to swallow also. Itching is another classic symptom.
Has there been any talk of a possible liver transplant with his doctor?
And don't ever think that you are not making his life better. Whether he admits it or not he knows that you are helping him. Sometimes when encephalopathy sets in and they get real ugly to their caregivers. Face it . You are the closest person to him. That old adage " you always hurt the one you love" is true. Even for parents and kids not just for husbands and wives. Try not to take it personal. I know it gets real old real fast. When he upsets you take a walk. Remember it's the disease ....not your son talking.
Keep coming here and we will be there for you.
Take care .........thoughts and prayers.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 2/21/2008 9:13 PM (GMT -7)   
CHILI- I want to let you know that you are the most stable thing in his life right now. Pink Grandma is correct, this is all part of the disease. I also agree that you should speak with his Dr about getting his license suspended. Although there is a strong possibility that he will drive anyway. It is so hard dealing with it all I know. The mood swings are horrible to live with but it will help a little to know that it is the disease and not the real him. I'm glad he has his photography to keep him busy. Do you have hobbies that keep you busy? If you do then it may offset some of the stress. As the primary caregiver you need to make time for you. One of the unfortunate outcomes for caregivers is they neglect themselves. Keep us posted and know that we all care.
Shelly

lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 2/22/2008 2:37 AM (GMT -7)   
 
     Chili: I'm seeing it from the inside. I know my personality has changed and I am not the same. My husband has been of tremendous help to me . I have clear days. And days when I just cant function.  Ususall due to a need for more lactulose.    My mental state is the worst of my symptoms. I did have the itching for about a month then it went away , a little swelling of the legs but the meds I take for my blood pressure have helped. I have put myself on as strict diet, very low sodium, no meet, drink lots of water and fruit juice. Eat fresh vegetables and fruits. Do not have any other medications for the cirrhosis other than the lactulose. I have severe arthritis but cannot take any type of pain medication.  I realized just how this has affected my family and have told my husband if I get to the point where I can no longer take care of my self I would not him to be burdened with me and should put me in hospice. He knows I am serious. I also do not sleep at night for me I guess its a fear of going into a coma. If I do I have ask not to be put on any life supports. I don't understand why your son would want to move. I could'nt live by myself. I need help for lots of things. Stop worring about him . If he is a stubborn person he will do whatever he wants to do no matter what any one says. keep posting there is always new information on this forum.  Pinkgrand ma and Shelly are tops. Along with so many others.   june

frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 2/22/2008 4:54 AM (GMT -7)   
Chilli

Welcome to the forum. I, like June, am speaking from the other side. The emothional roller coaster that you are on make it so difficult to handle things. In my opinion the mental/emotional turmoil that comes from liver disease is more difficult at times than the physical side of it. Recently I learned that my disease had now gone into cirrosis and just hearing those words sent me into a tail spin. After the crying and shock all my feelings turned into anger. Anger at the world nearly, but I am sure that the ones that saw and felt the sting were the ones closest to me. I also felt like I wanted to escape, just run away, and not deal with all the doctors, appointments, medications, amd all the things that come with this, even though I kneww that it was an unrealistic action. I have also thought of all the things I haven't experienced yet and how unfair it iall is. Maybe that is how your son is feeling when he talks of moving. He maybe trying to avoid his condition by "pretending" things are "normal", such as driving and visiting friends, and in his won way attempting to show himself that he is still in control. Liver disese takes so much contol over our lives that I think we struggle with issues of control in the small things. I can only say it helps me when my husband just allows me to vent without judging or trying to get me to see things logically. I know it is hard not to take things personall but it is important for him to feel like he has some control over some of the things in his life. The others are right also when they talk of the issue of encephalopathy that may be controling his mood. There are so many caring people hear that are willing to listen, provide emotional support, and share theiir knowledge and opinons . I hope you will get all from the forum that I haave. Remember as a care giver to take care of yourself too.

Lucy

Lucy

lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 2/23/2008 3:16 AM (GMT -7)   
Lucy: Just thought I'd check in and see how you are doing . I'm still dealing with the sleepless nights. My pcp prescribed something , finally!!!! to help me get some sleep. Well guess what? I do mail order prescriptions and that was the only one of my prescriptions that has been lost in the mail. It's been over a month now. Guess I can make it throgh for a while longer. Don't know if I will have a reaction to them or if they'll even work. Then I get stuck with a three month supply of useless meds. oh well it could be worse. Have a good day. june

frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 2/23/2008 4:00 AM (GMT -7)   
June

O still feel like i am on a roller coaster that just won't stop. Thanks for asking. Sorry to hear that you are still having problems sleeping. I know that it makes it extremely hard to function when you are so tired. Isn't that always the way that the one thing you are waiting on "gets lost in the mail". I hope you have contacted them and made arrangements for it to be resent. Will keep my fingers crossed that it will help you and that you will have no ill effects from it.

Have a wonderful day today

Lucy

CHILI
New Member


Date Joined Feb 2008
Total Posts : 13
   Posted 2/26/2008 8:55 PM (GMT -7)   
Hi everyone and thank you so much for your support and help. There has been a major change here. Jim is now willing to stay here. Yaaay. He has had two good days in a row. He is thinking clearly and was able to communicate with logic and passion. I so love him. His "good" days make all my difficult days go "poof". A week ago his siblings were here and they had a real heart to heart talk with him regarding his wanting to move out on his own. I was holding my breath expecting Jim to tear into me after his sibs had left. Guess he really heard what they had to say and how concerned they were.

I know that his good days and good moods can change swiftly but today I celebrate.

I have so many questions about this disease and I am looking forward to chatting with all of you. I understand the personality changes when the encephalopathy level goes up. And boy it can strike without a hint. We have had many trips to the ER just dealing with that. We dole our the lactulose but there are times when that just doesn't do the job. I understand the fear of knowing you could go into a coma and never come out of it. I know it is Jim's greatest fear. It is ours also. June, I hear Jim say the same thing. He is afraid to sleep at night for fear that he won't wake up or he will wake up in the hospital again.

The weight loss is incredible. There are times that Jim simply cannot eat because he feels so ill. I keep a supply of supplemental drinks for him. It's not the best but it's better than nothing. The edema and the acides is a great problem, too. Each stay in the hospital results in 40 extra pounds of fluid in his body thanks to the IV's. That never made sense to me given his condition. Saline IV's when the diseased liver has a difficult time with salt? One doctor out of many actually heard me voice my concerns about the IV's and agreed to a 1/2 solution for a short time.

Jim's greatest problem is the skin eruptions. They weep. They itch. They bleed because he scratches them in his sleep. He has seen dermatologists and is now seeing an allergist. More Meds! And little cure.

Diet is my greatest challenge. Jim simply will not eat a healthy diet. He is very picky. We do low salt, whole wheat, lots of salads and lots of fresh fruits. He does enjoy the mulitgrain cereals now. There is hope. Jim has a passion for pickles, lemons, and lemon juice. He tends to go through phases but the phases are over-indulgence. His mouth breaks out frequently and I have suggested that he might want to cut back on the lemon juice, etc. He likes tea but uses three tea bags for one cup of tea. I hid the lemon juice.

Jim is always cold. I bought him a warming blanket for his bed and he really loves that. We heat mainly with wood and he gets so close to the stove that it scares me. I watch him like a hawk.

When the ammonia level goes up...encapholopathy...he is confused and could take the wrong amounts of meds or insulin if I don't dole them out for him. He has so many symptoms and from hour to hour I don't know what to expect next. I have talked with is doctors and just get the umm humm. They just nod their heads and tell me that this is normal. Okay, if that's normal what can we do to make him comfortable? No answer to that one.

Pink Grandma, thank you for the insight and for the helpful reality checks. I just need to know that what we are dealing with is "normal". Know what I mean? Transplant is out of the question. For one, Jim has a long standing history of drinking and using illegal drugs. For another, one of the requirements for this surgery is to have complete dental care done. His Medicare and his supplemental insurance does not cover dental. He need about 24 hundred dollars worth of dental care. I don't take Jim's verbal abuse personally, really. It just wears me out and makes me wonder if I am giving my all.

Shelly, thank you too for your support and ideas. Yes, I do have lots of hobbies but at this time many of them are on hold. My husband and I like to fish and hunt but we have to do that in shifts. Mostly I read, garden, and cook. We have lots of friends and family who visit us. My other kids are not able to help out with Jim because they live so far away or they are working. They have offered to come over so Nick and I can get away and have time together. I even wrote up a list of when Jim has his meds and what meds to give him. But....lots of buts here. They just are not able to step up to the plate.

Lucy, I am so sorry to hear that you have been diagnosed with cirrosis. I hope it is in the early stages and that you will be able to have a transplant. At least there is always hope. There are so many wonderful treatment programs that will help and new medical help is always on the way.

Well my new found friends, again, thank you. It is time to sign off and get Jim's insulin ready. Sincerely, Lee

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 2/26/2008 9:14 PM (GMT -7)   
Hello Chili, Glad that you have had some good days. And that he listened to his siblings.
When you have the bad days try to remember the good ones. My hat is off to you. It was hard enough dealing with my husband and this awful disease but I probably would have gone bonkers if it were my son. You are one tough cookie.
Those cravings that your son has? The lemons and pickles. My husband had them also. I finally had to have the doctor talk to him about them. The pickles are full of sodium and too much lemons/juice will thin the blood. The liver disease is already thining the blood too much as it is.

So sorry that a transplant isn't an option. Just enjoy every single minute you can with him.

Give Jim my regards and tell him I said to stay away from the pickles and lemons.

Thoughts and prayer to all.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


CHILI
New Member


Date Joined Feb 2008
Total Posts : 13
   Posted 2/27/2008 10:06 PM (GMT -7)   
Thank you Pink Grandma. I'll be sure to remind Jim about the pickles and lemons. Every little bit of information makes our days that much better. Just wish I knew why he has the cravings. Is there something lacking in his diet? Wish I knew why these past three days have been almost perfect, healthwise, for him. If we knew what we were doing right, we could just keep on with the program. Yeah, I know..... However, I do feel that he is relieved about his decision to stay here. Stress does have an impact on all of us but more so on someone with a disease such as his. Thanks again. Lee

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 2/29/2008 5:32 PM (GMT -7)   
Hi Lee, I don't think I have taken time to welcome you to the forum. I am really behind here. I am sorry that your son suffers from this terrible disease. I do know what you are going through. My husband also suffers from cirrhosis. He has frequent episodes of encephalopathy. I too wish I could figure out the difference from one day to the next. I have been trying for months and cannot find anything different that we are doing. I'm glad you got to have a few good days with your son. You have to cherish them because you never know when there will be another one.

You will be in my prayers.
Butterflythree
 
There is always hope!


CHILI
New Member


Date Joined Feb 2008
Total Posts : 13
   Posted 3/1/2008 12:14 PM (GMT -7)   
Hi Butterflythree, We must be on the same wave length. Just this morning I was telling Jim that I wish we knew what we were doing "right" because he has had a full five days of feeling almost normal. The skin breakouts are still a mystery and currently they are his greatest cause of distress. The itching keeps him awake and often it is unbearable. Lotions, pills, etc. Nothing seems to reduce the skin eruptions or the itchiness. The doc says it is the liver unable to process toxins so the bad stuff is coming out through his skin. The other doc seems to think that part of the eruptions are related to an allergic reaction to something he picked up at the hospital. This has been going on for years. The five good days have been free of the encephalopathy symptoms. However, you are so right. It can hit at any time. So yes, we are enjoying Jim's good days to the fullest. Jim has only 1/5 th of a functioning liver. How is your husband doing? What coping skills has he acquired? The best part is that you have each other. Thanks, Lee

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 3/1/2008 12:54 PM (GMT -7)   
Hi Lee, My husband's main problems are encephalopathy, swelling in his legs and feet, and extreme fatigue. He has never been told at what percentage his liver is functioning. The past few days his mental ability has been much better (still haven't figured out why). I can't really think of any coping skills he has acquired. He takes lactulose 2 to 3 times a day to keep the encephalopathy somewhat under control.
Butterflythree
 
There is always hope!


CHILI
New Member


Date Joined Feb 2008
Total Posts : 13
   Posted 3/3/2008 7:52 PM (GMT -7)   
Hi Butterflythree, Well, Jim's good week has ended. He started looking jaundice yesterday and now he is showing signs of ascites. Like you, I don't know why we had a good week but it was wonderful. He too takes lactulose to reduce the encephalopathy but today he was showing signs of that too. Yep, it is a roller coaster ride, isn't it? I called the doctor's office three times today but never got a call back. I am never sure of what to do since this disease is such a challenge. And a mystery. Guess the docs didn't think we had a high enough level of concern. Jim is a little better this evening. Okay, another sleepless night for me. Thanks for responding. Yes, your are right, there is always hope and that is what I cling too, HOPE

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 3/3/2008 8:01 PM (GMT -7)   
Hello Chili, How's Jim doing with the pickles and lemons. Those were very hard for my husband to give up. He gave up alcohol before them. Give him my regards...........Take care.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 3/5/2008 9:01 PM (GMT -7)   
Hi Lee, You are so right. This disease is a roller coaster ride. I'm sorry that Jim's good week has ended. I will pray that he has another very soon. I hope you are able to get some rest.

Take care.
Butterflythree
 
There is always hope!


CHILI
New Member


Date Joined Feb 2008
Total Posts : 13
   Posted 3/6/2008 12:23 PM (GMT -7)   
Hi Everyone,

The pickle and lemon phase has moved on for Jim. The good week ended with a bang. Now he is jaundice. Called the docs office three times on Monday. No call back. But strangely enough, Jim seems to feel okay and has been quite active. Don't understand any of this. The hardest part is to know when to call the doc and if I should rip them a new one for not calling back. Jim is so secretive and I don't always know what he's up to. Just found out that he got another RX for oxycodone. I thought the doc had insisted he should not be taking it and Jim did admit that he was addicted to it. He really has no pain other than he says the itching causes him pain. I am so disappointed in his doctor for giving in and letting him have the pain meds but worse, Jim did not tell me and therefore it was not added to his list of medications that I keep updated. When Jim was on pain meds in the past I kept them under lock and key because he has a history of taking too many. Now he has hidden them from me. At what point do I back off and at what point do I become more aggressive? Jim is back to being active and on the go. I am at a total loss. Along with Jim being out and about, he is buying junk food. The lemon/pickle phase ended and was replaced with bags and bags of cheetos. I hate being confrontational because Jim gets so angry with me. We talk and talk about the importance of healthy eating and he agrees at one level but will only eat high sodium junk food. I cook with low sodium, high fiber, foods because I am diabetic and have hypertention. Jim hates the meals I prepare. I'm going crazy. How does one help? Lee

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 3/7/2008 11:19 AM (GMT -7)   
Lee, my husband was on oxycodone, also, for severe back pain. He has hep b w/ cirrhosis. He was told that oxy, an opium nasal spray, and morphine pain patches were the only thing that he should take because of his liver disease. (I am not sure why, maybe because they are stronger and get in and out of the system faster without leaving residual effects?) I noticed the oxies gave him more energy then normal, even caused him NOT to sleep when he should be. One thing you must keep reminding yourself of, though your intentions concerning his food intake are purely out of love, he may have the outlook that he is going to live the rest of his life, his way, not yours. Believe me, I know how hard it is to watch someone do things that are going to hurt their bodies, but maybe for your own good, let him have his cheeto fix without giving him a hard time,,,actually it may be driving him to be more rebellious by "talking" about his diet so much. I would much rather someone have cheeto binges, then drinking binges,,,,for you own sanity you are probably going to have to prioritize issues, or you will find yourself constantly in an uproar about something with your son. By the way, welcome:)
I am not sure where I am going, but I sure know where I've been!
 


CHILI
New Member


Date Joined Feb 2008
Total Posts : 13
   Posted 3/8/2008 12:05 PM (GMT -7)   
Wheredidigo, Thanks for the response. Yes, I have noticed that the oxycodone causes my son to be more active and I have no problem with that. He's quite fun when he is up and around more often. How strange that his body should react that way when in reality, the drug makes one sleepy. You are so right about not making waves about what he eats. Honest, I don't. I might mention the high salt content in his binge foods but we don't go off the deep end. It just isn't worth it. Again, he is on a mission to move out on his own. It keeps him happy and active making these plans. He is looking at an apartment near his brother and less than a mile from us. It just might work out for him. Today we talked about the temptations of drinking when/if he is on his own. I used the analogy of thinking about when he was a kid and put salt on slugs and snails. I asked him to think about that when he is tempted to drink. I asked him to imagine his liver festering like the snails did. I also pointed out that his near death experiences and trips to the hospital have been 99 percent drug or alcohol related. He agrees with me and said he would think strongly about the salt and snail. So far things have been going well. He has been more active and he is sleeping better at night. Gotta love these good days. Thanks again. Everyone has been so helpful to me. Everyone's response is like receiving a basket of flowers. Lee

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/8/2008 11:38 PM (GMT -7)   

CHILI/Lee, I wanted to stop in and welcome you to the forum.  You have been getting some good info and suggestions.  I personally think part of your son's anger, etc., was due to drug withdrawal.  There could be some encephalopathy, also, but I do believe withdrawal was involved.  The good week that he had might be directly in response to his being on oxycodone.  Do you know for sure if the Rx was written by the same doc who refused him pain pills previously?  Or could he have gotten them illegally?  As a clean and sober addict/alcoholic, I can tell you that we can be really sneaky.  He could have gone to a different doctor, bought them from a friend of a friend, etc.  It really is essential that he not drink alcohol.  Has he ever been to AA?  Do you think he would be willing to try it, or try it again?  It literally saved my life--and at the time I was diagnosed with hep C, I had been sober for 6 yrs. and was on no drugs whatsoever.  Due to osteonecrosis, a disease in which bone dies, I had to start taking pain pills about 6 years ago.  I've had both hips replaced and 2 revisions...and will need another down the road.  I continue to take pain meds (Lortab), although in the past few months I've been able to cut the dosage to 2 a day.  I was prescribed ibuprofen 800 mg 3 x a day, but now only take that as needed....maybe 3 tabs a week.  I know that if I were suddenly taken off Lortab and it was not replaced with any other opiate, I would definitely have withdrawals.  My body has built up a physical tolerance.  I do not consider it addiction, which is a mind-set in which the addicted person always craves more (if one is good, 2 is better, etc.)  My doctors are fine with what I take and pleased that I have recently been able to decrease the amounts.

Since your son is not letting you have access to his pain pills, be aware of sudden agitation.  It could mean that he has run out of pills before he can renew them.

I also had the thought that his skin eruptions could be psorhiasis.

If he moves out, but lives nearby, it actually might work out for him.  Either way, you are going to worry about him.

Hugs and prayers for you and your family,

Connie



lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 3/9/2008 12:23 AM (GMT -7)   

 

     Chili:  When did your son start itching.  My Dr. prescribed oxycodone for severe arthritis pain quite a while back. I could not handle it because it gave me hives and one dose made me itch for about three days. I am still in  pain , but since I now have liver disease can no longer take ibuprofen or tylenol. I went to see my dr. recently and he said the only thing for pain , that wouldn't do more damage to my liver was  the oxycodone. He told me maybe a lower dose would work. Since I already have three bottles of it I told him I could try cutting them . I haven't been able to get myself to try it again. Even though I hurt all the time. The terrible itching side effect is still on my encephalopathic brain. eyes yeah eyes   june


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/10/2008 10:07 PM (GMT -7)   
June, try taking Benadryl when you take the oxycodone!  That could stave off the itching if it's an allergic reaction.  ;)
 
Hugs,
Connie

lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 3/19/2008 1:21 AM (GMT -7)   
Connie thanks for the suggestion. I didn't know if I was allowed to take Benadryl until last week when I went in for a 6 month check up. I told them about my lack of sleep. They suggested I take Benadryl. They still don't want me to take the medication I was on before for my anxiety disorder. I used to use it occationally for sleep. They tell me it is addictive and should not take it. So benadry will have to do. Thanks again. June
Guess I'll end up in ER if I have an anxiety attack. And they will
give me the same meds.
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